Golimumab and Pain: What Users Say

• Fro...
• Taken for 2 to 5 years
• December 7, 2014

For Rheumatoid Arthritis "I have been on Simponi since five years ago. The medicine has been a miracle. I did notice the effect only after one or two weeks. After five years, I have started to have increased pain, and I think the effect of the medicine is losing. However, Simponi has changed my life completely. From hard attacked by Bekterew, I have now been running and cycling (100 km) competition for many years."

• lel...
• April 21, 2010

For Rheumatoid Arthritis "I have had two doses. My doctor (and myself and my family) are very happy with the progress thus far. I am a 38-year-old mother of three and am so thankful for this medication. My doctor hopes to start weaning me off methotrexate in the next few months. I applied for the patient care plan and have had no problems with it. I picked up my first dose last month at the pharmacy without any glitches. Almost all swelling and pain are gone. I noticed that it fades a bit the last week before my next dose. We'll see how it goes this month. Still, leaps and bounds better than taking three different kinds of medicines! Thank you, Simponi."

• Occ...
• April 15, 2016

For Rheumatoid Arthritis "Started Simponi in February, and so far, nothing has changed, still pain, swelling, and disease getting worse. I hope you never have a problem with an injection, because the people at Jensen who are there to help are clueless."

• Mar...
• Taken for 1 to 6 months
• August 26, 2019

For Rheumatoid Arthritis "I came off Rituxan after several successful years of treatment for RA (almost in remission) when I experienced 12-18 months of chronic infection in my lungs and ears. Diagnosed at age 53, 17 years ago. Have had both knees replaced and have carpal tunnel pain in one thumb. At the same time as the infections, it was discovered I had a cat allergy. These two factors together meant my body could not get rid of the chest infections and ear infections because of the constant cat allergy creating stuffed-up conditions. #5 Simponi infusion in Sept to give it one last chance, but since #1 infusion was in April, I have developed finger movement and pain, bunions, RA flares in the second toe and a foot joint, plus fatigue has sucked the interest in life right out of me. I felt great for 10 days this month on a Prednisone burst, but am weaning off it next week. I do not have a lot of faith that Simponi will 'kick in' after 5 months and hope for something else soon that is more effective for me."

• dre...
• April 7, 2014

For Ankylosing Spondylitis "I have been suffering from ankylosing spondylitis for quite a number of years. In the past 3 years, it has become very severe and has made me feel very ill, thus inhibiting my quality of life. I haven't been able to hold down a long-term job because of this arthritis. I took Humira initially, which didn't work at all. I then tried Simponi, with quite good results. Morning stiffness and pain throughout the day had been significantly decreased. However, it seemed to wear off after around 10 days or so. I bared the usual pain for a week or so before I injected myself again 3 weeks later, instead of four. Hopefully, my specialist will allow me to take it every 2 weeks instead of the usual 4-week injections."

• Pat...
• Taken for 1 to 6 months
• April 9, 2016

For Ankylosing Spondylitis "Well, I would like to say Simponi has been very effective for me. From my first shot to the sixth, the shot I just received this month, the Simponi removed my symptoms of AS to the point where I feel normal. Before being diagnosed and receiving Simponi, I was in pain constantly and taking meds that were basically for gout, which is what I was being treated for before my diagnosis for AS. One month, the doc tried Remicade, but it was ineffective for me. The Simponi has given me back normality, at least in the sense of physical well-being. It has been wonderful for me and my family, as they don't have to worry about helping me when I have symptoms of swelling and pain. In fact, I noticed that when I get scratches, my wounds even heal faster. Thanks."

• Nat...
• Taken for 5 to 10 years
• October 8, 2020

For Ankylosing Spondylitis "Been on Simponi for 8 years. Has been amazing, turned my life around. It can get sore within a week of injection, but not sure if that can be helped. Tried Enbrel and Humira previously, but they only worked for 6 months for me."

• Joh...
• Taken for 2 to 5 years
• October 27, 2013

For Ankylosing Spondylitis "Simponi helps me so much. I take 2 shots per month. I was diagnosed about 7 or 8 years after my first signs of illness. I've had it very hard. I get OxyContin when I have it too hard. But all in all, Simponi is the best. I got a new life with it. Works as a chef, and without Simponi, I would not. I live in Sweden, so I only pay about $300 a year. Or else I would have to pay a lot, like $4000 per month. The negatives with this med, you can get a lot of crap from it. But the pain I had before was crazy. Thank you, my sweet doctor."

• Ben...
• Taken for 1 to 6 months
• June 9, 2023

For Psoriatic Arthritis "I’m currently in the hospital suffering with intractable hip pain and a UTI. I received my 2nd infusion of Simponi Aria last week. I got deathly ill a few days later and couldn’t even walk from the pain. I’m going to have to go to rehab because after 5 days in the hospital I still can’t put any weight on my left hip. I will never take another infusion of this medication. Pain has been worse than childbirth!!!"

• rrs...
• December 5, 2017

For Psoriatic Arthritis "I was on Remicade infusion for 7 years, I had wonderful results for 6 years, with PSA flares slowly creeping back in the 7th, but not unmanageable. Rheumy switched me to Simponi. After 2 injections, while my skin is still clear, the PSA is raging. I am in terrible pain. I spoke to my Rheumy once, and she said to give it a chance. Calling her again this morning. The pain and exhaustion are debilitating and affecting every aspect of my life. I asked her about Taltz and Cosentyx, but she wanted to keep me on a TNF blocker. I'm ready for change."