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User Reviews for Lialda

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Lialda.

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Condition Avg. Ratings Reviews Compare
Ulcerative Colitis, Maintenance
10
   
3 reviews 15 medications
Ulcerative Proctitis
10
   
2 reviews 16 medications
Ulcerative Colitis
8.0
   
16 reviews 97 medications
Crohn's Disease
7.4
   
5 reviews 70 medications
Ulcerative Colitis, Active
7.1
   
56 reviews 36 medications
Summary of Lialda reviews 8.5 82 reviews

Reviews for Lialda

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For Ulcerative Colitis, Active "I was diagnosed with moderate to severe ulcerative colitis in 2008. I’ve been on all kinds of medication including asacol, 6mp, remicade, humira, prednisone, amitriptyline, Lialada and others. I also had surgery to remove my gallbladder due to stones - which I regret now since I don’t think made any difference with the BMs and bleeding. I finally had good results with Lialda. I used to take 4 pills a day but managed to ween down to 2. I also realized that part of the healing process came from Spiritual healing and mental attitude. The stress from a job played a major role in my flare ups. Prayer helped me spiritually which in turn helped me with my mind, which then helped with my gut alongside Lialda and a less stressful job."

   
10

QuisUtDeus (taken for 5 to 10 years) November 4, 2017

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For Crohn's Disease "Diagnosed with Crohn’s after routine Colonscopy 5/2017 and was started on Lialda. No symptoms of Crohn’s other than the discovery of ulcers during Colonscopy. Now having hair loss at temples and fear it will continue and/or get worse. Plus it’s not covered by my insurance and costs over $230.00 a month. My GI says if I don’t take it I risk getting colon cancer. I was basically told it’s better to be broke and bald than have colon cancer. I think there has to be another answer?"

Urseka November 4, 2017

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For Ulcerative Colitis, Active "The medicine seems to work well but still bleeding so doc put me on canasa and prednisone seems to work better"

   
8.0

Branum408 (taken for less than 1 month) September 17, 2017

1 users found this comment helpful.
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For Ulcerative Colitis, Active "I was on asacol for 10 years with no flare ups and leading a normal life. Then 2 years ago my insurance (BCBS) stopped covering it. My Doctor changed me to Lialda and I have had a nothing short of continuous colitis hell flare up for 2 years straight. 20 diarrheas a day. Stomach cramps, weight loss, explosive uncontrolled bm. My Doctor refused to write a letter of medical necessity to my insurance company so I could get back on asacol. So I was on continuous steroids which caused diabetes. Finally to the point of starting humira which caused e coli, c diff, nor ovirus. Recent hospitalization which I was able to get back on asacol while in the hospital. Now discharged and unable to get asacol approved for use outside of hospitalization. "

   
1.0

sick of ulcerative colitis (taken for 1 to 2 years) September 8, 2017

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For Ulcerative Colitis, Active "Developed UC after I stopped smoking about 10 years ago. Have tried everything including Lialda and Canasa. The only thing that works for me is smoking cigarettes. I've also tried nicotine gum and patch and even E-cigs. Only real cigarettes work. I have to smoke about 5 per day. Symptoms go away after 1-2 weeks. Then I stop smoking. Sometimes the symptoms will come back after a month, sometimes 6. Hate smoking but what's the alternative?"

hotboxdp (taken for 1 to 6 months) September 1, 2017

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For Ulcerative Colitis, Active "I've been taking this medicine for years now and have had very little flare ups. I feel great on this medicine"

   
10

Dude408 (taken for 6 months to 1 year) September 1, 2017

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For Ulcerative Colitis, Active "I was diagnosed with moderate to severe universal colitis on 3/27. I was prescribed lialda and take 4 pills a day as well as 1 uceris. I am not exaggerating when I say the relief was almost instant! Within 3 days I went from urgently using the bathroom 5 - 6 times a day with unbearable abdominal cramps to using the bathroom once a day with no cramps! Only side effects I have noticed so far is slight headaches, occasional trouble sleeping and more frequent urination which I will take over my colitis symptoms any day :) Lialda seriously has changed my life in the short 2 weeks I've been taking it ——————————————————— 19 years old Moderate to severe universal colitis Flare started: May 2016 Diagnosed: March 2017 Remission: April 2017"

