Diamox and Numbness: What Users Say

• exw...
• Taken for 10 years or more
• January 22, 2013

For Pseudotumor Cerebri "I have been on Diamox for many years. Started out with tunnel vision and then found to have pseudotumor cerebri (which my mom has too). I have even had lumbar punctures to drain the fluid off my brain as well in the beginning. This medication has worked wonders. I did have tingling and numbness in my feet, finger, nose, lips but that eased off by taking Vitamin C or eating oranges (this was recommended by my doctor and it works). Now the tingling and numbness are gone. I don't know what I would have done without this medication. Now all I do is take the medicine once a day and move on with my life. Please hang in there and don't get discouraged."

• Anonymous
• Taken for less than 1 month
• August 22, 2012

For Pseudotumor Cerebri "Can I just say for the people that are stating they have tingling/numbness with this medicine. I experienced this over a year and a half ago when I was first put on Diamox, they took me off it and put me on Topamax instead. For a year and a bit, I was on Topamax and lost 30kg but the headaches never completely went away. Now I have been put back on Diamox for almost the last two weeks and I find only sometimes will I get any tingling at all... whereas last year when I first tried it I couldn't stand it. What I find works for me is taking the tablet while I'm eating, keeping my fluid up (only water), soft drinks and 'bad' foods do tend to make it worse so I try to stay away from these. I find Diamox really does work if you're prepared to go that extra mile!"

• Qua...
• Taken for less than 1 month
• March 16, 2013

For Pseudotumor Cerebri "I was just diagnosed last week with PseudoTumor Cerebri. I had my first spinal tap yesterday. I started Diamox today. About 4 hours after the first dose, I took a sip of Mountain Dew and about vomited. It tasted like drinking melted nails. My appetite is lessened, which I am so glad about. I am 60 lbs overweight. My mouth is dry and my lips are somewhat numb. But from everything I have read, the side effects of this medication or any other would have to be really bad before I'd say I can't take this medication anymore. I pray the meds work so I do not need a shunt. I did not think of this as a disease. I thought it was just an occurrence like reflux or migraines."

• Can...
• August 31, 2015

For Pseudotumor Cerebri "I have been taking this for a month, and my blood sugar keeps dropping out. I feel terrible and weak all the time. I get numbness everywhere. I have three sons to care for, and it's hard. I'm glad most of my symptoms seem to be normal, as I have read yours. The pressure in my head hasn't lessened, though. They gave me migraine medicine, but I'm afraid to take it if it'll put me to sleep during the day. I keep thinking about calling my neurologist. I'd like to know what to do at this point."