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Golimumab User Reviews & Ratings (Page 2)

Brand names: Simponi, Simponi Aria

Golimumab has an average rating of 6.3 out of 10 from a total of 155 reviews on Drugs.com. 53% of reviewers reported a positive experience, while 29% reported a negative experience.

Reviews for Golimumab

Commonly mentioned side effects
  • Mrs...
  • November 1, 2018

For Ankylosing Spondylitis "A recent diagnosis of RA and AS has been debilitating. My doctor said I should have been on meds 10 years ago due to the progression of these diseases. I started methotrexate 5 months ago with zero success. My first infusion with Simponi was 3 weeks ago, and I feel so much better. I am praying that it continues to help!"

8 / 10
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35 Report
  • Kar...
  • February 7, 2018

For Rheumatoid Arthritis "I have had juvenile rheumatoid arthritis (JRA) for 49 years. I have tried every biologic there is, and Simponi has been the first drug to work for me within a few hours. I take Simponi and self-inject every 2 weeks, I also take a low dose of prednisone. I was diagnosed at age 6, have many replaced joints, and still some active joints with severe RA. I have been on Simponi for 18 months now. Even though I have never had a remission, my symptoms have been the most controlled on this drug! :) Pray it keeps working this well."

10 / 10
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37 Report
  • too...
  • July 13, 2010

For Rheumatoid Arthritis "I started taking Simponi 4 days ago after a very severe flare-up. I am 54 years old and have had rheumatoid arthritis for 29 years. I was pretty much incapacitated with the pain. Two days ago, I was able to resume my normal household chores and feel so much better! I really hope the effectiveness continues."

8 / 10
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64 Report

Frequently asked questions

  • Cha...
  • Taken for 2 to 5 years
  • March 14, 2023

For Rheumatoid Arthritis "I have been on Simponi Aria for 2 years and counting. So far, so good. I have no side effects related to the infusion. I am able to lift weights and run with no pain. The only things are I can feel when it’s almost time for my next infusion when my joints start feeling a little discomfort, but it has been random. One month, I was able to skip an appointment for 4 weeks and felt fine overall."

9 / 10
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16 Report
  • Jan...
  • Taken for 1 to 6 months
  • June 15, 2024

For Rheumatoid Arthritis "I started the medication in March. Still not doing well, but the side effects are really bad. I am thinking I am not successful so far. My doctor said to give it to September, then we will revisit my options. I have been experiencing skin sores, GI problems, UTI's, fevers, tremors, and just about all the rest of the warnings."

5 / 10
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  • Mr ...
  • Taken for 2 to 5 years
  • January 3, 2013

For Ankylosing Spondylitis "I have been diagnosed with ankylosing spondylitis now for the last five years. I'm now 40 years old, and it started to hit me quite hard after the age of 18 and started treatment on Humira at 35 first. Slack medical advice and thinking that I was fully cured, I stopped my treatment within 3 months. My AS came back very strong as I was now working out 5 days a week in the gym. In Australia, if you don't keep blood checks and things within certain times, they strike you from the assistance, hence, my specialist has now put me on Simponi, and all I can say is WOW. This stuff works and works well. I did notice very small signs of AS in the 4 weeks, which disappeared on the next injection. I found I had been given a new chance to live a normal life."

10 / 10
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52 Report
  • Sco...
  • Taken for 2 to 5 years
  • August 15, 2021

For Rheumatoid Arthritis "I began taking Simponi about 2 years ago. I've had RA for over 40 years. It really helped all of my symptoms of RA. However, I was diagnosed with Grover's disease within a few months. This is an intolerable skin condition with severe and constant itching. In May of this year, I was diagnosed with liposarcoma in my abdomen. This is a rare cancer of the soft tissue/fat cells. I am recovering from major surgery in June to remove the tumor. Doctors believe the tumor was contained, and I am now cancer-free. Now my RA is out of control with joint pain. I will see my rheumatologist this week to determine what to do. Seems like all biologics have a risk of cancer, but of course, I can't say it caused mine."

9 / 10
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  • lel...
  • April 21, 2010

For Rheumatoid Arthritis "I have had two doses. My doctor (and myself and my family) are very happy with the progress thus far. I am a 38-year-old mother of three and am so thankful for this medication. My doctor hopes to start weaning me off methotrexate in the next few months. I applied for the patient care plan and have had no problems with it. I picked up my first dose last month at the pharmacy without any glitches. Almost all swelling and pain are gone. I noticed that it fades a bit the last week before my next dose. We'll see how it goes this month. Still, leaps and bounds better than taking three different kinds of medicines! Thank you, Simponi."

9 / 10
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58 Report
  • edm...
  • Taken for 6 months to 1 year
  • March 18, 2013

For Rheumatoid Arthritis "Have been on Simponi for 6 months. Works great, and within 1-2 days. Was on methotrexate for many months, and it did nothing. Then tried Humira for 1 month, which worked well. Rheumatologist then switched me to Simponi. Monthly injection is much better than every two weeks (Humira). Unfortunately, my insurance, Health Spring, refuses to cover it. Dr. has been giving me free samples of Simponi."

