Tymlos User Reviews & Ratings (Page 4)

Tymlos has an average rating of 5.1 out of 10 from a total of 108 reviews on Drugs.com. 28% of reviewers reported a positive experience, while 35% reported a negative experience.

Reviews for Tymlos

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JSc...
September 19, 2021

For Osteoporosis "I have been on Tymlos for 5 months. I noticed after the first few injections a pressure sensation at the top of my spine, which has continued to get worse. It starts about 3 minutes after injecting the medicine. I have severe osteoporosis and have tried very hard to deal with side effects. They now include severe headache with nausea and vomiting. Since I have had Meniere's disease for many years, I thought at first that was the problem, so I started a log of what was happening. It seems to be similar to the vertigo of Meniere's, but it is different. My quality of life has deteriorated simply because of this medication. Yesterday was the last dose I am going to take. The migraine-like headache and severe dizziness and vomiting are just too much to deal with on a daily basis."

2 / 10

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Anonymous
Taken for 1 to 6 months
August 8, 2021

For Osteoporosis "I was on Tymlos for 3 months with the normal heart racing, heavy chest side effects, but the side effect that made me discontinue the drug was I woke up one morning after taking it for 3 months with severe back pain that I had not experienced before. The pain has continued for 2 months now. I have had some confirmed back problems for the last 5 years, but after much physical therapy and daily exercise, I have been pain-free for at least 3 years, and then this suddenly happened basically while I was sleeping. I had an MRI done, and my back condition had not worsened on MRI, so my spine doctor and endocrinologist both said to quit Tymlos. I am getting ready to start on Evenity. I hope I have better luck with that."

2 / 10

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Raf...
Taken for 1 to 6 months
January 13, 2021

For Osteoporosis "I started Tymlos 1 month ago. I do have some palpitations, but it goes away after half an hour. I inject before I go to sleep, so I just lie down after taking it. Hopefully, this will help my bones. I plan to stay on it for 1 year. Then get a new Dexa to check my T score."

8 / 10

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16 Report

Frequently asked questions

Dou...
Taken for 1 to 6 months
July 2, 2024

For Osteoporosis "Last year I had my first Dexa scan and it was devastating. -4.5! Today I had an amazing improvement. -2.7. June 29, 2023 Spine: Total BMD of the spine L3 is 0.613 g/cm2, with a T-score of -4.5. July 1, 2024 Spine: Total BMD of the spine L2-4 is 0.815 g/cm2, with a T-score of -2.7. I have only been taking Tymlos for two months. But I have been supplementing with Algae-Cal since last August."

10 / 10

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Anonymous
Taken for 1 to 6 months
March 4, 2024

For Osteoporosis "I have been on Tymlos for 4 months, but am taking a reduced dose. I had horrible side effects on the regular dose of 80 mcg. I started with 20 mcg and slowly ramped up to 40 mcg which is tolerable. I sure hope this helps my bones as I have broken 5 bones in less than 2 years. I am sensitive to most medications and petite. I usually do ask for half a dose."

7 / 10

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Col...
Taken for 1 to 6 months
February 13, 2024

For Osteoporosis "I am starting my 5th pen and I have also experienced some side effects. They come and go, the very first injection caused terrible nausea about an hour after injection. I then started with the rapid heartbeats, head rush, and slight nausea. I have experimented with doing the injection at different times of the day and have found that I feel much better doing it in the evening after taking a bath and before getting to bed. I am pretty active and found that most of the side effects have tampered off when I am at a relaxed state. I still get a rapid heartbeat for about 10-20 minutes but not as bad as before. In the past two months, I am experiencing little zapping body aches in all different areas of my body. They are not horrible but I do feel them - it's a strange feeling. I just turned 53, and my dexa was -3.3, so I was recommended to start this medication. I was also switched to a different thyroid medication, so I am hoping to see positive results."

6 / 10

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CPu...
Taken for 1 to 6 months
December 1, 2023

For Osteoporosis "I am about to start my third pen. The first three days, I had palpitations, back spasms, and headaches. Someone told me to drink a lot of water, especially before and after the injection. After that, except for one day, I have had no major side effects. I do think there's some extra joint pain with this medication, but nothing that would be enough for me to stop it. I have had several spinal fractures (with kyphoplasty in 6), and my Dexa score in my spine is -3.5. So it is crucial that I continue and not stop. However, I am concerned about what relay drug I will have to take after this."

9 / 10

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Gra...
Taken for 1 to 6 months
October 25, 2021

For Osteoporosis "I am on my second pen. I have experienced palpitations, nausea, and headache, which are tolerable. But, I have the bone pain others mentioned. The pain occurs randomly, in different areas: ankle, hip, legs, etc. I too had an episode of back pain, I thought I fractured my spine, but it resolved in 24 hours. I also notice that the first void after injecting is cloudy. Has anyone experienced that? Also, each injection burns, has anyone else experienced that?"

7 / 10

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Goa...
Taken for less than 1 month
September 11, 2021

For Osteoporosis "Just started. Full dose 2nd day. Immediately after injection, intense lower back pain. Followed by racing heart, followed by headache. Can't imagine keeping this up. Haven't decided if I will skip a day or cut the dose in half or both, but if I can't get these issues to resolve, then I will be done with Tymlos."

