Naltrexone for Fibromyalgia User Reviews (Page 2)

• Sar...
• June 18, 2020

"I'm a scientist, a sociologist, and a psychologist. I went to school initially for PharmD. I am in my 40s. I've been a lifelong athlete, and I was never one to drink, smoke, or use drugs. I have Hashimoto's, which has destroyed most of my thyroid. I get hemiplegic atypical migraines, which are increasing to the point there's no real treatment options left. I've also been recently diagnosed with Ehlers-Danlos and fibro. Tonight was my first night taking titrated LDN. Never again! It's 3 AM. I've never done drugs, but I imagine this is what someone feels like who does copious amounts of cocaine. I only took 0.5 mg. That's it. My muscles seized earlier. I've been sweating profusely. It's COVID-19 time, and if not for that, I would have immediately gone to the ER as my SVT is not abating. This has been one nightmare evening for me I refuse to repeat. I have never been an advocate for MJ until now."

• MJa...
• May 21, 2020

"LDN saved my life. I spent years thinking I just had bad depression & PTSD thanks to all the trauma. At 25 though, I got hit with a wave of intense brain fog. I couldn't read a paragraph & retain the information, leaving the oven on, front door unlocked, driving my marriage into the ground because I wouldn't remember conversations, getting lost in the grocery store, had to withdraw from my college classes. It was this bad for nearly a year. Getting the Fibro diagnosis only tanked my morale. I felt like an 85-year-old with dementia & have a disease most people think is BS. Yay! I've been on LDN for 3 months now & found those 50 IQ points I had lost in the fog. I'm no longer an elderly young person! I'm reading books, back in school & getting 100% on assignments. I'M BACK & the only change I made is LDN & while I never cared about the fibro pain ('pain is weakness leaving the body, oorah!' - my favorite drill sergeant) the flare-ups are less intense, shorter, & easier to manage."

• TAS...
• March 28, 2020

"I have been taking Naltrexone LDN for fibro for about 2 years now. The difference is amazing, like a miracle. At 42, I felt like I was 90. My body was just inflamed and in constant pain. When I moved, everything felt tight, sore, and painful. My inflammation was very high and my doctor put me on 9mg of LDN to start. I was at that dose for about 9 months, and my inflammation was still very high, and I was also still struggling to lose weight. My doctor upped the LDN to the full dose of naltrexone at 50mg to help with weight loss, and it did. Between the 9mg and 50mg, I lost 30lbs. However, the 50mg dose was a little too high for me as it made me so sleepy. So, I dropped it down to roughly 32mg, but I take it in split doses of 16mg, 12 hours apart. That has proved to be my perfect dose. I no longer have any body aches or pains. I wake up feeling 20 again, and the naltrexone gives me energy throughout the day. I also have hypothyroidism, and the lack of energy had been a huge problem for me as well."

• Rar...
• Taken for 2 to 5 years
• December 24, 2019

"I've been taking LDN (low-dose naltrexone) 25 mg twice daily since 2016 for my fibro. It's made a big difference with taking meloxicam too, 7.5 mg twice daily. However, it's more effective in the mornings. My second daily dose sometimes doesn't work at all, or not as well. Stress, activity, sleep, and weather also are factors. However, I'm not on NSAIDs or opioids. I take Tylenol for arthritis as well in between on bad flare days. I'm very, very grateful for naltrexone."

• Mem...
• November 29, 2019

"I was diagnosed with fibromyalgia in 2013. I tried the traditional medications, and none helped, and I suffered from horrible side effects. I stopped medical treatment in 2016 because I was so frustrated with spending money and getting no improvement. In November of this year, at the advice of my primary care doctor, I saw a rheumatologist. He listened and recommended LDN. My pain level dropped tremendously. I suffered from burning, aching pain in my back and legs. I have been on the medication for about 3 weeks. I have not experienced any side effects."

• Spu...
• November 23, 2019

"Had fibro since birth. Took over my entire body and mind at the age of 32. Started with 1.5 mg, and within a week was up to 4.5. The naltrexone was working like a charm for my fibromyalgia: no more brain fog, pain diminished by about 60 percent. Started to be able to take care of myself again after being bedridden for nearly 3 years. For the past 5 months, I have been experiencing waking after 5 hours of sleep with a burning sensation in the back of my neck and headaches in the sinus areas of my forehead, along with a tight rubber band feeling in my head. My spine burns, along with upper muscle spasms. Depression has worsened. The pharmacy sent me a different brand of LDN this past month. I question the quality? Or am I just having a bad relapse from extreme stress and overdoing? I've also experienced tingling down the back of my legs, along with my 3rd, 4th, and 5th fingers. I'm stumped! I'm seeing a chiropractor Monday to see if this could be coming from my neck and spine. I also have several herniated discs. I should also try another brand of naltrexone to see if that helps."

