Invega Sustenna User Reviews & Ratings (Page 2)
Invega Sustenna has an average rating of 4.0 out of 10 from a total of 194 reviews on Drugs.com. 27% of reviewers reported a positive experience, while 59% reported a negative experience.
Reviews for Invega Sustenna
- Ich...
- Taken for 2 to 5 years
- August 25, 2020
For Schizoaffective Disorder "I have taken this drug Invega Sustenna for a few years, and while it did help to stabilize my mood, it completely got rid of my sex drive and sperm production. I will no longer be taking this horrible abomination of a drug and will instead rely on people who I am close to for support. P.S. On a side note, now that I have been off this medication for a few months, I have noticed my sex drive is back!"
- Anonymous
- Taken for 6 months to 1 year
- December 14, 2018
For Schizophrenia "I started taking this medication as a monthly injection for hearing voices/paranoia, and I took it for about 6 months. It made me gain 40 lbs, I lost all sex drive, my mind became foggy, and I felt mentally slower. I also got severe anhedonia and became unable to feel the effects of alcohol and cigarettes. I don't recommend this medication to anyone. I've been off it for 4 months and am still dealing with the side effects of this medication. I will say that it did reduce the voices significantly, but only because it's such a powerful mind-numbing drug. I would advise trying something else if you really need a medication. Basically, a chemical lobotomy."
Frequently asked questions
- How long does Invega Sustenna take to work?
- Can you drink alcohol while taking Invega Sustenna?
- Invega Sustenna vs Invega Trinza vs Invega Hafyera. What's the difference?
- How to transition to Invega Trinza from Invega Sustenna ?
- Jun...
- Taken for 1 to 6 months
- February 3, 2019
For Schizoaffective Disorder "If you want your life back and want to finally quit hearing the voices, believing the delusions that persist in your head and just be able to live a “normal” life, then this medication is absolutely for you. You will overeat, gain a little weight, have restless nights, and sleep all afternoon, you will have restless leg syndrome where you just can’t sit still. It takes about a month and a half for side effects to diminish. I’m so thankful to finally be happy again and be able to hold down a job. Those dark voices are gone. I don’t read a news article and believe I spoke to the President of the United States personally anymore. Now I wake up every day with just a calm, happy persona both internally and externally. The best part is that it’s only a once-a-month injection. I’ll tell you that on the day of the shot I do still get a little dizzy and tired, so I usually request off the entire day so I can relax. But even my family has noticed the huge change in me."
- Gai...
- Taken for 2 to 5 years
- September 26, 2020
For Schizophrenia "I personally don't like this medication at all. It is simply impossible to stay lean and fit while taking it. Does it manage your symptoms of bipolar/schizophrenia/schizoaffective disorder? Yes. But myself and I believe many other people get to a point where they want to move on with their life after years of mental clarity. This drug will prevent that and prevent you from living a healthy lifestyle. It's been proven to elevate blood lipids to unhealthy levels and, in some cases, cause heart dysrhythmia. It's a good medication to stabilize patients with the mental illnesses listed above, but I truly believe this medication should not be prescribed long-term, especially if the individual prescribed it has managed their symptoms for multiple years."
Are you taking this medicine?
Your review helps others make informed decisions.- Bra...
- July 11, 2018
"I was mistreated with Invega when I got sent to a hospital for having a manic episode due to taking over-the-counter pills that had caused me not to sleep for 3 days. It has completely taken away my personality, who I am as a person, my social life, my sex drive. It feels like a huge piece of me is missing, and I will never get it back. DON'T let anyone inject you with this."
- kan...
- March 7, 2021
For Schizophrenia "Invega Sustenna nearly ruined my life. If I had given myself the choice between a life without the capacity to feel or be present while the rest of the world ignored my problem, or manage myself holistically with smaller challenges, I would have chosen the latter. Also note that breast milk develops in most patients, and it took nearly a year of removing the drug/pharmaceutical from my system to put an end to that nightmare. Choose what you put into your body wisely."
More FAQ
- Does Invega Sustenna need to be refrigerated?
- How do you give an Invega Sustenna injection?
- How to transition to Invega Hayfera from Invega Trinza or Invega Sustenna?
- Mor...
- Taken for 1 to 2 years
- February 29, 2020
For Schizoaffective Disorder "While the Invega Sustenna negated my psychosis, I have experienced anhedonia and lactation due to raised prolactin levels. I can't enjoy music or anything else for that matter. I also now have a tic where I have to move my mouth, I don't know if it's medication-related. I get my period once every three months and have lowered sexual pleasure. I feel like this drug took any enjoyment out of life, and I'd rather be on something else as my symptoms are not severe and Invega is not good."
- Fin...
