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User Reviews for Trileptal

The following information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

Condition Avg. Rating Reviews Compare
Epilepsy 7.7
3 reviews 54 medications
Seizures 7.1
19 reviews 52 medications

Reviews may be moderated or edited before publication to correct grammar and spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest in the medication will not be published. As reviews and ratings are subjective and self-reported, this information should not be used as the basis for any statistical analysis or scientific studies.

Reviews for Trileptal

Epiwarrior · Taken for 6 months to 1 year May 30, 2020

For Epilepsy: “I got diagnosed with Epilepsy on 7/3/15 after having 9 absence seizures in a 3 hour period. I was put on Keppra 250mg 2x/day and over the years it’s increased to 1000mg 2x/day. The seizures weren’t going away or becoming less frequent. In August 2019 I was put on Trileptal 300mg 2x/day after finding out I was also having complex partials and this pill was my miracle. I haven’t had a seizure since!”

10 / 10
Jav · Taken for 1 to 6 months January 1, 2020

For Epilepsy: “Taking trileptal for 5 months. Female. 450mg twice a day. No seizures but memory is now horrendous and I'm so dumb and numb. Also the 5-7% chance of having a deformed baby is not worth it but I'm stuck because all the seizures meds are horrid. Also now experiencing constipation.”

5 / 10
finallystable October 9, 2019

“I've been on many different mood stabilizer and anti-psychotics since being diagnosed with bipolar 2 a decade ago. Seroquel and risperdol made me a fat zombie, lamictal gave me SJS, depakote made me a raging cow, geodon gave me bad TD, tegretol made me sleep all day... The list can go on and on. It got to the point that I was so fed up with all the terrible side effects from all these medications that I decided to try to go med free for almost 2 years. I finally realized that I needed something and my pdoc recommended trileptal. It has been an absolute game changer. The past few months I've had several traumatic events happen that would usually push me over the edge, but I have been able to keep it together. I seriously feel like trileptal is to thank for that. I take 450mg a day and I have absolutely no side effects. I've even been able to lose weight since starting. I've been more stable then I've been in years on this drug. I highly recommend this to anyone with bipolar disorder.”

10 / 10
gotgotgot August 20, 2019

“Have tried and failed literally 10 other medications. I thought my options in the future were either ECT, experimenting with psychedelics, or suicide. Tried this as a Hail Mary with my therapist and Normalcy for the first time in 6 years. I was dealing with severe mood swings and anxiety (my OCD symptoms I think are from such a high general angst), that I was ready to give up. Within 5 days of this I wasn't feeling much- therapist said give it a few more days and then up the dose if still nothing. I gave it a few more days and all the sudden they just kept getting better. I can't say enough good things. It was like setting me back to the person I was before I got sick overnight. If you're thinking of trying this, please do. I have zero side effects thus far. I am making sure to drink a glass or two of salt water daily also as I'm a sweater and trying to offset the low sodium.”

9 / 10
Anonymous · Taken for 10 years or more June 14, 2019

For Seizures: “I had my first seizure at the age of 20, I am healthy otherwise. I was diagnosed with a typeof seizure caused by a small Heterotopia and put on 600 mg of Trileptal twice daily. I was seizure free for 15 years until 3 days ago. The only side effect was weight gain. I see my neurologist tomorrow and am anticipating an increase in dose. I would highly recommend this medicine to anyone doing research.”

10 / 10
Cita · Taken for 6 months to 1 year May 27, 2019

For Epilepsy: “My son had a head injury when he was very small and started to have seizures. Scared me so much at the time. Was told it was febrile seizures at the time. Over the past 3 years he started to have these 15 seconds tremors. We went to see a neurologist and she prescribed Trileptal for him after having a MRI and EEG which both came back normal. The medicine really does help with stopping the seizures. Because of the type of epilepsy he was diagnosed with, he will probably won't stay on the meds. But for now it's a big help. Seeing a child having seizures is so hard to watch.”

8 / 10
Dog lady · Taken for 2 to 5 years May 24, 2019

“If there was a fire and I could only grab one of my assorted bipolar drugs, it would be Trileptal, even before Klonipin, and that’s saying a lot. Trileptal brought me out of the abyss. Love it.”

9 / 10
DogMomRN · Taken for 1 to 2 years December 22, 2017

“After expensive, unnecessary dental work and a little research, I diagnosed myself with Trigeminal neuralgia (TN). Took a little convincing to make a believer out of my doc, but finally got a consult with a neurologist. He was doubtful until I described my symptoms, which were typical TN symptoms. Trileptal is my 4th major TN drug to try (new neurologist) and at first it was a godsend. I've been on it a little over a year now, and am on neurontin an baclofen as well for other pain issues. It has in the last week just quit working. I still work as an RN in ICU and am scared to take too much more because I need my mind to function at top capacity. I already feel a little slow thinking from all the meds I'm on, but can't function without them.”

