Romosozumab and Flu-Like Symptoms: What Users Say

• Ell...
• Taken for 6 months to 1 year
• April 2, 2023

For Osteoporosis "I have completed six of twelve injections. As mentioned in other reviews, I have experienced flu-like symptoms the day after each series of injections. Recent CMP shows BUN/Creatinine ratio doubled in the past 6 months! Calcium and Vitamin D are fine. For the past 2 months, I have been dealing with persistent arrhythmias. I am in the process of a complete cardiac workup. I am trying to understand if/how Evenity impacts heart functioning. There is conflicting research on romosozumab and cardiovascular risks. I am questioning whether I will complete six more months of injections."

• Sop...
• Taken for 6 months to 1 year
• June 13, 2023

For Osteoporosis "Started Evenity April 2022. Stopped after 2 injections due to jaw pain and increased headaches. I have migraines, and after taking Evenity, my migraines increased in intensity and frequency by 70%. Started again last month, nearly a year later, and my migraines are increasing again. Also broke out in large, very painful canker sores 2 times on the roof of my mouth, which lasted 2 weeks, with flu-like symptoms and significant fatigue. Also dealing with neck pain every day. Will be discussing stopping Evenity this week."

• Dee...
• Taken for 1 to 6 months
• September 29, 2024

For Osteoporosis "Because of being diagnosed with osteoporosis due to menopause, it was suggested I try this. Not sure if I am happy with it or not. So far, I have had only 2 injections, so only 10 more to go. I had my choice of where I wanted the shots and chose behind my upper arm. I had no problem with the shot being administered. Did not really hurt and had no swelling or inflammation. I did have a slight headache, though. Same thing when I had the second shot, except this time I just felt like I was getting the flu. One thing I did notice since getting these shots, though, was that I had a constant throbbing pain in my legs, especially my right one. I thought I had MS or something and did not attribute it to the shot. There are days I can hardly walk, and I have a constant limp. I have tried natural oils and over-the-counter meds, but they only help for a short while. The pain is so uncomfortable that I could cry! I am not a crier, though. I am getting depressed about this and am not sure what to do."

• Deb...
• Taken for 1 to 6 months
• December 21, 2024

For Osteoporosis "My injections started last month. First 3 days, I felt fine. Day 4, I felt very achy, flu-like symptoms, extreme fatigue; for a week, I wondered why I agreed to this treatment. I informed my endocrinologist. At Dr. suggestion, 2nd dose this month, I drank 2 eight oz glasses of water before injections. This is day 5; I still feel great. I'm fatigued, though not as intense; it might be from other factors, such as stress or just getting older. I’d tried Fosamax; it bothered my tummy. I’ve never tried Prolia, but its side effects sounded scary. I’m committed to 10 more Evenity injections, with hopes of success. I walk (sometimes wearing a weighted vest 10#), lift weights daily, and use the gym's Power Plate, which supposedly increases bone mass. I do yoga. My diet is calcium-rich, and I use calcium/D3/K2 supplements. I get outside daily, even if it's chilly out. I avoid caffeine and alcohol."