Methotrexate for Dermatomyositis User Reviews

• Ano...
• Taken for 1 to 6 months
• November 14, 2020

"I was put on methotrexate for dermatomyositis, and it made me very sick! A low dose once a week did nothing to me, but it didn’t help either. Then I was put on a higher dose, and I was unable to get out of bed except for the restroom and to shower with help. I felt like I had a really bad case of the flu, but worse. I had red patches all over me and chills, fever, and the patches on my skin were very hot. There was no in-between dose for me. Methotrexate just didn’t work out for me."

• meg...
• Taken for 10 years or more
• June 2, 2023

"I took this drug, along with folic acid, for many years. My conditions include osteoarthritis, which was diagnosed when I was 18. Moving forward, I developed seronegative arthritis, which I was told was practically the same as rheumatoid arthritis. They put me on methotrexate, and in my 40s, I also developed ankylosing spondylitis. At 66 years old, I have been told that I have sclerosis of the liver. As I have never had an alcohol problem, they are attributing it to methotrexate. Unfortunately, the drug didn't significantly improve my symptoms, and I was never informed about the liver complications. I'm wondering if anyone else has experienced this."

• Col...
• Taken for 2 to 5 years
• March 1, 2021

"It took a good year from my first symptoms (body rash that itched like crazy!) to getting a rheumatologist. He started with Plaquenil then started me on 20 mg of methotrexate, which finally cleared up my facial redness. I was able to start working out regularly again, and my bumps on my knuckles went away too. It did work for me, but I do have side effects as well. I have about 12-24 hours of feeling kind of crappy after my weekly metho dose. But I am thankful for how it has cleared many of my DM symptoms. As the years go on, I have noticed a slight lapse in efficacy, but it still does a good job."