Anakinra for Schnitzler Syndrome User Reviews
Brand names: Kineret
- Anonymous
- September 3, 2011
Anakinra "Kineret works great for my Schnitzler's syndrome. It can hurt when injected, but if I warm it up to room temperature by letting it sit out for a while or hold the syringe in my hand to warm it up, it hurts a lot less."
- mas...
- Taken for 10 years or more
- July 29, 2022
"I have been taking anakinra for 20 years. I cannot say enough good things about the drug. Before I got the drug, I sometimes could not get out of bed to go to work. The pain in my legs and the fatigue were overpowering. After I got my first anakinra shot, the symptoms went away within two days."
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Anakinra "I've been on Kineret (anakinra) for several years for Schnitzler syndrome. No other medication gave me relief, except high-dose steroids, but I was pain and hives-free within a couple of days of starting Kineret and back digging in the garden and walking kilometers when I had spent the previous 7 years mainly in bed. It was on the PBS list, but now my hospital pays for it on my behalf. No injection site problems or side effects."