Nucala and Hair Loss: What Users Say

• Nic...
• August 6, 2019

For Asthma "I have been on Nucala for 2 years. I am 41 years old. I’ve had several sinus infections, coughing like crazy, reflux. When the Dr. discovered I had Eosinophilic allergic asthma, he put me on Nucala. About 10 minutes after my injection, I had severe back pain & fatigue. As time goes by, I’m noticing more side effects. I’ve lost 30% of my hair. Severe dry skin on face. Arthritic pain. Headaches. Nucala has helped me tremendously, but I’m so upset about all my thinning/lost hair. I’ve had every blood test done. Thyroid checked. All good. Has to be a side effect. Everyone, PLEASE REPORT ALL YOUR SIDE EFFECTS!!! They need to know so many people are suffering from hair loss, joint pain, fatigue, headaches, muscle spasms, etc. I have to meet with my Dr. again to go over all this."

• Alw...
• Taken for 1 to 2 years
• January 24, 2020

For Asthma "After two years on Nucala, I have had enough. For the past three months, I have had excruciating joint pain in my knees, ankles, wrists, elbows, and fingers to the point that I cannot run at all or even walk without pain. While on Nucala, my joints have always been hurting, but now it's just so much worse. I've also suffered from headaches, sore throat, muscle spasms, chest and back pain, and some eczema. I lost half of my hair in the last two months and some of my eyebrows as well. The weird thing is, all was well for over a year and a half, except for some minor joint ache, but then suddenly everything went bad really fast. Now I have to wait for a few months for Nucala to leave my system, and hopefully things will return to normal. It did help with my asthma and nasal polyps, but now the side effects are just too much."

• wre...
• June 21, 2021

For Asthma "I feel like I have been poisoned! It only works for about three weeks, but I still have asthma symptoms. My hair is falling out like I am on chemo, and I have terrible muscle spasms that paralyze my legs. I am stopping this awful medicine. The benefits do not override the risks. I'm done!!!"

• Lei...
• Taken for 1 to 6 months
• July 6, 2019

For Asthma "I have just taken my 5th injection of Nucala on July 2nd, and although my severe asthma, allergy, GERD, and sternum and back pain are finally gone, I have had a sore throat for a month and a half, and now I am experiencing extreme hair loss. I have lost nearly half my long beautiful hair in just the last three weeks. I have added no other meds, and it seems each month as Nucala has built in my system, side effects have increased for me. As much as it has alleviated my eosinophilic asthma, I can’t live without hair or with this chronic sore throat. I am going to an ENT soon to rule out any other cause, as my general doctor nor allergist can find no cause for the throat discomfort. I am also going for blood work on Monday to check for other issues that can cause sudden hair loss, but I am betting I will have to go off this medication."

• Amb...
• Taken for 1 to 6 months
• October 9, 2019

For Eosinophilic Granulomatosis with Polyangiitis "A brilliant drug has helped with the lungs. I stopped wheezing after the first injection. I have now been on Nucala for six months, but I have hair loss and severe pain in my foot and all over my body, so painful 24 hours all the time. I'm not sure if it is reducing steroids slowly from 10mg to 5mg over the months or the drug, but I seem to have all the symptoms everyone is having. It has saved me from my wheezing lungs, so I will continue to see how I go."

• Anonymous
• Taken for 6 months to 1 year
• December 26, 2020

For Asthma "I have been taking Nucala for 9 months. I have severe persistent eosinophilic asthma. My asthma had a rapid onset and began about 2 years ago. I was completely healthy prior. I was using a nebulizer every 2-3 hours around the clock and on 02 at 3-5L because my airways were so tight. 10 days after the first injection, I was no longer requiring oxygen or neb treatments. Over the course of treatment, I've had a few minor setbacks, but they've been small in comparison to what I was living prior. The first couple of months, I had bad headaches and some backaches, but both resolved with ibuprofen. I get tired and flu-like at times, but a short rest usually takes care of that. I have minor skin issues, and my hair has thinned a bit, but those are things that I'm willing to deal with to have my life back. I can take my grandbaby on walks in her stroller and not be gasping for air. Nucala has been life-changing for me."

• cou...
• Taken for 6 months to 1 year
• February 5, 2021

For Eosinophilic Granulomatosis with Polyangiitis "I've been on Nucala for almost a year now. I did initially notice fatigue and hair loss, but my doctor didn't seem to think it was related and was more due to work stress, however, that has all passed now. I will say that I went from uncontrollable coughing and being unable to breathe after doing minor things (like walking), and now I am inhaler-free! Overall, I have had a good experience so far."

• Anonymous
• January 21, 2021

For Asthma "I have been on Nucala for 1 year. It has helped my asthma. I am having pain all over my body, mostly upper back, and I am losing my hair. Not sure I can stay on this med. My Dr. has suggested going off Nucala and see what happens. I can't take the pain."

• Sar...
• Taken for less than 1 month
• October 21, 2021

For Asthma "I got asthma from COVID. Never had asthma before COVID. I just started Nucala. I noticed after my first injection I could breathe a lot better and no shortness of breath. I don’t have to use my inhalers as much. I did notice some hair loss."

• Ron...
• Taken for 1 to 6 months
• April 7, 2019

For Asthma "I have been taking this for 1 year and four months. It's been keeping me out of the hospital for sure. I've been wheezing a lot off and on. Has anybody had a problem with hair loss?"

• Cla...
• Taken for 1 to 2 years
• October 14, 2021

For Asthma "52F, have been taking it for 14 months. It’s a miracle drug to me, I am off prednisone since my first injection, however, I have lost half to 2/3 of my hair."