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Xcopri for Seizures User Reviews

Xcopri has an average rating of 8.7 out of 10 from a total of 21 reviews for the treatment of Seizures. 81% of reviewers reported a positive experience, while 0% reported a negative experience.

Xcopri rating summary

8.7/10 average rating

21 ratings from 22 user reviews.

Compare all 104 medications used in the treatment of Seizures.

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Reviews for Xcopri

  • Christy
  • Taken for 1 to 2 years
  • November 14, 2023

"I've been on every seizure med made for the last 24 years trying to figure out which one or combination of them would help. Finally, after being on Xcopri for the last year and a half, I am 6 months seizure-free. I drove for the first time in 24 years. Xcopri, along with Briviact and Clonazapam during my menstruation, has helped me become seizure-free and able to drive. I don't have any side effects from it. It's been my miracle drug. I take 1,200 mg at night. I'm a medical marijuana patient, but it never helped my seizures. It has helped my migraines and headaches. Thank you for making this drug!"

10 / 10
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18 Report
  • Nina
  • Taken for 1 to 2 years
  • May 30, 2023

"As a caregiver, I was anxious about this medication, which is pretty new. It is not a bad medication but for people who already have cognitive and physical disabilities, it is terrible. The person who has been taking this medication for almost two years now has had a drastic reduction in cognitive function. Simple things that they could do suddenly are not an easy task. They cannot pick something up and hand it over, their legs sometimes don't respond and they just stand there, not sitting, not moving. They show no interest in things they used to love. Everything requires a lot of focus and energy. They fall asleep fast but have no REM sleep anymore, which is bad for the memory. They cannot eat by themselves most of the time. If your loved one is a cognitively disabled person, stay away from Xcopri. It is frustrating and scary. The seizures reduced somehow but I question the quality of life this person was left with."

5 / 10
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26 Report
  • Izze
  • Taken for 1 to 6 months
  • November 8, 2023

"I'm seizure free for the first time in my life, however I have the worst brain fog and hallucinations I've had in my life on this medication. I also lost weight. This medication has been a miracle cure for me but also a curse, I plan on lowering the dose."

10 / 10
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14 Report

Frequently asked questions

  • Xcopri...
  • Taken for 1 to 2 years
  • March 4, 2024

"I love it! It is an awesome seizure medication. It is truly the best that I have ever tried. I have tried a lot of epilepsy medications. This one is an awesome medication. The only thing is they need to make a generic, cause the brand name is expensive, and most people could not afford it. I could not afford it if it wasn't for Medicaid!!! I take the 200mg and the 50mg of this medication!!! PLEASE MAKE A GENERIC!!!!"

10 / 10
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5 Report
  • Crsty...
  • February 1, 2021

"I've been on every medication for seizures, have had my right temporal lobe removed, have a VNS, was doing the medical marijuana and not 1 thing has helped my seizures. As soon as I started taking this drug Xcopri my seizures have stopped. Was having them everyday and haven't had one in almost 3 months now I just can't even believe it!!! The only downfall are the side effects. I first would just want to sleep all day long had no energy at all, I couldn't think straight or remember things, I would talk and move very slowly, run into things like I was drunk! The sleeping has gotten better, I can stay awake all day now, I still have problems with memory and can't make decisions to save my life!!! I'm still very slow at things and can't walk straight. I'm at 100 mg 1x a day. I just finished taking my amitriptyline for sleep, and now I'm only taking onfi in the morning. Still on briviact, lyrica, lexapro, buspar...but so far so good!!!!"

10 / 10
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54 Report

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  • Seand...
  • Taken for 1 to 6 months
  • August 5, 2023

"I have been taking Xcopri for seizures for three months now. At 200mg a day, taken once a day, I had one breakthrough seizure. This occurred about two months ago. My dose was increased to 250mg, and now I have been seizure-free for over a month. Side effects are pretty minor, so far. Some sleepiness and tiredness and an occasional momentary loss of balance but nothing else. These side effects are diminishing with time. Compared to my experiences with Lamotrigine, which was pretty useless, and with Keppra, which was horrible, Xcopri has been sweetness and light! I'm 80 years old and I'm building a barn extension single-handedly. So no, Xcopri isn't slowing me down noticeably. I'll almost certainly be on it for the rest of my life, but I have epilepsy, and I'm leading a pretty normal, or better than normal, life."

10 / 10
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17 Report
  • SHD
  • Taken for 1 to 6 months
  • July 6, 2023

"100mg and under were wonderful for me! Yes, I was still tired, but seizure free! When I started the 150mg titration pack, all I wanted to do is sleep. My neurologist recommended for me to stay with the 100mg, as it gave me quality of life. So far, so good! **Remember everyone’s body is different."

