Cabozantinib and Pain: What Users Say

• Mis...
• Taken for 1 to 6 months
• May 23, 2024

Cabozantinib for Renal Cell Carcinoma "I've been on Cabometyx for 4 months for renal cell carcinoma recurrence. Latest scan results show it's working, 2 nodules have now reduced - 1 by 50% and the 2nd larger one by 33%. The lesion on my neck at C4 is gone, no hot spot at all. Side effects were blisters on my feet, but increasing vitamin B supplements and using a heel pain stick have assisted greatly. I've also been taking triple immune vita gummies to stay on top of things. All my bloods are perfect now."

• She...
• Taken for 1 to 6 months
• June 5, 2024

For Renal Cell Carcinoma "I've been on Cabozantinib for 5 months. Started on 40mg but after 2 months changed to 20mg due to poor liver function results. Side effects on 40mg were blisters on hands, feet, and in mouth. When changed to 20mg, bloods were all back to normal and a single sore on one foot. Scans at 4 months revealed significant shrinkage of the 2 tumors where recurrence appeared (near vein where kidney was taken out). After 4.5 months, only sore on one foot which was very painful. So 20mg set for weekdays with weekends off. This gives time for sore to heal. I feel all now manageable. I do take vitamin B complex tablets and triple immune support tabs. I rub MooGoo on sore daily. Let's hope the next scan in September shows continued shrinkage and all clear everywhere else as the previous scan. Will keep you updated. It's been great for me with some adjustments. I also take around 2 am, I feel this gives me less pain on my foot by the end of the day."

• MzT...
• June 18, 2017

Cabozantinib for Thyroid Cancer "I felt miserable from the start of taking this medicine. It did more harm than good. I experienced severe diarrhea (watery and explosive). I experienced nausea at any given time of the day. I developed painful sores on the palm of my hands and on my ankles. It became difficult to brush my teeth, turn a doorknob, and even wash my hands. Any use of my hands was painful."