   
10

Anonymous_9332 April 7, 2017

12 users found this comment helpful.
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For Crohn's Disease "Ok not enough room on this review to put up my full history. So will be brief. :) So far, tried Asacol and Humira and both did nothing for me. Now I am on Lialda twice a day, 1.2GM tablets. And these are working great. No cramps and limiting me now to about 2 - 3 bowel movements a day. And no bloody stools unlike my past. (10 years diagnosis). I have also changed my diet to a Mediterranean diet with little to no red meat. Mainly chicken and fish for my sources of protein. No deep fried foods. And has worked out great. Also for veggies/greens etc, skip out on any gas producing vegs (broccoli and onions for example). And taking vitamins/iron supplements daily to keep those well maintained."

   
10

Doing Better From TN (taken for 1 to 2 years) April 5, 2017

10 users found this comment helpful.
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For Ulcerative Colitis, Active "I'very been on Lialda since diagnoses nearly 10 years ago. I started with 2xday and progressed to 4x day about 4 years ago. A month ago I had a bad flare and am not on 6x day for a couple days + casana (sp?) Which is essentially the same drug only in suppository. It's already working to clear up my flare, but I'm experiencing acne and jumbled thoughts. Can't wait to drop the suppository once this is under control, hopefully I'm 1-2 wks. I don't know how "Iowa" cured themselves with diet -- I tried that and Lialda seriously changed my life."

   
10

AGinchicago (taken for 5 to 10 years) March 26, 2017

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For Ulcerative Colitis, Active "I was prescribed this med for mild UC. I discussed concerns with my doctor on starting a medication while nursing and without trying natural approach to curing the symptoms first. He share some patience had success using turmeric supplement to address inflammation of the sigmoid colon (lower intestine and bowel). After 2 weeks on the Turmeric my symptoms of urgency, cramping and excessive frequency to 'go' subsided. After 3 weeks, I've been having normal bowel movements and no cramping. I am happy with the progress I've made on this natural remedy."

   
1.0

Natural_first (taken for less than 1 month) January 17, 2017

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For Ulcerative Colitis "After years of being told I had IBS-D and it was all in my head, I was finally diagnosed as having UC. I was so sick at that point I was considering going on disability. After two weeks of Lialda, I started to improve and soon could live somewhat of a normal life, although with a very restricted diet. A routine blood test 11 months later showed that my kidneys had been damaged by this anti-inflammatory. I got off Lialda immediately but four months later my creatinine level is still too high. I never had any kidney trouble before taking Lialda."

   
7.0

Lorelei56 (taken for 6 months to 1 year) January 6, 2017

6 users found this comment helpful.
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For Ulcerative Colitis "My husband died from taking Lialda. He had been taking it for 3 months and it totally depleted his white blood cells. When he was admitted to the hospital, he was taken to ICU ISOLATION on a Fri. and died Wed. Autopsy confirmed he died from the Lialda!"

   
4.0

Anonymous December 16, 2016

7 users found this comment helpful.
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For Ulcerative Colitis, Active "This medicine has little to no effect on my Ulcerative Colitis. I was diagnosed with in in early Aug of this year, I was prescribed Lialda because my case wasn't "too severe." I have seen no improvement from this medicine, and I would say my symptoms/flare ups have become worse and more frequent. Apparently this medicine works for some people, not me. I haven't noticed any of the side effects from Lialda, but it definitely isn't doing what it is supposed to."

   
1.0

Anonymous (taken for 1 to 6 months) October 27, 2016

15 users found this comment helpful.
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For Ulcerative Colitis "It says not to crush or chew. Then they should make them smaller! They are way too large! Having trouble getting them to go down."

   
10

Fleischhauer October 20, 2016

3 users found this comment helpful.
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For Ulcerative Colitis "Works fairly well on the ulcers, but the side effects are terrible. two days in my knee swelled to twice the normal size and I can't stand on it. Fever and headache constant. ache all over. eyes hurt. Going back to Colazol."