5 / 10
girlwiththebadbrain November 21, 2017

For Seizures: “I started taking Trileptal when Tegretol stopped working for me. I love this medication. I developed epilepsy following a head injury (diving accident) when I was 8 years old. I've had seizures (daytime absence, daytime partial, nocturnal grand mal) since then. Tegretol worked for me for years, then stopped working. Trileptal has been my only seizure medication for the past 11 years and I couldn't be happier. I have to add salt to my diet, and I get very flush whenever I exert myself, but being completely seizure free is worth these small inconveniences.”

10 / 10
alfred marta June 14, 2017

For Seizures: “My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. She was jerking very violently, and her eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she's had seizures. She had an MRI ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, facebook and website of people that was cured from seizure”

Anonymous · Taken for 6 months to 1 year October 4, 2016

For Seizures: “Although this medication did decrease my daughters absence seizures, if she took this at any time 30 min before or after eating, she had a severe reaction. Her throat would burn inside and out, her face would flush, she would get dizzy and unable to focus. This would last about 5-10 min. and then she would get so tired, she would instantly fall asleep and sleep for hours. She was at a pretty high dose during this time 1050mg 2x daily. We finally stopped this medication, because of the stress of having to watch so closely when she ate and when she could take this medication.”

2 / 10
Marge S July 17, 2016

For Seizures: “I have temporal lobe seizures. I have taken Trileptal for many years and it has helped controlled the seizures. However; I have been having issues with low sodium. The doctors blame it on the Trileptal. So to fix the problem, they suggest eating high sodium foods, fluid restriction, and no water. Water dilutes the sodium. They also suggested that I add about a teaspoon of salt to my meals. So what I do for thirst is drink Gatorade but only a few sips. But you got to becareful and not to drink more than a liter of fluid in a day as this is what is recommended by the doctor. My neurologist recommended that I drink gatorade. So most of the time I drink Gatorade when I eat my meals.”

6 / 10
doglover68 October 22, 2015

For Seizures: “I have been on Trileptal for about a month now. I'm taking 300 mg twice a day. I had an abnormal EEG and diagnosed with right-sided temporal lobe epilepsy. I started having pain 5 yrs ago -intense, daily pain in my right eye and eventually extended further up on the right side of my head (which is related to the epilepsy). I was also suffering from repeated inappropriate thoughts (of sexual nature) very disturbing and disrupted my life. I have since found out that OCD behavior very frequently accompanies temporal lobe epilepsy. Trileptal has stopped the partial sz and inappropriate thoughts. Indocin 25 mg is controlling the pain. Hope this helps others.”

Joçao Humberto Silva · Taken for 10 years or more September 1, 2014

For Seizures: “Due to possible heart failure about 15 years ago I started having partial seizures waking up in airplanes or hotels not knowing were I was for some time and than gradually became alert until I started with many severe seizures. I started with Tegretol and then switched with Trileptal that was very effective. Forgot to take it a few times and had seizures until I became very conscious of the need and since then I am quite well. I need to stay far from confrontations and conflicts. I currently take 1,500 MG daily (600 morning, 300 dinner 600 @ sleep). My sodium level suffered a lot but I am good on it now. The way to balance it is with coconut water, sports drink and adding a bit more on home cooking. It is a super medicine. I miss my red wine!”

10 / 10
Anonymous · Taken for 10 years or more August 8, 2014

For Seizures: “I have spacial seizures. I take 1200 mg per day. It has been 100% effective for the last two years. I had about six months of problems after I began taking Lipitor, but none since I was taken off the Lipitor. I'm a 67 year old male who has had seizures for over 30 years. It has been as effective as Tegretol was until it stopped working after 14 years. I had a short bout with low sodium after open heart surgery.”

10 / 10
DWS(Dave) · Taken for 1 to 6 months June 21, 2014

“Thank you 'Drugs.Com'. for your list of severe side effects, I was able to explain to my Dr. why all these side effects that occurred within (3) weeks were the result of Trileptal. High fever, kidney infection with blood in the urine, extremely high PSA (from 0.5 to 13.3), elevated liver labs, positive/reactive for hepatitis B (after several labs, it was confirmed that it was negative), insomnia, total fatigue, etc. And the list continues, again this all happened within (3) weeks. After (2) rounds of antibiotics (PSA dropped down to 2.5), x-rays, cat scans, bladder/kidney tests confirmed that there was nothing wrong with my prostate, kidney or liver. Even after my experience I'm happy so many of you have wonderful results! Good luck to all.”