- Taken for 5 to 10 years
- July 24, 2019
For Schizoaffective Disorder "I was in denial about my illness for about 8 years before I finally went to the hospital by police escort (with the help of my family). I had lost my marriage, couldn’t do my job, and I couldn’t figure out why all this was happening to me. The doctor at the hospital ordered the Invega Sustenna injection, and it completely turned my life around. 5 years later, I’m in a great relationship, and I’ve been able to go back to school, earning A’s in my classes. People like me again. I did try to go off of the medication last year with the help of my doctor to see if having children would be possible. We have to do more homework on our options because I was only able to stay off for 6 months after the taper. For me, I’m very thankful for this medication. Yes, I gained 20 pounds, but that isn’t terrible when I consider that I’m no longer hurting the people who care about me."
- Yus...
- December 22, 2019
For Schizophrenia "Gained 40 lbs in two weeks right after taking it. Made me pale (I'm olive complexion). Made anxiety horrible for a few months (could not stop moving around). Messed up sleeping habits for a few months. Stopped my periods for three months in a row. Never had problems with any of these things before taking. Been off for ten months now, just now getting back to close to normal."
- Bry...
- Taken for 2 to 5 years
- November 9, 2018
"I took this injection for 5 years, and it was the most pain I've ever experienced. I had to get a legal assistant and do a review panel to get off the injection, and I won. I've been off it for 4.5 months now and still laying in bed all day with extreme pain. They should stop giving this medication, make it illegal, and give money back for time lost at work and extreme pain! Rips me off because I have great parents and love my family, so what's going on? I'm so thankful I'm off it now and feeling a bit better, so hoping I get healthy and happy again! Don't take it, it's poison....!!"
- Coq...
- Taken for 1 to 2 years
- November 24, 2021
For Schizoaffective Disorder "I took Invega Sustenna for a year and a half. I was forced on it by my old mental hospital, and the family member I was living with told me I had to stay on Invega to live with this person. I got a 234 mg shot once a month for a year and a half. This drug completely ruined my life. It is absolute garbage for anyone's body. I went from 170 pounds to 300 pounds within this time frame (this is literally the most weight I had ever gained in my entire LIFE.) It turned me into a complete couch potato, made me so lazy and tired that I had to drink at least 3 cups of coffee a day to counter this problem. It completely destroyed my motivation for doing ANYTHING throughout my day. I sat around eating junk food, but also healthy food. Regardless of what I ate, I would gain 10 pounds every single month. I am really tired of the USA and its doctors promoting these awful 'medications' to sick people as if they are good options. There was zero benefit to using Invega, do NOT take this drug."
- Gre...
- Taken for less than 1 month
- May 13, 2019
For Schizophrenia "I was injected twice with Invega Sustenna. I had no sex drive, no emotion, no pleasure for the first three weeks. I was miserable, and it lasted 8 to 9 months off the drug. I wouldn't recommend this drug to anybody. I am on Abilify Maintena now, and I am feeling much better. 0/10 Invega Sustenna."
- Inv...
- Taken for less than 1 month
- May 15, 2016
"DO NOT TAKE THIS MEDICINE. I had one shot of Invega two years ago. I have quit my jobs, dropped out of school, and hate myself. I now suffer irregular muscle movements, inability to resensitize (process new information), hypertension, and slow metabolism. Don't take this medication. Don't take this medication. Don't take this medication. Do not take this medication. If you don't believe me, then keep searching Invega Sustenna reviews. Thousands of negative reviews."
- Dar...
- Taken for 5 to 10 years
- February 24, 2021
For Schizophrenia "Miserable all the time on these Invega injections from several side effects. I'm mentally blank like poverty in thoughts. I'll sit around a lot staring at TV while mindless. I have no emotions except anxiety and akathisia, which is chronic restlessness. I take Inderal blood pressure medication to treat akathisia. Feel like an emotionless robot going through the motions and barely alive. Poor memory, focus, learning, and concentration. Feel physically numb. Gained 40 pounds. No sex drive and no libido. No interest and motivation to do anything."
- inv...
- December 28, 2018
"Suffered from delusions while awake for 4 days. I am bipolar. Got admitted to the hospital after the police brought me in. Was given about 8 days of Zyprexa and felt relatively normal. The MDs sold Invega Sustenna as a way to stay free of psychotic behavior and to not have to take a daily pill. My biggest side effect is sedation. I find it incredibly hard to stay up past 8 pm and then stay in bed as late as I can (11 am). It's like all my dopamine/serotonin is just gone, I feel like a zombie. I received the initial dosage intramuscularly on Dec 14th (234 mg) and the second initial dosage intramuscularly on Dec 19th (156 mg). It is now the 28th, and I have felt horrible every single day I have been on it. Will be discussing with my psychiatrist. If the half-life of this drug is true, this should stay with me until June. If you are not schizophrenic, do not choose to take even the initial dose of this drug, you are signing up for a horrible ride with no going back once it begins."
