Mepolizumab User Reviews & Ratings (Page 4)

• Blu...
• Taken for 1 to 6 months
• March 14, 2021

Mepolizumab for Eosinophilic Granulomatosis with Polyangiitis "I have had asthma on and off for 60 years. Last year, a blood test showed eosinophilic asthma, which made me eligible for Nucala. This is subsidized by the Australian government. Over the years, I no longer responded to prednisone or inhalers and was very glad that Nucala worked for the first 3 months. I felt like a new woman, and my respiratory specialist was overjoyed that at last something worked. But after another 2 months, I no longer had any benefit for my breathlessness. I am due for injection No. 6 next week, so I will see if I respond again favorably. I had no side effects."

• gre...
• Taken for 1 to 2 years
• November 11, 2023

Mepolizumab for Asthma "I'm 64, was put on disability at 62 due to severe cough asthma and reflux. Prednisolone helped a bit, but a skeleton X-ray showed severe loss of bone structure. Was given first Dupixent for 3 months, no improvement, then Nucala. I've been on it every 4 weeks since. Asthma and cough are gone, but I produce a lot of snot and have some hair loss. All in all, so far I give Nucala 9 out of 10 in my personal opinion. PS. Still use Flutiform inhalation in the morning, and I have some issues with hypertension and prostate that I medicate with pills and yearly check-up (Norway national healthcare system)."

• Mor...
• Taken for 5 to 10 years
• April 6, 2022

Mepolizumab for Eosinophilic Granulomatosis with Polyangiitis "On Nucala ~5 years for Eosinophilic Granulomatosis with Polyangiitis (EGPA). EGPA manifests like asthma, I suspect it is more nuanced. Close enough! I have only used a month-long steroid inhaler to get a handle on a rare extreme seasonal flare-up 2x during the past ~5 years. The source of any side effects is hard to attribute because they require going off meds to narrow the true cause. That is not practical for me. Skin rashes preceded first injections by months and about 2 years of inconclusive dermatology investigations before it abated. Recurs occasionally. Rash vaguely resembles early shingles, and I can't say it's the Nucala, but it may be a component. A general malaise during autumn and winter is common (in my experience). This might be EGPA-related, boosting prednisone for 2 weeks sets things right. I am reactive to prednisone, and it has its own downside. Currently: more frequent aches/back pains this year. COVID shutdown = poor muscle tone could be exacerbating it as much as any drug."

• Dav...
• Taken for less than 1 month
• August 8, 2018

Mepolizumab for Asthma "Nucala makes it so difficult to get the injection that by the time you find a facility that will do it, you're so worn out you give up. And I have insurance that will cover it. Why is it that Dr. offices have to enroll in a prepay program to get the drug? If it was that great, they wouldn't need to do that. Scam."

• Jos...
• Taken for 2 to 5 years
• August 7, 2021

For Hypereosinophilic Syndrome "My daughter has been on 3 shots of Nucala once a month, and it is working wonderfully. She did it as a clinical trial at her doctor's office, and now that it is approved, she receives the injections at her house, and her eosinophil numbers are perfect. She is an RN, so she has no problem with the injections, and her case is idiopathic (no known cause). The question remains as to whether they feel comfortable having a baby. Waiting for registry results."

• Ter...
• Taken for 1 to 2 years
• January 2, 2021

Mepolizumab for Asthma "Nucala has changed my life in a positive way. I no longer get sinus infections twice a year that take months to get over. If I do get sick, it runs a normal course of 10-14 days, and I’m better. My asthma and allergies are much better controlled."

• Lyn...
• Taken for 1 to 2 years
• May 15, 2020

Mepolizumab for Eosinophilic Granulomatosis with Polyangiitis "Had great results initially. No Xopenex! Four months ago, delivery changed to pre-prepared shots packaged by the manufacturer instead of being mixed by pharmacists on-site after I arrived. Health deteriorated for four months, from 20 minutes on the treadmill to tough 5-minute walks and oxygen at night. Shot can be delivered from the hospital about 2 miles away any time from hours to days or weeks. Not sure if that is the problem. Comments?"

• Jan...
• Taken for 5 to 10 years
• June 29, 2024

"I have been on Nucala 100mg for over 7 years. My pulmonologist took me off of it thinking I did not need it. But since then, I have had problems with my breathing so I am taking it again. My problem is being able to afford it. I wish there was a generic form on the market."

• Whe...
• July 14, 2018

For Asthma "I have had asthma since infancy, and up until I turned 23, I only suffered from a minor attack maybe once a year. And then... my life turned upside down. I began having severe, life-threatening attacks every 4-8 weeks, resulting in long hospital stays. I was put on a number of asthma medications: Uniphillin, montelukast, prednisone, Kenalog injections, my blue reliever, Fostair, and Spiriva. I went from working full-time in a nursing home to long-term sick, and depression set in as my quality of life dwindled away with each attack. Finally, after a year of waiting, I was told I was going to be trialed on Mepo. From the first injection, I felt positive, and I am now coming up to my fourth injection and have had no attacks. I have been able to return to work, and my quality of life is slowly improving. Unfortunately, I now suffer with quite severe anxiety, which leaves me feeling breathless, but I'm hoping with time that too will ease. Still early days, but long may it continue."

