User Reviews for Naltrexone
Also known as: Depade, Revia, Vivitrol
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Naltrexone.
Reviews for Naltrexone to treat Fibromyalgia
"I was diagnosed with MS in Dec 16. Had the most severe fatigue and leg numbness, didn't sleep for more than few hours for years. Had extreme heat intolerance too. After just 5-10 min doing exercise or work felt like I was going to pass out. All of this combined made me so miserable I couldn't grasp why I would need to go on. Copaxone seemed to help a little but the injection sites were all like a swarm of bees stung me. Researched Low Dose Naltrexone (LDN )and couldn't believe reviews. Emailed doc and he wrote script without a second guess. Take about 3mg every night around 9pm. Life changing decision. No bull. Feel better than I have in 10 years. Heat tolerance in about 90% corrected except for few off days. Energy is much better and tingling mostly gone."
SteveLoves LDN September 1, 2017
16 users found this comment helpful.
"I have fibromyalgia, Sjögren's syndrome and central pain sensitisation. I started taking Low Dose Naltrexone slowly building up to 4mg but felt it too much as it made me feel agitated. Reduced to 3.5mg which is good for me. Initially straight away I felt more energy and my mood lifted. Helped sjogrens considerably - mouth not so dry. Somewhat reduced pain. Sleep better. I've been on it for 8 month and I get the feeling it's not working as well now. Maybe my body has got use to it and it's not as effective. And I have noticed hoarse voice, memory problems, cramping, waking more often in night, and irritability which I read can be side effects. Thinking I may either reduce or go off all together to see what happens. NZ dollars $59 a month."
Sangoma (taken for 6 months to 1 year) May 19, 2017
14 users found this comment helpful.
"I have a patient with fibromyalgia in Kent UK who was given Low-dose naltrexone by another physician. Her energy improved and her pain reduced so much that she was able to return to working 20 hours a week. I am currently trying it on a second patient."
Dr Chris Bowman May 5, 2017
24 users found this comment helpful.
"I developed a condition that had symptoms like fibromyalgia, Ms, Lupus after a surgery. I was at my worst when I discovered this drug. Low dose Naltrexone helps me a lot. I'm on 1.5 mg. I skip doses once in 3-4 days when I start feeling wired and over stimulated. Works great.. Made me feel better, helped with skin conditions no doctor able to cure. Only bad part is that it kind-of over stimulates you once in a while. Makes you feel all wired. Have to stop the dose for a day or two and it's gets normal."
Arun P (taken for 2 to 5 years) November 26, 2016
45 users found this comment helpful.
"Have had fibromyalgia for 22 years. Tried all sorts of the recommended meds. Two months ago started 4.5 mg low dose naltrexone. Fall asleep easily but horrible and disturbing dreams and subsequent pain from disturbed sleep. Sometimes I'd sleep 10 to 12 hrs and just slightly refreshed. Have a hard time getting going after waking for up to two hours. Just stopped taking it because of the side effects. Having a headache while coming off of it."
Leets (taken for 1 to 6 months) November 8, 2016
32 users found this comment helpful.
"I have been slowly increasing my LDN for fibromyalgia for the last several weeks. It has provided better relief than the Fentanyl 100 mcg that I had been on for years! Very hopeful that I will find my optimal dose and feel even better- I have had pain relief and an increase in energy. It caused insomnia though so I changed the dose to the a.m. with no drowsiness noted."
Elderly2 October 16, 2016
38 users found this comment helpful.
"highly successful, got me off 90% of pain meds, couldn't live without it."
ljcro (taken for 1 to 2 years) August 16, 2016
42 users found this comment helpful.
"I've been put on Naltrexone for 4 weeks going on five. I started taking one 5mg tablet nightly. After two weeks take 2 tablets for two weeks. I stopped increasing the dose by one for five days and my pain returned. I upped the dose to three and the pain has started to diminish greatly within 24 hours. I suffer from autoimmune disease. To add insult to my pain I was put on Ciproflaxon for a bacteria infection the first day of February and suffered from tendon and muscle damage resulting in not being able to walk severe pain in my feet like knife stabbing. Naltrexone took all my pain away evey bit of it. When My pain started to come back five days ago I started increasing my dose by a third 5mg tablet. I see my Doctor in two days."
Barbie S. July 11, 2016
39 users found this comment helpful.
"I have Complex Regional Pain Syndrome/Regional Sympathetic Distrophy .I started LDN (Low Dose Naltrexone, 4.5mg) during a Stanford double blind trial in January 2016 and received a months supply. During the first week I felt some of the muscle cramping associated with Naltrexone but that and my nerve pain subsided after about a week. The next three weeks sailed by and my activity level increased as I was essentially free of CRPS/RSD nerve pain. The chronic pain in my lower back was significantly decreasing too. When my supply ran out I experienced some of the CRPS/RSD pain but not at the level I'd had before. That wasn't the case with my chronic lower back pain and that came rearing back. It was a month before my Dr could get me the compounded LDN. Again, my pain has dissipated. Weening off Gabapentin soon!"
