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Invega Sustenna for Schizophrenia User Reviews (Page 3)

Invega Sustenna has an average rating of 3.6 out of 10 from a total of 92 reviews for the treatment of Schizophrenia. 23% of reviewers reported a positive experience, while 67% reported a negative experience.

Reviews for Invega Sustenna

  • jodubz
  • Taken for 1 to 6 months
  • October 8, 2016

"this medication is the best anti psychotic i ever took, i'm getting the shot 244 mg, and the delusions and hallucinations are under control, this medicine is a life saver. the side effects i experience is anxiety and weight but overall it's a great medicine."

8 / 10
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24 Report
  • Dust
  • Taken for 1 to 2 years
  • November 30, 2020

"When taking Invega Sustenna you have either no emotions some days or it's out of control literally laughing crying and anger. Also if you're like me you can't hardly sit down makes me move a whole bunch."

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  • h0m39...
  • Taken for 2 to 5 years
  • February 8, 2018

"So I've been on this medication since 2014. Diagnosed with schizophrenia back in 2011 when I told doctors I was visited by spirits at a young age. They didn't believe me though I swear on my life it is true. Anyway, I was on 150mg. Had the worst side effects you could imagine. Very high prolactin levels, lactating from my breasts, amenorrhoea, absolutely no motivation at all, pretty much glued to my bed & phone. So they adjusted my dose twice & now I am feeling a bit better. Not a lot better though I would say. They say that a schizophrenia diagnosis is something you deal with for life so I would be careful what you tell your doctors. You could be on medication for life."

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20 Report

Frequently asked questions

  • Vandkk
  • Taken for 1 to 2 years
  • June 12, 2022

"I loveeee invega. It has helped me with my schizophrenia 100%. No more delusional thoughts and paranoia. No more of this fearful feeling. My life is bright and back to normal. I've been taking it for 2 years. The only side effect I've had is hyperproteinemia. It stopped my periods, had liquid coming out my breast. You know.. symptoms of high prolactin levels. So my doctor put me on ability along with a lower dose of Invega Sustena and within a month and a half I had my period and my prolactin went back to normal. I never want to get of this injection because it REALLY took away my mental health problems. I would definitely recommend. Works like a miracle"

9 / 10
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  • delucz
  • January 13, 2014

"I found this medication to cause side effects of swaying while standing up & sometimes rocking back and forth whilst sitting down. Because this is taken monthly I am on 150mg, towards the end of the month I became unwell and psychotic symptoms reoccurred. Delusional thoughts mainly. I am now going to try Abilify and hope I don't have bad side effects but I know that without my medication I would relapse. "

5 / 10
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27 Report

Are you taking this medicine?

  • RBano
  • Taken for 1 to 2 years
  • December 4, 2019

"Took 100 mg of the paliperidone drug (european dosing) when I was psychotic and, for 1 year (same dose, later added 20 mg Zyprexa), while the psychosis had gone, delusions and hallucinations persisted the entire time. Also, it raised my prolactin level to rocketing levels (2000 mIU/L). Although it kept me away from psychosis, there are better alternatives for the disease."

3 / 10
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  • inveg...
  • Taken for 1 to 6 months
  • November 24, 2022

"I've been off this med for three years, and I've never recovered my sex drive. I have permanent erectile dysfunction. I'm unable to feel love, happiness, joy, or excitement. I can't even cry. Oh, and it also made me infertile. My semen is completely clear and I did a semen analysis and my levels are incredibly low."

1 / 10
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6 Report

More FAQ

  • Helpm...
  • Taken for 1 to 2 years
  • November 6, 2021

"When I was on the 75mg injection I wouldn’t stop gaining weight my weight went from 104lbs to 136lbs and was increasing with crazy hunger. I had bad acne from this medication, no period, couldn’t workout, went to bed at 6:00pm, lost my internal voice, couldn’t think at all. They dropped me down to 50mgs and the weight persisted. They then spaced out my injection to five weeks apart and I dropped some weight but not enough to be proud of I’m around 120lbs still don’t have a period, have crazy hunger, no internal voice, can’t perform like I used to, have puffy eye lids, one drooping eye lid, can’t use my imagination, bad memory, can’t lose weight, don’t sleep at night and the side effects keep piling up. It has taken away my voices during the day and my delusions."