10 / 10
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50 Report
  • SLD...
  • Taken for 1 to 2 years
  • October 8, 2013

For Rheumatoid Arthritis "I have been taking Simponi injections for over a year now. It works better than Humira. I also take Methotrexate, which has my hair coming out. I was taking 4 pills every week, now I'm taking 3 pills every week. I'm 39 years old, and my hair is coming out even when I just have it braided. I love the Simponi. I know when it's time to take it again, though."

8 / 10
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46 Report
  • Anonymous
  • December 10, 2010

For Rheumatoid Arthritis "Simponi felt like it was working the first 2 months. But my flare-ups are still monthly, and today, after 6 months, my doctor said I am getting worse and is taking me off Simponi. I am 53, have rheumatoid arthritis since 2007."

4 / 10
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54 Report
  • Bri...
  • July 28, 2010

For Rheumatoid Arthritis "I started Simponi in April and have now had four injections. It worked the first night, my shoulder pain was gone, and I have slept without pain since. I have had no reactions whatsoever. The drug has lasted the full month every time. In the month previous to my first injection, I took 150 Tylenol 3's for the pain. In the 3 months since, I have averaged 30 per month. My shoulders, wrists, hands, and knees are almost pain-free with very little stiffness. I still can't work, but at least I have my life back, thanks to Simponi. Methotrexate was too hard on my kidneys, but I still take 20 mg Arava every other day and Plaquenil and Diclofenac daily. I also take Ramipril for the raised blood pressure the drugs have caused."

9 / 10
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51 Report
  • Swe...
  • September 10, 2009

For Rheumatoid Arthritis "Well, it has been about 12 days since I have taken my first shot of Simponi. I started on Saturday, August 29, 2009. I also stopped taking prednisone that day. I feel real good. I go to the doctor on the 23rd of September. I would like to start cutting back on the methotrexate. I will update next month."

8 / 10
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  • Gli...
  • Taken for 1 to 6 months
  • May 4, 2020

For Rheumatoid Arthritis "I am 59... diagnosed with RA at 53. Started with Methotrexate for 6 months, added Enbrel... worked great for 4 years and then nothing worked for more than a couple months. I just started first ever IV infusions in the doctor's office. Simponi Aria and also still on Methotrexate. First dose in Feb, 4 weeks later 2nd dose in March - nothing! Can’t walk on my feet and can’t use my hands. Worse shape I have been in. Had the 3rd dose in this first week of May 2020. Both my RA doctor and my regular doctor say don’t give up and that we need 4 doses to see if this medicine will work. I am hanging in there, but life is passing me by right now. After 34 years as an analyst at a hospital who works on spreadsheets all day, I am on a leave while we see if this Simponi Aria is going to help me. I am HOPEFUL!"

4 / 10
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  • Bac...
  • Taken for 6 months to 1 year
  • January 22, 2015

For Ulcerative Colitis "Had a major flare-up back in April that almost led to emergency colonectomy. Hospitalized for 19 days straight, was in 2 different hospitals, lost about half my body's blood and 50 lbs over 6 months' time. 1st doctor put me on many of the wrong medications as the disease was too severe. Starting out on Lialda, Uceris, then up to Remicade, which started to work for about a week, and then Prednisone, which was horrible. When I was in the 2nd hospital, I had another doctor prescribe Simponi, and it took a while, but it's working for sure. I went from 20 times a day of red to 1 - 3 times a day (clear water)."

10 / 10
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41 Report
  • Aly...
  • Taken for 1 to 6 months
  • June 21, 2023

For Rheumatoid Arthritis "I have had 4 injections now, and if anything, my joint pain/stiffness has gotten worse. I have had to take prednisone courses to try to give me some relief. I have always experienced a mild headache after each injection within an hour to two, but since my last injection, my headache has not gone away. It has been just over a week now. I have a lot of muscle weakness and tingling feelings in my muscles, as well as a lot of intense muscle cramping. I am trying to be patient as I am told it can take a bit to kick in and work, but so far the only thing that keeps happening is more intense side effects. I have consistently had a cough (no cold symptoms) since starting the injection and cough up clear mucus constantly. The injection is easy to do, which is a good thing."

1 / 10
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12 Report
  • Mar...
  • Taken for 1 to 6 months
  • August 26, 2019

For Rheumatoid Arthritis "I came off Rituxan after several successful years of treatment for RA (almost in remission) when I experienced 12-18 months of chronic infection in my lungs and ears. Diagnosed at age 53, 17 years ago. Have had both knees replaced and have carpal tunnel pain in one thumb. At the same time as the infections, it was discovered I had a cat allergy. These two factors together meant my body could not get rid of the chest infections and ear infections because of the constant cat allergy creating stuffed-up conditions. #5 Simponi infusion in Sept to give it one last chance, but since #1 infusion was in April, I have developed finger movement and pain, bunions, RA flares in the second toe and a foot joint, plus fatigue has sucked the interest in life right out of me. I felt great for 10 days this month on a Prednisone burst, but am weaning off it next week. I do not have a lot of faith that Simponi will 'kick in' after 5 months and hope for something else soon that is more effective for me."

