Repatha for High Cholesterol User Reviews (Page 4)

• Nan...
• Taken for 1 to 6 months
• November 15, 2021

"I have taken four injections, and I will not take any more. I have congestion that I have never experienced before. I have completely lost my sense of smell and taste (not from COVID), my test was negative. This is now in my fifth week. My coughing is so bad I think I am not going to make it. I have a runny nose, earaches, and sore shoulders. I have one suggestion: don’t take Repatha."

• Anonymous
• Taken for 6 months to 1 year
• April 26, 2021

"I’m a 64-year-old female with hypercholesterolemia. Nothing worked to lower my cholesterol, so my doctor highly recommended Repatha. Right away, I noticed blisters in my mouth, nose, butt, etc. I was rushed to the emergency room at 3 a.m. because I couldn’t breathe from blisters on my throat and nose. Repatha causes shingles. It has been 8 months, and the left side of my face is still tingling because the left side of your face has nerves, and Repatha affected all the nerves. I can’t chew on the left side of my mouth, and my smile is drooping. This drug is horrible, and it’s just another money-making way for doctors to lie to us. I stopped going to doctors now. I go to holistic doctors. They are definitely more experienced in good health and care more about their patients. I’m thinking of suing Repatha because I’m still suffering."

• Bad...
• Taken for 1 to 6 months
• February 20, 2017

"I was on Praluent for a year with no side effects. My cholesterol was great. Insurance wanted me to switch to Repatha. After the 2nd injection, I noticed constant stomach pain, persistent diarrhea, and I have vivid dreams all night, making me wake up exhausted. I called my doctor to switch back to Praluent because I cannot handle the side effects."

• taj...
• Taken for 6 months to 1 year
• March 20, 2021

"I was a very active, healthy 61-year-old, athletic male who had to have a heart stent because of family history. No heart attack or anything. My doc put me on Repatha to lower cholesterol. After injections of six months, numerous ER visits, and every health test possible, the side effects have diminished my quality of life. It has been over a year and a half since stopping the injections, and I am still suffering from bouts of feeling very ill. DO NOT TAKE THIS stuff."

• Gin...
• Taken for less than 1 month
• September 7, 2017

"After one shot, it scalded my skin, made an open sore, and I started experiencing diarrhea. My lower right back started hurting. Day 17, I'm waiting on blood work before I take a second shot, and my neck at the base hurts. Weird pains I'm not used to that hurt and affect my quality of life. Can't take statins. Don't think I'll ever take another shot of Repatha. If it messes with your liver, it can kill you. I will walk at least 60 minutes a day, every day, and continue to watch my fat, trans fat, and cholesterol intake. My last shot was 27 days ago. Between the initial post and now, I'm still nauseated. I have loose bowels every time I eat, and I have to go. Can't go anywhere, and it's physically irritating. My knees and back still hurt, and I feel pain behind my eyes, have trouble swallowing, and experience body spasms. Still so tired with no energy and have trouble."

• Dea...
• Taken for 1 to 6 months
• April 6, 2019

"I started this medication and took maybe 7 shots. First few times mild cold symptoms, which I could tolerate. I also had ear issues. The next few shots came with blurry eyes, nausea, some diarrhea, and weight loss. The next shots started with severe diarrhea, nausea, and more weight loss. I am a kidney transplant patient, and my kidney labs are worse, I will be having a biopsy in 3 days to see why my transplant is rejecting (probably Repatha). I stopped taking it 3 weeks ago and saw my cardiologist today, and he told me to stay off of it and that it will take 3+ months to get out of my system. This stuff is POISON! I am very angry, sad, and feel deceived by Amgen and the rubbish they peddle about this stuff. Heed the warnings."

• Lor...
• November 3, 2019

"I was prescribed Repatha after having side effects from statins. I was totally off statins when I started. For the first injection, I had some mild cold/flu symptoms for just a couple of days, very mild. I had my second injection on a Thursday, and by Tuesday the next week, I had cold and flu-like symptoms, neck and back pain, and was in bed for three weeks. At first, I didn't even connect it to being side effects of Repatha, but then I remembered when they briefed me, the PA saying cold and flu-like symptoms. So, I started doing some research, and I had every side effect listed with the exception of high blood pressure. It is now almost 3 months since my last injection. My migraine, which in the past had basically gone, has recurred. I also have sinus pressure, neck ache, and lower back ache, aching hands feeling arthritic, urgency to urinate, and extreme fatigue. My internist said it could take about six months to get out of my body. I pray she's right. This is life-altering in a negative way for me. Incredibly frustrated."

• SLA...
• Taken for less than 1 month
• April 7, 2017

"Works great, but my quality of life wasn't there. The drug turned my muscles into marshmallows to the point I couldn't walk. So what's the point? I ended up pulling muscles when I bent over. $300 later at a chiropractor put me back together again. Statins for me are bad news! I can't take them, PERIOD, so quit pushing the meds at $500.00 a shot."

