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User Reviews for Omalizumab

Also known as: Xolair

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Learn more about Omalizumab.

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Condition DownUp Reviews Compare Avg. Ratings DownUp
Asthma, Maintenance 43 reviews 119 medications
   
8.3
Urticaria 63 reviews 189 medications
   
8.3
Summary of Omalizumab reviews 106 reviews 8.3

Reviews for Omalizumab

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Xolair (omalizumab) for Urticaria: "I have been receiving xolair injections for about a year and a half for chronic hives. It has gotten rid of it about 90 percent. Once in awhile I still need one or two 25mg benadryl tabs but overall it seems to be working. I get 150mg injections every 2 weeks. Only side effect is every time I get an injection, within a few days I get 1 hive about 5 inches below injection site. It itches and resembles a bug bite. I know it's from Xolair because I switch arms and it always happens on whichever arm. I have noticed fatigue and exhaustion but not sure that is Xolair related. Sometimes still get pressure hives from underwear where elastic hits but overall much better. Had an insurance problem missed a month hives returned but ok now."

itchy33 (taken for 1 to 2 years) September 26, 2017

2 users found this comment helpful.

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Xolair (omalizumab) for Asthma, Maintenance: "I have been xolair for two months. Wow, what a difference this has made. I would cough all day and used my inhalers more than directed. Now I don't cough much and don't wheeze. I use inhalers once a day now. Two weeks after the first shot I could tell a difference. This is a great drug. I do feel some tiredness with it but it is tolerable."

   
9.0

Anonymous (taken for 1 to 6 months) August 31, 2017

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Xolair (omalizumab) for Asthma, Maintenance: "At the age of 67 I developed allergic asthma after moving to SW Florida. I've had chronic sinusitis for years but controlled it with O/C medications. The multiple asthma attacks (with lack of breath) were daily. I had to use inhalers and a nebulizer. After 2 years of trying different medications the Allergist said "we're going to try Xolair." Used it for 6 months and no change. Have now been changed to Nucala. Too early to tell its effects. An inhaler called QVAR seems to be keeping me in good health until the Nucala does its job."

   
2.0

70inFL (taken for 1 to 6 months) August 29, 2017

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For Urticaria: "I have had chronic hives/urticaria since 11/30/16. I have gone to the ER 6 times with my throat closing. My meds: AM 10 mg prednisone - 20 mg if a flare Claritin Zantac 150g Allegra PM Claritin Benadryl and hydroxyine as needed. I started Xolair in June, Just had my 4th shot last Tuesday. Things are getting better, but if I don't take the prednisone, it flares up. I need to get off of this prednisone now! I have gained 50 lbs since November 2016!"

   
5.0

Dr.Kim August 11, 2017

3 users found this comment helpful.

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Xolair (omalizumab) for Urticaria: "I had 1 injection less than a month ago and recently started having the following symptoms: intense fatigue herpes outbreak painful joints in hands and knees neck pain cough sore throat depression"

   
1.0

J Judd August 4, 2017

5 users found this comment helpful.

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For Urticaria: "I have had one shot and the hives went away. However, one month after my first shot, I have felt like I have had a chronic cold with extreme fatigue and joints ache. Now I have to figure out if I want to deal with the hives every day or these side effects."

   
10

Jewli J (taken for less than 1 month) August 1, 2017

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Xolair (omalizumab) for Asthma, Maintenance: "I have had asthma all my life. As I got older it has worsened. I was continuously on steroids. I'm 1 1/2 years post op of my Bronchial Thermoplasty (BT) procedures. I receive Xolair once a month. To be honest it was the best decision I've made. My asthma has remarkably improved and I'm living a life I thought I'd never have. I went dancing and I actually stayed up on the dance floor waiting for the next song. I'm able to go motorcycling and not worry how long I can stay out if I'm going to get winded, where I'm in need of a nebulizer treatment. I'm fully aware I still have asthma, where I go my rescue inhalers and my EpiPen go with me. I'm now enjoying my life thanks to BT and XOLAIR."

   
10

Harley Girl from Indiana (taken for 1 to 2 years) July 25, 2017

7 users found this comment helpful.

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Xolair (omalizumab) for Asthma, Maintenance: "I can't really rate the drug itself, since I've never taken it. I don't even meet the criteria to be on it, that of the maker or of my insurance. But, the pulmonologist was pushing me to get on it. He called me on the phone, but only told me the name, and that the insurance would cover it. I looked it up, I've only been in the hospital once for asthma, for 2 days, in my life (at 60), no ER trips for it for years, not on ICS because I can't use them due to severe side effects in me. I told him he must be thinking of another patient. Then he tried using the result of the IgE test, and fact I have pets, which I don't even react to. He exaggerated everything about my history. Some sort of Kickback is all I can figure, here. "

