Leflunomide and Hair Loss: What Users Say (Page 2)

• Gin...
• Taken for 1 to 6 months
• October 10, 2024

For Rheumatoid Arthritis "Began taking leflunomide in June of 2024. I immediately noticed a reduction in knee joint pain, which I had been having problems with since January. I then started to notice hair loss (big clumps every time I brush my hair) and low-grade fevers every day starting in August. I went off the leflunomide about 6 days ago and began taking a washout medicine to ensure all of the leflunomide is out of my system. It is an 11-day washout, and I have noticed that my hair loss is less, but I still have the low-grade fever every day (99.4-99.9). Is anyone else experiencing daily fevers with the medicine?"

• Kat...
• Taken for 1 to 6 months
• December 9, 2019

"I was diagnosed with dermatomyositis about nine months ago, and Plaquenil wasn't enough, so I started MTX (methotrexate) in late spring. I was not able to tolerate the side effects, which made life a nightmare (nausea, vomiting, severe diarrhea, headache, fatigue, hair loss, blurry vision, etc.). I stuck with it for four months before asking my rheumatologist to move me in a different direction. After coming off MTX, we did a course of prednisone and then ramped up on Arava. Miracle! After experiencing serious muscle weakness, mechanic's hands, joint pain, and fatigue, I'm at the gym four days a week and now fully able to take on all of life. Have a few minor side effects (most notably headache and nausea), but not enough to keep me down! I love this drug!"

• Anonymous
• October 4, 2009

For Rheumatoid Arthritis "I had high hopes for this medicine, but aside from not helping my inflammation or pain. I'm experiencing itching, red skin, blisters on my tongue, and a lot of my hair falling out. Not sure I can stand the itching 'til my blood work up in November. Here's hoping the side effects will decrease."

• RAS...
• Taken for 1 to 6 months
• October 23, 2022

For Rheumatoid Arthritis "Leflunomide made me extremely tired, and it made my beautiful hair fall out. It has taken so long for it to grow back. Also, I got pneumonia after I started taking it with Humira. My hands were less swollen, but I was still in a lot of pain from swollen joints."

• Sal...
• Taken for 1 to 2 years
• February 11, 2014

Leflunomide for Rheumatoid Arthritis "Not ONLY the pain from rheumatoid arthritis - Arava made my hair fall out, lump in esophagus, and chronic throat infection."

• Bob...
• February 1, 2021

For Rheumatoid Arthritis "I’ve been on leflunomide for over three weeks, and I have massive hair loss. However, it is effective in helping control the pain of my fingers, hand, and right hip."

• Anonymous
• Taken for 1 to 6 months
• September 1, 2019

For Rheumatoid Arthritis "Experienced hair loss at 30 is really hard from this drug. Been off for 3 days. Flu-like symptoms, dizzy."