Repatha for High Cholesterol User Reviews (Page 3)

• Kay...
• January 26, 2020

"I've been taking Repatha for about 2 years with minimal side effects. About a week ago, I started having severe muscle cramps in my legs, feet, and ankles. I decided to research how other patients feel while taking this med. Needless to say, I've had similar symptoms as others, but I never associated them with Repatha. I am now going to talk to my cardiologist for other treatments for high cholesterol as I can't take any statins. I have to do what's best for me without endangering my health."

• Fre...
• December 22, 2019

"I was on Repatha for 5 months, from 9/18 to 2/19. I am type 2 diabetic. I had to get off the drug as my blood glucose was uncontrollable. Now the Repatha site reports a common side effect: high blood sugar levels (diabetes). I have detailed eye exams due to my diabetes each year. Between annual exams and taking Repatha, I suddenly have a tear in my retina that I had sealed via laser surgery. The Mayo Clinic website reports eye-related side effects of Repatha. Six months after ending Repatha, I have bladder cancer. My urologist said the tumor grew in the last 6-8 months and was quite large. I had a CT scan 2 years ago, and there was no cancer or tumors, so the cancer is recent. Bladder cancer is caused by smoking (non-smoker) or exposure to chemicals. The Repatha side effects include bladder pain, bloody or cloudy urine, and frequent or painful urination. The drug appears to affect the bladder. NCIS rule 39: 'There is no such thing as coincidence.'"

• Kmc...
• Taken for 1 to 2 years
• December 14, 2023

"I have been on this drug for 1 year now. It has definitely lowered my cholesterol. However, now I have severe muscle pulls without doing much. Calf muscle strain, glute muscle strain, shoulder pain. My doctor said Repatha does not have these side effects. Bull! I am going to go off for 3 months and see if I feel better to see if it really is the drug. Will update."

• Mar...
• Taken for less than 1 month
• June 4, 2023

"Severe muscle pain and weakness in my legs and nerve pain. Can't sleep at night and can hardly walk, the pain is so bad. My feet feel like they are burning, but on top they are cold. I have been on Repatha for 2 1/2 months. Don't know how long this will continue. I'm a 64-year-old woman."

• Hur...
• March 27, 2017

"I'm a very active 63-year-old with a 4x bypass. After a year of not recommending any cholesterol treatment, I finally brought it up myself with my doctor when she recommended Repatha because of my statin intolerance. After my first injection, I started to experience muscle pain in my lats and pecs. It felt like a severe muscle cramp that spread to my arms, although my muscles were not constricting as they would with a muscle cramp. I conferred with my doctor, and she said I should not be feeling any side effects because it takes 3 months to reach a therapeutic level. So, I took the shot the second month, and I'm sorry that I did and will not be taking it again because the pain has spread to other areas."

• 66M...
• October 2, 2016

"I started taking Repatha in Feb. of 2016. It lowered my cholesterol considerably at the beginning but started experiencing pain in my legs, hips, back, and shoulders right after taking it. I did not tie it to the Repatha at first. I gave myself an injection in the leg in August and had a large swelling at the site of the injection. It went down in 4 days, but the pain in my body became severe to the point I could not walk many days. My muscles and tendons became very swollen. I called the number listed on the Repatha prescription insert a total of 4 times because the pain was so bad. The Repatha representatives were no help and told me to talk to my doctor. I finally ended up in the emergency room, and then had an aneurysm 3 days ago. I blame it on Repatha!"

• Car...
• Taken for 1 to 6 months
• May 27, 2017

"I started taking Repatha in April 2017, and the first thing I noticed was back pain, then muscle pain. I can't use my right arm for much and can't open jars and things that require using my wrist. I am dizzy-headed and feel bad all the time (fatigue, I guess). I am taking 2-3 hour naps during the day, and I am only 51. I've never done this before. I talked to my doctor, and she said to come off Repatha for a month and see how I feel. She's not sure it's the medicine. Repatha is really easy to use and is shipped right to my door in a cooler package. Repatha dropped my bad cholesterol from 187 to 67 after 3 doses (bi-weekly). I don't know what to do about taking this drug. I think it's making me feel really bad all the time."

