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User Reviews for Lialda

Lialda has an average rating of 7.0 out of 10 from a total of 95 ratings on Drugs.com. 62% of reviewers reported a positive experience, while 21% reported a negative experience.

Condition Avg. Rating Reviews Compare
Ulcerative Colitis, Active  
6.9
60 reviews 31 medications
Ulcerative Colitis  
7.2
26 reviews 77 medications
Ulcerative Colitis, Maintenance  
6.8
6 reviews 20 medications
Ulcerative Proctitis  
10.0
2 reviews 16 medications
Inflammatory Bowel Disease  
4.0
1 reviews 69 medications
Summary of Lialda reviews 7.0 95 reviews

Reviews may be edited to correct grammar/spelling, or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published.

Reviews for Lialda

QuisUtDeus · Taken for 5 to 10 years · November 4, 2017

For Ulcerative Colitis, Active: “I was diagnosed with moderate to severe ulcerative colitis in 2008. I’ve been on all kinds of medication including asacol, 6mp, remicade, humira, prednisone, amitriptyline, Lialada and others. I also had surgery to remove my gallbladder due to stones - which I regret now since I don’t think made any difference with the BMs and bleeding. I finally had good results with Lialda. I used to take 4 pills a day but managed to ween down to 2. I also realized that part of the healing process came from Spiritual healing and mental attitude. The stress from a job played a major role in my flare ups. Prayer helped me spiritually which in turn helped me with my mind, which then helped with my gut alongside Lialda and a less stressful job.”

10 / 10
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Chad11990 · September 9, 2014

For Ulcerative Colitis, Active: “My doctor switched me from Acacol HD to Lialda after I lost my insurance and needed a less expensive substitute. I was worried because I had grown accustomed to Asacol and did very well on that medicine. After a few days of adjusting to Lialda, with no real problems or side effects (just a little gas during the first 48 hours), I feel fantastic on Lialda. I've been on Lialda for about 5 months now, and feel as good, if not better than I did on Asacol. I have fewer headaches that I did on Asacol and feel great less stomach cramps. Best of all, for me or anyone who is on the go during the day, I now take one Lialda tablet, twice daily (once in the morning, once at night). This is compared to two Asacol tablets THREE times daily.”

8 / 10
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mymyasky1 · Taken for 1 to 6 months · September 12, 2014

For Ulcerative Colitis, Active: “Starting taking Lialda about a month and a half ago and it took a couple of weeks to start working. As soon as it started working I felt great no more stomach pain, no more blood, no more diarrhea oh finally something that help take the pain away I was shocked at how good it worked. But then I should have known it was to good to be true about four weeks into it. My beautiful hair started falling out in clumps every time I washed it or even brushed it. I mean it was a lot every time I would cry. Also the muscle aches were the worst. I would sit for maybe 10 minutes and go to get up and almost fall over because my legs almost gave out. Other then that it works great for the pain but I can't take the side effects so I'm going to be switching medicines.”

7 / 10
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PC · Taken for less than 1 month · January 16, 2020

For Ulcerative Colitis, Active: “In 2009 I developed pneumonitis, pericarditis, pancreatitis, and ARDS after 3 weeks on Lialda. My GI doc told me and the other docs on my case that I probably had swine flu, and refused to consider Lialda as a possible culprit. The early-onset signs that you're reacting to this drug are that your colitis doesn't improve or gets worse. Having 0 experience (this was a first-line treatment upon my UC diagnosis), I trusted things would improve eventually, as the doctor told me to give it a month. But before that month was up, I was in ICU on full ventilation for 2 weeks & had a cup of bloody fluid drained off of my heart. A pulmonologist noted that my lungs looked like I’d "inhaled pure lye" (which I hadn't). Another doctor on my case eventually intervened and gave me a megadose of steroids, which was the only thing that reversed my condition and imminent death. It was a very long, physically painful, and emotionally devastating recovery, something I never should have had to experience.”

1 / 10
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JenniferL444 · Taken for 1 to 6 months · October 14, 2013

For Ulcerative Colitis, Active: “I take two Lialda pills every morning..(1.2gm), Lialda helped my stomach pains and bleeding tremendously! I recommend to everyone! It took a good 2 months to really show a big difference but I am so happy I finally found something that helps. It has taken me years to finally find something. Also, Contact your doctor or Lialda because it%u2019s really expensive but you can get their coupon card and only pay $10 a month.”