• Pk4...
• Taken for 6 months to 1 year
• March 8, 2021

"After 8 months of use, started having major muscle pains, neuropathy, and increased anxiety. Stopped after multiple ER visits. Now told it could take 3 to 6 months to get it out of my system. Need other drugs to quell or minimize discomfort."

• Rev...
• Taken for 1 to 6 months
• January 1, 2021

"So, just like Dee, I have seen a pretty big jump in my blood sugar levels. History, on top of several other things, I was never diabetic. Suddenly, I was contacted regarding a blood test that said my sugar was very high. Metformin made me sick as a dog. Next thing I knew, I was waking up 8 days after being in a diabetic coma. I took insulin for 6 or 7 months. Levels returned to normal. So, just controlled now by diet. My cardiologist put me on Repatha. I noticed one of the side effects was increased glucose. Sure enough, within a couple of weeks, my levels began to climb from 90-110 to now 160-170. The answer? Go back on insulin. Not sure I like adding two drugs instead of none. Oh, during the year or so my diet was controlled, I ate almost identically every day, with dinner being the exception. I did this so I could watch for increases. All I've done is quit more and more of what I eat, and it just keeps rising. Only change? Repatha."

• Rex...
• Taken for 1 to 6 months
• December 2, 2023

"One month after two two-week injections of Repatha, blood test shows great control of LDL and general cholesterol, but a significant rise in A1C, neutropenia, upper respiratory infection, especially in both nostrils responsive to Bacitracin, general muscle fatigue, terrible low mood, and social withdrawal, significant cognitive/psychosocial impairment. Physicians never tell patients what to expect, they just write the prescription and wish you luck."

• bja...
• Taken for 1 to 6 months
• February 1, 2019

"I think this drug is killing me. I have severe pain everywhere, but especially in my back. I am talking severe, with trips to the E.R. Nothing is helping. Now I am beginning to have urinary incontinence and need to walk with a cane. I cannot get up and down alone, and I have to sleep sitting up in a chair with a heating pad since the pain in getting out of bed is excruciating. I am scared to death, and I have only had 2 doses, nearly a month ago now. I took this due to my cholesterol being so high, and my heart history being so bad. I really wanted this to help, but I am really scared now and in pain 24/7. Several people said if you have any history of back, muscle, or bone pain this will intensify it tremendously, and that is what has happened to me."

• Mr ...
• Taken for 1 to 6 months
• June 13, 2016

"I have muscle aches with statins. I tried Repatha and did fine for a month or so. It lowered total cholesterol to 120. Then, one day after an injection in my right leg, I got severe right leg cramps. It took two more injections to tie the leg pain to the injections. I thought it might be gout. An orthopedic doctor said it was a torn tendon in the knee. Pain was at a level of 2-8, and I could hardly walk. It settled in the knees. I'm about 10 days since the last injection, and the pain is less every day. I'm definitely sure it's the drug as I have never had knee problems. I hope there is no permanent damage."

• Rob...
• Taken for 1 to 6 months
• November 30, 2022

"Fantastic lab results led to absolutely horrific pain! As many other reviewers have stated, everything started out well, but after the 6th dose, I ended up with pain that was worse than anything I thought possible. Recovery isn't quick like statin pain but rather has taken me a very long 3 months to be able to walk properly again. I am extremely happy to have survived this experiment with no long-term damage (I hope), but will never ever try it again. If you are new to this drug, then please be careful, and if you have been injured by it, then have hope that given time, the pain and disability will diminish."

• Red...
• Taken for 1 to 6 months
• December 1, 2018

"I put my experience up some time ago, and now I have taken my 7th injection. My neck is hurting so bad I don't think I can continue on this medication. Dizziness is bad, and back pain. Going to contact my cardiologist to try and stop this nonsense."

• DCv...
• Taken for less than 1 month
• October 3, 2018

"After the second dose, I had nausea, missed a day of work for vomiting, no appetite, felt weak. Four days later, I had intractable diarrhea. Called the Repatha nurse line. She read statistics about side effects to me. Asked her for help/advice. She said they don't give advice on dealing with side effects. Within an hour, I collapsed. My mom called 9-1-1. Went by ambulance to the hospital with severe dehydration, which caused acidosis. Spent three days in the intermediate care unit of the hospital. My palms and the soles of my feet itch. I have a hacking cough, head and muscle aches, and blurry vision. The doctors had no answers and treated me for a virus that usually only causes a cold. Read about similar reactions. I asked if it could be from the Repatha; the doctors didn't know what it was or what it was for (at a teaching hospital). Wish I'd done more research. When my doctor prescribed it, I asked if it was safe. He said it was. I believed him, like most patients would their doctors. He was wrong."

