Clonidine for Tourette's Syndrome User Reviews (Page 2)

• jo ...
• Taken for 1 to 6 months
• February 27, 2021

"I’ve had a flare-up of vocal tics for several years now. I had tried about 8 meds with no luck. A neurologist put me on 0.1 mg clonidine (final dose). I struggled to stay awake all day, and my system dried out. I didn’t notice any benefit. Also, I have ADD-Inattentive. The drug didn’t help for that either. I already have low BP, so that might have added to the fatigue. I'm getting to the point where I might try the older antipsychotic drugs that carry the risk of permanent movement disorder. Don’t understand why some drugs work for some and not others."

• Tic...
• Taken for less than 1 month
• June 12, 2023

"I have always had motor tics, but I never had vocal tics until I took Clonidine. The motor tics were getting increasingly worse (to the point where my family feared whiplash with my neck), so we went to the neurologist who prescribed Clonidine. I took it for a few days, missed a dose during an away game (16 at the time), and broke into 20+ tics that I had never previously experienced (minus the neck whipping!). They said it may have been a bad reaction, and that it would only last for 'several weeks' but would afterward be fine (because this is a known side effect). It is now 10+ years later, and while most of the new tics have subsided, I still have more tics than I had before I took the medicine (albeit less severe than the ones I did have previously), and my most prominent tics are now vocal tics."

• ste...
• Taken for 5 to 10 years
• October 7, 2021

"When I was first given clonidine for my tics, it was frustrating. I'd take a pill (0.1 mg), it would take effect after an hour, last an hour, and then I couldn't take another dose for another two hours. Then someone suggested using the transdermal patch. You get a slow dose over 24 hours, and it really helped reduce my tics and made life more bearable. I would really encourage anyone to use the patch rather than a pill (and you can cut the patch to get a lower dose, etc)."

• Diy...
• Taken for less than 1 month
• July 2, 2017

"My son was diagnosed with OCD and tics. His tics came on strong in the last 10 days. I could not believe it. I have never seen anything like this occur so quickly. He had a severe meltdown because he wanted to pick up a ball, and something in his head would not allow it. He had his hands over the top of the ball, crying and sobbing, saying, 'Mum, please help me, I can't touch it.' He was hysterical and angry. I actually called an ambulance. I was out of my head. He was a normal kid two weeks prior. We went to the hospital, and they gave him clonidine... we have been on it one day and a very small dose... how long does it take to work???"

• Nic...
• August 6, 2015

"I have a mild case of Tourette's syndrome, and clonidine has saved my life."

• Lex...
• November 9, 2014

"This helped me cope and treat my Tourette's throughout my childhood. I do rate it a 9 due to it causing drowsiness, and now I am 17 and can't sleep without it."

• Anonymous
• February 22, 2017

"My 12-year-old daughter has had facial and motor tics, but since she started on clonidine, it's like she no longer has Tourette's!"

• Sir...
• Taken for 1 to 6 months
• October 10, 2022

"Clonidine was ineffective at treating my nervous tics and Tourette's issues."