   
1.0

Wendy in IL July 14, 2017

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For Urticaria: "This is the 4 episode of my life of chronic hives/ angioedema. By far the worst.so far 8 weeks. Taking Cyclosprine( worked in the past episodes) and max dose Zyrtec, Allegra plus Ranitidine, as needed Benadryl. Multiple prednisone courses and steroid shots. 1st Xolair injection 8 days ago. So far not effective. Hives remain daily 60-80% of body and itching with episodes of Angioedema. Lack of empathy from medical providers astounding. Wish someone could assure me subsequent injections may bring some relief"

Silverkmamom (taken for less than 1 month) July 8, 2017

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For Asthma, Maintenance: "It is truly amazing"

   
10

Kaffy July 5, 2017

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Xolair (omalizumab) for Urticaria: "I'm taking Xolair for Idiopathic Chronic Urticaria (UCI) after a few years of random allergic reactions (unknown origin) despite 3+ years of allergy shots. My allergist & I have never been able to identify the cause. He recommended Xolair because I have severe asthma as well (allergic, exercise induced and environmental) which was not responding well to 3 inhalers, Prednisone, nebulizer treatments (multiple types), allergy meds/shots, etc. Since starting Xolair over 2 years ago, my UCI has virtually disappeared and my asthma is dramatically better. I can actually go weeks without using Spireva, Dulera, Qvar, albuterol, etc. "

MrsSushi (taken for 2 to 5 years) June 30, 2017

7 users found this comment helpful.

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Xolair (omalizumab) for Urticaria: "I've had hives off and on since 2002. I am 52 years old and I've been diagnosed with Hashimotos and Lupus. I was tired of hive breakouts and constantly taking benedryl. So I decided to start taking xolair. Within a half hour after shot my hands got red and itchy. I told nurse. She seemed unconcerned. Got very tired went home and slept half a day! That night got three hives on leg and arm. Next morning I was achy all over and got dizzy with a headache. I report I also got some chest heaviness. I called doctors and he said it was not from xolair. I can stop benedryl but wants me to continue shots. So far I can't stop benedryl because Im still itchy! I don't know if I should get next dose because I don't want worse side effects.Want to eat again"

   
3.0

nanway (taken for less than 1 month) June 28, 2017

8 users found this comment helpful.

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Xolair (omalizumab) for Urticaria: "Chronic hives for 1 year - took all the antihistimines and prednisone. The only thing that kicked the hives was prednosolone pack that I recently took after the Xolair shot did not work. I have had 8 Xolair shots (monthly injections) and at first they were very effective. After the 6th one, I had recurring hives and angiodema return so I am back on large dose of allertec and nightly taking hydroxyzine. Xolair seems to help with the size of hives and the amount when breaking out. Weight gain is definitely noticed but due to prednisone prior to the shot, I can't be certain it is all due to Xolair. Will continue on Xolair and perhaps look at Kenalog shot."

   
6.0

Long suffering June 25, 2017

6 users found this comment helpful.

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Xolair (omalizumab) for Asthma, Maintenance: "It opens your airways"

   
10

Stacey opens (taken for 1 to 6 months) June 24, 2017

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For Urticaria: "Xolair has cured my chronic idiopathic urticaria (CIU). No Break through hives while I've been on xolair now. Since the first treatment. I got no side effects and the hives stopped coming back. If i push my injection far out beyond monthly injections. I have so far not had reoccuring attacks. Worst case scenario I began to feel a little itchy like I almost "felt" like it was time for my injection. It has been a year and it is not cheap. Insurance is only 50% and the pharmacy prices are outrageous. I only afford this medication through a foundation to cope with costs. The doctor is discussing spreading it out further so I could possibly go longer between doses. I am keeping a positive outlook. But fear going off Xolair only to get back on it when it come back. It works"

   
10

TiffanyJ (taken for 1 to 2 years) June 2, 2017

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Xolair (omalizumab) for Asthma, Maintenance: "I am glad to see that so many people had a positive experience with Xolair on this review page, I hope these reviews are real. I was fine on Xolair for about a year, although I will say I did not notice too much difference. In fairness, my asthma was relatively under control at the time with a daily steroid (Symbicort). One day after a shot, I experienced what can only be described as the most ridiculous sounding symptom on the Xolair box, feelings of impending doom. This was 3 years ago and I have suffered from severe anxiety ever since. My life, including my marriage, has been drastically affected by Xolair. PLEASE use caution before taking this and more importantly before letting your children take it."

   
1.0

Ben7781 (taken for 1 to 2 years) May 11, 2017

15 users found this comment helpful.

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For Urticaria: "This is the best thing to help my CIU! I had to leave my last year of highschool because my hives would cause my lips and eyes to swell up every day for 7 months and nothing seemed to help. We went to a doctor that recommended Xolair and I started getting the shot monthly. I was devastated because the first three months of being on the shot nothing happened, it cleared them up a little bit, but not to where I was happy and feeling any better. My fourth shot of Xolair was like a miracle, I woke up the next morning and there was 0 hives. I've been on the shot for 7 months now and have been hive free for 3 months straight, the only time they come back is when I'm more then a week late for my next shot. It's amazing, it gave me my life back."

