Trelegy Ellipta User Reviews & Ratings (Page 3)

• Kaz...
• Taken for less than 1 month
• February 16, 2019

For COPD "I have stage 3 emphysema, and I have only been on Trelegy for one week. However, I have found my breathing is actually worse, and I am struggling. I am currently on antibiotics and am wondering if I should battle on or go back to Seretide and Spiriva. Any advice welcome, please."

• Jan...
• Taken for 1 to 6 months
• February 20, 2019

For COPD "Working! Using rescue inhaler a few times a week, otherwise, definite improvement! Works better if you don’t smoke. I think so, I quit that. No longer need nebulizer either. No hospitalization in 5 months. I’m excited! Was having joint pain, but that has improved. I tell everyone don’t smoke anything! Lungs go bad, then life is much tougher!"

• Joc...
• Taken for 1 to 6 months
• March 8, 2021

For COPD "I almost died from having every side effect listed. Three Drs. and a 2-day hospital visit later, and no one was able to figure out in 3 months that it was causing all my problems! I looked up the side effects yesterday and solved all my health issues. The hospital that I was in does not prescribe it."

• Nel...
• March 14, 2020

For COPD "I am having a hard time using this inhaler due to the powder being so concentrated. It makes me cough every time I begin to inhale it. I wonder how effective it is if I am unable to breathe it all the way in. I have switched back to Breo because it does not make me cough when inhaling the medication."

• sto...
• Taken for 1 to 6 months
• December 20, 2018

For COPD "I initially coughed for the first hour, then the following day, half of my head hurt to the touch, it felt like it was sunburned. That lasted a week. Then I had increased mucus that woke me up at night, as I was choking on it. I had pains in my hips and joints, and the pain moved down my legs as I lifted them to lay on a couch. I could no longer lift my arms above my head without them being in pain at the muscle, which felt as if it went down to the bone. A sore throat and headaches. Other than those side effects, my breathing did improve, but not enough to warrant putting up with the side effects. I lasted 3 months, then gave it up. The doctor then tried me on Trimbow, that lasted 3 days when I ended up with vertigo. I'm now back on Seebri and Fostair."

• Ste...
• Taken for 1 to 6 months
• May 31, 2023

For Asthma "I only used my rescue inhaler occasionally before starting Trelegy, now I use it several times a day, and I feel like I have a weight sitting on my lower lungs. This medicine, for me, is horrible, and I never wish I had taken it."

• NPa...
• Taken for less than 1 month
• November 3, 2020

For COPD "Trelegy Ellipta absolutely works for my emphysema. I don’t think I would be able to function without it. $1588.91 for a 3-month supply. Insurance calls it non-formulary. Wish I could find it more affordable somewhere."

• Mik...
• Taken for 1 to 2 years
• February 8, 2020

For COPD "In 2013, my stats were FEV1 of 37 and PEF 31. By mid-2018, my GP started me on Trelegy and a reconditioning walk of 20 minutes a day. In February 2020, FEV1 is 47 and PEF 58, so the Trelegy shift has been outstanding, with no hospital visits since May 2018."

• Sar...
• Taken for 1 to 2 years
• August 28, 2020

For COPD "Was on Symbicort and Seebri for about six years, went to see a specialist, she put me on Trelegy. Have never felt better, hardly use Ventolin. It is the best thing I have been on. I am in Australia, our government subsidizes all medicines for pension-age people to $6.30 per script, otherwise, it would cost me $40.60 per month."

• Hop...
• Taken for 1 to 6 months
• July 11, 2018

"This is a true miracle drug, I have had lung cancer, small cell, and was given a 2-year prognosis but am working on my 6th year. Finally, I was given this inhaler after many that did not help me. It works and has improved my breathing, but unfortunately, I am no longer able to afford it, and my insurance company will no longer let me use a voucher. Why does the drug work but is unaffordable to people? It makes no sense."

• HMR...
• Taken for 1 to 6 months
• July 23, 2024

For COPD "Trelegy Ellipta has been an absolute game changer for me. I've only been taking it for a month but have had zero side effects besides the occasional raspy voice. Prior to my doctor prescribing this, I was taking Spiriva daily, going through an albuterol inhaler a week, having twice a day nebulizer treatments, and once a month prednisone yet still could not walk to the mailbox without gasping for air and stopping. I feel like my old self again. I don't panic and carry my inhaler into every room with me (actually, I have only used it once in the last month) and can walk anywhere without struggling at all. I went hiking with my husband last weekend and moved like my old self. Absolute game changer and wish I would've tried it years ago."

• Sen...
• Taken for 1 to 6 months
• November 3, 2021

For Asthma "Dr. prescribed Trelegy in July, and I followed with rinsing my mouth out with water. September 29, I went to the dentist, and both my dentist and I were shocked. I had the worst dental exam of my life. In May, I had no cavities. In September, I had to get 5 crowns, 2 teeth I could not save, and 4 other teeth needed fillings. Since then, I not only rinse with water, brush my teeth, and use mouthwash after my daily inhalation of Trelegy. Today, my asthma doctor told me to stop using Trelegy. I hope that I never have another dental exam like that again. The dentist believes it was probably the cause, and my doctor doesn’t believe it is the cause. My breathing has improved."

• Jud...
• Taken for 1 to 6 months
• April 4, 2023

For Asthma "65-year-old female, adult-onset asthmatic. Switched from Combivent and Qvar late November. I loved what it did for clearing my airway, but by mid-December I started being fatigued, in March pains, and by March 27, hospitalized for hypokalemia (2.5) and hyperglycemia. Switching back to prior inhalers."