• Day...
• Taken for 6 months to 1 year
• December 27, 2019

"I have been taking 140 mg Repatha every 2 weeks for 8 months. Cholesterol came down significantly, but my feet hurt terribly and my legs hurt terribly. I am 69 and have had a quad bypass 5 years ago and a minor stroke. I have gained 8 pounds. I used to outwalk everybody, now my pain in my feet and legs is so bad that I use a heating pad every night just so the pain will feel better. I also believe it has made me short of breath. So it is good for lowering cholesterol but has terrible side effects. I am going to stop taking it and see in 3 months how much my cholesterol goes up. Glucose blood sugars fasting were 90-102 in the mornings, now blood sugars fasting can be 120-130. Good luck to all who can tolerate it, but I don't want to spend the rest of my life with this leg and feet pain."

• Sor...
• Taken for 1 to 6 months
• May 24, 2023

"This drug is rough. I know it helps some folks with chronic high cholesterol, but I am not one of them. I cannot take statins either. I tried the first injection in October 2022 without much problem. I took the second dose in December (I had elbow surgery in November, which delayed the second dose). I have felt like complete crap, off and on, since then. At first, it was digestive cramping and other issues. It has since moved into my joints, especially my ankles and shoulder/neck. Those are areas where I've had injuries before, so the tissue might be weaker/more susceptible. I read a study that showed Repatha can be so strong that it strips the fatty layer from the myelin sheath on nerves. I have begun supplementing with mega doses of B vitamins, particularly B-12, and consuming lots of collagen and gelatin. I am looking into other supplements, such as immunoglobulins, as well as the usual CoQ-10."

• Per...
• February 16, 2020

"I am on my 9th injection of Repatha. I had no side effects until my 9th injection. My cholesterol levels dropped dramatically, which was great news. However, on the day after my 9th injection, I was out shopping and had a back spasm, and had to call for a ride home. The pain has increased to my hips. I am in consultation with my doctor (via email) to stop taking this medication. Reading the reviews made me realize, yes, I need to stop. I just paid $435.00 for this medication."

• squ...
• Taken for 2 to 5 years
• January 17, 2025

"Excellent. Over a 30-year period, I had taken all the statin drugs, etc.... all to no avail. My total cholesterol had been well over 230 for over 30 years, and my PCP said I was a prime person to start taking Repatha. The first 6 months of taking the drug, my total cholesterol level went from an average of 234 to exactly 100!!!!! I have two arterial blockages, so this new drug has been a godsend. I will be 86 this year and have absolutely no negative reaction to the drug, and even though I have to budget my monthly monies, I don't ever imagine stopping taking Repatha. I use the SureClick and love it. 1-17-2025...."

• Mic...
• Taken for less than 1 month
• May 4, 2019

"I took my first dose of Repatha on a Thursday and had side effects of flu symptoms, terrible back pain, neck pain, and vertigo within 24 hours. By Monday, I was in the ER with a NSTEMI (a type of heart attack). I was sent home on Tuesday. I was back in the ER on Thursday with a second NSTEMI and 2 angiograms. It's been a month now, and I still have muscle pain, weakness, blurry vision, fatigue, depression, shoulder pain, and hand swelling. And this was from just 1 dose. The doctor said there were no side effects. Yeah, okay."

• del...
• Taken for 1 to 6 months
• September 9, 2018

"I injected this drug on August 10, 2018. The next morning, I felt like I had the flu with my hands and face swollen. Then 4 days later, horrific diarrhea. After that, horrific mucus from coughing and horrific back pain. Now I have problems with my stomach - I can't eat, drink, or burp, it feels like my stomach is dying along with my colon - horrific swelling in my stomach. I have been rushed to the hospital twice due to an allergic reaction to Repatha, it has also given me an autoimmune disease. This drug is dangerous. I feel like my organs are dying. My doctor is trying different meds to reverse the side effects, but nothing is working. Please be careful, I wish I had researched this drug before taking it. Now I'm bedridden, and it's September 9, 2018, and I am still experiencing side effects."

