Primidone User Reviews & Ratings (Page 4)

• Kee...
• Taken for less than 1 month
• May 13, 2022

For Benign Essential Tremor "I am on my second week of primidone for voice and jaw tremor. It has helped a lot. Taking 25 mg, which I will up to 50 mg in a week. Few side effects. I've heard it doesn’t work well after a year, which saddens me. I am 82."

• Gre...
• Taken for 1 to 6 months
• July 24, 2024

For Benign Essential Tremor "I had head and arm tremors. I started on Primidone. I am 59. I no longer shake, both head and arm tremors are gone. I take one 250 mg tablet a day, made up of half a tablet in the morning, a quarter of a tablet in the afternoon, and the other quarter in the evening. No side effects at all, brilliant."

• Way...
• Taken for 5 to 10 years
• July 21, 2021

For Benign Essential Tremor "I'm 74 and began to experience right-hand tremor 5-6 years ago. It's worst when trying to write (cannot write legibly nowadays). I ignored it at first because the tremor was mild, plus I didn't think anything could be done. Because it slowly worsened, I saw my state's 'Expert on Parkinson's and Other Types of Tremors' (that's what my primary care physician told me). Anyway, Dr. Expert said it's essential, not Parkinson's. I began primidone at 50 mg at night. It immediately helped. After about a year, the tremor slowly worsened again, so my neurologist (not Dr. Expert) upped the primidone to 75 mg at night. Slight improvement, but after another year with a gradual retreat to more frequent episodes and worsening tremor, the neurologist suggested going up to 100 mg at night. That was 6 weeks ago, and the tremor hasn't lessened. I've experienced no side effects."

• Gai...
• July 25, 2021

For Benign Essential Tremor "My father and mother had shaking hands. I am 66 and had mild tremors in my hands since my 20s. I went to a neurologist back then who put me on Inderal, but I didn’t take it due to having side effects of drowsiness. A couple of years ago, my tremors got worse. I went back to a neurologist who prescribed Primidone due to having a slow heart rate. After 3 days of 50 mg in the morning, I have seen significant improvement. I am still dosing and taking one in the morning and one in the evening. I’m very happy that it’s working."

• Mis...
• Taken for 2 to 5 years
• August 31, 2018

For Seizures "I have Addison's disease (Schmidt's syndrome, more precisely) and epilepsy, but I was initially diagnosed with essential tremors also. This definitely helped my hand shaking, and I still take it. I am on Topamax, hydrocortisone, and my HRT (including thyroid) also. I have taken Primidone for 4 years and Topamax for 3. I also have vagus nerve stimulation (VNS). A year ago, a strange rash appeared on my legs that will not go away despite every method used by my dermatologist. He says it's one of the meds. Under hospital care, I came off of Topamax for a week, and the rash did not go away or lighten, so we think it may be the Primidone. I just read more comments from others saying they have had skin issues after prolonged usage. Guess it is time to try to discontinue my beloved Primidone! Would love to see more information and studies about this side effect! I thought I had leprosy!"

• Jan...
• Taken for 10 years or more
• August 16, 2022

Primidone for Epilepsy "This medication is wonderful. I have been taking it for 40 years, no side effects, stops seizures. I take a small amount of Valium and Dilantin with it, I have my life back. Now there is a shortage. I cannot take the generic, I have falls. Went to the Mayo Clinic, passed all the tests in regard to falls, passed them all. Went out the door, fell, and broke my shoulder while on Primidone. I have to have Mysoline because of filler and dye allergies. Now they say they have a shortage. I cannot take the Primidone. Anybody else having this problem?"

• Mac...
• Taken for 5 to 10 years
• February 27, 2022

For Benign Essential Tremor "75-year-old Vietnam veteran, exposed to agent orange. I started with mild essential tremors in my late 20s, which later became peripheral neuropathy. I have little feeling in my lower legs and am no longer able to write. I take primidone 250 mg 4 times daily... It helps somewhat, but I guess that's better than not at all. My neurologist has suggested trying an electrical brain implant. I'm on the fence."

• Old...
• January 8, 2017

For Seizures "I am 62 years old. Since I was 19, I had 4 seizures and was on Dilantin 500 mg/day and Mysoline (primidone) 250 mg 3 times/day. Then, 2 months before I became 62, I had a seizure. The neurologist took me off primidone and put me on topiramate 100 mg twice daily. I could feel my change: confusion, loss of appetite, and then, 32 days later, I had a seizure worse than the one earlier. I went back to him, and he took me off topiramate and increased my primidone to 2 x 250 mg primidone twice/day for a total of 1000 mg primidone, along with the original Dilantin. I am just starting to feel normal again, like I did for the past 43 years, with no side effects that I am aware of yet, plus it was something that I was taking for years and never noticed any of the side effects listed."