10 / 10
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Made a mistake! · Taken for 1 to 6 months · September 19, 2019

For Ulcerative Colitis, Maintenance: “I’ve tried taking Lialda 1.2g several times in a 3 months time frame. It really seems to help with my ulcerative colitis. It improved my diarrhea (7/10) and stomach pain (8/10). It pretty much does it’s job of keeping me in remission. But, Every time I take this, my mood changes, my jaws and cheek hurt, I can’t speak properly, I can’t focus, and I just don’t feel like doing anything. At first I thought it was all in my head (pigeon superstition). And so I experimented with it about 6 times and it happened every single time. Even as I’m writing this my jaws hurt, I can’t focus, don’t wanna talk and I’m avoiding doing my homework and I have a 3 hour class to go to! Maybe I’m an exception to the common side effects. I think it’s worth writing this review just in case someone else have the similar side effects.”

3 / 10
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hotboxdp · Taken for 1 to 6 months · September 1, 2017

For Ulcerative Colitis, Active: “Developed UC after I stopped smoking about 10 years ago. Have tried everything including Lialda and Canasa. The only thing that works for me is smoking cigarettes. I've also tried nicotine gum and patch and even E-cigs. Only real cigarettes work. I have to smoke about 5 per day. Symptoms go away after 1-2 weeks. Then I stop smoking. Sometimes the symptoms will come back after a month, sometimes 6. Hate smoking but what's the alternative?”

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kbbaby · March 22, 2016

For Ulcerative Colitis, Active: “This drug almost killed me. I started during a flare up in my 2nd trimester. My hair would fall out and kept reporting unexplained protein in my urine at every doc appointment...I lost 15 lbs during pregnancy and was determine high risk. 6 months post term, I started to get severe chills to fever, couldn't eat, had full colitis symptoms...was hospitalized with cardiac distress, severe anemia and dehydration and stage 4 kidney failure caused by Lialda...mayo clinic detected that the protein in my urine was in fact a side effect from the lialda. I was immediately taken off and my creatin and iron levels began to stabilize and my hair stopped falling out.”

1 / 10
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KeenKitty · Taken for 1 to 6 months · March 20, 2015

For Ulcerative Colitis, Active: “I have fairly severe Ulcerative Colitis & after 4 months of feeling horrible, tired, bloody diarrhea with the constant urge to go & fear of eating & setting it off again I was finally diagnosed & put on Lialda - 4 pills once a day. At first it caused horrible gas & bloating & took about a week or so to help the symptoms at all but after a few weeks the symptoms were completely gone & the side effects went away as my body got used to the medication. Then about 1 month into taking it I developed horrible cystic acne all over my face, neck, chest, even in my nostrils & ears! My Dr cut the dose in half to 2 pills once a day & within a few days my skin started to clear & heal. I have been on the lower dose for about a month with NO PROBLEMS!!”

9 / 10
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Anonymous · December 16, 2016

For Ulcerative Colitis: “My husband died from taking Lialda. He had been taking it for 3 months and it totally depleted his white blood cells. When he was admitted to the hospital, he was taken to ICU ISOLATION on a Fri. and died Wed. Autopsy confirmed he died from the Lialda!”

4 / 10
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no more systoms in Iowa · Taken for 1 to 2 years · November 19, 2015

For Ulcerative Colitis, Active: “Glad to say , I am no longer taking this product that really never worked anyway. Have no symptoms for 5 years, everyone said I would be taking prescription medication for life. I just change my eating and drinking habits and you to can win the battle. Good Luck.”

1 / 10
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Natural_first · Taken for less than 1 month · January 17, 2017

For Ulcerative Colitis, Active: “I was prescribed this med for mild UC. I discussed concerns with my doctor on starting a medication while nursing and without trying natural approach to curing the symptoms first. He share some patience had success using turmeric supplement to address inflammation of the sigmoid colon (lower intestine and bowel). After 2 weeks on the Turmeric my symptoms of urgency, cramping and excessive frequency to 'go' subsided. After 3 weeks, I've been having normal bowel movements and no cramping. I am happy with the progress I've made on this natural remedy.”

