Zonegran for Seizures User Reviews (Page 2)

Reviews for Zonegran

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Mar...
June 26, 2015

"I took the medicine for 17 years after I had a VNS implant for my seizure disorder, the brand name medicine I considered to have the most positive experience in removing them overall, as the generic brand names had all side effects to my body by giving more seizures and headaches."

8 / 10

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17 Report

FID...
Taken for 1 to 6 months
September 19, 2023

"I take the medication 100 mg in the morning. I should increase it to 200 mg, but I don't want to take the risk. It's very difficult to think clearly when you have a headache and can't fall asleep at night. It's challenging to function during the day with this medication, you feel confused and lost. However, the seizures have become less frequent. The only downside is that sometimes I have falls during the seizures. I take it along with Keppra and Trileptal."

8 / 10

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4 Report

Han...
Taken for 5 to 10 years
August 23, 2021

"This medication is toxic. I was on it and Vimpat for years, and it made me so sick that I couldn’t walk. All of the doctors couldn’t figure out what was wrong with me, and I was in the hospital for 9 days. I stopped the meds as a last resort. It affected my mental health, ability to think, and gave me weakness, numbness, muscle cramps, dizziness, and a chronic pain that felt like my entire skeleton was in a pressure cooker."

1 / 10

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8 Report

Joe...
Taken for 1 to 6 months
March 19, 2021

"I've been on primidone for 35 years. My doctor wanted to switch to Zonegran because of my headaches. It definitely stopped the headaches, but I couldn't sleep. However, I wasn't tired the next day either. Two weeks in, I noticed that I was having heartburn, but it was controllable. When I upped my dose to 200 mgs., it was like someone set a fire in my stomach. I called the doctor and went off of it that day. I did notice that my personality changed as well. It didn't work for me, but I'm sure others have had better results."

3 / 10

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6 Report

Bru...
June 30, 2016

"I first took it in 1984 as part of the study. It was so, so, it didn't work sufficiently, and the epileptologist took me off of it for fear of kidney stones impacting a teenager. When having major problems with Onfi and having tried 25+ meds over the past 41+ years, I thought I'd see if Zonegran had improved. A physician at Georgetown University in DC failed, like the FDA, to provide information stating that the medication can make a person who has had trauma and/or brain surgery go into orbit. It controlled seizures for a few months, made me do impulsive things like request retirement from a position paying over $104k/year. It made me hostile, nervous, go nuts, and elevated my Dilantin level, caused gingival hyperplasia so my teeth are painful and ruined."

2 / 10

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14 Report

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DGI...
Taken for less than 1 month
March 23, 2013

"Diagnosed - generalized juvenile myoclonic epilepsy. Completely stopped my son's seizures, he is only 14 years old."

10 / 10

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41 Report

Kay...
Taken for 1 to 6 months
July 19, 2018

"This drug is great for seizures. I literally don’t have any when taking it. The only side effects I see are fatigue and serious weight loss. I’m down 20 pounds from this drug."

8 / 10

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21 Report

Sul...
July 26, 2011

"On maximum dose with Keppra, and still having some breakthrough seizures. Still less than I was having before. No side effects. Had a full-term pregnancy while on medication. Baby is very healthy."

8 / 10

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37 Report

Anonymous
July 7, 2010

"No seizures while taking, but have had bad bruising and constipation going on 2 years now. But I'll take no seizures over the side effects!"

9 / 10

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35 Report

Lot...
Taken for 10 years or more
August 28, 2018

"I've been taking Zonegran for 12 or so years and have had no problems at all-not one seizure for years. I ride motorcycles fast and not once have I had a problem."

10 / 10

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18 Report

C-D...
March 3, 2009

"Loss of appetite, but seizure-free."

9 / 10

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33 Report

Anonymous
October 24, 2008

"I like Zonegran overall, I haven't had a seizure since I started taking it."

7 / 10

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34 Report

Can...
December 10, 2011

"Been using this a short while, and it apparently works for me."

8 / 10

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26 Report

tru...
Taken for 1 to 6 months
February 18, 2021

"RUN, DO NOT walk from this medicine. I used this for about a month. It's a useless medicine. More of a get-rid-of-you medicine. Causes a whole load of problems that you don't need."

1 / 10

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8 Report

Anonymous
July 12, 2010

"The medication wasn't helpful in controlling my seizures. It's been about five months, and I have had painful migraines just about every day! One day, we'll find one that works!"

1 / 10

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22 Report

JJK...
Taken for less than 1 month
November 6, 2021

"Not a fan of Zonegran, it did not improve my seizure condition at all and caused hyperglycemia, increased hunger, loss of muscle, and memory impairment."

1 / 10

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5 Report

Bri...
October 2, 2009

"Going to Zonegran from Trileptal, still waiting for the headaches, etc., from the Trileptal to go away."

4 / 10

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16 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.