User Reviews for Clonidine
Also known as: Catapres, Catapres-TTS, Clonidine ER, Duraclon, Jenloga, Kapvay, Nexiclon XR
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Clonidine.
Reviews for Clonidine to treat Tourette's Syndrome
"Oh My God. This stuff is no joke. It's time for me to talk about this one. I have a lot to say. First of all, this stuff works very quickly in almost completely neutralizing tic's. It also works almost instantly. The problem : A lot of side affects. This stuff will basically knock you out the first time you take it. I used to be on 0.3 mg three times a day. I slept for three days straight , except for getting up maybe two or three times a day to urinate , in a fog. I honestly don't remember hardly any of it for the first few months I was taking it. It's all just a blur. It also made my blood pressure drop very low. I'm talking fainting as soon as I stand up low. NEVER mix this drug with alcohol. I'm on .1 mg now. It's much better."
LOVELIGHT777 (taken for 2 to 5 years) September 13, 2017
0 users found this comment helpful.
"I was diagnosed with Tourettes when I was about 12yrs old, I'm now 32. I've mainly been on clonidine and tenex for it over the years. The dry mouth is terrible, I will say that but Biotene(sp?) makes a dry mouth spray that is a life saver! That being said, I think the patches are amazing. My last switch from tenex to clonidine was so I could give the patches a try. You change it once a week, feels like you have constant coverage and I don't have sweaty palms like I did every time I was due for an oral dose. My dry mouth is not as bad on the patch - anyone that has suffered from this side effect knows how awful it can be and SO embarrassing! I was only tired when I went from .1-.2mg and it was only a couple of days. Try the patches!!!"
GoPatches (taken for 2 to 5 years) August 24, 2017
0 users found this comment helpful.
"I used this medication for 3 days for motor tics (blinking and head jerking) The first day I took half a tablet in the morning and half a tablet at night. The side effects were horrible. Insomnia - feeling weak and lethargic - limbs would go numb especially when I'm trying to sleep - dry mouth - depressed - falling asleep/ dozing off at work and while driving (very dangerous) Day 2 and 3 I just took half a tablet at night and the side effects in the day weren't as bad but still there. The effects at night were just as bad if not worse I was only getting 3 good hours of sleep - the rest is praying to sleep. But in saying that, the tics did ease a little bit. I have now stopped the meds today. Will not take it again."
Mazza aye (taken for less than 1 month) August 9, 2017
2 users found this comment helpful.
"My son was diagnosed with OCD and tics His tics came on strong in last 10 days I could not believe it Have never seen anything like this occur so quickly He had a severe melt down because he wanted to pick up a ball and something in his head would not allow it , he had his hands over the top of the ball , crying and sobbing , saying mum please help me , I can't touch it - he was hysterical and angry - I actually called an ambulance I was out of my head , he was a normal kid two weeks prior. We went to the hospital and they gave him clonidine ... we have been on it one day and very small dose ... how long does it take to work ???"
Diyana (taken for less than 1 month) July 2, 2017
1 users found this comment helpful.
"I'm 25 and have had minor motor ticks since I was around 12. I was recently prescribed this because my tics became too much to bare without medication, but I'm not noticing much of any change. Sometimes the following day after I take 2 mg the night before, I'll notice my tics are less frequent, but it definitely didn't relieve them when I need it to. It also gives me really bad dry mouth and sometimes gets me so tired I fall asleep at my desk at work. I'll continue taking this for a little while longer but if the tics persist I'm gonna have to try something else."
Taylor D March 26, 2017
5 users found this comment helpful.
"My 12 year old daughter has had facial and motor tics, but since she started on clonidine it's like she no longer has Tourette's!"
Anonymous February 22, 2017
9 users found this comment helpful.
"Clonidine was the first medication I tried after being diagnosed with Tourette Syndrome at age 14. I took it for about a month, and it heavily sedated me, thereby helping my minor tics. I took it again for about a week when I was 21, 0.1mg prescribed by another neurologist. This second time, I did not notice any sedation, but instead experienced day of constipation, so I discontinued."
frejf4 February 1, 2017
1 users found this comment helpful.
Catapres (clonidine): "I was first diagnosed with tourette's syndrome (a lot of neck and facial twitching and some humming noises) when I was 14, when I was 18 who put me on Catapres and it was excellent! I only needed one pill a day at first, but then as I went off to college and law school and was under more stress and needed to increase to 2. I take them at night and it helps me fall asleep. I've found that not only will it last till my next dose, sometimes (If i'm having issues refilling my prescription) I can go up to 3 days without tics. I tried Clonidine, but for it wasn't as effective. If someone knows why i'm interested to know."
Anonymous August 25, 2016
11 users found this comment helpful.
"My son is 12 years old. He has had the tics for 8 years. The Neurologist put him on Clonidine 1 tablet a day as needed. He just started taking it 2 days ago. We will see how it goes from here. It breaks my heart to see him going through this. During these times when he has the tics, I try my best to make sure he has No added stress. It does get him sleepy after an hour or two with one pill. And it seems to slow the tics down a bit."
DebJon January 26, 2016
13 users found this comment helpful.
