Golimumab User Reviews & Ratings (Page 3)

• dre...
• April 7, 2014

For Ankylosing Spondylitis "I have been suffering from ankylosing spondylitis for quite a number of years. In the past 3 years, it has become very severe and has made me feel very ill, thus inhibiting my quality of life. I haven't been able to hold down a long-term job because of this arthritis. I took Humira initially, which didn't work at all. I then tried Simponi, with quite good results. Morning stiffness and pain throughout the day had been significantly decreased. However, it seemed to wear off after around 10 days or so. I bared the usual pain for a week or so before I injected myself again 3 weeks later, instead of four. Hopefully, my specialist will allow me to take it every 2 weeks instead of the usual 4-week injections."

• Lin...
• Taken for 1 to 6 months
• May 14, 2023

For Rheumatoid Arthritis "I have been on every oral drug for treatment for RA. I then was prescribed Orencia subcutaneously for 2.5 years. I still had to use prednisone 15-25 mg on a regular basis when I worked. Orencia did not show any real change in my symptoms. I then changed to Simponi 50 mg subcutaneously monthly. I could feel a difference after the very first injection. After 3 weeks, my swelling and moderate to severe symptoms of RA improved. Following my second injection, I noticed an over 50% improvement in my fatigue. As of now, after my third injection, I can mostly claim I am improved by at least 80% of overall symptoms: morning stiffness, my pain, my energy levels. In closing, without trying to sound dramatic, I can confidently say Simponi 50 mg subcutaneously monthly has overall improved the quality of my life by 90%."

• Sab...
• Taken for 5 to 10 years
• November 23, 2023

For Rheumatoid Arthritis "I've had RA for 20 years, tried numerous other biologics that always stopped helping after a few years or even a few months. By the time I got to Simponi, I thought I was done working. I had applied for disability. My doctor tried Simponi, and I was able to go back to work full-time, and six years later, I am still working. Not only am I still able to work, the dosing pen is very easy to handle, and it doesn't sting like other injections. I still have to take methotrexate and otherwise be diligent about my condition, but Simponi honestly gave me my life back 14 years into having RA. My RA is severe (two different joints replaced among other things), but my quality of life on Simponi is much better than I expected at this point. I am very grateful, and if you're reading this...don't stop trying new medications. You never can predict when one will be a home run like Simponi was for me!"

• Dan...
• Taken for 6 months to 1 year
• April 1, 2023

For Rheumatoid Arthritis "While on Simponi, I developed severe diarrhea. I was on this awful drug for 11 months. When I started Simponi, I weighed 125 pounds, I now weigh 101 pounds. After I stopped taking Simponi on my own, I can't gain back the weight I lost, and I am sick all the time. I feel like my body is attacking me. My doctor wouldn't believe that Simponi caused diarrhea and the awful way I felt. I stopped Simponi a month ago and haven't had any signs of diarrhea. I still feel awful, but I'm hoping to get my health back. You have to find a doctor who really listens when you talk, which unfortunately I did not."

• Anonymous
• December 15, 2009

For Psoriatic Arthritis "I've been using Simponi for psoriatic arthritis for 5 months. Before that, I was using Enbrel. I had a small amount of psoriasis on my scalp before starting Simponi, and now I have much more. I like the once-a-month injection, but believe I'll be returning to Enbrel soon, as I believe it did a better job."

• Anonymous
• Taken for 1 to 6 months
• March 17, 2022

For Rheumatoid Arthritis "I started Simponi infusions. Just recently, my first infusion was fine, made me a bit tired, but no side effects and no effects at all. My second infusion was 3 weeks ago. I again was tired after the infusion, but I was more tired than usual. I started not feeling real great. The next day, I felt even worse. I believe every side effect that this drug has, I had: fever, cold chills, nausea, extremely fatigued, headache. My whole body has and still is swelled up 2 times more than normal, having trouble breathing. I then ended up with a sinus infection and then pneumonia. Let me say that I have been dealing with RA/Fibromyalgia for the past 23 years. I have been on everything and anything that is available. Suffice to say, nothing has worked for me. However, I never had any side effects to this magnitude with the others. I am glad this works for others and was really hoping to finally get some relief, but I guess my body is rejecting this medication, so I feel I had better listen to it."