• Sar...
• Taken for 6 months to 1 year
• November 5, 2019

"I started low dose naltrexone (LDN) for fibromyalgia after years of feeling like a lab rat! It is amazing. I no longer feel like I am in a fog, everything is so much clearer. Pain is minimal. I still have an occasional flare but few and far between, mainly when I overdo it. I feel like I have gotten my life back. I do take it in the morning, 4.5mg, because it had been causing insomnia."

• Anonymous
• November 5, 2019

"Low-dose naltrexone (LDN). I kinda happened upon the research of LDN by truly mere boredom and random web searching. I feel as though my doctor is not familiar with this choice of treatment for fibro, and so I was surprised when she actually prescribed it. I did seek the advice of the compilation of research out there for LDN to see if there are better titration schedules. I started 1.5 mg for 7 days and honestly only took the first 3 doses over 6 days, so every other day. Then I took doses 4, 5, 6, and 7 on consecutive nights. Tonight is my first time using the 3 mg dose. I feel it's too soon to truly assess the effectiveness of the drug, but I am already noticing a harder time falling asleep on 3 mg. It kinda gave me energy, so I might try a morning dose. Question though, has anyone gotten this as an approved method of treatment under their primary health insurance for fibro? I had to pay out of pocket for mine. I'm on MAWD, so I have primary insurance through my employer and Medicaid as a backup, but neither is covering it."

• tro...
• Taken for 1 to 6 months
• October 3, 2019

"Update: today is day 27 on low-dose naltrexone and day 14 of the 4.5 mg dose. So far, things have not improved, getting more aggravated as the days go on. My doctor will not give me anything else for pain or muscle stiffness. 30 mg a day of Flexeril for 10 days did nothing to relieve the muscle tightness and stiffness. His option is aquatic therapy and trigger point injections in the trapezius muscles. I don't want to do the injections, why do something invasive when they could try a different muscle relaxer? Anyway, was ordered to stay on the naltrexone for 30 more days and have to talk with the doctor at the end of the month. He also said it can take 3 to 8 weeks for it to work, we shall see. Not keeping my hopes up."

• Peo...
• Taken for 1 to 6 months
• October 2, 2019

"Diagnosed 30 years ago with fibro. Pretty miserable. I tried antidepressants, opiates, muscle relaxers, as well as non-medical therapies. For me, the LDN (low-dose naltrexone) gave more energy and less burning pain. It's also much less expensive than Lyrica with fewer side effects."

• Cas...
• Taken for 1 to 6 months
• September 27, 2019

"I tried LDN (low dose naltrexone) in 2018 and 2019 - worked up from 0.50 to 3.00 mg over 4 months (never got to 4.5) - still got the worsened sleep (bad as it is) and then worse depression, agitation, drier eyes (burning) and mouth, pain still the same and worse in other areas of the body. When I got spontaneous bruising this last week on my arms, then thighs, I finally quit yesterday. Improved sleep in one night after quitting. Useless for my situation, but enjoyed the weight loss (not worth it this way!)."

• Nic...
• Taken for less than 1 month
• September 13, 2019

"I was using 1.5 mg naltrexone daily for fibromyalgia and neuropathy pain. It worked very well for the pain and also improved my mood and feelings of well-being. Side effects I experienced were foot cramps 1-4 hours after taking the pill, then it subsided, as well as light insomnia. Unfortunately, I experienced a rare side effect that's not listed here but is in medical literature. About a week after taking low-dose naltrexone (LDN) regularly, little blood spots showed up on my upper arms and a blood vessel in my earlobe popped. This went away when I stopped taking LDN."

• Ann...
• Taken for 1 to 2 years
• August 18, 2019

"It is very important to titrate VERY SLOWLY to your naltrexone dose for fibromyalgia. I had pills that were 3 milligrams. I divided it up by thirds the first two weeks, then by half the second two weeks. Then divided up by thirds again, taking 2/3 at a time for two weeks until I was on the whole 3 mg dose. I’ve never gone up from there. I had debilitating hip pain due to Hashimoto’s and it is gone or down to a one or two on the pain scale. It was a rough transition. It really messed up my sleep and I’m already an insomniac. I will never go without this medicine. I’m not somebody who likes to take meds. If you had a bad reaction, maybe try a very low dose for a long time and slowly build up. By the way, when I first got it, I tried the whole dose and I was a mess. That’s why I went slow."

• Mam...
• Taken for 1 to 2 years
• July 27, 2019

"I take this for my fibromyalgia at a 4.5mg dose. I had weird night time dreams/sweats, etc., at first, so I switched to taking it in the morning for the rest of the first month. After that, I switched back to taking it at night because I take other medications at that time and struggled to remember my low-dose naltrexone (LDN) in the morning. It doesn’t disturb my sleep anymore, and I wake up refreshed most days. If I know I’m going to have a physically taxing day, I will skip my evening dose and take it first thing in the morning. I’ve found this enables me to go all day without pain or feeling overly tired. I highly suggest people research how the drug works when deciding what time of day to take it, and before giving up on taking it. It took me 3 months to notice improvement, and I’m glad I stuck with taking it. I’ll never go off."

