Keppra for Epilepsy User Reviews (Page 4)
Reviews for Keppra
- Mr ...
- Taken for 10 years or more
- February 15, 2017
"I was diagnosed with grand mal epilepsy in 2004, have tried a lot of different medications over this period, and Keppra has always been a constant during this time, with interaction with others. Starting on 250 mg bd & after a decade, I'm now taking 1000 mg bd with 100 mg bd of lamotrigine. The main concern is that I'm always tired, mentally and physically, having to rest quite a lot & lack of appetite, although I have a feeling that this is due to the combination. I recently had a petit mal seizure, and the neurologist advised that it was due to missing one dose of lamotrigine, although Keppra by itself is a generally peaceful medication. I have been recently diagnosed with hemochromatosis, iron overload, although they've advised it's genetic."
- jsh...
- Taken for 1 to 2 years
- January 19, 2022
"For us, Keppra was not the right medicine. My son started on this medication at 6 months old and was on it till about 2.5 years old. It didn't seem to help with seizures and also seemed to cause aggression issues. Once we removed this medication, his overall attitude changed for the better. I will say that while on it, one thing that helped with the aggression was B6 vitamin."
Frequently asked questions
- What is the difference between Briviact and Keppra?
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- Kay...
- Taken for less than 1 month
- February 22, 2021
"Worst medication I've ever been on. I am naturally a very calm, kind, and easygoing person. On Keppra, I suddenly became an aggressive and angry person. I did not realize this at first, but soon realized I was yelling at everyone and had explosive anger towards the smallest circumstances. I was on this for about a month. I have had amazing experiences on Lamictal (Generic: Lamotrigine)."
- Nic...
- Taken for 10 years or more
- November 8, 2021
"This 'Med'/Keppra/Brivaracetam has always been Neuro's 1st choice since diagnosed in 2008 for 'Opiate induced Epilepsy' @30 (3000 mg). Not helped 'Absent' or 'Nocturnal Seizures'! Would take any 'Med' to avoid Sleep-Wandering, biting mouth to shreds & various injuries when awakened. Keppra = No thanks. The SIZE of the tabs are scary enough, increased anxiety, zombified 24/7, terrible lethargy, that KEPPRA RAGE & negative feelings as others have described. (Tegretol, Clobazam + Zebinix are helping more, tbh.) The gut feeling with others' experiences on this 'Med' confirms suspicions. Bless all.."
Are you taking this medicine?
Your review helps others make informed decisions.- Liv...
- Taken for 10 years or more
- August 26, 2021
"I started Keppra XR in 2010, 2250 mg daily, and have been seizure-free to date. The first month was a bit rough as I felt disoriented and fatigued. I had a bit of a hiccup when my not-so-usual doctor switched me to immediate release generic. That was terrible! Suicide ideation, anger, and hostility. Life was really awful within 24 hours on that crap! I even got in trouble with the law by day two! Knowing that wasn’t me, I went back to my regular and much-loved doctor. Although not covered under my HMO, I needed my doctor and Keppra XR brand. I have no side effects other than I sometimes feel a little euphoric about an hour after my morning dose. Very satisfied with the results and living my best life."
- Bec...
- Taken for 1 to 6 months
- January 24, 2020
"Been on this med for a month. It’s absolutely a lifesaver. I had been on Trileptal and had increasing seizures, even in my sleep. This med had stopped them completely, as well as provided me with the sleep I haven’t had in years. Not one side effect whatsoever!!! I’m sticking to them, 500 mg x 2 tabs twice a day."
- A N...
- Taken for 10 years or more
- October 8, 2021
"Keppra has been the only thing that controls my seizures. It is dangerous at higher doses. It gave me suicidal fantasies and a bipolar-like personality. When I lowered the dose, I feel more stable with a joy for life, but I am so fatigued 24/7. After taking it for 20 years, my memory is shot, and I am scared I am going to get early onset dementia. However, an epileptic has to think about surviving each day without having a seizure in a dangerous circumstance that could kill or seriously injure themselves and others. So although Keppra is not perfect by any means and it will take a lot of experimentation for the right dose, it gave me the best chance at a normal life, seizure-free."
- Lyn...
- Taken for 1 to 2 years
- January 10, 2022
"I took this medication during my pregnancy with my youngest son. I had almost 160 seizures during the pregnancy, plus I was a horrible person to be around due to the constant irritability. It was horrible. My son was delivered early to try to get me on a better medicine. My doctor suggested we try it again after the pregnancy, and it still didn't work. Horrible medicine!"