9 / 10
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17 Report
  • Anonymous
  • Taken for 1 to 2 years
  • October 24, 2022

"My daughter failed 10 medicines and a VNS and this is finally the thing that worked for her. She has not had a seizure in over a year. It does have side effects ( fatigue, headache) but better than the others she has been on. Most importantly this one has had no mental health side affects such as depression , anxiety or anger"

10 / 10
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26 Report
  • MHK
  • Taken for less than 1 month
  • May 19, 2023

"It probably works....has so far...but is WAY TOO EXPENSIVE for the average person or someone on a fixed income....can't afford anymore. Even with insurance they want over $800.00 /month. Outrageous!!!"

9 / 10
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16 Report
  • Anonymous
  • Taken for 1 to 6 months
  • February 25, 2024

"So far, so good, but now that my 'trial starter packs' are done and it'll cost me $1000 a month, I can't seem to find discounts for any less, and I don't qualify for financial assistance. I hope the stress isn't, God forbid, a trigger... ^_^ Starter packs were easy to use. I've had no side effects except extra fatigue in the morning, which is not unusual. And I'm being weaned off my other meds, so that should hopefully end soon!"

9 / 10
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4 Report
  • Tim
  • Taken for 1 to 6 months
  • August 8, 2023

"Once I began taking the 150mg, it was all I could do to stay awake. Now on the 100mg, I am still tired and fatigued, but I can stay awake all day. After I take it, most people think I'm drunk because I am so tired. The minute I lay down, I fall asleep. Although I dislike the harsh side effects, this medication has helped greatly. Thankfully, I have not had a seizure in 4 months!"

9 / 10
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12 Report
  • 12345
  • Taken for 1 to 6 months
  • December 24, 2023

"I have been taking Lamictal for more than 20 years, which is working okay, but I always had petit mal seizures a couple of times a day. Recently, after my last EEG, my doctor decided to add Xcopri 100 mg once a day in addition to Lamictal 300 mg twice a day. I am feeling better, no more petit mal seizures. It is working for me."

10 / 10
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6 Report
  • F G
  • May 3, 2023

"The first week of Xcopri (12 mg) I began feeling weak, tired and practically dragging. The second week I felt a little better. Now that they increased my dose to 50mg the first week I felt ok. Now that I am in the second week I feel so tired, weak, and dragging, my legs and muscle are sore and I am so sleepy. I plan on calling the doctor to see what he recommends."

4 / 10
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13 Report
  • spring
  • Taken for 1 to 2 years
  • May 16, 2023

"Not as many full-onset seizures. It does make me extremely tired. The blurry vision is very true. I thought I was having severe issues until I read it on the prescription info page you know the one folded a million times."

10 / 10
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12 Report
  • Lynn
  • Taken for 1 to 2 years
  • November 14, 2021

"This has been the best seizure medication for me so far. I take it with Briviact daily and Acetazolamide during my cycle. I have had no issues since starting the medication and seizures have gone down incredibly. I would recommend this medication to anyone who could benefit from it. So far, I haven't developed any medication resistance issues either."

10 / 10
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23 Report
  • PaulW
  • Taken for 1 to 6 months
  • July 27, 2023

"I was prescribed Xcopri after 10 years on a number of anti-seizure meds that didn't control an occasional major seizure with exercise. I woke up in a hospital ER hours later. I was uncertain about its effectiveness but over the last three years I have not had a seizure, aura, confusion, or dizziness. I take a single 200mg pill per day and I am not aware of having any side effects."

9 / 10
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9 Report
  • Xcopri
  • Taken for 6 months to 1 year
  • February 11, 2024

"Has been excellent in terms of seizure control but needing to reduce dose due to side effects - not being able to wake up & aggression."

7 / 10
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4 Report
  • Anonymous
  • Taken for 1 to 6 months
  • June 17, 2023

"Xcopri has given me many side effects, including fainting, fast heartbeat, weakness, and more. The side effects I've experienced are not worth it."

4 / 10
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12 Report
  • Anonymous
  • Taken for 1 to 2 years
  • January 2, 2024

"Works, have the fewest seizures I've ever had maybe one small one at night."

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4 Report
  • Anonymous
  • August 30, 2022

"It works! It is 1,800 for 30 day supply if you don't have the manufacturer coupon"

10 / 10
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13 Report
  • Harmo...
  • Taken for 1 to 6 months
  • April 14, 2024

"Xcopri has been good during all increases up to 200mg. By day 5 at 200mg, we experienced dizziness, loss of balance, verbal confusion, headaches, heart palpitations, and overall fatigue and weakness."

8 / 10
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0 Report
  • Kitty
  • Taken for 6 months to 1 year
  • March 3, 2024

"Very effective for focal seizures for about 9 months. The auras are creeping back over the past few months, and I had several breakthrough seizures during a recent bout of flu."

9 / 10
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0 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.