Zonegran and Headaches: What Users Say

• bet...
• June 18, 2020

For Seizures "I have been on 100mg daily of Zonegran for 1 week. Today I will be upping my dose to 200mg daily. Next week I will be upping it to 300mg daily and maxing out there for about a month to see how my body fully reacts to the 300mg daily. Zonegran, so far, is the first medication to help with the seizures. It definitely has lessened the length of my seizures, and how often. The side effects aren’t even close to how bad side effects have been on any other anti-seizure meds. I am definitely very drowsy, a little more irritable, moving slower, and feeling foggy. Have way less of an appetite and not eating early as much. I am having some headaches. Aside from that, I’m happy with this medicine so far. Finding the right medicine can be so frustrating and makes you feel so alone sometimes. Hoping this comment can help others as well! Xo"

• Let...
• Taken for less than 1 month
• August 27, 2020

For Seizures "This week I've started on 50 mg Zonegran at night, and over the next few weeks, I will be increasing to 200 mg daily. This is the 9th AED I have tried for my complex partial epilepsy. I am taking this in conjunction with 400 mg Tegretol daily and 10-30 mg Frisium daily. I experience auras daily and have seizures approximately once a week. Since starting this drug, I have not experienced any auras or seizures, however, it is too early to know if it is actually working. The side effects so far have been rather uncomfortable. This includes headaches, nausea, loss of appetite, and feeling more tired/foggy than usual. Hoping the side effects will lessen over the next few weeks!"

• Mar...
• June 26, 2015

For Seizures "I took the medicine for 17 years after I had a VNS implant for my seizure disorder, the brand name medicine I considered to have the most positive experience in removing them overall, as the generic brand names had all side effects to my body by giving more seizures and headaches."

• Joe...
• Taken for 1 to 6 months
• March 19, 2021

For Seizures "I've been on primidone for 35 years. My doctor wanted to switch to Zonegran because of my headaches. It definitely stopped the headaches, but I couldn't sleep. However, I wasn't tired the next day either. Two weeks in, I noticed that I was having heartburn, but it was controllable. When I upped my dose to 200 mgs., it was like someone set a fire in my stomach. I called the doctor and went off of it that day. I did notice that my personality changed as well. It didn't work for me, but I'm sure others have had better results."

• Anonymous
• June 9, 2018

For Migraine Prevention "I have been taking Zonegran for migraines for about a month. It has helped tremendously. Unfortunately, the past few days my eyes have been in so much pain. And that is causing my head to hurt. I am wondering, will this side effect go away?"

• Anonymous
• April 3, 2016

For Benign Essential Tremor "No help! My hand and head still shake. I have a headache, nausea, and vomiting I never had. My face is red. I have no energy and have to push myself to do things. This is not me!"

• Bri...
• October 2, 2009

For Seizures "Going to Zonegran from Trileptal, still waiting for the headaches, etc., from the Trileptal to go away."