Skip to main content

User Reviews for Mysoline

Mysoline has an average rating of 9.4 out of 10 from a total of 8 ratings on Drugs.com. 78% of reviewers reported a positive experience, while 0% reported a negative experience.

Condition Avg. Rating Reviews Compare
Seizures  
9.3
6 reviews 57 medications
Epilepsy  
10.0
2 reviews 56 medications

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published.

Reviews for Mysoline

Vol1 · July 3, 2013

For Seizures "I became ill in 1982 at age 33 with encephalitis, brain damage on temporal lobe, and grand mal seizures. The next year I was also diagnosed with Lupus in addition to epilepsy. It took 5 years and NIH treatment of 250 mg of Mysoline/ 3 times a day to control my seizures. It has been controlling my seizures and I am now 65. AARP denied my brand name Mysoline for seizures even though I was going to pay high co-pays. We pay our own insurance so this is a real problem. The worst is fighting AARP to pay their part when I know Mysoline works for 27 years. How can a person at a desk just suggest other medicines to take when your doctor and you state that this is the best one for you. "

10 / 10
Was this helpful?YesNo
Elaine Tafelski · September 7, 2008

"My doctor first prescribed Mysoline for me at least 12 years ago, after attending a Medical Conference. I was unable to raise a cup to my lips, or cut the food on my dinner plate. My tremor was noticeable by family and friends. I had been checked for Parkinsons, and the results were negative. This doctor learned that this medication was taken for Essential Tremor, which was mis-diagnosed too many times by Doctors. He wanted me to try it at least. I readily accepted, to take Mysoline, and before I knew it I had results. Taking this prescription, gave me my life back. I no longer needed assitance at dinner time, or by family and friends. I live a normal life now, not ashamed to go out in public. Inderal was added with Mysoline just lately. Thanks"

10 / 10
Was this helpful?YesNo
A. Non · December 23, 2010

For Seizures "I was prescribed this medicine back in the late 80's for seizure control. I recently stopped using this in 2010. It controlled my seizures well, but I did not realize the side effects of it. Side effects were irritability, anger, increased depression and behavior. Because I literally grew UP with this medicine, I can now see these issues after changing the medicine. My brain was built to use it during puberty/young adult. This does control seizures, and actually suppressed anxiety by slowing down all brain functions. Be aware that epilepsy is cor-morbid with depression quite often and this medicine may enhance/increase depression symptoms."

7 / 10
Was this helpful?YesNo
Jim · Taken for 10 years or more · June 6, 2022

For Epilepsy "When the doctors FINALLY prescribed name brand Mysoline, my seizures STOPPED and I got my life back. After years of going round and round with the many different group insurance companies of my employers and getting the drug approved, things worked wonderfully. Now that I am retired and on Medicare, I am shocked at what I pay for this drug alone! Annually it costs me, after my insurance pays, $13,064.92 out of pocket. When I was first getting on Medicare, I applied for both the Patient Assistant Program, (PAP), through Bausch & Lomb and had my neurologist submit a request to have name brand Mysoline approved as a Formulary Drug so my Medicare prescription plan would assist in paying. They approved and that IMMEDIATELY dropped me from the Bausch & Lomb PAP. I have no idea how anyone on Social Security is supposed to pay $13,064.92 annually????? The cost keeps going up, UP, UP!"

Was this helpful?YesNo
Jan · Taken for 10 years or more · August 16, 2022

For Epilepsy "This medication is wonderful. I have been taking it 40 years no side effects stops seizures. I take a small amount of valium and dilantin with it I have my life back. Now there is a shortage. I cannot take the generic I have falls. Went to the mayo clinic past all the tests in regard to falls passed them all. Went out the door fell and broke my shoulder while on primadone. I have to have mysoline because of filler and dye allergies. Now they say they have a shortage. I cannot take the primidome . Anybody else having this problem?"

10 / 10
Was this helpful?YesNo
Anonymous · July 13, 2009

For Benign Essential Tremor "I found Mysoline effective for my essential tremor, but the side effects of tiredness, lack of energy, plus reduced sexual function (difficulty in ejaculating) is quite frustrating."

7 / 10
Was this helpful?YesNo
irishdeb1 · August 12, 2009

For Seizures "I have been taking this medication for 30 years, and have never had a side effect or seizure. Works very well for me. No complaints. "

10 / 10
Was this helpful?YesNo
hhrt-7u · August 26, 2009

For Seizures "Great!"

10 / 10
Was this helpful?YesNo
Anonymous · January 8, 2009

For Seizures "Great Seizure control. Low side effects after first 2 weeks."

9 / 10
Was this helpful?YesNo
drm562 · Taken for 1 to 2 years · May 29, 2015

For Seizures "No seizures no side effects"

10 / 10
Was this helpful?YesNo

This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.