Fycompa and Upset Stomach: What Users Say

• Bre...
• April 7, 2020

For Epilepsy "My daughter is 30 years old and had her first seizure at 7 years old due to a fever. She has been on multiple meds through the years and has never stopped them for long. Onfi stopped them, but then came the side effects. We stopped that. Eight months ago, she started having drop seizures. Very scary. Epileptologist put her on Fycompa 6 weeks ago. And yep, the effects started. Zombie acting, can't focus or remember, clumsy. The stomach issues and being very aggressive and hostile. I can't take the chance of her getting worse and suicidal. Will try to lower until off. She only takes 1 pill, low dose. Prayers for everyone."

• Car...
• Taken for 1 to 2 years
• April 19, 2018

For Epilepsy "I have spent about 1 yr on this medication. No medication has ever worked for me before, so this was a first. I have juvenile myoclonic epilepsy (JME). Anyway, my biggest issues are: vertigo, nausea after every meal and nap, upset stomach, heartburn, drunk talking, unable to form words, unable to concentrate... sleep a lot. I first also gained 30 lbs but now I’m heading in the other direction because I can barely tolerate food with my stomach. My doctor won’t listen to me and says that there’s no more selection. I hate this medication! I want my life back!"

• Bee...
• Taken for 1 to 2 years
• May 22, 2018

For Epilepsy "Female, 27 yo. Fycompa is the only medication that controls my epilepsy. However, I’ve had the most terrible stomach problems from Fycompa 8 mg once a day. I can’t go a day without Tums, omeprazole, and famotidine. Doctors went ahead and gave me ondansetron as well. I’m pretty sure this medication has screwed up my stomach. Be forewarned that although it works, it’s terrible on your stomach. Pros: controls epilepsy. Cons: moody, sour stomach, throwing up, dizzy, nauseous, sweaty, weight gain, heartburn, lack of coordination (I walk like I’m drunk sometimes), can’t stop this med randomly as it causes worse seizures afterward, waking up at 5-6 am from nausea."

• Bee...
• Taken for 1 to 2 years
• May 22, 2018

For Epilepsy "Female, 27 yo. Fycompa is the only medication that controls my epilepsy. However, I’ve had the most terrible stomach problems from Fycompa 8 mg once a day. I can’t go a day without Tums, omeprazole, and famotidine. Doctors went ahead and gave me ondansetron as well. I’m pretty sure this medication has screwed up my stomach. Be forewarned that although it works, it’s terrible on your stomach. Pros: controls epilepsy. Cons: moody, sour stomach, throwing up, dizzy, nauseous, sweaty, weight gain, heartburn, lack of coordination (I walk like I’m drunk sometimes), can’t stop this med randomly as it causes worse seizures afterward, waking up at 5-6 am from nausea."