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User Reviews for Primidone (Page 4)

Also known as: Mysoline

The following information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.

Condition Avg. Rating Reviews Compare
Seizures 8.4
12 reviews 52 medications
Benign Essential Tremor 5.4
74 reviews 3 medications
Summary of Primidone reviews 5.8 86 reviews

Reviews may be moderated or edited before publication to correct grammar and spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest in the medication will not be published. As reviews and ratings are subjective and self-reported, this information should not be used as the basis for any statistical analysis or scientific studies.

Reviews for Primidone

NW December 14, 2009

For Benign Essential Tremor: “I have epilepsy and had it controlled for several years with other medications. Recently I was diagnosed with Essential Tremor and the doctor prescribed Primidone. On the second day of use I had a seizure, as I continued usage and increased dosage as directed I started losing muscle control in my legs, I had periods where I thought I was losing my mind. I was unable to speak clearly as it felt like my tongue was swollen, but it was not. It got to the point where I could not stand up in the shower without leaning against the walls. My wife said get off that medicine! Could not reach my doctor so I decreased dosage to zero. I take a lot of different medications for number of different medical problems, I think my brain had had it. ”

1 / 10
Anonymous December 9, 2009

For Benign Essential Tremor: “I was diagnosed with ET 6 weeks ago. I was prescribed Primidone. To date, I still am having serious side effects. My tremors are continual, even to the point where my left arm feels "dead". Generally I feel drained, dizzy, and sick to my stomach. My voice is halting, with shaky patterns, and is more affected when I am tired. I find it very difficult to take this medicine and will be calling my Doctor to discuss any other options.”

3 / 10
kelp88 November 8, 2009

For Benign Essential Tremor: “I've had essential tremor for most of my life. It has got worse in the last 5 years, so I've taken 7 to 8 different drugs (at different times) to see how well they worked. Propanolol worked best, but unfortunately brought out my old asthma that I hadn't had since childhood. Primidone was the only other that seemed to work for me, but was not a cure all. The problem I had with Primidone was the bad effects it gave you, but I persevered and it went away in 3 to 4 days and has not come back again. The bottle says to take three 50 mg pills a day. This is a lower dosage. But, I just take one 50 mg pill once a day and have on occasion upped it to two when I want to feel more confident in public without embarrassing myself with hand tremors.”

6 / 10
Anonymous October 24, 2009

For Seizures: “I have been using this medication for approximately 35 years. I have had two healthy children during this time. I am now in my 50's and find that I am experiencing tiredness, fatigue, and incoordination to the extent that I stumble or run into people or things easier than before. Whether this medication is a cause to my clumsiness or not, I am not sure. It has helped to control my seizures since my last one in 1975.”

9 / 10
hhrt_7u August 26, 2009

Mysoline (primidone) for Seizures: “Great!”

10 / 10
irishdeb1 August 12, 2009

Mysoline (primidone) for Seizures: “I have been taking this medication for 30 years, and have never had a side effect or seizure. Works very well for me. No complaints. ”

10 / 10
Anonymous July 13, 2009

Mysoline (primidone) for Benign Essential Tremor: “I found Mysoline effective for my essential tremor, but the side effects of tiredness, lack of energy, plus reduced sexual function (difficulty in ejaculating) is quite frustrating.”

7 / 10
Ken V February 3, 2009

For Benign Essential Tremor: “I started using this in combination with propranolol for my tremor. I take 80 mg of the propranolol in the morning and 50mg of Primidone before bed. I had been taking the propranolol for 6-7 years already and it cuts the intensity of my tremors by 50-70%. By adding Primidone as a combination therapy I would say that it's 80-95% reduced. If you have a hereditary tremor like this you should ask your doctor about these medicines. Good Luck!”

10 / 10
Anonymous January 8, 2009

Mysoline (primidone) for Seizures: “Great Seizure control. Low side effects after first 2 weeks.”

9 / 10
eganan October 20, 2008

For Seizures: “I have been using primidone for over 20 years for my epilepsy. I have not suffered any side effects. I also give the medication a thumbs up.”

10 / 10
Elaine Tafelski September 7, 2008

Mysoline (primidone): “My doctor first prescribed Mysoline for me at least 12 years ago, after attending a Medical Conference. I was unable to raise a cup to my lips, or cut the food on my dinner plate. My tremor was noticeable by family and friends. I had been checked for Parkinsons, and the results were negative. This doctor learned that this medication was taken for Essential Tremor, which was mis-diagnosed too many times by Doctors. He wanted me to try it at least. I readily accepted, to take Mysoline, and before I knew it I had results. Taking this prescription, gave me my life back. I no longer needed assitance at dinner time, or by family and friends. I live a normal life now, not ashamed to go out in public. Inderal was added with Mysoline just lately. Thanks”

10 / 10
clements74 January 28, 2008

For Seizures: “I started taking the generic drug Primidone 1-12-08 and so far it has controlled the shaking. I have been told I have seizures that come and go. I can't get my words out and at times I can't figure out what word or name I want to use. My coordination suffers and I feel like my mind is kind of cloudy. My hands also shook when I had these seizures. So far I would rate this drug a thumbs up.”