• Bre...
• Taken for 5 to 10 years
• May 20, 2023

For Benign Essential Tremor "I have essential tremors/benign tremors. I am 56 years old and have had this since roughly 2010. My hands shake uncontrollably, and my neurologist prescribed me Mysoline/primidone 50mg. It works awesome, but the dosage has to be increased yearly as you become used to it. I take 300mg every morning, I’m supposed to take it at night, but it wears off when I am sleeping and is useless. I don’t feel tired. I have no noticeable symptoms of any side effects except the loss of appetite and weight, and it works excellently, and no thanks to benzos. I take exactly as directed, and I can function well now, but with an addiction tradeoff."

• Sus...
• Taken for 1 to 6 months
• May 20, 2023

For Benign Essential Tremor "I have had essential tremors since I was a kid. When I first saw a neurologist due to my weight, there was no medication they were willing to put me on. I was advised to take lorazepam when it got really bad. This carried me through until I was in my early 50s. Now the tremors are getting worse and affecting my daily life. I have trouble writing, holding glasses, and using a mouse, and I’m really tired of everybody asking me why I’m so nervous. The final straw was when my granddaughter asked me why I shake all the time. So back to the neurologist I went. Unfortunately, I have asthma, so he felt primidone would be my best bet. I started off at 25 mg for about two weeks with little to no changes. I have recently gone up to 75 mg and finally seen some improvements. I can actually work the mouse and no longer spill stuff when I try to drink or eat. I still have issues writing and still noticeable tremors. I will continue to up the dose as the doctor advises. So far, no side effects."

• Anonymous
• July 13, 2009

Primidone for Benign Essential Tremor "I found Mysoline effective for my essential tremor, but the side effects of tiredness, lack of energy, plus reduced sexual function (difficulty in ejaculating) is quite frustrating."

• han...
• Taken for 10 years or more
• November 27, 2013

For Benign Essential Tremor "I have been on primidone for 10 years. I'm 34. I take 250 mg twice a day. It no longer works. If I increase the dose anymore, I'll be a zombie. I'm about to start gabapentin, time will tell."

• Ana...
• Taken for less than 1 month
• October 5, 2019

For Benign Essential Tremor "I started primidone 3 weeks ago for. Tremors essentially (get it) 75-80% better. Only side effect is minor GI issue and minor fatigue. Benefit definitely outweighs the risk. I'm on 50 mg once a day."

• Bil...
• Taken for 2 to 5 years
• January 21, 2019

For Benign Essential Tremor "Started Primidone about 3 years ago. First, I took 25 mg twice a day for a week, then 50 mg twice a day thereafter. It works well for me, no side effects at all."

• Ano...
• February 4, 2012

For Benign Essential Tremor "Takes months to get used to. Good side effects for me include improved sleep and increased exercise tolerance. Bad (good?) side effect for me is delayed ejaculation."

• Plu...
• Taken for less than 1 month
• August 27, 2017

For Benign Essential Tremor "Works like a charm! A little sedating when first starting, but it goes away. I can take pictures again!"

• Cor...
• July 4, 2015

For Benign Essential Tremor "It seems to have a marginal effect."

• iri...
• August 12, 2009

Primidone for Seizures "I have been taking this medication for 30 years and have never had a side effect or seizure. Works very well for me. No complaints."

• New...
• Taken for 1 to 2 years
• September 23, 2019

For Benign Essential Tremor "Without it, I couldn't write my name. But my tremors haven't stopped. They are getting worse. I just started taking 300 mg 3 days ago, so we will see. Right now, I don't like how I feel."

• U12...
• September 1, 2017

For Benign Essential Tremor "I have sores in my mouth, and I'm frequently hoarse, but it does help control the tremors."

• Ksn...
• September 14, 2019

For Benign Essential Tremor "Terrible drug. They should have said, do not drive and be very careful walking."

• Bif...
• Taken for 5 to 10 years
• December 8, 2016

For Benign Essential Tremor "Tremors seem to be getting worse. I take 2 a day. Just turned 70. Have had tremors for many years. Maybe I should ask my doctor if there is something else for me to try."

• Kat...
• Taken for less than 1 month
• February 17, 2021

For Benign Essential Tremor "I had to refrain from taking it. It gave me wild, vivid dreams."

• Anonymous
• January 8, 2009

Primidone for Seizures "Great seizure control. Low side effects after first 2 weeks."

• Rob...
• Taken for 6 months to 1 year
• January 19, 2020

For Benign Essential Tremor "I am using 500 mg of primidone per day, but nothing happens, the tremor is still the same. I don't even have side effects. Strange."