Doptelet and Fatigue: What Users Say

• Joe...
• Taken for 2 to 5 years
• October 22, 2024

For Immune Thrombocytopenia "I'm a 64-year-old male, and I've had chronic Immune Thrombocytopenia Purpura (ITP) for three years now. The first year, I took Rituximab (Rituxan) infusions that lasted for one year, unfortunately (expected better). However, the side effects of suppressing my immune system were not good: low energy, shortness of breath, risk of infection, and susceptibility to viruses. So, my hematologist and I decided to try 20 mg Doptelet tablets, after tuning the dose over six months to one daily. I have none of the side effects of the Rituximab, and I'm happy that my immune system is not suppressed any longer. The only side effects I experience are reduced stamina and slight shortness of breath after exertion. But that could be due to my sedentary lifestyle, and I plan to get more active to counter those effects, if possible. I also take vitamin supplements daily. The cost of the medicine is very high, and I hit maximum out-of-pocket early each year. I try to budget for that, but it's hard (wish it wasn't so high)."

• Nat...
• Taken for 1 to 6 months
• March 18, 2025

For Immune Thrombocytopenia "I take one tablet a day, and my platelets stay above forty. There are no bleeding episodes. Side effects - constant fatigue, frequent headaches, and for some reason, I've started gaining weight. Not as much as with prednisone, but still an unpleasant factor. I'm also plagued by constant bloating and my hair is falling out severely."

• All...
• Taken for 1 to 2 years
• September 6, 2025

For Immune Thrombocytopenia "Doptelet has raised my platelet level significantly. I have experienced fatigue, which has not abated. Also, I have developed body odor that is acrid and metallic. It is strong enough that it affects my social life."