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User Reviews for Keppra

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Keppra.

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10
   
14%(7)
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6%(3)
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28%(14)
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10%(5)
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Keppra Rating Summary

6.0/10 Average Rating

51 Ratings with 49 User Reviews

What next?Compare all 183 medications used in the treatment of Epilepsy.

Reviews for Keppra to treat Epilepsy

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"I was diagnosed with epilepsy when I was 13 due to my cerebral palsy I had been taking zonegran since then I had weaned myself off of my medication when I got pregnant and had been seizure free for almost 7 years I recently had a relapse and began seeing a different neurologist she put me on keppra THE WORST three months of my life my moods would go from 0-60 in a matter of seconds and for no valid reason I had trouble remembering things even troubling with communication it’s true I also began to have suicidal thoughts and became to much to handle even for myself I would randomly cry then get angry I recently was referred to another neourologist who asked me about these symptoms and then it clicked I DO NOT recommend this medication to anyone"

   
2.0

B’gosh (taken for 1 to 6 months) December 2, 2017

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"I was on Keppra for about 6 months as an addition to oxcarbazepine. From the first week of taking keppra I had developed a horribly annoying eye twitch. At first I thought it was from lack of sleep but after about three months and the twitch being consistent on 3/4 days a week, after a little research online I realized that keppra was the culprit. Besides the physical side effect my family told me I was just about unbearable with how moody I was while on it (I was on the dosage of 250mg x2). My neurologist told me to give it 6 months to see it the side effects decreased over time. Before I reached the 6 month mark I had a break through seizure and that ended my journey with keppra."

medicatedin07 (taken for 6 months to 1 year) November 20, 2017

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"Developed epilepsy due to several strokes while fighting sepsis/septic shock about 4 years ago. I am in the middle of weaning off Keppra and moving to lamictal. While I was seizure free on Keppra, the Kepprage, depression, and suicidal thoughts made me think it might be better to take my chances with seizures..hopefully the lamictal will be effective. I also with there was more science behind cannabis, and I lived in a state that allows medical cannabis. CBD seems like an option to supplement the conventional medications, but I can't say I complain about the occasional "buzz" via full spectrum cannabis."

   
3.0

Dr. Indica (taken for 1 to 2 years) November 20, 2017

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"As a 42 year old female, I have had seizures my entire life. I have taken 14 anti-convulsants at one point or another in an attempt to control my complex-partial seizures, but Keppra is the WORST medication I have EVER taken. The side effects are horrible. Although it's the only medication that has been able to stop my seizures, the side effects are so terrible that it's not worth taking it. I couldn't string together a coherent thought, had short term memory loss, had awful mood swings, and suddenly hated life. Everything was difficult, I couldn't think straight, and felt emotionally raw all the time. I could barely keep it together while on this medication. Every day of life was AWFUL while on this medication. I will NEVER take it again."

   
1.0

Pacific NW November 18, 2017

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"Neuro recently added Keppra to my seizure med regimen. I have absence seizures & the 600mg (the recommended max) of Lamotrigine I'd been on for 16 yrs was no longer as effective. Being middle-aged & female, my seizures developed a catamenial (hormonal) aspect to them. My absences would skyrocket at certain times of the month, as many as 60/day. Been on Keppra for 2 weeks & have only had 1 absence during that time! As for the side effects: near constant irritibility, sometimes a sense of hopelessness, apathy, & mood swings. More often than not, I feel detached from the world...like I'm just watchin a movie & I'm not a part of whats going on around me. I'm weighing the trade-off: no seizures or constant crazy? Gonna give it a little more time."

DawnC714 (taken for less than 1 month) June 26, 2017

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"Keppra was fine for me at first (500 mg twice a day) for 2 months. I suffer from complex partial seizures and experienced a grand mal recently. Then I experienced extreme tiredness, confusion, headaches, greatly increased my depression, could barely go from my bedroom to the living room (never mind managing leaving my house). I had to go back to my neurologist to get switched off such a horrible drug for me. Aptiom (once a day!) so far is a better choice for me."