• Gus...
• Taken for 1 to 2 years
• June 27, 2023

Mepolizumab for Asthma "I'm from Argentina and have had asthma since I was 8. I started using Nucala 2 years ago. It took at least 8 to 9 months to have an effect on my body, but it was amazing. Before Nucala, I used to nebulize 6 or 7 times a day and would wake up at night at 3 am because I needed a nebulization. I even had a nebulizer with a battery to use on trips, but now I have it stored away. Nucala changed my life. It's a pen, which I press to my tummy, and after hearing one click, 20 seconds later, I hear a second click, and that's it. I use it once a month and have had no side effects."

• Anonymous
• Taken for 2 to 5 years
• March 2, 2023

"Mepolizumab has proven to be very effective and is a transformative life changer/enhancer for me. For many years/decades I put up with skin damage and bone risk caused by prednisolone. Since commencing mepolizumab I have been able to stop prednisolone."

• GoO...
• Taken for 1 to 6 months
• January 7, 2019

For Asthma "Been diagnosed with asthma and COPD in 2007. My asthma got worse over the years, was on steroids but nothing seems to help, been hospitalized in 2017 twice. My doctor recommended trying Mepo. I started in August 2018, it took some time before I felt the difference. But I say that I have fewer problems since I got the injection, fewer infections, a bit more energy. I get my last one this month and see my doctor if I can continue with the injection. I believe that it will definitely help me to cope with my asthma and improve my lifestyle."

• Mor...
• Taken for 5 to 10 years
• April 6, 2022

For Eosinophilic Granulomatosis with Polyangiitis "Hope this helps someone else: Nucala works quite well. I can’t imagine where I’d be without it. Several other conditions were tested before my diagnosis of EGPA, including aspergillosis. Eventually, a lung biopsy and the opinion of a leading EGPA specialist confirmed EGPA. Have been tested for hypereosinophilia (yes, there is a test) and was negative. OK, so it's definitely EGPA! Uncertain if any issues I have are true side effects of the drug or due to other meds and conditions. I just want to feel good and not dwell on daily ups and downs, though I think I should have sucked it up and kept a medical journal. (I made this mistake with regard to another med some years ago. Keep a journal for a few months or years when adding or changing meds, you may find it useful). Been on Nucala for 5 years or thereabouts after coming down with a vicious bout of pulmonary issues and pneumonia that were distilled down to EGPA/Eosinophilic Asthma."

• Can...
• Taken for 2 to 5 years
• April 6, 2025

Mepolizumab for Hypereosinophilic Syndrome "I have been using it for 3 years. Before starting the medication, I was hospitalized at least 3 times a year. Since I started taking the medication, I have only been hospitalized once. At first, I was scared, but it helped."

• 12a...
• Taken for 2 to 5 years
• August 28, 2019

Mepolizumab for Asthma "This drug changed my quality of life 180 degrees to the good... a miracle for me."

• zvs...
• Taken for 2 to 5 years
• March 22, 2024

Mepolizumab for Eosinophilic Granulomatosis with Polyangiitis "Since I started on the medication, I have no flares of EGPA - no pain, no skin issues, and my asthma is virtually non-existent."

• Ron...
• Taken for 1 to 6 months
• April 7, 2019

Mepolizumab for Asthma "I have been taking this for 1 year and four months. It's been keeping me out of the hospital for sure. I've been wheezing a lot off and on. Has anybody had a problem with hair loss?"

• Lou...
• October 19, 2024

Mepolizumab for Asthma "Suffering from eosinophilic asthma, Nucala did a great job. A side effect for me was arthritis (joint pain of medium to severe grade)."

• Sho...
• Taken for 6 months to 1 year
• June 14, 2020

Mepolizumab for Asthma "I’ve had seven injections and have had an asthma attack a day the last two of them. I thought this would prevent an asthma attack, not cause one. Won’t be getting another injection of this."

• Bre...
• Taken for 2 to 5 years
• August 2, 2019

Mepolizumab for Asthma "I wouldn't be alive if not for this drug."

• Ter...
• Taken for less than 1 month
• September 8, 2021

Mepolizumab for Asthma "I had the worst side effects ever! My face was completely stuffy, I couldn’t stop coughing, and there was a pain in my side where I gave the injection. And I couldn’t hold my bladder."

• Cla...
• Taken for 1 to 2 years
• October 14, 2021

Mepolizumab for Asthma "52F, have been taking it for 14 months. It’s a miracle drug to me, I am off prednisone since my first injection, however, I have lost half to 2/3 of my hair."

• Ach...
• March 18, 2023

Mepolizumab for Eosinophilic Granulomatosis with Polyangiitis "Nucala makes my back hurt. I feel queasy. Pain in the left upper abdomen. I'm on the 4th dose. Not sure about this Nucala, especially after all the positive hype from the doctors."

• Ton...
• Taken for 6 months to 1 year
• October 13, 2024

Mepolizumab for Chronic Rhinosinusitis With Nasal Polyps "I have been using it for 9 months now and have not had a sinus infection yet. This is a record for me. I have not experienced any side effects from using this medicine."

• Mik...
• Taken for 1 to 6 months
• November 15, 2021

Mepolizumab for Chronic Rhinosinusitis With Nasal Polyps "Developed dry lips, dry mouth, sore dry tongue, and bumps on the roof of mouth and gums. Occurred after 4th injection."