Greg in OR March 17, 2016
55 users found this comment helpful.
"I have never been this functional before. 8 months ago my functional capacity was at 50%. All I was doing was work, recover, and burn through an excessive amount of sick, vacation, and banked time. At home I was almost zombie like. I would spend all of my time curled up on the sofa in pain, fog, or fatigue. Thanks to LDN: Today I was able to pool run for 30 min! I did laundry and sorted all of the socks. Yesterday we had friends over to hang out for the first time in ages. I was able to go to a movie. I was tired after it all but it wasn't an all encompassing thing. I flirted with my fianc"
Zaxacava February 22, 2016
84 users found this comment helpful.
"I have been on naltrexone for 5 months, and it's not done a good job of helping with my pain."
lauralisk (taken for 1 to 6 months) February 10, 2016
26 users found this comment helpful.
"I started naltrexone Dec. of 2014. I started noticing improvement after about 4 weeks. I no longer had hot flashes. Then my pain started to get less and shorter periods of flare ups. Then longer periods of feeling much better and even days of feeling good and not constantly fatigued. This lasted until about 6 weeks ago. I started having hot flashes again and a really bad flare up that has gone on for a month. I'm so disappointed and am now backing off naltrexone so that I can once again take something for the pain."
Butchi October 19, 2015
48 users found this comment helpful.
"I've been taking 4.5 mg naltrexone for about 45 days. It has helped my pain better than any thing in the 20 years I have been suffering with fibro. I still have some bad days but for now I'm seeing more good days and even a great day or two and far less bad days. Until know I was having pain everyday of my life. I had to see a many a dr and had not even heard of this medicine for fibro. I'm getting my life back on track at last."
Aquatina September 30, 2015
85 users found this comment helpful.
"Chills, Diarrhea, vomiting."
greek 48 (taken for less than 1 month) September 25, 2015
25 users found this comment helpful.
"NO MORE WIDESPREAD MUSCLE PAIN!! Wonder drug!! I feel so GRATEFUL that my doctor has such knowledge about my condition and put me on this!! So happy to be able to get back to doing the normal things in life!! :)"
Emily June (taken for 1 to 6 months) September 12, 2015
69 users found this comment helpful.
"Started Low Dose Naltrexone (LDN) which is known to modulate the immune system. Calms, sit down if necessary, or kicks it in gear. Diagnosed with rheumatoid arthritis (RA) in 2010 with a rheumatoid factor (RF) of 361. Started antibiotic therapy (described at Rheumatic.org/faq) in September 2010. Summer of 2012 my RF was down to 25. Started LDN that fall. RF now down to 14.9 (0-14.5 is normal). I have NO symptoms of rheumatoid arthritis. Even my doctor is impressed. The LDN helped boost my health overall. It even prevented my seasonal hayfever. I have found, however, that not all generics are created equal. "
Awondergal January 30, 2015
76 users found this comment helpful.
"I have been diagnosed with Fibromyalgia for 12 years (took 5 mg of hydrocodone daily). I was able to work, function as a normal person & pain was manageable. In June I had several pulled muscles & a rotator cuff injury - pain was off the charts. The doctors in Tucson will not write pain meds under any circumstances - cut me off cold turkey and I pulled neck muscle. For 6 months my pain level was a 15 (scale of 1-10) suicidal pain with no relief in site. I was referred to country doctor in Wilcox, AZ - he said he would write me pain meds, but was I willing to try a alternate prescription that would possible get rid of my pain. I started out with 4.5mg daily at night and within 4 weeks my pain went down to around 2-3."
Mel999 April 2, 2014
127 users found this comment helpful.
"Since I began taking 5 mg naltrexone at night, I fall asleep quickly, I sleep very well for 8 to 9 hours. I wake up refreshed and without pain. I no longer take antidepressants, sleeping pills, anxiety or pain medication. My mental functioning is much better but not back to Pre-CFIDS standard. I don't have normal energy or drive but my life is so much closer to normal than it was a year ago, I have no complaints. The only other medication I take is for high blood pressure. The only side effect I have is a slight headache when I wake in the morning but it ALWAYS goes away soon after I get up. I would take this medication if the only thing I got from it was good quality sleep."
Nonymus (taken for 6 months to 1 year) August 20, 2013
121 users found this comment helpful.
"This medication reduced my fibromyalgia pain and some other symptoms significantly more than any of the other medications or combination of treatments usually prescribed for fibromyalgia. Initial side effects easily managed by starting at a very low dose."
gigantor (taken for 1 to 2 years) May 21, 2012
96 users found this comment helpful.
"This did nothing to help my fibromyalgia."
Anonymous November 28, 2009
46 users found this comment helpful.
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