1 / 10
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LuckyGirl · Taken for 2 to 5 years · December 26, 2020

For Ulcerative Colitis: “I started taking Lialda in April 2015, 4 tablets a day for my ulcerative colitis. After being sick for many months and in and out of the emergency room I was ready for something that would help me get my life back. I was having diarrhea with blood multiple times a day along with abdominal pain and cramps and down to 106 pounds. Lialda started working almost instantly for me. Within a week I was no longer having any loose stools, blood, and my pain level was down 80%. I had some side effects such as headaches, chills, fatigue, and dizziness; a small price to pay for how much Lialda helped me and saved my life. I was able to slowly decrease my dose to 2 tablets a day, then 1, and now none. I gained weight and started to feel more like myself again. For me personally it was a great experience that was worth any side effects that eventually went away after my body was used to the medication. I would definitely recommend Lialda, maybe it can help you like it helped me.”

9 / 10
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ddive · February 6, 2011

For Ulcerative Colitis, Active: “I had been in remission for 20 years and then had a flair up like never before. I refuse to take any steroid based medicines due to the side effects and advised my Doctor of that. He started me on 4 pills of Lialda a day and within 1 week all of my symptoms where gone. I am now taking 2 pills a day and remain symptom free with absolutely no side effects. ”

10 / 10
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sick of ulcerative colitis · Taken for 1 to 2 years · September 8, 2017

For Ulcerative Colitis, Active: “I was on asacol for 10 years with no flare ups and leading a normal life. Then 2 years ago my insurance (BCBS) stopped covering it. My Doctor changed me to Lialda and I have had a nothing short of continuous colitis hell flare up for 2 years straight. 20 diarrheas a day. Stomach cramps, weight loss, explosive uncontrolled bm. My Doctor refused to write a letter of medical necessity to my insurance company so I could get back on asacol. So I was on continuous steroids which caused diabetes. Finally to the point of starting humira which caused e coli, c diff, nor ovirus. Recent hospitalization which I was able to get back on asacol while in the hospital. Now discharged and unable to get asacol approved for use outside of hospitalization. ”

1 / 10
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In God We Trust · July 12, 2013

For Ulcerative Colitis, Active: “I have Ulcerative Colitis and have been on Lialda for a few years, 4 pills per day. I am in remission. My biggest problem is Urgency and if I can conquer this problem I would be so much better. I have no pain. I eat most foods but stay away from gassy foods such as beans. I found that when I eat popcorn, I have problems. ”

7 / 10
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Anonymous in PA · June 25, 2015

For Ulcerative Colitis, Active: “I was diagnosed with left-sided UC in May of 2015. My GI prescribed 4.8 grams (4 pills in the am) of Lialda, plus 1 Canasa suppository (1 gram) at night. The suppository was for 3 weeks only. Within 2 weeks, the bleeding stopped, and I no longer saw the remnants of the colon tissue erosions when I had a bowl movement. I stopped taking the Canasa after a week and a half, because I think it was leading me towards diarrhea, and I felt slight rectal pain. There was no noticeable negative effect to me stopping the Canasa dose at that point. I continued to take the regular dosage of Lialda. I had some dizziness the first week or two, but that had since abated. I also noticed acne that I haven't had in many years. No issues with hair thinning.”

8 / 10
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Anonymous · September 17, 2011

For Ulcerative Colitis, Active: “What a remarkable medicine. I had battled with ulcerative colitis for quite a few years before I decided to FINALLY go to a G.I doctor. I am so glad I did because after my diagnoses I began Lialda and it has been heaven sent. I can now live a normal life, not "fearful" of foods and how they may affect me later. I had quite a few other symptoms (cramping, moderate bleeding, etc) and sure enough they have all been relieved. I take 2 tablets twice a day and have had no side effects :) Or at least not any that I have noticed. I am relieved to know that my future looks brighter, because being in my younger 20's and dealing with this health issue wasn't exactly the most pleasant thing.”

