Zonegran User Reviews & Ratings (Page 2)

• Anonymous
• September 10, 2009

For Seizures "I've been on this for over 6 months now and seizure-free since then. I do have a very mild loss in appetite, but that has not stopped me from eating, only how much I eat. Side effects are the lowest overall from all the other medicines I've been on in the past (Topamax, Trileptal, Depakote, and Phenobarbital). Best of all, it's only once a day!"

• eph...
• October 4, 2009

For Seizures "So far, this is my choice of seizure medicines (complex partial and absence). Dilantin makes me sleepy, Tegretol and Topamax both gave me migraines. No seizures AND no headaches, yay! Zonegran does leave me a bit fatigued and seems to lessen the appetite (but that's not really a bad thing)."

• Mee...
• Taken for 1 to 6 months
• May 19, 2017

For Migraine Prevention "The medication worked well to prevent migraines. However, after one month of use, I developed joint pain/swelling and a rash. It was determined I had drug-induced lupus, and the medication was discontinued."

• Anonymous
• Taken for less than 1 month
• March 30, 2021

For Seizures "I've had complex partial seizures for 14 years, half of my life. The longest I've gone was 3 weeks without a seizure. I have had two brain surgeries and also have the Neuropace implant. I've been on so many different seizure medications and still am, but my doctor wanted to try me on Zonegran a few weeks ago, raising the dose every two weeks. I was terrified of the side effects but also happy about one of them, the weight loss, because I really need that. This medication, so far, has helped me beat my record in 14 years and become one month seizure-free!! And I'm not even on my full dose yet! And I've lost 11 pounds! I really recommend trying out this medication, it might not work for everyone, but it's worth a shot. The side effects can be rough at first, but my body got used to it."

• Kea...
• Taken for 10 years or more
• September 4, 2019

For Seizures "Taking 800 mg of Tegretol, 200 mg of Pregabalin, 10 mg of Clobazam, and 100 mg of Zonisamide twice a day, plus 125 mg of Primidone once at night, didn’t work on me. Even after having part of my brain removed, it didn’t completely stop me from having seizures, but increasing Zonisamide to 150 mg twice a day thankfully stopped me from having seizures in 2010. I’d suffered with them for nine and a half years. Certainly would never reduce these - I got my life back in my thirties, so I can do all I used to. Cope with going to soccer matches alone and abroad alone. I didn’t even leave town I lived in alone when suffering from epilepsy. I live in the UK, so lucky as I do not pay for these."

• pin...
• December 27, 2008

For Seizures "I love Zonegran. I have no seizures while on this medicine. The only time I experienced a partial seizure was recently when I began including yogurt in my daily diet. Since I excluded that, I'm seizure-free again."

• ste...
• July 3, 2016

For Seizures "This is one of the worst AEDs I've tried over the past 41+ years since surviving Reyes. It caused hostility, agitation, nervousness, restless legs syndrome, suicidal thoughts, and made me so impulsive that I requested an early retirement from a position paying about $104k per year. I probably would not have gone for retirement if the effects of the med had not been there. To top things off, it gave me gingival hyperplasia, so my front teeth are ruined, gum overgrowth is worse than it has been while on any of the other 24 meds I've been given. Intractable epilepsy is tough, but this med might help persons who haven't had trauma or brain surgery. FDA and the maker FAILED to warn me about this. I got off of it."

• Sar...
• Taken for 1 to 6 months
• March 3, 2020

For Migraine Prevention "I woke up one day with a feeling that I was rocking in a boat, severe head pressure, and nausea. This lasted 3 months until my neurologist prescribed this medication for migraines. It made me feel like I could live my life again. I do get a little forgetful on it, but it is worth it to not have my migraines and constant dizziness."

• Hol...
• Taken for 1 to 6 months
• February 14, 2018

For Migraine Prevention "I just turned 19, and I've seen 3 neurologists, 4 neurosurgeons, and an epileptic specialist all in the last 6 months. None of them can really tell me what’s wrong with me, but Zonegran has helped a lot with the hard-hitting headaches. I still get dull “I can feel it” headaches almost every day, but nothing compared to what I used to get. I don’t get any major side effects, sometimes I slur or jumble words, but I can recover them quickly. If I take it on an empty stomach, my thought process is cloudy, but nothing major. Also, I was normal weight before, but I’ve lost 15 pounds since I started this medication 3 months ago."

• Tes...
• Taken for 1 to 2 years
• March 21, 2018

For Seizures "I was really hoping Zonegran would be my golden ticket to no more complex partial seizures. Instead, I’m having not only more, but I have tinnitus. The screeching in my ear is so loud I’d swear people can hear me coming. I’m sure it’s fine for some, just not in my case."

• Let...
• Taken for less than 1 month
• August 27, 2020

For Seizures "This week I've started on 50 mg Zonegran at night, and over the next few weeks, I will be increasing to 200 mg daily. This is the 9th AED I have tried for my complex partial epilepsy. I am taking this in conjunction with 400 mg Tegretol daily and 10-30 mg Frisium daily. I experience auras daily and have seizures approximately once a week. Since starting this drug, I have not experienced any auras or seizures, however, it is too early to know if it is actually working. The side effects so far have been rather uncomfortable. This includes headaches, nausea, loss of appetite, and feeling more tired/foggy than usual. Hoping the side effects will lessen over the next few weeks!"