   
10

KatNich (taken for 6 months to 1 year) April 24, 2017

8 users found this comment helpful.

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For Urticaria: "I took xolair for chronic idiopathic urticaria, the hives disappeared after the first injection. The 3 first months was 300mg per 4 weeks. After 3 months the hives came back… reactine, and blexten ( new antihistamin) can't do anything for my hives. The doctor increase my xolair to 300mg per 2 weeks. The hives completely disappeared but, after the injections I have headaches for 3-4 days and I'm so tired. But for the moment is more acceptable that have hives and angioeodema ! ( sorry my english is bad)"

   
8.0

Shadogirl (taken for 1 to 2 years) April 20, 2017

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Xolair (omalizumab) for Urticaria: "I have suffered with hives since I was pregnant with my first child - 7 years ago! I tried everything! Seen an allergist, omitted foods, drinks, soaps - everything. Multiple trips to the ER and steroids. I suffer from migraines but can't take any ibuprofen/advil/tylenol/motrin because they give me hives so bad that my hands swell up nearly to my elbows now. I discovered Xolair and just had my first 2 injections yesterday! Took a while for insurance to approve it. So far I feel fine other than a sore throat, but not sure if that's an actual side affect or my daughter sharing her cold hehe. I read so many of these positive posts and I am so excited to have started treatment!!"

   
8.0

Hivesnme (taken for less than 1 month) April 6, 2017

13 users found this comment helpful.

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Xolair (omalizumab) for Asthma, Maintenance: "I was diagnosed with asthma & allergies 15 yrs ago. I am now 65. In the beginning b4 Zolair injections, my asthma would act up & I would cough 4 weeks until I had such a sore throat, broken blood vessels around my eyes & was just miserable. Around 7 yrs ago, my Dr recommended I start Zolair injections every 2 wks. What a difference, like nite & day. I don't have any side effects either. I seldom have asthma flare ups & very little allergy problems. I still use an inhaler morn & nite & carry a rescue inhaler w me, which I seldom use. What a life saver Zolair injections has bn. I have my life back."

   
10

Lendy Lee March 21, 2017

17 users found this comment helpful.

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Xolair (omalizumab) for Urticaria: "I started my Xolair shots May 2016 after suffering hive out breaks for 5 plus years. The shot worked immediately. I had 9 injections once monthly. Then I had a new insurance provider which requires me to start the regime Allegra, Zantac and Hydroxyzine HCL two times daily then adding Singular. Two days on Singular I had horrible outbreaks called my Allergy Dr. continued on with other meds waiting to get approved for Xolair. The shot cant come soon enough. Now I just hope I can afford it."

   
10

Dawne634 March 5, 2017

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Xolair (omalizumab) for Asthma, Maintenance: "I have just received my 4th Xolair shot. I get them every two weeks. While I do think the shot is making a difference I am also discovering I am having some common side affects. Apparently I am getting dehydrated and have some dizziness. Anyone else have side effects and how long did they last? I was so concerned with the possibility of an anaphylactic reaction I did not catch that I was experiencing common side effects."

   
7.0

FCHebert (taken for 1 to 6 months) March 4, 2017

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Xolair (omalizumab) for Urticaria: "I was a very healthy 52 year old female until my first Urticaria attack in June of 2013. I was taken to the emergency room and treated with IV Benadryl. I was back in ER with the same symptoms 24 hours later. Like many of the posts I read here I went through prednisone, cyclosporine, lotions, potions, etc and about 5 prescription anti-histamines a day from June of 2013 to October 2013 trying to get relief. Nothing worked and I was miserable - not to mention drugged . I found a very good doctor who introduced Xolaire to me. I received my first Xolaire injection in October 2013 (prior to FDA approval for CIU) and am still on it Feb 2017. It's a miracle drug."

   
10

LAB_2017 February 6, 2017

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Xolair (omalizumab) for Urticaria: "I've been experiencing breakouts for months. Have gone through everything everyone else has, so no need to rehash. I'll get to the point for those who are suffering. On January 23, 2017 I received my first injection of Xolair. In less than 24 hours I was already experiencing some mild relief. It's been a full week, not one breakout of hives. It feels like I have my life back."

   
10

DCinSanAntonio (taken for less than 1 month) January 30, 2017

16 users found this comment helpful.

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Xolair (omalizumab) for Asthma, Maintenance: "I have severe allergic asthma. After two hospitalizations for pneumonia, asthma attacks, anaphylaxis, chronic sinus infections following a childhood of allergy shots, as a young adult I needed constant medication to battle endless infections and hives. With allergy meds (I've tried them all), steroids and typical asthma meds, I had still become dependent on a nebulizer, every 4 hours. After years of struggle, I was actually getting worse working downtown Houston. Xolair changed my life! I went from a sickly, declining 28-year-old to a normal person, requiring nothing else but Benedryl during the spring. I have been taking it for 12 years, including a healthy pregnancy after the first year."

   
10

CamiGold (taken for 10 years or more) January 29, 2017

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