Diamox Compared to Alternatives

For Pseudotumor Cerebri: Effective, but not without side effects. The first month was pretty bad - my hands, feet, and legs were falling asleep and I experienced painful tingling and cramps. My joints also had problems, and I had to wear a brace on my knee for a little while. I was more lethargic. Anything carbonated tasted awful. I couldn't drink caffeine or my whole body would feel weird and tingly. I also had to pee a lot during the first few weeks and was quite thirsty. Over time, most of the side effects went away, and my pressure went down. My vision problems completely went away. However, a new side effect appeared after about two years - tinnitus. It is definitely being caused by the medicine, because I've found that skipping a dose makes it go away.

For Pseudotumor Cerebri: Hello. I am 18 and I have diagnosed with Idiopathic intracranial hypertension (IIH) December of 2016. As we all thought, I had a concussion because I played volleyball but it didn't quite flow with the big blind spot in my left eye and the perfect MRI and MRE scan results. Well, as my opening pressure from an LP was 49.7, more than half for my age, and being the first patient for my pediatrician, I have Psuedo Tumor Cerebri. My new neurologists put me on 2,000mg a day. Yes, this caused severe abdominal and GI upset for almost the first month I was taking it and a little bit here and there. My ophthalmologist has seen an improvement. My second LP as of 1/30/17 had an opening pressure of 28.7. They drained me to normal and took 10cc of instead of 8. I hope it keeps working.

For Pseudotumor Cerebri: All I have to say is that this pill has made my life so much better. Three years ago this pseudotumor cerebri started after having my first born. I was at my heaviest at 245lb pounds. Ever since I've never been the same until now although I deal with the side effects (sleepy, muscle weakness , tiredness, tingling ) being sleepy has been the worst to cope with because I'm a mother and I have things to do BUT at least some days I'm able to function well and that's better than nothing. I also take Potassium which helps a lot for the tingling !!! I hope one day I no longer have to take these pills and finally have my life back and enjoy it ! BTW I'm 21 yrs old

For Pseudotumor Cerebri: I felt horrible for the first two weeks after being diagnosed with pseudotumor cerbri, and taking the medicine 1000mg a day. The tingling in my hands face and toes comes and goes. I have had no more headaches or pressure in my sinuses since the first few weeks of starting it.

For Pseudotumor Cerebri: In February of 2008 I was diagnosed with Intracranial Hypertension due to a rare side effect caused by Minocycline prescribed to me by a dermatologist. This medication, along with my lumbar puncture, has stopped my vision loss. The side effects have been very difficult at times. I have experienced all of the common side effects including loss of appetite (lost 40 pounds), tingling from hands to elbows and toes to knees, and intestinal problems. Brain pressure remains high but vision is saved. Over-all just glad to be alive and without a shunt. Be well.

For Pseudotumor Cerebri: I was experiencing blurred vision, fatigue, loss of appetite, lack of concentration and an increased amount of severe headaches. After being checked for everything under the sun in blood work I was told I was fine. About a month later the headaches and the memory and concentration issues came along with more asthma attacks. My neurologist sent me for MRI, MRA and EEG nothing. He then sent me for a spinal tap which revealed I had pressure in my head double the normal. This happened on Wednesday April 21st, 2010 (last week). I received a phone call from my neurologist who said I needed to start taking the medication immediately. I have had no appetite, consistent nausea, and I throw up on a regular basis. So I deal with it or have a shunt.