• Mis...
• Taken for 1 to 2 years
• August 29, 2023

"Repatha worked great to lower my cholesterol and seemed fine for a year. After 1 yr, I started experiencing severe neurapathy starting in one foot then spread to the other foot, up both legs, and then to my hands. An EMG found large fiber nerve damage from ankle to knee. I also experienced severe sciatica at the same time as neurapathy and tried to convince doctors it was related, but they would not consider it and treated them separately. I also experienced blood in urine, and the ER kept saying I had a UTI, but a CT scan of the urinary tract found nothing. I do not have diabetes. I'm a 60+ female and have found other very similar cases online from women of a similar age. I stopped taking it almost 2 months ago, but it takes about 3 months to get out of your system. Sciatica is better with cortisone shots, but I've not seen any improvement in neurapathy yet."

• Dis...
• Taken for 2 to 5 years
• December 27, 2019

"The person with bladder cancer you are correct, it’s the Repatha. My lung cancer tumor grew fast also and has spread to other parts of my body. It’s stage 4. I too had 2 chest X-rays before I went on Repatha and was fine, drove my bike to work every day. I was healthy, but my quality of life went downhill. This is a lawsuit ready to happen. It needs to be removed from the market."

• Mel...
• Taken for 1 to 6 months
• November 23, 2019

"I have been suffering since stopping Repatha after 8 injections. Legs have gone weak and painful to walk. I was okay before I started, but now it’s a challenge to get around. I hate that I even tried it. This is a lawsuit drug - just stay away!"

• Jum...
• Taken for 6 months to 1 year
• June 9, 2019

"Don't let anyone tell you to hold off on Repatha injections and then 'try again!' Also, do NOT let your doctor convince you there aren't side effects. This is a dangerous drug if you have pre-existing comorbidities. I have RA (rheumatoid arthritis), need 5 surgeries for vascular blockages in my torso and legs, and 4 coronary stents are placed. My RA symptoms of joint pain have worsened with the Repatha, but my biggest negative on this drug is increased blood pressure and chest pain. It's very dangerous when I'm already a heart patient! Think carefully about what your medical issues are and whether you want to risk them worsening. New problems for me are dizziness, sudden gut pain, anxiety, visual disturbances, nausea, and leg weakness. Yes, my cholesterol went from 300 to normal, but even taking an injection every 3 months has incapacitated me and exacerbated my medical issues!"

• Kit...
• August 4, 2019

"Having taken statins since 1993 for high cholesterol, I became allergic and began Repatha injections a year ago. My hair started falling out, so I had blood work to rule out thyroid trouble. Ruled that out. My numbers are down, but my hair loss continues. I have a feeling it is Repatha causing it. I came on here to see if anyone else was having this problem. It being such a new drug, I feel like a guinea pig. I am scared to stop the drug, but my cholesterol will go sky high again. I am at a loss as to where to turn for answers."

• Lan...
• Taken for 1 to 6 months
• May 1, 2019

"Numbers are great from this medication. Dropped cholesterol 100 points, LDL to 70. That's great for this 59-year-old female who has always had high cholesterol. However, those numbers are not worth the side effects. Have tremendous burning from neck to abdomen. Muscle pains in legs and severe back pain, especially lower and between my shoulder blades. Have taken 5 injections and discussed the side effects with Dr., and he reduced the injections to once a month. Last had the injection on April 1st. As we speak, April 30th, am fighting extreme side effects. With the burning in my chest, I'm not sure if I'm having a heart attack or not. Have suffered 3 attacks like this that last all night since my last injection. THERE IS NO WAY I'M TAKING ANOTHER INJECTION. I am just praying that these symptoms stop and do not continue long term like others have stated on this site. Stay away from this drug! Please! There may be no recovery from it."

