Omalizumab User Reviews & Ratings (Page 4)

• Alpha...
• Taken for less than 1 month
• March 13, 2018

Xolair (omalizumab) for Urticaria "I'm on here because my mom takes these shots for idiopathic chronic hives. It isn't working for her unfortunatley. We live states apart and I've had some similar allergic reactions to some of you but I had some luck in discovering the foundation for it. It's a "rare" but becoming much more common allergy to mammalian meat and all mammal meat bi-products caused by a tick bite called Alpha Gal allergy. Itchy hands and feet and delayed reaction are big indicators for it. There is a simple blood test to find out and then you have to avoid mammal meat and their products like the plague. You can still eat poultry and fish, etc but for some severe cases, you have to be a strict vegan about EVERYTHING. You would not believe the amount of everyday products that use the fat from a cow or the blood of a pig, etc. pretty gross actually. Once you eliminate most to all of these, life improves dramatically! Anyways, hope this helps some of you!!!"

• VC Pa...
• Taken for 6 months to 1 year
• December 19, 2023

Xolair (omalizumab) for Urticaria "I felt less hives and itchy after a couple of weeks. I was ready for another injection by the time I was scheduled for my 4-week follow-up. Still hives and itchy, but as time goes on and it's been close to a year, I have improved a lot. I have side effects with muscle pain and swelling in my veins. The itchy burning hives are much worse without the Xolair. I can tolerate the pain with Advil. I am now on a 6-week schedule to see if I can be weaned down. This will be my second month waiting for my next 6 weeks. I am having fewer breakouts and use prednisone spray to control the itching. I do get pressure hives and I have to be careful what I wear due to the type of material which causes itching, and if I scratch, I will break out with small hives. They will spread if I get anxious. All in all, I think this medication saved me from going crazy. I have had some really good days and a few that were a bit itchy. I have had several days that I had no hives. I'm thinking positive and praying for none."

• DCinS...
• Taken for less than 1 month
• January 30, 2017

Xolair (omalizumab) for Urticaria "I've been experiencing breakouts for months. Have gone through everything everyone else has, so no need to rehash. I'll get to the point for those who are suffering. On January 23, 2017 I received my first injection of Xolair. In less than 24 hours I was already experiencing some mild relief. It's been a full week, not one breakout of hives. It feels like I have my life back."

• Bianca
• Taken for less than 1 month
• August 1, 2019

Xolair (omalizumab) for Asthma, Maintenance "So far I have had two shots of xolair. I will say my breathing is somewhat better I'm not using my rescue inhaler as often as I have been. I'm able to do things that I hadn't been able to do for a long time due to my asthma. I have noticed I am experiencing more headaches than normal my vision is blurry. My blood pressure has gone up and my legs ache and cramp. I have mentioned this to my nurse practitioner. I was told let's keep an eye on it that's kind of odd so now I'm at the point where I don't even want to take the shot anymore due to all the side effects."

• Puffy
• Taken for 1 to 2 years
• December 19, 2019

Xolair (omalizumab) "I had severe edema. My lips, eyes and face would swell constantly. I was on 60mg of prednisone almost everyday. It worked but I had terrible side effects. Xolair was a life changer. I haven't had a swelling episode since my first shot. Its been a little over a year the and the only side effect I've had is I get a little tired the day of shot. I wish it worked for everyone like it does for me.❤"

• Awesome...
• September 4, 2010

Xolair (omalizumab) for Asthma, Maintenance "I've been on Xolair for 4 months, 2 shots 1 time a month and now as I approach my 5 month. Doctor is talking about decreasing my Advair. I currently take 500 of Advair and have not had to use my rescue inhaler in a very long time. I was diagnosed with COPD about 6 years ago, but my symptoms have totally reversed themselves and I am doing very well. The Doctor tells me that I may only get down to 100 of Advair but I think my asthma is doing great. Xolair is a great medicine."

• Tres_...
• October 31, 2016

Xolair (omalizumab) for Urticaria "I developed hives and unknown swelling since I was 18. My life was miserable. I was always in the hospital I hated it sooo much. I was so depressed all the time. I felt like I wasn't living. Xolar really gave me my life back. I have been in it for 5 months so far so good :) I Wish I could hug who ever made this drug!!!"

• Fraud...
• December 13, 2017

Xolair (omalizumab) for Urticaria "I have been suffering from horrible hives all over my body since June 2017. I took my first Xolair shot 12/8/17 and my hives have gotten worse. I was told by allergy office that I have to get 2 more shots before they consider Xolair to be ineffective. I just hope that I can afford the next 2 shots. No drug should cost this much. Especially if it isn't working!"

