Simponi and Headaches: What Users Say

• Aly...
• Taken for 1 to 6 months
• June 21, 2023

For Rheumatoid Arthritis "I have had 4 injections now, and if anything, my joint pain/stiffness has gotten worse. I have had to take prednisone courses to try to give me some relief. I have always experienced a mild headache after each injection within an hour to two, but since my last injection, my headache has not gone away. It has been just over a week now. I have a lot of muscle weakness and tingling feelings in my muscles, as well as a lot of intense muscle cramping. I am trying to be patient as I am told it can take a bit to kick in and work, but so far the only thing that keeps happening is more intense side effects. I have consistently had a cough (no cold symptoms) since starting the injection and cough up clear mucus constantly. The injection is easy to do, which is a good thing."

• Anonymous
• Taken for 1 to 6 months
• March 17, 2022

For Rheumatoid Arthritis "I started Simponi infusions. Just recently, my first infusion was fine, made me a bit tired, but no side effects and no effects at all. My second infusion was 3 weeks ago. I again was tired after the infusion, but I was more tired than usual. I started not feeling real great. The next day, I felt even worse. I believe every side effect that this drug has, I had: fever, cold chills, nausea, extremely fatigued, headache. My whole body has and still is swelled up 2 times more than normal, having trouble breathing. I then ended up with a sinus infection and then pneumonia. Let me say that I have been dealing with RA/Fibromyalgia for the past 23 years. I have been on everything and anything that is available. Suffice to say, nothing has worked for me. However, I never had any side effects to this magnitude with the others. I am glad this works for others and was really hoping to finally get some relief, but I guess my body is rejecting this medication, so I feel I had better listen to it."

• Coo...
• Taken for 1 to 2 years
• June 16, 2020

For Rheumatoid Arthritis "I started taking infusion about 20 months ago. First year, things appeared to go smoothly. Then I started experiencing weakness in my right shoulder. A physical therapist diagnosed muscle deterioration, and I spent 3 months in therapy. Regained some of the strength, then slipped and fell, breaking my ankle bone on both sides, requiring surgery, pins, and a plate in my ankle. I never had a broken bone before! It went downhill from there. I have had 2 infusions since and have had weakness in my other shoulder, a urinary infection, horrible headaches, knees giving out, and painful, sore wrists. I tire easily, have weight gain, and experience blurry vision at times. I think it’s time to re-evaluate the benefits of this drug, as I have gone downhill quickly the past year."

• Cat...
• Taken for 1 to 6 months
• July 19, 2017

For Psoriatic Arthritis "Worked okay on aches and pains, but really messed with me mentally. Made me very depressed and socially withdrawn. I feel more fatigue and a lot of headaches."