   
1.0

Jeweltone (taken for 1 to 6 months) April 4, 2017

8 users found this comment helpful.
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"My experience on keppra was awful . Partly responsible for me developing a state of encephalopathy. Mood was evil. I was threatening to strangers and family. I'd flip so suddenly from 0 to 100 without warning at the slightest word out of place. I'd say it's dangerous from patient perspective and would not advocate it as a nurse. Thoughts of negative actions... prolific"

   
1.0

Nurse patient (taken for 6 months to 1 year) March 29, 2017

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"Extreme rage. Angry a lot. Quick to snap at minor things. Seizures have stopped for 2 1/2 years with a price to pay. I'd just like to try something else but this is the first medication that works after trying 3 others."

Bogiebear March 26, 2017

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"So I had times where I'd black out and have amnesia. Basically it would scare my parents and after the second time it happened they took me to the doctor. We went through all the test and they all came back normal except for my EEG. it came back abnormal. I was immediately put on keppra and hated every second of it. I started off with 500mg 2x a day. After the first dose I was hallucinating and very confused. The four hour mark was the worst. I was super loopy and couldn't focus for nothing. the medicine caused me to have mood swings and go into a deep depression. My advice if you have any sort of mental illness DON'T TAKE IT. I've struggled with Bulimia, Anxiety, Depression, and Bipolar disorder for years. Seizures stopped. Wasn't worth it"

   
1.0

Princess Pebbles March 23, 2017

10 users found this comment helpful.
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"I was diagnosed with grandmal epilepsy in 2004, have tried alot of different medications over this period and Keppra has always been a constant during this time, with interaction with others Starting on 250mg bd & after a decade I'm now taking 1000mg bd with 100mg bd of lamotragine. The main concern is that I'm always tired" mentally and physically, having to rest quite alot & lack of appetite although I have a feeling that this is due to the combination. I recently had a Petit Mal seizure and the Neurologist advised that it was due to missing one dose of lamotragine, although Keppra by itself is a generally peaceful medication. I have been recently diagnosed with haematomachrosis, iron overload, although they've advised it's genetic."

   
8.0

Mr Strong (taken for 10 years or more) February 15, 2017

8 users found this comment helpful.
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"This medication created the worst two years of my life. I started having seizures my sophomore year of college and am now a senior and I have been on Keppra the past two years. The doctors never explained the severe side effects that would go along with this horrible drug. I used to be always a happy kid and since I started taking Keppra I constantly dealt with mood swings, uncontrollable anger, severe depression, constant thoughts of suicide, weight gain, and hair loss! I can't believe it took me such a long time to get off of this stupid drug. The seizures never stopped either and all the doctors would do is increase my dosage every time. I'm currently at 3000mg a day and am slowly weeding myself off of this drug and going all natural."

   
1.0

Anonymous August 23, 2016

24 users found this comment helpful.
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"Anger, moodiness, hopelessness, irritability, trouble making cohesive thoughts, very serious suicidal urge. Same day after first pill of 500 mg."

   
1.0

Concerned Citizen 40's August 14, 2016

15 users found this comment helpful.
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" I Ve had nothing but problems with the Keppera : constant shaking in my arms & legs & pins & needles feeling in my arms & legs severe light headedness no appetite & etc."

   
1.0

Anonymous (taken for 1 to 6 months) August 9, 2016

11 users found this comment helpful.
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"Good for Epilepsy but the feelings you get whilst taking them are so bad, I have a feeling in my back of burning and on the inside also as if my tummy is burning also. It is so good for fits if only on them a short while, but not so good to be taken too long. I wish my Docs would understand what they are putting me through with this drug and how I feel, but they do not understand or do not want to !! They just say "so you know better than the Doctors?". I know these drugs are doing me in and seeing Dr about them so wish me luck !! phew"

   
2.0

Winb143 (taken for 5 to 10 years) August 7, 2016

11 users found this comment helpful.
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"This medication has been an on and off solution. It used to cause a lot of keppra rage. but am on another medication that are for seizures that also help with my anger bouts."