• Sue...
• December 5, 2019

"I had to pay over and above my insurance to get this drug just so I could end up having more problems than I've ever had from a prescription. I had the one and only injection on Nov. 3rd, 2019. On the 4th of Nov during the night, I woke up with the room spinning so bad that I couldn't move. I was told by my cardiologist to call 911, which I did. When they got there, they tried to help me up but couldn't, so they told me I would have to wait it out. After two and a half weeks on prednisone, I started feeling better. Now I'm getting vertigo off and on. For instance, today I was supposed to go golfing, but from the time I got up this morning, I've been so dizzy that I have to cancel. I never had this problem in my whole life until this injection. I can't believe that my doctor even prescribed this poison to me! I just hope that eventually this goes away. I wouldn't recommend anyone even trying this medication."

• Jud...
• Taken for 1 to 6 months
• March 23, 2019

"Repatha is great for lowering your cholesterol really fast, but the side effects are terrible. My back, hips, and knees are hurting me 24/7. I have been to the doctor many times, and he has given me many different pain meds. Nothing really helps. I can hardly walk across the floor. Working all day is killing me. I just want to cry because of the pain. I have been off Repatha for almost 3 months, and the pain still has not gone away. I just want to be normal again. I will never take it again."

• Mas...
• March 27, 2017

"I have inherited familial high cholesterol. At age 36, I had quintuple bypass surgery. At age 46, 56, 63, and 65, I had stents due to blockages. I've been taking statins for 30 years despite severe muscle pain, currently Crestor, and started Repatha injections every two weeks shortly after it became available. I attribute the shortness of breath I have been experiencing to Repatha, and my symptoms have grown increasingly worse during this period of time, including weakness and trouble breathing. I have allergies and asthma, which I thought was the source of my trouble breathing, however, my breathing problems have significantly worsened since taking Repatha and are a debilitating side effect. Cholesterol has dropped significantly."

• Anonymous
• Taken for 5 to 10 years
• October 25, 2024

"In 2008, my legs began aching and losing strength. Hypercholesterolemia. Through the years, they tried different brands and strengths of statin meds: Lipitor, Atorvastatin, Pravastatin, etc. The pain and weakness continued growing worse. It reached the point where I could hardly rise from a sitting position, with the constant pain becoming unbearable. The statins were correcting my cholesterol readings but were causing the weakness and pain in my legs. My doctor began reducing the dosage from 20 mg to 10 mg per day. The pain and weakness continued. On March 17, 2017, I stopped taking statins altogether. Within 10 weeks, the leg pain and weakness were gone, but my cholesterol levels rose. I went back on the weakest dosage, trying first to stagger to every other day, then three times per week, then once a week. On 6/28/2019, my cardiologist stepped in, putting me on Repatha SureClick 14 mg once every two weeks. The pain and weakness are gone. Cholesterol numbers are great! I'm back to enjoying life at the ripe old age of 82!"

• Rep...
• Taken for 1 to 2 years
• December 31, 2019

"Please, everyone, I have been reading all your comments. You need to call the FDA and report what is happening. I can’t make it any clearer how important this is. This drug is so bad for patients, especially causing cancer. It’s not a coincidence. It’s a horrible drug."

• Lea...
• Taken for 1 to 2 years
• June 19, 2019

"This drug was effective year one. Raised my HDL cholesterol, which was my issue. A week ago, I injected as always, and by nightfall, I had a 5-minute angina attack. Night 2, one-hour attack. Next AM, my body was writhing in pain: hands, shoulder, back. My thumb was the worst. Went to my cardiologist, of course he said, “Repatha wouldn’t do that!” I have been miserable for a week. Mornings are the absolute worst. My biggest concern is how to combat this reaction? CoQ10 was recommended, so I began this yesterday. Please, if anyone can help, reach out to me. I’m feeling crippled."