"After 3 days of taking Clonidine (50mcg twice a day) I can't bare to continue. I've had little to no relief from my tics and the side effects surely outweigh any minor benefit. Side effects have included: dry mouth, increased thirst, irritable, mood swings, extreme feelings of anger, constipation, nausea, drowsiness, nightmares, feeling like I'm in a constant almost disassociated state, and dizziness. My vocal tics before starting this medication were generally only at a normal speaking level of voice and I could usually tell when I was about to tic but they have increased to loud yelling with little or no premonitory urge. I would like to have tried this drug for longer but due to the side effects I will not be continuing it."
Ashxxxx December 21, 2015
10 users found this comment helpful.
"I have a mild case of Tourette's syndrome, and clonidine has saved my life."
Nicolas B. Lopez August 6, 2015
33 users found this comment helpful.
"I have been on Clonidine (Teva) for a while now, and it is pretty good for what my doctor diagnosed me (Multiple Tic Disorder). He prescribed that because I dont have vocal tics. I't slows down the tics."
Nikolas Clark July 19, 2015
17 users found this comment helpful.
"My son was having severe motor and vocal tics (30 per minute). It was horribly scary for us all. He already had been diagnosed with ADHD and was taking guanfacine. Upping the guanfacine dose did not help so they prescribed clonidine for the tics. At first it seemed not to work at all although it did help him sleep because he could not sleep due to the tics. But the MD upped the dose and we waited for the meds to kick in (can take 2-4 weeks!) His tics have almost completely stopped! He is back in school and back to a normal life thanks to God and clonidine. I recommend giving this medicine time to work. ALSO, it still makes him very sleepy for about 2-3 hours after each dose. We manage this by dosing him at times when he could sleep after."
Betzim (taken for 1 to 6 months) December 20, 2014
45 users found this comment helpful.
"This helped me cope and treat my Tourette's throughout my childhood. I do rate it a 9 due to it causing drowsiness, and now I am 17 and can't sleep without it."
LexMo111 November 9, 2014
38 users found this comment helpful.
"I started taking Clonidine, one pill 4 times a day about a month ago. It made me sleepy but most of my tics were gone for the first 2 hours then just less violent. Until 4 hours when they'd be back full force. My doctor recently doubled my dose and if I take my first dose first thing in the morning and don't forget a dose it'll only tic maybe 5-10 times in a day which is amazing for me. The only downside is that I get very sleepy and have to take a nap to be able to function properly. It has also been amazing for my generalized anxiety disorder. I'm much less nervous."
Jenny B (taken for 1 to 6 months) June 21, 2013
36 users found this comment helpful.
Catapres (clonidine): "My son was diagnosed with Tourette's syndrome at an early age. He was put on clonidine. Made him sleepy so we gave 1/4 th his dose and it suppressed his tics. Very beneficial to his quality of life in my eyes. Did cause mild dry mouth."
tics gone (taken for 2 to 5 years) December 28, 2012
55 users found this comment helpful.
"I used clonidine for Tourette's Syndrome when I was 15. I would fall sleep in class all the time. So I quit taking it. Now 30 and I'm going to give it one more try. So far the side effect is I can't sleep. I feel sleep fine but up at 2:30 in the morning, I have dry mouth really bad. I will keep everyone updated."
Tourettes girl June 9, 2011
32 users found this comment helpful.
"Prescribed clonidine in December when my motor tics had become debilitating. One pill three times a day didn't accomplish much. My neurologist upped my dose to 5 pills 3 times a day and my tics ceased completely within 10 days. When my life gets really stressful the tics come back, but a few days at 2 pills 3 times daily and they usually subside. Side effects with 3x5 daily were significant...could not stay awake for more than an hour or two at a time (couldn't drive) and the dry mouth (cotton mouth) was terrible, but the tics went away. Side effects with 3x2 daily are similar, but not as severe."
30YO September 19, 2010
37 users found this comment helpful.
"Works well intermittently, meaning that sometimes the dosage has to be increased, then decreased, then stopped in favor of a different medicine like Tenex. It definitely helps control motor tics. I'm not so sure it decreases phonic tics. My own phonic tics aren't so severe as they were in my early teens (I'm 21 now). I've been taking this medicine for 7 years now, and if it's discontinued for a while and then started again, it has good results. I have never found any medicine that completely removed all symptoms of Tourette, but this, Tenex, Quetiapine, Risperdal, and Haldol have all worked well for me personally in different ways. Clonidine stops tics for a while, and that's better than nothing especially for someone in agony like me."
Tom11RR February 6, 2010
44 users found this comment helpful.
"My young son was diagnosed with Tourette's and had both speech and eye tics which were interfering with life. Fortunately, we found a neurologist expert in tic conditions who prescribed the Catapres patch. Once we found the appropriate dosage, the tics subsided completely and no adverse side effects have been noted. We have used this drug now for 5 years. Now our daughter is showing signs of multiple tics so we will try Clonidine with her. We are very thankful for this drug."
Anonymous December 27, 2009
41 users found this comment helpful.
"Was using risperdal before, was experiencing very bad anxiety attacks and great loss of impulse control. I then started Catapres and it helps ticks moderately but mostly with the anxiety and impulse control."
Anonymous April 1, 2008
39 users found this comment helpful.
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