Golimumab and Swelling: What Users Say

• Len...
• Taken for 1 to 2 years
• May 7, 2018

For Rheumatoid Arthritis "I have taken just about all the meds you can think of. Some are better than others, but after a while, too many symptoms come up. My latest Simponi seemed great in the beginning, but as others stated, I was tired all the time. Contracted pneumonia, edema in the ankles, and 3 UTIs in 6 months. So I am going to go off. I think it suppressed my immune system so much I was sick all the time. Not sure if I will try Humira, which others are taking and seem to be okay with it."

• lel...
• April 21, 2010

For Rheumatoid Arthritis "I have had two doses. My doctor (and myself and my family) are very happy with the progress thus far. I am a 38-year-old mother of three and am so thankful for this medication. My doctor hopes to start weaning me off methotrexate in the next few months. I applied for the patient care plan and have had no problems with it. I picked up my first dose last month at the pharmacy without any glitches. Almost all swelling and pain are gone. I noticed that it fades a bit the last week before my next dose. We'll see how it goes this month. Still, leaps and bounds better than taking three different kinds of medicines! Thank you, Simponi."

• Occ...
• April 15, 2016

For Rheumatoid Arthritis "Started Simponi in February, and so far, nothing has changed, still pain, swelling, and disease getting worse. I hope you never have a problem with an injection, because the people at Jensen who are there to help are clueless."

• Anonymous
• Taken for 1 to 6 months
• March 17, 2022

For Rheumatoid Arthritis "I started Simponi infusions. Just recently, my first infusion was fine, made me a bit tired, but no side effects and no effects at all. My second infusion was 3 weeks ago. I again was tired after the infusion, but I was more tired than usual. I started not feeling real great. The next day, I felt even worse. I believe every side effect that this drug has, I had: fever, cold chills, nausea, extremely fatigued, headache. My whole body has and still is swelled up 2 times more than normal, having trouble breathing. I then ended up with a sinus infection and then pneumonia. Let me say that I have been dealing with RA/Fibromyalgia for the past 23 years. I have been on everything and anything that is available. Suffice to say, nothing has worked for me. However, I never had any side effects to this magnitude with the others. I am glad this works for others and was really hoping to finally get some relief, but I guess my body is rejecting this medication, so I feel I had better listen to it."

• Pat...
• Taken for 1 to 6 months
• April 9, 2016

For Ankylosing Spondylitis "Well, I would like to say Simponi has been very effective for me. From my first shot to the sixth, the shot I just received this month, the Simponi removed my symptoms of AS to the point where I feel normal. Before being diagnosed and receiving Simponi, I was in pain constantly and taking meds that were basically for gout, which is what I was being treated for before my diagnosis for AS. One month, the doc tried Remicade, but it was ineffective for me. The Simponi has given me back normality, at least in the sense of physical well-being. It has been wonderful for me and my family, as they don't have to worry about helping me when I have symptoms of swelling and pain. In fact, I noticed that when I get scratches, my wounds even heal faster. Thanks."

• Anonymous
• Taken for 1 to 6 months
• February 12, 2022

For Rheumatoid Arthritis "I have had 3 infusions, and I felt good after the first one. I don’t feel tired and have no pain. I do have 1 eye that twitches, eyelashes and eyebrows are falling out. The skin around my neck and around my hairline is red, itchy, scaly, and numb around my hairline. My face is slightly red and swollen."