Diamox and Nausea: What Users Say

• tir...
• Taken for less than 1 month
• January 14, 2020

For Pseudotumor Cerebri "I have been on the medication for about 3 weeks, taking 1 pill - 125 mg every night. It did not help, I still had episodes. Last week I started taking 2 pills (one in the a.m. and one in the p.m.). While it seems to be holding off the episodes so far, I feel awful. My ears were already ringing, and this has just turned it up. I have nausea and a general feeling of 'I just don't feel well.' I experience weakness and fatigue. It feels like I'm breathing in air but getting no oxygen, like I'm getting no benefit from it (does that make sense?). I slept for about 8.5-9 hours last night and still woke up completely exhausted."

• Jan...
• Taken for 1 to 6 months
• October 16, 2016

For Pseudotumor Cerebri "This drug has not helped relieve pressure, headaches, or visual impairments in my case. My vision continues to go in and out without notice, waking up every day with a headache and continuing to have one well into the late evening before bedtime. The side effects are awful! I have lost 29 lbs in three weeks! I am unable to hold anything down, everything tastes nasty or like I'm eating pennies. Constant fatigue and restlessness. The prickling in the hands and toes, not to mention the constant nausea. Every case is different. It's not working for me but could for someone else. I cannot tell anyone to not take a drug or to take a drug for IIH. Because every case is different, everyone will see different results."

• mat...
• December 4, 2017

For Pseudotumor Cerebri "I have been on Diamox since 2004 when I was first diagnosed with pseudotumor cerebri. I was hospitalized for 5 days after experiencing paralysis in my legs, severe headaches, nausea, and visual impairment. I have tried to stop taking the medication but had to return to it due to the severe headaches and cranial swelling. I have constant problems with electrolyte deficiencies and have to take additional medications to alleviate other problems. This is still the best treatment I have experienced. In addition to this condition, I also have lupus, HBP, hypothyroidism, and I am bipolar."

• Em7...
• November 12, 2017

For Pseudotumor Cerebri "Side effects far worse than idiopathic intracranial hypertension (IIH) itself. Constantly nauseous, made no difference to headaches/pressure, suffered with slight breathing difficulties and palpitations, the tingling in hands and feet was more like cramp than tingling in the end... the list goes on.."

• And...
• June 11, 2020

For Mountain Sickness / Altitude Sickness "At age 37, I decided to take my 1st ever mountain camping trip. We found a beautiful spot at 12,497 ft. I had been to Denver as a teenager with no reaction to altitude, so I wasn’t expecting to get sick. I hydrated, but evidently not enough. Within 4 hours of making camp, I began feeling nauseous. After 6 hours, diarrhea. By 10 hours, around midnight, I was going in and out of consciousness. We thought I had severe food poisoning. Due to the dangerous location, we could not get down from the mountain. Long story short, when I returned home to Dallas, Texas, I had had a mild edema. My doctor prescribed Diamox and portable oxygen for my next mountain trip. It really gets the job done. I have played around with the dosing, starting at half doses & add more up to the full dose as needed. I begin Diamox 48 hours before ascending over 9.5k. I find smaller dosing decreases the drowsiness. I hope this information helps others. Be safe and well."

• Sar...
• June 9, 2015

For Pseudotumor Cerebri "I was diagnosed in 2014, and I can honestly say it has been a very difficult disease to handle... though I know there are much worse out there. I was put on Diamox, and my headaches or vision problems did not improve, in fact, they got worse. I have had more migraines since starting this than I ever did before. The side effects are awful... no appetite, foggy head (I am barely able to function day to day), nausea, everything you try to eat tastes awful. I am glad this has worked for some, but I cannot continue taking it."

• Mar...
• March 2, 2014

For Glaucoma "I am taking Diamox, this is the 3rd time I have been prescribed this. It definitely works, but the side effects this time are the worst of all. I am dizzy and fell, with pins and needles in my hands, feet, and face. A headache, I don't know if it's from the medication or from the fall. Nausea."

• Cat...
• Taken for less than 1 month
• July 3, 2019

For Mountain Sickness / Altitude Sickness "I took one of these pills (125 mg) to try it before my vacation, and I haven't felt so sick in a long time. OMG, it was horrible!! It started with mild dizziness and tiredness. Not so bad, but by the 12th hour, I just wanted to check out. A lot of dizziness, very tired but couldn't sleep, nausea, and headache. Generally, I felt awful but couldn't put my finger on how else it made me feel this awfulness. I took a meclizine and some Advil and felt a bit better. The next day, I still felt a bit weird but not so awful. That stuff lasts a long time, and if you take it on vacation and have my reaction, you'll waste a lot of hours being miserable."

• Uni...
• Taken for less than 1 month
• May 10, 2022

For Pseudotumor Cerebri "So I was started with 250 mg twice a day with Diamox, and I absolutely could not tolerate this medication. I even went down to 125 mg twice a day, still couldn't do it. To me, this medication is awful, the side effects are horrendous, and please do not believe the doctors that this is just a diuretic. Diamox breaks down your CFS, and I'm just not comfortable with taking a medicine that does that. It caused intense nausea, vomiting, anxiety, depleted my electrolytes, which is very dangerous, and gave me kidney infections, and I was only on it for 2 weeks. It can also cause kidney stones and failure... so that's awesome. Please, please look into this medication before taking it. I've gone with more alternative methods like acupuncture and lymphatic massage and had much better results and no nasty side effects."

• Anonymous
• Taken for less than 1 month
• June 2, 2017

For Pseudotumor Cerebri "Confusion, lethargy, diarrhea, hyperchloremia, CO2 16, nausea, dizziness."

• Mar...
• Taken for less than 1 month
• November 6, 2022

For Glaucoma "It's made me extremely dizzy and nauseous. No appetite at all. My one hand was occasionally tingly but livable. I stopped it after 3 days."