10 / 10
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Peaches · Taken for 5 to 10 years · June 3, 2020

For Ulcerative Colitis: “I’ve been taking Lialda for 6 years. I started on a very high dose but have reduced it over the years. I do believe it gives me gas, stomach aches, and I often have soft stools and mild cramping. I spoke to my doctor about it and he agrees it is probably the Lialda, but I didn’t want to switch in fear a new drug would not be as effective. I can deal with the side effects I have but I definitely don’t want another flare up. With that said, it works for me but with annoying side effects. Also, the price is ridiculous!!!! For a while I could use coupons but they aren’t available since a generic was introduced. Thank goodness I have insurance, but it’s still high.”

7 / 10
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Doing Better From TN · Taken for 1 to 2 years · April 5, 2017

For Crohn's Disease: “Ok not enough room on this review to put up my full history. So will be brief. :) So far, tried Asacol and Humira and both did nothing for me. Now I am on Lialda twice a day, 1.2GM tablets. And these are working great. No cramps and limiting me now to about 2 - 3 bowel movements a day. And no bloody stools unlike my past. (10 years diagnosis). I have also changed my diet to a Mediterranean diet with little to no red meat. Mainly chicken and fish for my sources of protein. No deep fried foods. And has worked out great. Also for veggies/greens etc, skip out on any gas producing vegs (broccoli and onions for example). And taking vitamins/iron supplements daily to keep those well maintained.”

10 / 10
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MAG · Taken for 1 to 6 months · July 7, 2019

For Ulcerative Colitis: “I have been taking Lialdia for 8 weeks. I fought getting started on a prescription as I prefer holistic approaches to healing, but there was way too much stress in my life to be able to focus on that. So I finally attempted a medication and am glad I did. It took about 4 weeks of using it daily. I take 4 tablets in am with food. After 3 to 4 weeks the bathroom frequency went from 6 to 8 visits per day to just in the morning. Since then I have gained 5 pounds so am thrilled about that as well. At first the only side effect was sinus related but that went away after a couple of weeks. The only thing I have since noticed is my hair more easily breaks when washing my hair but thinning hair for now sure beats 6 to 8 bathroom visits. It is still a journey to healing but trying to focus on reducing stress has helped a lot as well. I use a calm app and love it.”

10 / 10
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Jay1983 · March 11, 2016

For Ulcerative Colitis, Active: “I have been on this medication for the last three weeks and have not noticed any improvement. My symptoms the last 6 days have been at its worse (going to bathroom almost every 2) hours. My doctor told me to keep taking the medication and is putting me on UCERIS. Just took that pill yesterday. Hopefully that pill works cause this disease sucks right, I am so afraid to go out anywhere because I am waiting on when I will have to go to the Bathroom... I'll keep an update of UCERIS is effective”

2 / 10
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Beaner64 · April 24, 2014

For Ulcerative Colitis, Active: “I was diagnosed with ulcerative colitis 8 years and due to financial situation stopped taking any meds for the past 5 years, but recently went back to my GI and after being reprimanded for my actions was put back on Lialda. It has been about 2 and half months and most of my symptoms have improved though still having soreness/dull ache in my abdomen and urgency for the bathroom more than my GI thinks I should. Colonscopy is scheduled in a few weeks to see what the condition of the colon is in and may have to add another medication. I would advise even if you are feeling fine do not stop taking your meds unless directed by your doctor. I have been told I will need to take meds for the rest of my life.”

9 / 10
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Sugar · Taken for 10 years or more · September 30, 2018

For Ulcerative Colitis: “Lialda put me in remission for over 12 years. I never experienced any side effects, until a few months ago when Lialda almost killed me. It gave me pancreatitis. My lipase was at 10,000, the normal is 0 to 90. I am extremely lucky.”

1 / 10
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gtr · October 27, 2011

For Ulcerative Colitis, Active: “My doctor switched me from Asacol (which was working very well) to Lialda and the results were horrible. When I started having bad flare ups my gastroenterologist had no clue what do do. She put me on Remicade over 16 months with no results and I was miserable. When I suggested that perhaps it was the Lialda that was causing the problems she stated that that was "not likely". Well, after about two years of misery and being back on steroids, I switched doctors - a guy who came highly recommended. After a heart to heart consultation with him, he stated he had some patients who did not do well with Lialda and decided to take me off that medication immediately. Within three weeks I was off steroids, back to using Asacol and life is now okay.”

1 / 10
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This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.