• Nik...
• Taken for 1 to 2 years
• November 20, 2017

For Seizures "Effective prevention of seizures, but I only had two episodes 16 months apart, started at age 57. Started at 25 mg twice a day, increased to 50 mg. Was prescribed to go up to 100 mg but requested to stay on the 50 mg as I had no episodes and didn't like the effect it had on me. I am now used to it, but it makes me drowsy. Big downside is I have just found out that I have osteoporosis, and it appears that Zonegran is contributing to accelerated leeching of my bones. Will be discussing with my neurologist in a couple of weeks."

• Sat...
• Taken for 5 to 10 years
• April 30, 2022

For Seizures "I have been taking generic Zonegran for over 5 years now to control partial seizures that can turn into generalized seizures. I take 300 mg daily and rarely have partials. Before taking this, I had them every day, sometimes multiple times a day. I also have had zero migraines. I’m especially glad to be rid of freaky ocular migraines I used to suffer every few months. The first several months on this drug while going up in dose, I was tired and foggy. I don’t feel any side effects really now, except I sometimes notice word-finding struggles that I think are from this drug. I have a demanding job and do well with analytical thinking, memory, etc. Definitely do need to drink plenty of water as recommended on this medication or your kidneys, bladder, and urinary tract will be unhappy."

• Mar...
• June 26, 2015

For Seizures "I took the medicine for 17 years after I had a VNS implant for my seizure disorder, the brand name medicine I considered to have the most positive experience in removing them overall, as the generic brand names had all side effects to my body by giving more seizures and headaches."

• FID...
• Taken for 1 to 6 months
• September 19, 2023

For Seizures "I take the medication 100 mg in the morning. I should increase it to 200 mg, but I don't want to take the risk. It's very difficult to think clearly when you have a headache and can't fall asleep at night. It's challenging to function during the day with this medication, you feel confused and lost. However, the seizures have become less frequent. The only downside is that sometimes I have falls during the seizures. I take it along with Keppra and Trileptal."

• Han...
• Taken for 5 to 10 years
• August 23, 2021

For Seizures "This medication is toxic. I was on it and Vimpat for years, and it made me so sick that I couldn’t walk. All of the doctors couldn’t figure out what was wrong with me, and I was in the hospital for 9 days. I stopped the meds as a last resort. It affected my mental health, ability to think, and gave me weakness, numbness, muscle cramps, dizziness, and a chronic pain that felt like my entire skeleton was in a pressure cooker."

• Joe...
• Taken for 1 to 6 months
• March 19, 2021

For Seizures "I've been on primidone for 35 years. My doctor wanted to switch to Zonegran because of my headaches. It definitely stopped the headaches, but I couldn't sleep. However, I wasn't tired the next day either. Two weeks in, I noticed that I was having heartburn, but it was controllable. When I upped my dose to 200 mgs., it was like someone set a fire in my stomach. I called the doctor and went off of it that day. I did notice that my personality changed as well. It didn't work for me, but I'm sure others have had better results."

• Bru...
• June 30, 2016

For Seizures "I first took it in 1984 as part of the study. It was so, so, it didn't work sufficiently, and the epileptologist took me off of it for fear of kidney stones impacting a teenager. When having major problems with Onfi and having tried 25+ meds over the past 41+ years, I thought I'd see if Zonegran had improved. A physician at Georgetown University in DC failed, like the FDA, to provide information stating that the medication can make a person who has had trauma and/or brain surgery go into orbit. It controlled seizures for a few months, made me do impulsive things like request retirement from a position paying over $104k/year. It made me hostile, nervous, go nuts, and elevated my Dilantin level, caused gingival hyperplasia so my teeth are painful and ruined."

• Ash...
• Taken for 1 to 6 months
• September 9, 2021

For Migraine Prevention "I started using Topamax and had a full-body reaction, so my neurologist switched to Zonegran. I have been taking 300 mg for a while, and I no longer have migraines, but I now have acne that I have never experienced before. It’s starting to get so bad that I’ve considered stopping this medication. Aside from the acne, it really does help with the migraines."

• Anonymous
• June 9, 2018

For Migraine Prevention "I have been taking Zonegran for migraines for about a month. It has helped tremendously. Unfortunately, the past few days my eyes have been in so much pain. And that is causing my head to hurt. I am wondering, will this side effect go away?"

• Anonymous
• Taken for 2 to 5 years
• October 25, 2012

For Migraine Prevention "I don't notice any side effects compared to some of the other anti-seizure medicines."

• Mig...
• August 21, 2016

For Migraine Prevention "I have been taking 100 mg of Zonegran daily for about a month, and have noticed a reduction in the amount and severity of my migraines."

• Anonymous
• November 28, 2011

For Migraine Prevention "On 50 mg and have seen a huge improvement in my migraines. Down to 5 per month."

• Anonymous
• March 19, 2011

For Migraine Prevention "I just got put on this medication for migraines. I took Topamax in the past, but side effects were way too much for me."

• DGI...
• Taken for less than 1 month
• March 23, 2013

For Seizures "Diagnosed - generalized juvenile myoclonic epilepsy. Completely stopped my son's seizures, he is only 14 years old."