• mag...
• Taken for 2 to 5 years
• January 6, 2022

For Asthma "I’ve been on Trelegy for almost 2 years now, and it’s my favorite inhaler I’ve been on. If I don’t take it for a day or two, I definitely notice a difference and have to take my rescue inhaler. However, I haven't wheezed once since taking it. I’m slowly getting over a cold and have noticed it’s not hitting the spot as well, but I also think it played a big role in me barely having to use my rescue inhaler while I was sick, which I usually have to do. It’s an interesting drug to me since it was originally not even created for asthmatics. My only two side effects have been hoarseness in my voice, but only if I don’t rinse my mouth out properly after taking it, and I also get easier bruising. The bruising worried me at first, but all my blood results have come back normal, so I’ve just accepted it as a side effect."

• Jmk...
• Taken for 1 to 6 months
• September 11, 2021

For Asthma "I have severe eosinophilic asthma. I was given a 1 mo sample of Trelegy Ellipta 200. My asthma is greatly improved, it has cut down on both mucus production and the need for Ventolin. I’ve had a daily headache since starting the medication. My heart feels like it’s racing on and off, blood pressure is elevated."

• Mar...
• Taken for 1 to 6 months
• October 5, 2020

"Trelegy is much too strong for me, it hurts my lungs when I breathe it in. After using it for months, I felt worse. Much more thick mucus, terrible cough, and although it did help a little with the SOB, I felt worse. I stopped taking it altogether, and I swear, I never felt better. No more phlegm, no cough. I know that it irritated my lungs so bad, and that is why the cough and the increased phlegm. It was my second attempt (7 months apart) that I tried Trelegy with the same results, never again!!!!"

• jun...
• Taken for 1 to 2 years
• October 7, 2022

For COPD "I used this med for months. All it did was create a sore mouth and throat, and it dried my mouth out as well. I noticed that it aggravated my paralyzed larynx, causing it to be a constant battle trying to clear the junk off my throat. It gave me pneumonia-type symptoms that I had to treat multiple times with antibiotics. I finally took myself off the medication, but it seems the effects are long-lasting or forever at this point after four months."

• Pon...
• Taken for 1 to 6 months
• June 16, 2022

For Asthma "I have lung damage from cancer along with asthma. I watch for air quality alerts and track my peak expiratory flow rate and FEV. I was using Advair (generic), which was giving me a fairly high dose of inhaled steroid and constant thrush. I was at 60% of my target Peak Flow range and only 70% for FEV. With two months of Trelegy, my Peak Flow is 96% of range and FEV in the mid 80%. With Trelegy, I'm only getting half the amount of steroid I was getting before, and my thrush symptoms have improved (though I still have to treat it). The difference with this med is the addition of the anticholinergic, which will dry you out (so you must stay well hydrated). Ask your doctor about treating thrush (a major cause of 'sore throat') and to check potassium and calcium levels (a big cause of leg cramps). Many of the 'side effects' are easily treated without more meds. Also - if you experience side effects, please, please report them to FDA.gov, your doctor, and the Trelegy folks."

• Anonymous
• Taken for less than 1 month
• December 25, 2022

For Asthma "I have just started taking this medicine on Monday. Currently in the ER for the side effects: bronchial spasms, asthma exacerbation, tremors, wheezing, and unbalance. It does what it is supposed to do, but watch out for the side effects."

• sco...
• Taken for 1 to 6 months
• September 5, 2018

For COPD "I started my Trelegy 2 months ago, and I am feeling a bit better. I have a cough, so I have taken antibiotics - just finished, so I will see how I get on. I would rather take 1 inhaler than 2. All my friends are saying that they see a difference in me in a good way."

• Tig...
• Taken for less than 1 month
• December 29, 2018

For COPD "My doctor gave me Trelegy 10 days ago, and it has helped considerably with my breathing. Advair did not help, also, Advair made my tongue so sore I could hardly eat. I rinse after using Trelegy, but I think the only side effect seems to be that the back of my throat is a little sore. It hasn't been expensive, so far anyway. I have bought one inhaler, but I'm on Medicare. Eight dollars for an inhaler that helps isn't bad! That's been my experience so far."

• sal...
• Taken for less than 1 month
• January 2, 2023

For Asthma "Not a positive experience. I had asthma exacerbated during RST. Doc tried me on Trelegy Ellipta. Usually, a rescue inhaler and the addition of a steroid inhaler is what I use. I prefer the softness of aerosol delivery with a spacer. The experience with Trelegy is very unpleasant based on the inhalation method. It feels gritty, therefore, irritating. Who thought that was a great idea? I also began to experience chest ache. I'm quitting this. I believe the patient instruction for use needs to be improved. More specifically, how long to inhale, how to aim the mouthpiece. Toward the tongue, toward the back of the throat? There seemed to be no great gains over my usual treatment."

• ken...
• Taken for 1 to 6 months
• June 15, 2019

For COPD "I was on Trelegy for about 3 months. It cost me $42.00 per month. Then, after the first of the year, my insurance changed and the cost went to over $700.00. My doctor talked to the insurance company, and it went to $260.00 for a 30-day supply. I couldn't afford that, so my doctor put me on another medication, and the side effects about killed me. Then, the doctor gave me a sample of Trelegy to see if he can find something else for me."

• bob...
• Taken for less than 1 month
• January 10, 2019

For COPD "I used it for two days. The second day, my heart pulse dropped to 40 beats a minute. I passed out once, went to the ER, and they kept me overnight and put a pacemaker in my chest. They don't know what caused it, but I don't want to try Trelegy again."

• Jen...
• December 9, 2021

For Asthma "I started using Trelegy three days ago and have not used my rescue inhaler since. I typically use it three or four times a day and have chest tightness most of the time. I am breathing normally for the first time in my life. If I was not worried about future side effects. I have been on so many medications for asthma, and nothing has come close to the results I have had in the past three days. Just praying the results last and that I do not develop other side effects."