3 / 10
itlpsychogrl · Taken for 6 months to 1 year June 19, 2014

“I take 150mg at night. It makes me drowsy, along with a 0.5mg alprazolam I can finally get at least 5-6 hours of sleep at night. I did not know how ill my disorder was making me until I was on this medication and the prescriber that I was seeing let me lapse because I missed my appointment for a refill. Within a couple weeks, I wanted to put my jacket on and run away, thought about running into traffic, real manic, racing thoughts while feeling depressed. I never knew how sick I was for all of those years until I was on the Trileptal and felt what "healthy" was like. Thankfully, found a new doctor and back on it and do not plan on stopping, ever!”

10 / 10
Randi-B34 · Taken for 1 to 6 months October 28, 2013

For Seizures: “I'm 33 year old female and was diagnosed with seizures at 31. They came out of no where. Had MRI and a eeg no signs of anything they were normal. With not be able to find what type of seizures they are its hard to find help from anywhere. I tried this medication trileptal and it is a nitemare for me. I started with 2 tablets a day along with keppra that I was already on. They may not work well together. But I've been in trileptal for 1 month now and since the seizures has picked up which I didn't like that at all. I called the doctor which is surpose to be a seizure specialist and she said to up the medication And that's when I noticed they were coming more than they normally do and I noticed up set stomach. No success with it at all!”

1 / 10
bsh85 September 24, 2013

For Bipolar Disorder: “I was on Topamax and my Dr. added 300 mg Trileptal twice a day to deal with anxiety issues caused by Topamax. I have experienced no weight gain and few side effects. There was an initial feeling of "contentment" whenever I took it, but this wore off after a couple weeks. Since adding Trileptal to the repertoire I've experience no manic symptoms but blessed, normal emotions. It's like the anxiety was cut away and a real human being was exposed underneath. The emotions are loud and clear but they aren't overpowering. No cycling. I'd say this was a real plus.”

9 / 10
JessMess August 6, 2013

For Trigeminal Neuralgia: “I have MS and experienced a severe relapse and spent a week in the hospital with chronic face pain. After determining it was Trigeminal neuralgia, my neurologist and I spent several weeks trying numerous treatments. Trileptal was the only one that gave me not only immediate relief, but I haven't had any face pain for months now!”

10 / 10
junelynn63 · Taken for 2 to 5 years June 15, 2013

For Bipolar Disorder: “Tried Tegretol to no avail. Trileptel is great for me.”

10 / 10
Ewokbaby June 5, 2013

For Bipolar Disorder: “I have just begun Trileptal as a treatment for Bipolar I. I was previously on Seroquel 150 and was unable to function at all within 45 minutes of taking it. I experience rapid cycling and more manic episodes than depressive ones and so the Seroquel helped me sleep. However, I noticed weight gain almost immediately and immense hunger-almost ravenous. When it would wear off I was extremely hostile and agitated. The side effects seemed to outweigh the benefits. So far Trileptal has left me with no side effects except for a slight headache and I have smoothly transitioned out of my manic episode. I feel like I may need a sleep aid however- still experiencing a bit of insomnia. I can only hope the success continues!”

7 / 10
orkie March 12, 2013

For Trigeminal Neuralgia: “I have had Trigeminal Neuralgia for 20 yrs. There has been only one Dr. that hit it on the nose. Trileptal great medicine.”

10 / 10
Ncderw · Taken for less than 1 month February 19, 2013

For Bipolar Disorder: “I am diagnosed with Bipolar, still unsure if my type is 1 or 2 because I experienced good several bout of signification impairment of function depressions and frequent severe hypomanics or mild manics. Mixed episodes are my main presentation of bipolar disorder. I tried Lamotrigine and many antidepressants, all they did was fueled my mild delusional manics and another times was mixed. I was on carbamazepine and lithium, it was good but I developed allergic reaction to carbamazepine and fueled a month and half long of constant hypomania mood and doctor put me on Trileptal. For the first time I am able to feel content without any explanation. It is a great medicine, you don't feel side effect and being content, that's a dream to me.”

9 / 10
ASJ January 10, 2013

For Seizures: “My son of 7 has been on Trileptal for 2 weeks. Immediately the most evident side effect was solemness. A week into therapy he was playing outside and complained of dizziness, weakness and pain all over. Thanks to literature at Novartis site is very comprehensive so I found out about Hyponatremia (sodium level becoming very low). A few drops of concentrated table salt solution in both ears immediately took care of the problem. As for seizures, he hadn't had any. But then, we only found out about his rare nocturnal seizures by coincidence. He did have night terrors twice a month before. We haven't had any of those yet.”