- Ano...
- Taken for 1 to 2 years
- June 7, 2018
For Schizoaffective Disorder "I feel like this medication has ruined my life completely because I ended up gaining weight, having prediabetes, and not having my period for 2 years. My biggest concern is am I gonna be able to have children when I get older. I decided that I rather stop taking this medication because it can ruin your future."
- She...
- Taken for 6 months to 1 year
- July 4, 2019
For Schizoaffective Disorder "Horrible drug, causes weight gain. I call it the '15 lbs shot', with every shot, I gained another 15 lbs. My hallucinations went into overdrive, I could not sleep, depressed, angry, overweight, psychotic, hated every day. I am now seeing a new psychiatrist, and I am getting my life back without the Invega Sustenna injection."
- day...
- January 30, 2018
For Schizoaffective Disorder "This is the worst possible nightmare of a drug. I was injected with one 234 mg dose and never took the 2nd shot or 156 mg because I felt so horrible. I was so miserable I wanted to die. I had no emotion, no imagination, no memory, and no initiative. I disappeared into a dark hole for months. It took 6 months before I started to feel any better. It took about 2 1/2 years before I felt like I was anywhere near back to normal. Don't let anyone inject you with this poison. You will regret it."
- Inv...
- February 28, 2018
For Schizophrenia "Warning: this shot will destroy your life. I only had 1 shot, the 234 mg. I dropped out of school, became depressed. It's been 3 years, and I still suffer from absence of emotion. It doesn't sound like much, but trust me, life becomes empty without emotions. In some cultures, hallucinations are a sign from beyond. People that can hear or see things will often become shamans, medicine men, or healers. I highly recommend meditation and/or seeing someone that is an energy healer."
- sae...
- May 7, 2019
For Schizophrenia "I've been on this drug/medicine for about two years, and it has caused a lot of problems in my life. It barely helped with the auditory hallucinations such as the voices and paranoia. I feel like a zombie all the time, really tired, drained of energy, and like my brain is slowed down. I've had little to no sex drive (sexual dysfunction) and have no pleasure from sex. Within the first couple of weeks of getting the injection of Invega Sustenna every month, I get muscle stiffness in my neck, arms, and hands. I feel like I can't breathe, along with a rapid heartbeat and a fever. I become confused, unable to function, dizzy, and lightheaded. This happens two to three times a month within a few weeks after getting the injection. I believe it might be because of NMS (neuroleptic malignant syndrome), which is a rare side effect of the drug/medicine that might cause death. This is a horrible drug/medicine for me. I'm going to try a different medicine from a different doctor and hope for the best."
- cji...
- Taken for less than 1 month
- May 26, 2019
For Schizoaffective Disorder "I was misdiagnosed with schizoaffective disorder and received the booster and initial shot of this medication. I had terrible side effects, including 60 lb of weight gain. I also slept a lot and had little energy. After 6 months of discontinuation, I finally started losing weight and returned to my normal weight. I had to take a gap year during this time, and this drug wasted a year of my life."
- Blu...
- March 12, 2021
For Schizoaffective Disorder "Since I've been put on this medicine, I've had a difficult time socializing. I have trouble with conversations, and everyday activities seem very overwhelming and hard. Work has become increasingly difficult to perform. I'm also very easily tired compared to before taking this medication. This drug shouldn't be allowed to be prescribed to people. I now fear having to talk to people. I also have a very difficult time being sexually aroused."
- Str...
- Taken for 6 months to 1 year
- November 5, 2018
For Schizophrenia "Invega Sustenna was a horrible experience for me. This medication caused me to gain 20-30 pounds. It stopped my monthly cycles. I was also not able to experience sexual pleasure. This medication ruins lives."
- Jac...
- Taken for 1 to 2 years
- September 14, 2017
For Schizophrenia "Okay, let me get started. Every social worker, psychologist, and mental health doctor shouldn't prescribe this drug to anyone. It is harmful in so many ways. I took it for 1-2 years because they said I had bad schizophrenia. I did not have bad anything except a drug issue, which they already knew as they had tested my urine, but they didn't take that into consideration. If you take this drug, you will sleep away your life. You will lose your train of thought every 5 sentences. You will probably have a 75% chance of losing your job in a fast-paced environment. When you take this drug, you will lose muscles, goals, and cause you to get depressed."
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Your review helps others make informed decisions.More about Invega Sustenna (paliperidone)
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Other brands
Invega Trinza, Invega Hafyera, Erzofri
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Other brands
Invega Trinza, Invega Hafyera, Erzofri
For Schizoaffective Disorder "Well, now I now know why they call psychiatrists 'shrinks.' I have been on this drug for years. I have tried taking vitamins and eating healthy to stay well and still gained 50 pounds. I have far too many headaches and sleep all day. I think they finally did it - they shrunk my brain!"