• Sfs...
• June 27, 2016

For Rheumatoid Arthritis "I was diagnosed with seropositive RA nearly 35 years ago and have been on just about every NSAID, DMARD, infusion, and combinations of these. Simponi Aria, along with leflunomide, is my current cocktail. While it seems to be keeping my joint pain under control, my fatigue is off the charts, and I have lots of body aches, frequent headaches, and gastrointestinal problems. My blood pressure and glucose levels are also elevated, though I'm not sure if this is due to this medication or not."

• Cra...
• Taken for 6 months to 1 year
• March 25, 2014

For Ankylosing Spondylitis "Having suffered with ankylosing spondylitis for 10 years and with vast peaks and troughs in pain and the awful methotrexate for 4 years with loads of side effects, I can honestly report Simponi has simply transformed my life. It's reduced swelling so well on my once sore toes I have excess skin, I'm running and active, I don't get any morning stiffness and no side effects thus far, it has cleared up my psoriasis as well, which sometimes returns towards the end of a month as you'd expect. The delivery method is far superior to methotrexate."

• dre...
• Taken for 1 to 6 months
• February 20, 2023

For Rheumatoid Arthritis "I had my first infusion and was totally exhausted after it. Within two days, though, I felt fine. My hands are not as stiff, and I can feel a difference in my feet. I am getting my second infusion this week and hope it continues to improve my rheumatoid arthritis symptoms."

• Coo...
• Taken for 1 to 2 years
• June 16, 2020

For Rheumatoid Arthritis "I started taking infusion about 20 months ago. First year, things appeared to go smoothly. Then I started experiencing weakness in my right shoulder. A physical therapist diagnosed muscle deterioration, and I spent 3 months in therapy. Regained some of the strength, then slipped and fell, breaking my ankle bone on both sides, requiring surgery, pins, and a plate in my ankle. I never had a broken bone before! It went downhill from there. I have had 2 infusions since and have had weakness in my other shoulder, a urinary infection, horrible headaches, knees giving out, and painful, sore wrists. I tire easily, have weight gain, and experience blurry vision at times. I think it’s time to re-evaluate the benefits of this drug, as I have gone downhill quickly the past year."

• Tuc...
• August 9, 2016

For Rheumatoid Arthritis "I have had 3 infusions, and I am tired all the time and just want to sleep. My vision has also been more blurry. I understand the immune system can be lower on Simponi. I now have shingles on my face, and I had the shingles vaccine two years ago. I have had RA for 33 years, and Plaquenil has helped me more than anything as far as stiffness and pain. I have been taking it for at least 20 years. I also take Celebrex and methotrexate."

• Emm...
• Taken for 1 to 6 months
• July 10, 2018

For Psoriatic Arthritis "No pain or skin issues after 3 days, but about 2 weeks after the first injection, I got sick for the 1st time. The fatigue set in at week 3. I was well again at week 4, right in time for my next dose. Once again, by week 3, I was sick with the worst throat/adenoid infection that just wouldn't quit. The fatigue is life-changing. Dr. took me off after my second throat infection in 6 weeks."

• Anonymous
• Taken for 1 to 6 months
• October 12, 2022

For Rheumatoid Arthritis "This is terrible stuff. Made my RA worse. Caused side effects of extreme fatigue, muscle pains, psoriasis on my scalp and dermatitis, and my hair has been falling out. Also causing my lymph nodes to swell. It has been 3 months, so I am trying something else and will discontinue. Wish I never tried."

• Pat...
• Taken for 1 to 6 months
• April 9, 2016

For Ankylosing Spondylitis "Well, I would like to say Simponi has been very effective for me. From my first shot to the sixth, the shot I just received this month, the Simponi removed my symptoms of AS to the point where I feel normal. Before being diagnosed and receiving Simponi, I was in pain constantly and taking meds that were basically for gout, which is what I was being treated for before my diagnosis for AS. One month, the doc tried Remicade, but it was ineffective for me. The Simponi has given me back normality, at least in the sense of physical well-being. It has been wonderful for me and my family, as they don't have to worry about helping me when I have symptoms of swelling and pain. In fact, I noticed that when I get scratches, my wounds even heal faster. Thanks."

• Anonymous
• Taken for 1 to 6 months
• February 12, 2022

For Rheumatoid Arthritis "I have had 3 infusions, and I felt good after the first one. I don’t feel tired and have no pain. I do have 1 eye that twitches, eyelashes and eyebrows are falling out. The skin around my neck and around my hairline is red, itchy, scaly, and numb around my hairline. My face is slightly red and swollen."

