Mysoline for Epilepsy User Reviews
- Jan...
- Taken for 10 years or more
- August 16, 2022
"This medication is wonderful. I have been taking it for 40 years, no side effects, stops seizures. I take a small amount of Valium and Dilantin with it, I have my life back. Now there is a shortage. I cannot take the generic, I have falls. Went to the Mayo Clinic, passed all the tests in regard to falls, passed them all. Went out the door, fell, and broke my shoulder while on Primidone. I have to have Mysoline because of filler and dye allergies. Now they say they have a shortage. I cannot take the Primidone. Anybody else having this problem?"
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.
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"When the doctors finally prescribed name brand Mysoline, my seizures stopped and I got my life back. After years of going round and round with the many different group insurance companies of my employers and getting the drug approved, things worked wonderfully. Now that I am retired and on Medicare, I am shocked at what I pay for this drug alone! Annually, it costs me, after my insurance pays, $13,064.92 out of pocket. When I was first getting on Medicare, I applied for both the Patient Assistant Program (PAP) through Bausch & Lomb and had my neurologist submit a request to have name brand Mysoline approved as a formulary drug so my Medicare prescription plan would assist in paying. They approved and that immediately dropped me from the Bausch & Lomb PAP. I have no idea how anyone on Social Security is supposed to pay $13,064.92 annually????? The cost keeps going up, up, up!"