5 / 10
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  • Rose
  • Taken for 1 to 6 months
  • April 29, 2020

"Taking this drug invega sustenna helped a bit with my schizophrenia symptoms. The side effects on the other hand were something else. I was significantly slowed down both mentally and physically. I did lose about 5 pounds and lost interest in food most probably due to feeling really depressed about my condition. I also couldn’t stop walking about, I couldn’t sit still anywhere for up to 2 mins. I also had abnormal muscle movements, my vision became really bad and blurry and I was drowsy all the time especially after taking a dose."

3 / 10
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  • Mille...
  • Taken for 5 to 10 years
  • June 18, 2017

"I've been taking invega (all forms) since 2011. I have to say it is a god send. Risperdal and abilify gave me sexual dysfunction. This at least allows me to get an erection. It's done a great job at controlling my positive symptoms of schizophrenia. The voices are dulled down to the point of single sentences and like only 1-4 times a day so it's a lot more managable in day to day life. Started on sustenna, went on the tablets and now on Trinza. All versions work very well for me. This medication is the metabolite form of risperdal and it's a god send. It's easier on the liver and I highly recommend sustenna and Trinza as the form to take for schizophrenia/schizoaffective!"

10 / 10
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  • pazma...
  • Taken for less than 1 month
  • April 12, 2015

"My daughter had the injection this month.It stopped her psychosis, still a little paranoia. The first ten days severe pain in neck. Also some dizziness still and balance problems she says. She took cogentin for neck. Some relief from the neck now. Another issue from blood test is high prolactin level. We will be seeing her Dr this week .Dont know if side effects worth it"

7 / 10
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21 Report
  • Tonyt
  • June 3, 2017

"Before my psychotic break that turned into a delusional police chase I was manic, terribly delusional, thought the devil was everywhere I went, thought people were after me, thought devil controlled electronics and the internet. Just too many bad symptoms and after receiving invega injection I've been told that I was more outgoing, and had absolutely no symptoms. But the side effects sucks such as high prolactin levels which resulted in low testosterone, anhedonia, and lower emotions"

9 / 10
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16 Report
  • Sam_mig
  • December 26, 2017

"Absolutely amazing. Made me back to normal, before I took the invega shot I had extreme paranoia thinking people wanted to kill me, thought the government was purposely making it hard for me not to be homeless and literally thought my life was like the Truman show at some points and that everyone was actors around me, and wanted to kill me, literally within a day after taking this my life had changed and I became myself again before all the medication started."

10 / 10
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15 Report
  • Anony...
  • Taken for 6 months to 1 year
  • December 29, 2020

"I was first almost forced to take this as an injection at the Mental Health Center. I have been on it for some time but notice it causes way too much anxiety and feeling that I'm afraid of myself. I'm not sure if I was ever supposed to take this at all."

1 / 10
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  • cnoble
  • Taken for 2 to 5 years
  • December 15, 2016

"My side effect was like no other side effect I have had. I was leaning to the left no matter what I was doing. Sitting, standing, walking, even driving a car, My 3 boys revoked my license. I really was okay and thankful to them. I am and have been going to a pain clinic for many years because of my back. It only made my back hurt more. Free of mental pain? Free of physical pain? Physical won!! My family doctor figured it out. So I guess just watch for anything different, Because if there was any good, the bad took it away. That is my opinions, It hurt me more than it helped me, I am very to see how many received help and relief from it."

1 / 10
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  • just...
  • Taken for 1 to 2 years
  • January 25, 2018

"I have a loved one who had a very long period (over 7 years) where she was unmedicated with active frightening visual and auditory hallucinations before she was able to receive help. After a 4 month hospitalization and oral antipsychotics including Zyprexa she was still totally delusional. After starting community based treatment she was started on Invega Sustana and within 2 months she was better than she has been in over 10 years. I was able to see glimpses of who she was before her brain disorder took over her life. She thinks that the shots are like water and they do nothing. Anosognosia (lack of insight) is a very difficult issue with her so I am beyond pleased this medications ability to improve my love ones life."

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12 Report
  • one...
  • Taken for 1 to 2 years
  • June 17, 2020

"I dunno... I was on this drug three times for mental health reasons and I didn't know that these drugs keep you from enjoying the best thing in life and that's stuffing your face!Iit takes a lot of experimentation to find the right foods that you can use as comfort foods. Watch out for secrets because if you have an eating disorder they tweak the meds and try to keep you from committing suicide. The drug just brings on these eating desires. I'm not blaming the medical profession, it pays to have this information BEFORE you start taking this drug. Its more cost effective to ...oh who am i kidding? im an overweight diabetic who can't stand the heat outside or the heat from exercising... be sure the only thing you have is plain water handy because the heat will do that to you... Severe thirst alert!"

