Fycompa and Seizures: What Users Say

• Tav...
• Taken for less than 1 month
• April 24, 2019

For Epilepsy "I took my first dose and had three seizures later that night in my sleep. My doctor didn't tell me that it could cause seizures, if he stated that, there is no way I would have agreed to try it. My husband and I agreed that there's no way I'm taking that ever again. I've been taking Dilantin since I was 13 and will stick with it, there is no way my doctor will get me to try anything else new after this experience. That stuff is not for me."

• NYY...
• Taken for 6 months to 1 year
• March 14, 2017

For Seizures "Fycompa is the best drug I have ever taken for seizures. I am nearly seizure-free. When I now have a seizure, I will stare for about two seconds. No falling or shaking. I have other meds, but this is a life changer."

• Key...
• Taken for 1 to 6 months
• October 6, 2022

For Epilepsy "I have focal epilepsy and have been struggling for 3 years to get it under control. I take Levetiracetam, which helps tremendously, but still had about 3 seizures per week. I started Fycompa approximately 4 months ago and love it! Oh my gosh, what a game changer! I still have seizures when I'm stressed, but they are much smaller, and I only need about an hour to recover (it used to be about 4 hours). Fycompa has also brought my personality back... I'm singing and dancing around the house again... I finally feel that I'm awake and alive again. This drug has worked for me."

• Hds...
• February 5, 2017

For Seizures "I tried this drug as part of a clinical trial for my 9-year-old son. On the second night of taking the medicine, he woke up having an over 7-minute seizure and stopped breathing during one of the clusters. His seizures were lasting 1 to 2 minutes prior, and he has never stopped breathing. I had to call 911, which I've never had to do before. It was very scary. We have dropped out of the trial. I'm disappointed, I was hoping this would help us as well as others."