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Anakinra for Schnitzler Syndrome User Reviews

Brand names: Kineret

Rating: 10.0

Anakinra has an average rating of 10.0 out of 10 from a total of 3 reviews for the off-label treatment of schnitzler syndrome. 100% of reviewers reported a positive experience, while 0% reported a negative experience.

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  • Gab...
  • April 10, 2013

Anakinra "I've been on Kineret (anakinra) for several years for Schnitzler syndrome. No other medication gave me relief, except high-dose steroids, but I was pain and hives-free within a couple of days of starting Kineret and back digging in the garden and walking kilometers when I had spent the previous 7 years mainly in bed. It was on the PBS list, but now my hospital pays for it on my behalf. No injection site problems or side effects."

10 / 10
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15 Report
  • Anonymous
  • September 3, 2011

Anakinra "Kineret works great for my Schnitzler's syndrome. It can hurt when injected, but if I warm it up to room temperature by letting it sit out for a while or hold the syringe in my hand to warm it up, it hurts a lot less."

10 / 10
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8 Report
  • mas...
  • Taken for 10 years or more
  • July 29, 2022

"I have been taking anakinra for 20 years. I cannot say enough good things about the drug. Before I got the drug, I sometimes could not get out of bed to go to work. The pain in my legs and the fatigue were overpowering. After I got my first anakinra shot, the symptoms went away within two days."

10 / 10
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1 Report

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