7 / 10
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  • molat...
  • Taken for 1 to 2 years
  • October 10, 2018

"I've been taking invega sustenna for a little over a year now and for the majority of that year I had absolutely no positive or negative symptoms. Recently though, the paranoia a slight delusions have started to creep back into my mind. My psychiatrist upped my dose to 234 mg and now I can't stop eating and I'm hungry all the time. I already had a binge eating disorder but now it's infinitely worse. Also, the newer symptoms are still there. We're currently trying metformin to help with my appetite but so far it's doing absolutely nothing. I'm now thinking that I want to try switching to ziprasidone. It's supposed to be really good with weight management, but I'm worried it might not be as effective with my mental symptoms? I can't freak out because I'm working and going to school now. Back to invega though, I guess I can thank this medication for giving me my life back and making it so I can function in society. But I can't handle the weight gain..."

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  • Ahadh...
  • Taken for 1 to 6 months
  • January 18, 2022

"Gave me my life back. BEST antipsychotic. Tried many. Felt the most mentally healthy I had in years. Felt like I did before my illness. At first felt like I couldn't day dream or use my imagination as good. But I soon realized I was feeling inner-peace and had the clearest of minds despite that.. Used to hear voices, have obsessive intrusive thoughts, had thought broadcasting, delusions, auditory hallucinations, hyper-awareness of thoughts, constant negative commentary and was used to feeling generally ''bad'' always . This was all gone. I was 100% symptom free and was the most normal I had been in years. Completely nullified all psychotic symptoms. Had a healthy sleep cycle too. But it's not magic so it didn't synthetically make me happy or disallow me from feeling negative emotion. I still felt pain and happiness was still rare. But for the most part I was content and loved my life again. Only con: Lost my libido but I could still have erections. So it was a fair trade-off."

10 / 10
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  • Earnh...
  • Taken for 1 to 6 months
  • October 13, 2022

"Terrible experience. I have slurred speech, head tremors, loss of thought, memory loss, lower IQ, weight gain, and disconnected from reality. I have lost all my friends from not being able to communicate. I shuffle when I walk. I would not wish I this on my worst enemy. My family thinks I am mentally impaired. It is hard for me to make eye contact with people as my vision has slowed. I have been off of the 150mg injection for 2 months and have seen no improvement. If it takes 14 months like the other reviews mention I don’t know how I’m going to make it."

1 / 10
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  • Anonymous
  • Taken for 1 to 6 months
  • May 6, 2023

"So I got real bad pacing problems when I took Susanna Invega. I couldn't stop walking, even for days straight when I walked all night in my parents garage. Yeah, they should stop giving this to people. Very glad I came out of that."

1 / 10
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  • Anony...
  • March 6, 2019

"This has helped with the symptoms of my illness. There are negative symptoms to it though. Foggy emotions, not sure if it’s cuz of the illness or the med. I am sort of happy now though, but no sex drive, periods, and gained 75 pounds. I took fluphenazine for a couple months, lost 20 pounds but felt worse than when I was on invega."

4 / 10
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  • Anony...
  • Taken for 1 to 2 years
  • January 4, 2023

"I changed to Invega sustenna because other medications caused weight gain. I was taking 100mg and 75mg of Invega sustenna and it caused severe depression and made me suicidal. The doctor didn't recognize these to be side effects. I have decreased the dosage to 50mg now, and still very flat. I find it hard to think, to remember, to find any joy or interest in life. I still get suicidal, and am depressed."

1 / 10
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  • thebe...
  • Taken for less than 1 month
  • August 3, 2022

"Invega Sustenna made me sicker than I was already sick, it does not work was put on just about all antipsychotics they will make you sick gain 10 lbs in a month. Iwent off it no weight loss and cause withdrawal. The weight gain is permanent."

1 / 10
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  • Mary
  • March 19, 2022

"Most horrible medication my son was on for 4 months, did not stop hallucinations and made him rage to the point he had to be hospitalized. Doctor kept telling us to give it time, big mistake made me son so aggressive punched walls, fought with police, as soon as the gave him Abilify injection he has been doing better. There is a reason why Invega scores so low."

1 / 10
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2 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

Learn more about Schizophrenia

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