- bia...
- September 30, 2009
"I have had epilepsy since age 13. My doctor put me on Keppra and Lamictal XR. It's only been a week, and I have a lot of the same side effects you all are getting, so I called my doctor, and I'm going back to see him next week."
- KS6...
- March 7, 2021
"So far, I’ve been on Keppra for 1 week. My experience is short with this drug, but so far it has been a lifesaver. I’ve had no side effects yet. I was switched off of Topamax after recording more than 24 side effects on the minimum dosage of 25 mg. I ended up being allergic to it, and it was so bad for me. On Keppra, I finally feel like myself again. It’s a Godsend for me, personally. I feel like I got my life back."
- cjw...
- Taken for 1 to 2 years
- January 11, 2022
"I nearly died in the hospital from epilepsy. My doctor prescribed Keppra, and now I take Keppra at home. My epilepsy problems have gradually disappeared. I take it three times a day in liquid form, and it is easy to take, but it doesn’t taste good."
- Anonymous
- Taken for 5 to 10 years
- October 10, 2021
"I was prescribed this drug after my first episode, didn't have the second seizure until three years later after missing a couple of doses. So I assume it worked well and I didn't suffer any physical side effects as my doctor kept monitoring the drug level through blood tests until she found the right amount. HOWEVER, this drug literally made me a very horrible person, a bad guy, someone that I remember and feel disgusted by, I feel embarrassed. I ruined some relationships and career opportunities. I was put into SSRIs and they didn't help but made things worse. I was in a rage all the time, I call it Kepprage. After another violent seizure, I was prescribed Lamictal, which counterbalanced Keppra's psychological side effect."
- Ben...
- Taken for 1 to 2 years
- June 14, 2022
"Great medicine. If you have bad side effects, try levetiracetam from other manufacturers, unless you can afford the brand name. The generics are made by several different companies, and the side effects vary by those companies (I like mine from CVS). !! TAKE B-Vitamins !!!! If you start getting irritable and anger fits that cause you to lose control. With B6 vitamin, the only side effect I got now is some acne and muscle weakness, especially 2 or 3 hours after a dose..."
- Lil...
- Taken for 2 to 5 years
- September 7, 2021
"I have been on Keppra 500 mg twice a day for four years and haven't had a seizure! It was hard to adjust to, and on days where I'm overtired, the side effects can happen: moodiness, insomnia, etc. But I'll take it, and I'm so glad the seizures aren't happening!"
- lmf...
- October 29, 2011
"My wonder medicine. I have stress-induced epilepsy. I am highly allergic to Dilantin and Lamotrigine."
- Xmy...
- October 11, 2011
"I have been an epileptic for 16 years, and this is the best medication I have ever taken. I have no side effects, and I was able to have my son on this medication."
- Anonymous
- Taken for 1 to 2 years
- October 26, 2019
"This medication has caused me to lose 3 months of my memory, which was never regained. Why is it also on a recall list and being prescribed?"
- Joe...
- Taken for less than 1 month
- April 12, 2019
"Keppra made me extremely dizzy to the extent I had to hold onto furniture to keep from falling down. My doctor put me on lamotrigine. During the switch, I had a grand mal."
- JMG...
- Taken for 1 to 2 years
- December 25, 2022
"This drug is awful. I have so much anger, and they got me on a high dose, but it’s not working. I also get tired easier."
- Con...
- August 14, 2016
"Anger, moodiness, hopelessness, irritability, trouble making cohesive thoughts, very serious suicidal urge. Same day after the first pill of 500 mg."
- Mol...
- Taken for 2 to 5 years
- October 16, 2014
"No noticeable side effects, except maybe for bowel movement."
- jam...
- March 13, 2023
"Look, it does the job. I don't have seizures on it, but it also makes me mentally foggy, extremely sleepy, aggressive, depressed, and suicidal every now and then."
- mom...
- Taken for 10 years or more
- July 8, 2024
"I have been on Keppra for 22 years. I've not had any adverse side effects. I am not 100 percent seizure-free, but Keppra has definitely helped me."
- Hja...
- Taken for 5 to 10 years
- November 14, 2020
"Totally halted my seizures with this when nothing else could. Life-changing."
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"Been taking Keppra the whole time I've had epilepsy, which will be six years come next Christmas Eve. It will make you irritable the first few weeks, but that passes. I have one grand mal seizure once every three months. It's an alright drug if your epilepsy isn't a 'I have one every hour' type thing. (: Good luck!"