Doptelet and Shortness Of Breath: What Users Say

• Joe...
• Taken for 2 to 5 years
• October 22, 2024

For Immune Thrombocytopenia "I'm a 64-year-old male, and I've had chronic Immune Thrombocytopenia Purpura (ITP) for three years now. The first year, I took Rituximab (Rituxan) infusions that lasted for one year, unfortunately (expected better). However, the side effects of suppressing my immune system were not good: low energy, shortness of breath, risk of infection, and susceptibility to viruses. So, my hematologist and I decided to try 20 mg Doptelet tablets, after tuning the dose over six months to one daily. I have none of the side effects of the Rituximab, and I'm happy that my immune system is not suppressed any longer. The only side effects I experience are reduced stamina and slight shortness of breath after exertion. But that could be due to my sedentary lifestyle, and I plan to get more active to counter those effects, if possible. I also take vitamin supplements daily. The cost of the medicine is very high, and I hit maximum out-of-pocket early each year. I try to budget for that, but it's hard (wish it wasn't so high)."

• My ...
• Taken for less than 1 month
• April 14, 2023

For Thrombocytopenia "I was taking Doptelet to build platelets prior to knee replacement surgery. It was doing a great job building my platelet amount. I was prescribed two tablets at once at the same time every day. I was complaining to my friends about not fitting into my clothes and cramping. I felt like I had blown up like a balloon overnight. One of my friends asked me if I’d checked the side effects. It was all there: swelling, rapid weight gain, nosebleeds, shortness of breath, and struggling to breathe after light exertion. Stabbing pain in my brain and headaches. I would still take this drug over an infusion of platelets."

• My ...
• Taken for less than 1 month
• April 14, 2023

For Thrombocytopenia "I was taking Doptelet to build platelets prior to knee replacement surgery. It was doing a great job building my platelet amount. I was prescribed two tablets at once at the same time every day. I was complaining to my friends about not fitting into my clothes and cramping. I felt like I had blown up like a balloon overnight. One of my friends asked me if I’d checked the side effects. It was all there: swelling, rapid weight gain, nosebleeds, shortness of breath, and struggling to breathe after light exertion. Stabbing pain in my brain and headaches. I would still take this drug over an infusion of platelets."