2 / 10
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23 Report
  • Anonymous
  • April 9, 2011

For Rheumatoid Arthritis "I am 3 weeks into my second dose of Simponi. Was on Enbrel for 4 1/2 yrs. with good results, then it stopped working. The numerous side effects following my first dose came close to keeping me from trying a second month. This month, I have had diarrhea for 3 weeks, but that's an improvement over last month. Joint pain and stiffness are better, but no effect on fatigue so far. It takes 6-8 weeks to know for sure how it will work. It is not possible to see results in hours or days. I have decided to try one more month since my next step is infusion medicines."

3 / 10
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  • Occ...
  • April 15, 2016

For Rheumatoid Arthritis "Started Simponi in February, and so far, nothing has changed, still pain, swelling, and disease getting worse. I hope you never have a problem with an injection, because the people at Jensen who are there to help are clueless."

1 / 10
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33 Report
  • gre...
  • Taken for less than 1 month
  • May 11, 2017

For Rheumatoid Arthritis "I had my first infusion today. No ill effects with the exception of exhaustion...additional, that is, as I already am sleeping 16 hours per day. Not sure how a person is supposed to make a living with this advanced RA. I am hoping that Simponi will resolve that in the near future. I will let you know when things start to work and I can return to the land of the living."

1 / 10
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31 Report
  • Not...
  • Taken for less than 1 month
  • February 24, 2014

For Ankylosing Spondylitis "I have had severe and debilitating whole back/shoulder/neck pain since I was 17 - I'm now 27 and have always been very active. I was given Vimovo, which did not help all that much; and although Ibuprofen did help more (though not entirely), it was more dangerous for long-term use. I had a false positive for the TB skin test - if this happens to you, ask for the TB Quanteferon test - it was $90 out of pocket, but came back with a 100% negative test result and I was able to take my first injection within that week - it's sad because I had the false positive in Oct 2013 and had to wait until mid-Feb 2014 to start on Simponi. Simponi itself is wonderful. Within hours, I felt no pain at all and had no side effects. I can put on socks again!"

10 / 10
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  • Ohl...
  • Taken for 1 to 2 years
  • May 28, 2015

For Ulcerative Colitis "Recent colonoscopy confirmed no active inflammation. Experiencing no side effects. Painless self-injector administered every 4 weeks. The only minor difficulties are dealing with the specialty pharmacy and properly disposing of the injectors."

9 / 10
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34 Report
  • Chr...
  • Taken for 1 to 6 months
  • January 4, 2020

For Psoriatic Arthritis "Was doing fine for about 12 weeks. Then I broke out with a whole new form of palmoplantar pustule psoriasis, and my regular plaque psoriasis came back almost vengefully to the point where my skin feels like it is burning. I had my first infusion in August, then again the second one 4 weeks later, and by the middle of my 8-week stretch was when these rashes happened. My first three days after the infusion, I experienced vomiting and extreme tiredness, but overall I felt fine. The second infusion was pretty much the same, but then all this happened. I am so sore on my hands and feet it feels like I am walking or touching broken glass. I have to wear vinyl gloves to keep the moisture on my hands and keep my feet wrapped with non-stick gauze and taped and covered so I don’t develop a secondary type of infection from something else. I can’t take the pain, so my husband has pushed me to hire a cleaning lady to do my housework because all I am able to do is lay around. This is no way to live."

1 / 10
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  • Qwa...
  • February 3, 2017

For Rheumatoid Arthritis "Yesterday, I got my 4th injection in 4 months at home by a nurse! I think it's working very well so far... I have taken many other types of medicines over 7 years with big side effects for RA. I have had Ulcerative Colitis for 15 years and took some meds for that. Because of side effects, I began a very stringent diet (specific carbohydrate diet). I eventually got better, and all UC symptoms stopped. Years later, I went off the diet and was soon reduced to suffering immensely with undiagnosed RA symptoms. I believe my diet contributes to my symptoms. I know food chemicals can cause inflammation, and I know UC is a cousin to RA. I come from generations of alcoholics and am recovering for 27 years. Sugar is a deadly and strong addiction. Today, I was lethargic."

9 / 10
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28 Report
  • Hug...
  • October 8, 2023

For Rheumatoid Arthritis "Had RA for 50 years (now 67) and though the biologics do help with stiffness and pain, they do have many side effects which make life even harder. Was on 50 mg dose, now on 100 mg. Finding extreme tiredness, cold symptoms, and chest issues dreadful. Spoiling my life now, but been through most meds and I am stuck. Hoping reduction back to 50 mg will help with my general feeling."

7 / 10
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