• Mai...
• June 29, 2017

"Horrible experience. Lost all lower body strength. Severe, and I mean severe, knee pain. My knees would burn all over, and just a light touch to them would make the pain even worse! I have had bad tendinitis for 4 months and pulled back muscles. Walking became difficult. It didn’t even bring my numbers down. I stopped taking it and felt my strength and muscles return. Still waiting on my tendinitis, but I feel it is finally getting better. Not safe, not effective, wouldn’t recommend to a lab rat."

• duh...
• July 5, 2021

"I have taken 4 statins in the past five years, all leaving me with leg pain, which gets worse with walking. Stopped each pill within weeks, as I would rather have quality of life. Physician recommended Repatha. No leg pain for two months, however, I experienced constantly being tired. Blamed it on old age (80). After my last injection, I couldn't walk 50 feet without being out of breath. I decided to check side effects, and of course, the #1 is trouble breathing. A little farther down the list is tired and drowsy. I'll live with the cholesterol. I pray the effects go away, I still have them a week later."

• Jms...
• Taken for 1 to 6 months
• July 6, 2021

"I have gained weight on every statin I've been on. My NP said I want you to try Repatha. I've read and have had great reports with people who can't take statins like yourself. So I was happy there was hope for my condition. I went home, looked up weight gain as a side effect. Researched all I could. I started it 8 weeks ago. I had back surgery the week prior. I've been gaining weight. I finally looked up 'I have been gaining weight on Repatha.' I couldn't believe it. It is a side effect. I've also read it only helps 1 out of 66 people from having a heart attack or stroke. What!! I will take my chances. I have also felt very uneasy, not myself, short with my family, gaining weight, body aches, thinning hair, and earaches!!!"

• Poi...
• Taken for 6 months to 1 year
• December 15, 2019

"Call Amgen, who makes this poison. It takes months before it’s out of your system. This is horrible, this Repatha is so bad for all of us. Please, everyone, call the FDA, file a report, they need to know all these side effects. Look at the poor person who has stage 4 lung cancer."

• Dav...
• Taken for 6 months to 1 year
• December 29, 2018

"I used Repatha for 12 months and was pain-free for the first 8 months. Thereafter, pain started growing in the right leg just below and above the right knee. The muscle in this area became so sore that by the 11th month of use I could not walk without a limp. On the 12th and final month, I discontinued the Repatha as I could no longer climb a stairway with my damaged right leg muscle. Two weeks have passed since my last Repatha dose, and my leg muscle pain is 95% gone. The Repatha did lower my LDL to 52, which was great, but what damage it was doing to my leg muscle, and any other parts of my body I'm not aware of, I just don't know. It is virtually the same to my body as was any of the statins I tried. None of them worked for me at age 77 years, male, and in very good health other than high cholesterol."

• jdw...
• June 25, 2021

"I have been on Repatha for 2 months, and I have had 4 injections. I am allergic to statins. No side effects at first, but eventually, I began to feel anxious/nervous. These are issues I have not dealt with in the past, prior to Repatha, and nothing has changed in my life that might explain these feelings. As I reviewed the formal list of possible side effects, I saw nothing listed for feelings of anxiety or nervousness, so I decided to give it more time. More time has resulted in no improvement, so I googled my issues and found this site. While not as common as side effects with muscle pain and cough/cold-like symptoms, I have read of some experiences similar to mine. I will be having my cholesterol checked soon. After that, I will stop taking Repatha to see if my anxiety goes away."

• Che...
• Taken for 2 to 5 years
• February 19, 2020

"I have had very high cholesterol, and I cannot take statins. My cholesterol doctor recommended Repatha. I have been taking it for about two years now. My cholesterol is better, not perfect. The only side effects I have experienced are some back pain and some insomnia. I can walk two miles without increased pain. My blood work has been good so far. For the most part, I seem to be able to tolerate Repatha much better than statin pills."

• Net...
• Taken for 1 to 2 years
• October 22, 2019

"After taking Repatha for a year and a half, my cholesterol was lowered dramatically. But I had sinus infections that got worse, respiratory infections, and was diagnosed with COPD 1 year ago after taking Repatha faithfully. I have always had sinus problems and seasonal asthma, and bronchitis, maybe once a year I had to use an inhaler. Since being on Repatha, I have had asthma attacks and pneumonia so bad I had to be hospitalized. Exactly 4 times in a year. I never smoked, and now I am on 3 inhalers and a nebulizer. I have always had a pneumonia shot every 5 years and never got pneumonia for over 15 years. I am fatigued and have muscle pain. I decided to stop Repatha on my own and see what happens."

• Ver...
• Taken for 2 to 5 years
• December 1, 2019

"Just like all of you, I have been on Repatha, and my quality of life has failed, so I stopped it and still have all the side effects. I now read that the FDA has 8 reports, including 2 deaths with lung cancer. So really, they are aware and not doing anything about this drug. We need to all call the FDA and file an adverse report, so hopefully, they remove it from the market, which is highly unlikely. Just like someone said, it’s about the money. And also report it to Amgen Pharm +1-888-463-6332. What is wrong with this FDA?"