   
8.0

Dhani (taken for 10 years or more) June 2, 2016

6 users found this comment helpful.
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"I was diagnosed at 13 years old with grand mal seizures due to my period. Was put on Keppra 250 mg twice a day. I'm 21 now and still take it. It does control my seizures ( though I still get Aura's once in a while) and I have experienced all the side effects. My parents and friends will be the first to tell you how drastically I have changed from this medication. It makes you very irritable, tired, depressed, CRAZY mood swings and short tempered. Through the years, I've learned to handle it better. When I was 15 I stopped taking them to see if I grew it out of it, suggested by my neuro, and had 3 seizures in 3 days. Have been taking it every day ever since. Keeps me to live a normal life, like drive a car and go to school!"

   
6.0

Anonymous January 30, 2016

20 users found this comment helpful.
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"When I first started jeopardy I noticed instability with my emotions, especially anger. After a complete rage out I decided to do some research and discovered that taking a vitamin b6 supplement helps to reduce or eliminate this effect. The results were instantanious with me. If you take keppra I strongly recommend getting the b6 supplement. I take 1 in the morning with breakfast."

   
7.0

Blazeem October 15, 2015

34 users found this comment helpful.
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"I have been on Keppra for two years and would not recommend it. Keppra greatly reduced the frequency and severity of my seizures BUT it did so at a cost. Since starting Keppra I've consistently experienced depression, anxiety, and compulsive suicidal thoughts. It has significantly impacted my quality of life in terms of mental health."

   
4.0

Not worth it July 29, 2015

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"I was on 1500mg of Keppra (generic) for partial seizures that progressed into a grand mal seizure. Immediately upon starting the meds, I noticed that things were different. I felt disconnected from myself, trouble with attention, word finding, coordination, mood, working and longterm memory. However, I was seizure free and I needed to drive so I pushed through, not enjoying my life as much and making terrible social decisions. Finally after 4 years, my neurologist is helping me wean off so that I can start a family without worry. I am down to 250mg a day and WHOA my whole life is changing. I feel centered, even, connected. I am so sad about how I was living my life on Keppra. Don't ruin your life "

   
5.0

JJ40 June 29, 2015

37 users found this comment helpful.
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"I was having difficulty getting diagnosed because I was not having grand mal seizures. I was, however, having about 80 simple partial seizures a month for 10 years straight. We thought maybe anxiety. Nothing was picked up on scans cause it was impossible for me to know exactly when it would happen, so it was never happening while scans were performed. Finally, 10 years later, they turned into grand mals. I started on Keppra 2 years ago and have not had a single seizure since. 3500mg daily. To go from 80 a month to NONE at all... This stuff had given me my life back. And no side effects for me!"

   
10

April S (taken for 2 to 5 years) February 13, 2015

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"No noticeable side effects. Except maybe for bowel movement."

   
9.0

Molly76 (taken for 2 to 5 years) October 16, 2014

19 users found this comment helpful.
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"I have taken Keppra for the last 8 yrs. I take 6-500mg pills and 3-100mg pills a day. It has worked very well for me. I did have a Grand-Mal Seizure a few months back. It was the worst I ever had. They did a blood level on me and my blood level was Therapeutic, Meaning normal. It is a good medicine to take. But like any other medicine it has it's off days. I do recommend it though."

   
8.0

J.M.P (taken for 5 to 10 years) October 4, 2014

20 users found this comment helpful.
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"After having seizures for reg every 8 days or so for 55 years on many different anticonvulsants, I was given Keppra, 3000mg daily and for the last 10 years have been free from seizures with no side effects whatever. This medication has changed my life around."

   
10

Maggie w (taken for 10 years or more) August 7, 2014

28 users found this comment helpful.
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"Keppra seemed to stop my seizures for my mild epilepsy however the side effects were so bad that I stopped taking it after 3 weeks. The worst side effect was suicidal depression. Prior to taking Keppra I did not suffer depression. I'm back on Epilim now."

   
4.0

Amyjanecunningham (taken for less than 1 month) May 29, 2014

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"I have been on Keppra for 2 years taking 3000mg per day along with 400mg a day of Vimpat and I am still having at least 2 a week. They put in a VNS in Oct, 2013 and I am still having them. I just am having some side effects like... falling, dizziness and being ill if something is said in the wrong tone. I hope that make sense. I just get aggravated easy and I just can't get rid of my headaches."

   
4.0

JHodges (taken for 2 to 5 years) May 26, 2014

33 users found this comment helpful.
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