• Han...
• Taken for 1 to 6 months
• September 22, 2019

For Psoriatic Arthritis "I received Simponi Aria infusions from 12/2018 to 6/2019. I’ve had 4 UTIs, the last infection on 9/2019 went to my kidneys. I was hospitalized with sepsis. Now I’ve been referred to a hematologist due to high myelocytes. I always feel sick, tired, weak... I’ve also been prescribed Lipitor for extremely high cholesterol. I’m a vegetarian and eat healthy. I’ve never had these problems prior to Simponi Aria infusions."

• Ton...
• April 10, 2021

For Psoriatic Arthritis "I'm exactly 19 days after the first Simponi Aria infusion. I'll never take it again. I've developed some type of viral infection in my inner ear/vestibular nerve that put me in the hospital for four days. Woke up at 3 a.m. on day 14 with extreme tinnitus, dizziness, vomiting, and now deaf in my left ear. I believe the Simponi caused this virus/sinus infection/labyrinthitis to go bat crazy. Today I'm still 100 percent deaf in my left ear with screaming tinnitus and very dizzy when standing. This causes infections that you may already have to go off the charts. But how would you know if you have some kind of infection starting? As far as my back pain, it has gone... but maybe because I've been laying in bed for a week. I don't know. Think very hard before taking Simponi. I know many have received relief from it. Weigh out your risk to reward with it."

• Kev...
• October 12, 2015

For Psoriatic Arthritis "It seemed to work well for me right from the start. I had been on Remicade previously, but I had to quit due to losing my insurance. By the time I went to Simponi, I was hurting pretty bad. Unfortunately, it stopped working after a while (18 months), but that has been my personal experience with biologics. When it worked, it worked well."

• PsA...
• Taken for 6 months to 1 year
• January 30, 2020

For Psoriatic Arthritis "I tried Simponi for 9 months for psoriatic arthritis. At first, it was like a miracle. Then the pustular psoriasis started on my legs, my hair started falling out, and my mood got very strange. Bloodwork showed super high cholesterol, which was 3 times what it ever was. Psoriasis flared worse than ever all over my body. My skin has never gone back to normal. Terrible, scary drug. Wish I'd never tried it."

• Uns...
• September 15, 2015

For Rheumatoid Arthritis "I had to take Simponi for a brief time due to a change in insurance. I was taking Enbrel previously and was almost symptom-free. Simponi did not help my RA at all! I took it once a week for about 8 weeks. I decided to pay the extra monthly expense for the Enbrel!"

• Aus...
• Taken for 1 to 2 years
• November 3, 2020

For Ankylosing Spondylitis "I have ankylosing spondylitis, which was diagnosed 4 years ago due to a very bad case of uveitis. I was given three TNF blockers without success. I was offered Simponi, and this one worked, the pain went away after a few days, and I was very happy about that, as AS is very painful, and it explains why I had a sore back for most of my life. I am now 58 years old. I did not get any side effects, but it did raise the blood pressure, which I already have hypertension, so it's made that worse, and I cannot get my BP under control. It did not stop the uveitis from reoccurring, but overall it has worked well."

• LVe...
• Taken for 5 to 10 years
• October 17, 2022

For Rheumatoid Arthritis "Simponi has been the most effective biologic for me. I've used (infusions or injectable) Humira, Enbrel, Orencia, Remicade, and Simponi. I have been on Simponi 3 times as long as any other medication. Over 6 years of effectiveness. I take one 50 mg syringe monthly, and although I still struggle with fatigue, flares are managed as well as joint degeneration."

• Jim...
• Taken for 1 to 2 years
• May 9, 2021

For Psoriatic Arthritis "Started infusions of Simponi Aria about two years ago when Medicare wouldn’t cover Enbrel, which worked for me for 20 years. At first, the infusions seemed to work. Then, about 6 months ago, I came down with pneumonia, followed immediately by shingles, both caused by a lowered immune system. A month ago, I came down with pneumonia again, also caused by a lowered immune system. I believe this drug is dangerous and would rather deal with the pain than risk my life."

• Mel...
• March 18, 2017

For Ulcerative Colitis "Simponi did not work for me. Tried it three months, and it made all the bleeding, cramping, and diarrhea worse. I really wanted it to work for me, but it didn't. And Janssen was no help, called it 'side effects,' when it was 'exacerbation of symptoms.' Best wishes if you take it, I hope you find success with it. :)"

• Anonymous
• October 2, 2009

For Psoriatic Arthritis "My husband took his first dose last month and is getting ready to take his second dose in a few days. While I think the drug is working, the Patient Cost Support Program is difficult to deal with, and we are still struggling to get reimbursement."