   
8.0

vndrcheck September 1, 2016

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For Crohn's Disease "Does great relieving pain from blocked bowels."

   
9.0

Sam26123 April 16, 2016

1 users found this comment helpful.
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For Ulcerative Colitis, Active "I have been on lialda for almost a month and take 1200 mg twice a day. Has helped but my hair is falling out and I hope it stops soon. I also can't sleep. I am awake until 3AM and then will doze for about 45 minutes. I like the medication but not sleeping is a real pain."

   
8.0

Oflair March 25, 2016

9 users found this comment helpful.
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For Ulcerative Colitis, Active "This drug almost killed me. I started during a flare up in my 2nd trimester. My hair would fall out and kept reporting unexplained protein in my urine at every doc appointment...I lost 15 lbs during pregnancy and was determine high risk. 6 months post term, I started to get severe chills to fever, couldn't eat, had full colitis symptoms...was hospitalized with cardiac distress, severe anemia and dehydration and stage 4 kidney failure caused by Lialda...mayo clinic detected that the protein in my urine was in fact a side effect from the lialda. I was immediately taken off and my creatin and iron levels began to stabilize and my hair stopped falling out."

   
1.0

kbbaby March 22, 2016

24 users found this comment helpful.
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For Ulcerative Colitis "took Lialda and was fine for 3 months. No bleeding and had normal stool. Then suddenly I had skin rash and acne."

   
8.0

grizzy p (taken for 1 to 6 months) March 12, 2016

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For Ulcerative Colitis, Active "I have been on this medication for the last three weeks and have not noticed any improvement. My symptoms the last 6 days have been at its worse (going to bathroom almost every 2) hours. My doctor told me to keep taking the medication and is putting me on UCERIS. Just took that pill yesterday. Hopefully that pill works cause this disease sucks right, I am so afraid to go out anywhere because I am waiting on when I will have to go to the Bathroom... I'll keep an update of UCERIS is effective"

   
2.0

Jay1983 March 11, 2016

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For Ulcerative Colitis, Active "I had tons of hair loss and the medication never did anything for me. My doctor finally agreed to take me off it after 9 months."

   
1.0

Marcimc1 February 1, 2016

9 users found this comment helpful.
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For Ulcerative Colitis "After taking Lialda for 2 years my hair is very thin. It has not controlled me from going to the bathroom alot. I started noticing besides my hair getting thin, having severe headaches. had to have a blood transfusion and my urine started getting darker and darker. The the straw that broke the camel's back was my tongue and lips swelled and I had hives all over they were so severe that I didn't get any sleep they caused me to have blisters. After 3 trips to the ER they finally found something to help the hives. I haven't eaten a full meal in over a year do to the fact that my mouth and lips were so swore and painful to eat. When all the side affects started piling up I just quit taking it and call my gasteronolist and will see him in 2 weeks"

   
6.0

Very unhappy camper (taken for 1 to 2 years) January 19, 2016

6 users found this comment helpful.
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For Ulcerative Colitis, Active "I feel great. Colonoscopy not so great. Been on lialda for 3 yrs. Wonder what eating/drinking habits the person from Iowa has.."

   
10

Feel great, coloniscopy not December 15, 2015

9 users found this comment helpful.
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For Ulcerative Colitis, Active "Glad to say , I am no longer taking this product that really never worked anyway. Have no symptoms for 5 years, everyone said I would be taking prescription medication for life. I just change my eating and drinking habits and you to can win the battle. Good Luck."

   
1.0

no more systoms in Iowa (taken for 1 to 2 years) November 19, 2015

24 users found this comment helpful.
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For Ulcerative Colitis, Active "I take Lialda 3.6g each morning which cleared up my diarrhea and bloody stool but I have had neurological side effects of headaches, fatigue, and slow-thinking, and abdominal pain, gas, and bloating as well. I'm too scared to switch to other meds despite an asacol prescription given the risk of flare ups when meds change, but I don't want the mental haziness for the rest of my life."

   
6.0

BostonBowelBoy (taken for 6 months to 1 year) August 9, 2015

23 users found this comment helpful.
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