4 / 10

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Dan...
Taken for 1 to 2 years
February 3, 2025

For Osteoporosis "I’ve been on Tymlos for 16 months for osteopenia. No significant side effects other than one kidney stone (my first, yeow!) at 14 months. Occasional foot cramps, but I can deal with that. Just switched Plan D provider and have to do another pre-authorization, which is always difficult. Don’t know if a lapse in taking Tymlos is acceptable. Will get a scan in 8 months to determine progress."

8 / 10

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Bam...
Taken for less than 1 month
December 29, 2021

For Osteoporosis "Day 1: headache and tired (ibuprofen did not help). Day 2: severe headache almost immediately and really tired, dizzy, had to just lay down. Left a message for my doctor, but it’s the week between Christmas and New Year’s, so probably limited staff. Will these symptoms go away? I’m afraid to try day 3."

2 / 10

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Spi...
Taken for 1 to 6 months
February 23, 2022

For Osteoporosis "Took for 4 months, and after 3 months, vertigo got really bad. Thought it was my ear. But part of me in legs got worse, and overall feeling crummy. Heart would race, break out in sweat. I will no longer take this drug."

2 / 10

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6 Report

63y...
Taken for 1 to 6 months
January 29, 2022

For Osteoporosis "Two months on Tymlos, switching to Forteo soon. Within 10 minutes of injecting Tymlos (before bed), heart rate increases about 25 bpm. Heart rate goes back down within 30 minutes or less. Only other symptom is my cheeks have gotten very red and warm. So much so, that friends and family comment. Hope these two things go away when I start Forteo."

5 / 10

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Anonymous
March 4, 2022

For Osteoporosis "The customer service from this company is appalling. Messages are left without return phone calls. My follow-up Dexa scan is scheduled for the beginning of April to determine if I will be able to have my fusion surgery. I have been out of medication since Wednesday with no hope that I will be able to obtain medication for another two weeks."

1 / 10

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Don...
Taken for less than 1 month
September 12, 2024

For Osteoporosis "I'm 55 years old with a family history of osteoporosis. I recently found out I too have significant bone loss. I took my first dose of Tymlos today. While I did feel a dull backache and headache, that was about it. The injection was easy and pretty painless. I hope the rest of my injections go as well. I was given a month's supply by the doctor. Having a hard time getting pre-authorization to go through for insurance. They need more info, so hopefully I will be able to continue to take it."

6 / 10

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Ano...
Taken for 1 to 6 months
April 8, 2025

For Osteoporosis "Started Tymlos full dose, and it made me feel odd, but tolerable. The palpitations were better after one week. Then I got bone pain in my leg-very different from any pain I've had before! Woke me up. After skipping it for a few days, the pain went away, so I started back 2 clicks (20 mg) and am up to 5 clicks (50 mg), but starting to get insomnia. I'm a bit into investigating. I found a dose response clinical trial that shows that 40 mg works half as well as 80 mg, but it still works! Even 20 mg has a positive effect. So I may stay with a half dose until I give up and switch to something else."

7 / 10

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Lee...
Taken for less than 1 month
May 3, 2019

For Osteoporosis "This is my Tymlos review after trying it. You might want to know what are the side effects of Tymlos? For me, I had leg pain, stomach cramps, headache, body pains."

8 / 10

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Flo...
Taken for 6 months to 1 year
June 16, 2019

For Osteoporosis "Started after multiple spinal fractures. It helped with bone building and pain-definitely a godsend. The only side effect is itching, but I can deal with that."

10 / 10

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Bcb...
Taken for 1 to 6 months
June 29, 2020

For Osteoporosis "After 6 months on Tymlos, the ONLY side effects I've noticed are occasional heart palpitations that go away in minutes."

8 / 10

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50 Report

Sal...
May 28, 2019

For Osteoporosis "Severe back pain, like almost unbearable at times."

2 / 10

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49 Report

pai...
Taken for less than 1 month
January 22, 2020

For Osteoporosis "I've been on Tymlos for 2 days, have side effects of severe pain in my back radiating up my back and heart palpitations and head hurting bad. It lasts for 1 hour."

1 / 10

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39 Report

sis...
Taken for 1 to 6 months
June 15, 2020

For Osteoporosis "Tymlos for 2 months, my side effects were fatigue, constant nausea, finally had to stop. I felt like I was poisoned. A year later, and I am having significant leg pain."

2 / 10

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Ban...
Taken for 1 to 6 months
June 28, 2020

For Osteoporosis "On Tymlos for 3 months, severe insomnia."

6 / 10

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Jan...
Taken for 1 to 6 months
March 17, 2020

For Osteoporosis "I have been using Tymlos for 2 months at this time, and it causes side effects of severe nausea."

6 / 10

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SLa...
Taken for less than 1 month
January 24, 2020

For Osteoporosis "Have been on Tymlos for 2 weeks. Will the back pain and palpitations subside after being on the drug for a while?"

3 / 10

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.