Abatacept User Reviews & Ratings (Page 3)
Brand names: Orencia
Abatacept has an average rating of 6.2 out of 10 from a total of 74 reviews on Drugs.com. 49% of reviewers reported a positive experience, while 32% reported a negative experience.
Reviews for Abatacept
- Anonymous
- Taken for 6 months to 1 year
- May 23, 2014
Abatacept for Juvenile Idiopathic Arthritis "My daughter started monthly Orencia infusions for her juvenile idiopathic arthritis about 3 years after being diagnosed. She had been previously taking Enbrel and methotrexate injections weekly for 3 years. Her arthritis became more aggressive, so her rheumatologist started her on Orencia (continuing the methotrexate injections). She got used to the infusion part rather quickly. She had no side effects at all, and the only problem we had was the occasional blown vein. Unfortunately, the medication did not prove to be effective for her. After 8 months of constant flare-ups, oral steroids, and steroid injections, we decided to change the medications again. There are, however, 2 other children we know that Orencia is helping prevent flare-ups."
- mic...
- Taken for 6 months to 1 year
- September 3, 2021
Abatacept for Rheumatoid Arthritis "I liked this drug although it didn't stop my wrist pain. I had weekly injections and besides some issues with fatigue and diarrhea, it was pretty good. I was taking it with Plaquenil as well. My rheumatologist has switched me to Rinvoq, so we will have to see. Rinvoq has poor reviews, so I am a little scared."
Frequently asked questions
- Min...
- Taken for less than 1 month
- September 19, 2021
Abatacept for Psoriatic Arthritis "I have just had my second infusion of Orencia. The first go-around, I had a headache and fever and aches for that night and most of the next few days. After the second dose, I have severe aches and pains in all joints and muscles, and my skin hurts to touch it. Plus, I have a cold or something that just came on a day after the infusion. I am wondering if it is going to work for me or if I need to change. I was on Simponi Aria for a year and a half, and then it stopped working. My question is, are these symptoms considered bad, or something that I have to put up with and hope they go away and the Orencia starts working without these side effects?"
- Chr...
- Taken for less than 1 month
- November 16, 2021
Abatacept for Psoriatic Arthritis "40 yr old woman with psoriatic arthritis. I have already tried methotrexate (did not work), Humira (too much fog brain), Enbrel (worked great but my body developed immunity), and now I am on Orencia. Week 1, I noticed some slight belly ache as if I did 2,000 sit-ups. Week 2, it got slightly worse. Week 3, the pain in my upper left abdomen has gotten so bad it's hard to sleep. I also have some severe lower abdomen pain, so I am hoping this gets better soon. I was off medication for 4 weeks, which caused some serious flare-ups. Since I started Orencia, one of my major flares is slowly subsiding, while I have developed 2 new issues (knees & foot). Hoping after some time this gets better. PS- It was very nice they provided a co-pay card for the $1,000 out-of-pocket upon request."
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Your review helps others make informed decisions.- Kat...
- Taken for 1 to 6 months
- March 19, 2022
For Rheumatoid Arthritis "I was diagnosed with RA at age 40. The doctor had me on Plaquenil and anti-inflammatories for years. The RA went into remission for several years but came roaring back at age 62. The doctor put me again on Plaquenil, Celebrex, and prednisone, which put a lot of weight on, with little relief of pain, swelling, and fingers/wrists starting to get deformed. Then she added Methotrexate, which caused my legs to swell and skin bruising. Moved to Florida and found a wonderful rheumatologist that put me on monthly Orencia infusions. Let me tell you, Orencia has been a game changer for me. I have no side effects, and after 5 months, the swelling and pain are gone. I can go to the gym, play golf, hike, and bike. Thank you, Orencia! I have my life back."
- bar...
- Taken for less than 1 month
- June 23, 2016
"I was diagnosed with lupus in 2007. I had no major side effects until the past couple of years. Now the lupus has caused an RA diagnosis and a vasculitis diagnosis. I have been on Plaquenil and methotrexate. I was scheduled for a Cytoxan infusion, but my bloodwork came back positive for the Jo-1 virus. So I cannot have the infusion. The doctor has since prescribed me Orencia for weekly at-home injection (I opted for this versus the infusion). I just had my 3rd weekly injection. The first week showed no difference, but the second week showed vast improvement with minimal pain, and I was able to go for a 1/2 mile walk the other day-WOO HOO! I do notice I am tired the day after the injection, but the energy picks up after that."