• AJano
• August 28, 2019

Xolair (omalizumab) for Urticaria "In my case, THE PRE-FILLED SYRINGES do NOT WORK AT ALL!! Have had 3 sets of shots so far (was not taking anything else during that time frame): - 1st set of shots (the Vials), after 2 weeks, I noticed a 95 -100% improvement in chronic Dermatographism, a 100% improvement in the chronic itchy skin (no rash) symptom, & some improvement in other symptoms...but no improvement in chronic GI symptoms & chronic body swelling. - 2nd set of shots, they switched to the PRE-FILLED SYRINGES. Shots hurt a lot more than the vials/my Allergist's syringes...then after a few hours had throat discomfort/pain/pressure which did't go away till the next morning ...& The PRE-FILLED syringes did absolutely NOTHING & lost some of the improvement I had gained. - 3rd set of shots, strongly asked Allergist to switch back to the Xolair VIALS which they did. Shots hurt a lot less, no throat discomfort/pain/pressure, & after a couple weeks, regained some of the improvement I had lost."

• Enrique...
• November 14, 2015

Xolair (omalizumab) for Asthma, Maintenance "Hello. I've had asthma since childhood 57 years old my asthma attacks were so bad tried everything. My allergist suggested xolair. My asthma is under control. I feel great regular injections twice a week. I thank my Dr and xolair if your asthma is bad give a try. God bless"

• Davie...
• Taken for 5 to 10 years
• January 6, 2017

Xolair (omalizumab) for Asthma, Maintenance "I developed allergies in my 30s and then asthma. Within 5 years the asthma and allergies became severe, having anaphylaxis and systemic reactions to medicines and foods, while inhalents caused severe asthma reactions. I saw 6. Allergy specialists and I was told there wasn't anything else they could do. I had an anaphylactic reaction to both allergy skin testing and an allergy immunolytics therapy injection. Finally in 2008 an allergist recommended xolair. After 4 months I noticed the seasonal allergies and number of asthma issues decreased. I haven't had an anaphylactic reaction since 2010. I now just take Allegra daily and live a regular life."

• Gracie
• Taken for 1 to 2 years
• June 12, 2018

Xolair (omalizumab) for Urticaria "This injection has done an amazing job eliminating CIU/DPU (chronic idiopathic urticaria/delayed pressure urticaria)! I have been getting 300mg every 8 weeks for about a year in half now with no side effects. Have been dealing with hives for about 8 years prior to Xolair and prednisone was the only drug that would get rid of the hives."

• Anonymous
• Taken for 6 months to 1 year
• July 9, 2012

Xolair (omalizumab) for Asthma, Maintenance "This medication given bi-weekly, 3 injections each visit (150mg), has been life-changing. Having been in an induced coma to save my life, followed by a trachyotomy, and in & out of hospital many times last year, I needed this. I went from a lung rating of 8/10 (serious) to 0,8 in 4 visits. My lungs have vastly improved, and my Prednisolone (steroid) is stabilized. Fortunately I qualify forr funding as a government patient. I only had one reaction - with the very first dose - a rash. Now I take an anti-histamine before I leave home for the injections."

• Dad
• Taken for 6 months to 1 year
• September 17, 2018

Xolair (omalizumab) for Urticaria "My daughter has chronic idiopathic Uticaria and began taking Xolair about 9 months ago to treat the frequent and widespread hives that she was suffering with. Prior to taking Xolair she would get widespread hives about once per week and they would last anywhere from 1 to 3 days. Subsequent to taking Xolair she has not had a single case of hives. So we are extremely pleased with our results."

• Anonymous
• July 9, 2010

Xolair (omalizumab) for Asthma, Maintenance "I've been taking the shots for 6 months now and have only had 2 episodes of mild asthma. Before the shots, I had severe asthma for 27 years and was on steroids for 27 years. Needless to say, my bones have suffered the consequence of steroids. I wish this drug wasn't so expensive. It saves lives. It changes lives but most people can't afford it! Including myself. I was completely disabled from asthma, but medicaid approved this drug for me for 6 months. I has made an amazing difference."

• Madesta
• November 16, 2017

Xolair (omalizumab) for Urticaria "I was very hesitant to start this medication because of all the warnings I came across online. After 4 months on this medication I can honestly say it has 100% improved my life. I had hives and angio edema covering most of my body. The pain and hives would come and go and change from day to day but I was for the most part homebound because of it. I was taking Benadryl (like tic-tacs), Zyrtec, Singulair, Fatidomide and Prednisone for the really bad breakouts. Within the 1st week after the 1st shot saw significant improvement. Now I only have some breakouts right around the 28th or 29th day of the next shot that is due. I would highly recommend this medication for chronic urticaria."