• Pdl...
• Taken for less than 1 month
• June 15, 2019

"I was so looking forward to starting naltrexone for my fibromyalgia and hoping to eventually get off my steroid, Aleve, azathioprine, and gabapentin. But I began to gradually feel worse with joint and muscle pain on the 1.5 mg dose. After 2 weeks, when I increased to 3 mg, widespread pain was off the chart, I lay in bed at night moaning and crying in pain. I stopped it the next day and have been feeling better. I am thinking about restarting at 1 mg and taking it in the daytime instead of PM. I am so very disappointed...."

• Crc...
• Taken for less than 1 month
• June 8, 2019

"I’ve stopped tramadol after 10 years for my fibromyalgia to start naltrexone this past Monday 6/3/19 and OMG."

• Qld...
• Taken for 2 to 5 years
• June 6, 2019

"I was on the verge of leaving my job and applying for a disability pension when I started LDN (low dose naltrexone) for fibromyalgia. It took a while to get the right dosage that works (I'm now on 6mg) but it has saved my life. It stops the pain, most days the tender points aren't tender at all. I also use 5-HTP at night for sleep and in the morning for mood, D-ribose for energy, and am currently testing acetyl-L-carnitine for energy. Feeling extremely grateful for being virtually cured."

• Anonymous
• Taken for less than 1 month
• April 19, 2019

"After 4 weeks of low dose naltrexone (LDN), it has reduced my fibromyalgia pain from an 8 to about a 2-3. I have fatigue I still struggle with, but it has also given me a boost in energy as well. I am able to keep my full-time job that I almost had to quit and have been able to do more and more outside of work than I was for years. I’ve had fibromyalgia for 4 years and tried many medications, and this is the only one that has helped. I had to go online to finally find a doctor to prescribe it. I currently take 3.0mg and it is absolutely worth a try."

• pur...
• Taken for 1 to 2 years
• March 16, 2019

"I have suffered with mild/moderate-level neuro-inflammation for over 30 years. This includes severe fatigue, brain fog, heart arrhythmia, visual disturbances, and more. Never in these years has anything helped my ME/CFS as well as low-dose naltrexone. I started at 0.5mg and raised it by 0.5mg every two weeks until I got to 4.5mg/day. 30 minutes after my first dose, my brain fog/headache completely disappeared! Nothing has done that for me before. I share my whole story online, and I recommend LDN (Low-dose naltrexone) - more info for your doctors who would prescribe it on the site LDN researchtrust if you need help figuring it out. I don't tolerate other medicines well, but this has been a lifesaver! Good luck all!"

• Dan...
• March 8, 2019

"I got this medication from my doctor after I was telling her the amount of alcohol I was drinking. I always had, when I was drinking or not, extreme restlessness and exhaustion at once. My muscles were hurting, I could sleep 10 hours and was not feeling rested. Could not concentrate very well, had social anxiety, etc. I took 25 mg at night, went to bed and... Wow, I felt like I was high. The pain gone, exhaustion gone, depression gone, everything I described above was nonexistent anymore. I felt like I had helium balloons on my arms and head. Feeling rested after 6 hours of sleep, being awake the whole day... The day feels so long now because I can use every minute. Also, I felt no desire for any drug anymore. I went out with people drinking, drank just mineral water. Impossible for me before the pill. I'm not lying. I also can't believe what happened. I am pure bliss. I was about 10 years like that. Now I'm free. Try this miracle drug! Highly recommended!"

• Bea...
• Taken for 1 to 2 years
• August 15, 2018

"Low-dose naltrexone (LDN) has reduced both my pain and fatigue. It’s made a huge difference to me. I was at the point of giving up work, but on LDN I’m able to keep working. Initially, I had a few nights of disturbed sleep, but now no side effects except the good ones!"

• Lor...
• Taken for 5 to 10 years
• May 15, 2018

"This has absolutely been a life changer! I could not live without it."

• goo...
• Taken for 2 to 5 years
• February 22, 2018

"Put my autoimmune condition into remission. Went from C-reactive protein over 200 to 17... life is finally good."

• Tlo...
• Taken for less than 1 month
• February 13, 2018

"So I took my first dose last night, was very excited to start this new med after reading so much good stuff about it. Took my tablet at 9 and went to bed. At 10 I was so ill I wanted to die, vomiting, heart pounding, and sweats. Did not go to sleep until 5 a.m. Very disappointed and afraid to try it again."

• she...
• Taken for 1 to 6 months
• January 1, 2018

"I'm normal again! I feel amazing! This medicine is truly a dream come true. I feel so thankful to be offered this thanks to my pain clinic I went to because the normal doctors would not prescribe it. It's safe, it's changed my life! I'm free of pain!"