- Not...
- Taken for 1 to 6 months
- March 24, 2025
Abatacept for Rheumatoid Arthritis "I started Orencia four weeks ago after Humira and Enbrel did nothing for me. I'm taking it with methotrexate. I get hit with nausea and diarrhea for like a day or two after my dose. I've had a flare for the past two months now, and I really need this stuff to start working."
- Dug...
- July 27, 2020
Abatacept for Rheumatoid Arthritis "This Orencia took about four months to work for my RA. I have zero pain and good mobility. Been taking it for a year and am 71 years old."
- Don...
- Taken for 1 to 2 years
- February 27, 2020
Abatacept for Rheumatoid Arthritis "The best drug I have been on! It gave me my life back!"
- 5te...
- Taken for 6 months to 1 year
- March 9, 2017
Abatacept for Rheumatoid Arthritis "LIFE CHANGING - I have tried many of your typical RA drugs since being diagnosed at 22 (Plaquenil, Methylprednisolone for 5 years)."
- Nor...
- Taken for 1 to 2 years
- May 5, 2016
Abatacept for Rheumatoid Arthritis "Gave this drug a ten a few months ago, but after just over a year, it has stopped working. Now trying Roactemra."
- Anonymous
- Taken for 5 to 10 years
- September 12, 2023
Abatacept for Rheumatoid Arthritis "It's awesome. I've been on it for 7 years, I play tennis 5 times a week with no problems. I call it bionic."
- Nan...
- Taken for 1 to 2 years
- March 30, 2020
Abatacept for Rheumatoid Arthritis "Been on a monthly infusion for almost 16 months. Works well. But now I have severe nerve pain in my arms and ankles."
- BW8...
- Taken for 1 to 6 months
- March 15, 2014
Abatacept for Rheumatoid Arthritis "Limited improvement after 4 months, developed a bad rash, and MD refused to continue medication."
- Lon...
- Taken for 1 to 6 months
- April 14, 2022
Abatacept for Rheumatoid Arthritis "This drug almost killed me. Do not use. I was so sick. My gastrologist said to get off immediately. He had other patients with the same problems."
- Chi...
- Taken for 2 to 5 years
- June 28, 2018
Abatacept for Rheumatoid Arthritis "I am scared to quit Orencia and am getting no benefit from it. What a waste."
- Ann...
- Taken for 6 months to 1 year
- April 25, 2018
Abatacept for Rheumatoid Arthritis "Orencia worked a little, maybe taking the pain down from 8 to 6, but it did not get rid of the sacroiliac joint (SI) joint pain I had ever, so I went on to try another medicine from my rheumatologist."
- 17c...
- Taken for 1 to 6 months
- February 27, 2018
Abatacept for Rheumatoid Arthritis "It made me extremely nauseous."
- Tje...
- September 17, 2023
Abatacept for Rheumatoid Arthritis "My arthritis has not progressed any further. Psoriasis has still given me patches."
- Cat...
- Taken for less than 1 month
- January 20, 2023
Abatacept for Rheumatoid Arthritis "I experienced severe leg cramps for 24 hours after taking it. Would not recommend it."
- cad...
- Taken for 6 months to 1 year
- February 17, 2017
Abatacept for Juvenile Idiopathic Arthritis "I loved it 'til I had my first reaction after 8 months using it. My life has improved."
- Mar...
- November 17, 2021
Abatacept for Rheumatoid Arthritis "I have had 3 self-injections of Orencia. I am waiting patiently for results in my knee."
- RNN...
- Taken for 6 months to 1 year
- August 15, 2016
For Rheumatoid Arthritis "Works quite well. Shot is painless. I don't generally have side effects. I have the Orencia copay assistance that makes the medication affordable."
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Abatacept for Rheumatoid Arthritis "These infusions put me in the hospital twice (for the first time in my life!) with high blood pressure and damaged my heart. I had never had a blood pressure problem, and it was because of the daily notes I keep that I finally made the connection between the BP issues and the dates I had received the infusions, and the infusions were stopped. I have not had a blood pressure problem since, but the damage to my heart remains."