• WeNdElL
• May 14, 2011

Xolair (omalizumab) for Asthma, Maintenance "I have been on Xolair since June 2009, and I can somewhat tell a difference. I don't use my rescue inhaler as much as I used to, and I don't get bronchitis as much. My maintenance medicines have not changed at all over the last few years. Still on the same doses and medicines. I have been using A LOT more of Prednisone though."

• bano
• Taken for 2 to 5 years
• December 13, 2018

Xolair (omalizumab) for Urticaria "I have been on Xolair since November of 2016. Overall, this has been a very effective treatment for me. Besides a few 1-2 month flare-ups, I have seen a significant improvement. Untreated (and during flare-ups), I break out in hives 2-3 times a day every day, frequently with swelling in my face, lips, hands, and feet. Xolair has decreased this to almost no hives."

• Grandma...
• Taken for 1 to 6 months
• January 7, 2016

Xolair (omalizumab) for Urticaria "I am 72 years old and have suffered with Chronic Urticaria for 18 months now 24/7 and my antihistamines and prednisone are no longer helping. My Dr. suggested that I try Xolair. I have had my 2nd injections today and have had no decrease in my hives. I have read that it may take 2 or 3 months before it kicks in but I was sure hoping that I would have some relief in the first month, especially because of the cost of this drug. I will continue for a couple more months to give it a fair chance."

• JFano
• May 7, 2018

Xolair (omalizumab) for Asthma, Maintenance "I have had a very positive response from these injections. I've just started my 7 th month. From constantly taking Ventolin, being breathless , coughing and unable to exercise, I am now back to normal, no Ventolin used in the last 7 months, where I use to use 5 to 7 Ventolin scripts a month. Feeling great"

• FCHeb...
• Taken for 1 to 6 months
• March 4, 2017

Xolair (omalizumab) for Asthma, Maintenance "I have just received my 4th Xolair shot. I get them every two weeks. While I do think the shot is making a difference I am also discovering I am having some common side affects. Apparently I am getting dehydrated and have some dizziness. Anyone else have side effects and how long did they last? I was so concerned with the possibility of an anaphylactic reaction I did not catch that I was experiencing common side effects."

• nanway
• Taken for less than 1 month
• June 28, 2017

Xolair (omalizumab) for Urticaria "I've had hives off and on since 2002. I am 52 years old and I've been diagnosed with Hashimotos and Lupus. I was tired of hive breakouts and constantly taking benedryl. So I decided to start taking xolair. Within a half hour after shot my hands got red and itchy. I told nurse. She seemed unconcerned. Got very tired went home and slept half a day! That night got three hives on leg and arm. Next morning I was achy all over and got dizzy with a headache. I report I also got some chest heaviness. I called doctors and he said it was not from xolair. I can stop benedryl but wants me to continue shots. So far I can't stop benedryl because Im still itchy! I don't know if I should get next dose because I don't want worse side effects.Want to eat again"

• Anonymous
• Taken for 1 to 6 months
• June 21, 2016

Xolair (omalizumab) for Urticaria "In early November 2015, I started breaking out in unexplained hives. It started with huge welts larger than my palm, and I'd get them all over my body, some small, some big. From my scalp to the bottom of my feet, welts have shown up, and my lips and fingers have swollen so badly. Zolair has made a marked difference for me. It hasn't completely cleared me up, but the amount of hives have dramatically decreased. I still get angioedema though, but I don't panic like when it first stared happening. I'm hoping as time goes on 1 - the hives will just go away completely (haha we all with for that, right?) and 2 - if the hives don't go away the shot will continue to lessen the severity of the breakouts."

• CKano
• Taken for 2 to 5 years
• November 22, 2020

Xolair (omalizumab) for Urticaria "Xolair has changed my life for the better and I have been asymptomatic since starting monthly injections. I had chronic idiopathic urticaria (CIU) and angioedema for the past 20 years. I had been trying high doses of antihistamines, NSAIDs, acupuncture, basically anything to stop the itching and swelling. At one point, I was put on prednisone, only to have the CIU come back after tapering off. Then I worked with the doctor to test Xolair. It has worked amazingly well. I get injections once a month and for the most part am asymptomatic. I have no side effects. Sometimes before an injection, I will have itching, but the next injection quickly alleviates symptoms. Xolair has been transformative at changing my quality of life. I am so much happier and healthier now."

• SCano
• Taken for 1 to 6 months
• March 2, 2018

Xolair (omalizumab) for Urticaria "I suffered from chronic hives for months with multiple attempts at different combinations of antihistamines. The condition only worsened. I went from being hive free for short breaks to having hives covering 50% or more of my body constantly day after day for months. Xolair has changed it all. I have been and remain completely hive free. I got my first shot and had immediate relief. I had a couple of small hives that wanted to break through, but literally lasted a couple of hours and went away. They were hardly noticable. Xolair has brought me back to the quality of life I expect."