Lialda User Reviews & Ratings (Page 2)

• Anonymous
• June 1, 2014

For Ulcerative Colitis, Active "Lialda is not for everyone. Talk to your doctor about other options because they're out there! I was prescribed to take Lialda 3 times daily. A couple of hours after my third dose, I developed the following reaction: fever, nausea, vomiting, chills, rash/hives on my throat and neck. My doctor wanted me to continue taking Lialda but lessen the dose. I did as told and was bedridden from the side effects. I then found a GI doctor and was prescribed Asacol and medicated enemas. No reactions yet! I wonder why Lialda made me sick, but I am fine with Asacol?"

• Tum...
• Taken for 1 to 6 months
• June 25, 2014

For Ulcerative Colitis, Active "I was told to switch to Lialda after being on Asacol HD for 3 years, 2 pills 3x a day, 800mg each, due to my insurance not covering it anymore. My doctor told me the only difference was the coating, so I felt confident making the switch. By the end of week one of Lialda, 1200mg, 2 pills 2x a day, I was starting to get pain and go more frequently until it turned into diarrhea. I had no flare-ups for a year and had been feeling great on the Asacol, so I immediately switched back to it after a month on Lialda. It was too late, the wheels had already started turning on the road to a flare-up. I am now on day 8 of being back on Asacol, waiting for my prednisone to get me better. I am so disappointed this happened."

• Hap...
• Taken for 2 to 5 years
• March 15, 2018

For Ulcerative Colitis "Initially, when I started taking Lialda, it worked. However, I ignored the side effects because the medication was working well. I pushed aside all the warning signs in my body until my symptoms became severe. I had loss of hair, muscle weakness, fatigue, anxiety, and the final straw was the rash that overcame my body. The doctor did not believe it was due to the Lialda because I was on it for 4 years, however, I know my body better than the doctor and chose to stop taking it. After 2 weeks, I felt like a new person. I am now on Balsalazide Disodium, and for now, it seems to be working fine. Listen to your body despite what the doctor says. Ignoring the warning signs my body was experiencing was ignorance on my part and will never happen again."

• gtr...
• October 27, 2011

For Ulcerative Colitis, Active "My doctor switched me from Asacol (which was working very well) to Lialda, and the results were horrible. When I started having bad flare-ups, my gastroenterologist had no clue what to do. She put me on Remicade for over 16 months with no results, and I was miserable. When I suggested that perhaps it was the Lialda that was causing the problems, she stated that that was 'not likely.' Well, after about two years of misery and being back on steroids, I switched doctors - a guy who came highly recommended. After a heart-to-heart consultation with him, he stated he had some patients who did not do well with Lialda and decided to take me off that medication immediately. Within three weeks, I was off steroids, back to using Asacol, and life is now okay."

• imf...
• December 3, 2014

For Ulcerative Colitis, Maintenance "Have had colitis for 20 years and been on mesalamine for all of it. Asacol was inconvenient because 6 pills throughout the day were hard to do. Lialda is very expensive even with insurance and their card, but it works, and it's only two pills a day. The dietary changes and medication are worth it if I can eliminate surgery."

• 7ye...
• October 22, 2013

For Crohn's Disease "Diagnosed in 2006 with severe Crohn's disease. Tried a dozen medications and never had any success or even close to finding remission. Consistent pain, diarrhea, nausea, etc.... started Lialda 1.2 GM once daily 4 days ago. My pain, nausea, and everything stopped within a few hours of the first dose except diarrhea, it's actually gotten worse and completely watery. Is this normal, and if so, how long does it typically last? I am SO happy to be 100% pain-free for the first time in 7 years without having to use a painkiller, just want the diarrhea to stop so I can be more active outside of the home with my children."

• Bea...
• April 24, 2014

For Ulcerative Colitis, Active "I was diagnosed with ulcerative colitis 8 years ago and, due to my financial situation, stopped taking any meds for the past 5 years. But recently, I went back to my GI, and after being reprimanded for my actions, I was put back on Lialda. It has been about 2 and a half months, and most of my symptoms have improved, though I am still having soreness/dull ache in my abdomen and urgency for the bathroom more than my GI thinks I should. A colonoscopy is scheduled in a few weeks to see what the condition of the colon is in, and I may have to add another medication. I would advise, even if you are feeling fine, do not stop taking your meds unless directed by your doctor. I have been told I will need to take meds for the rest of my life."

• GAG...
• December 1, 2012

For Ulcerative Colitis, Active "I have been taking Lialda for 9 months now for my microscopic colitis, and it is working! I take 3 pills a day with zero side effects. I only have flare-ups if I eat something on my no-no list. My doctor told me I could come off the medication if I want to, as it is the type that will cause remission, but I am too afraid to go back to the pain of my colitis, so I decided to remain taking it. The only problem with this medication is that it is very expensive."

• Pea...
• Taken for 5 to 10 years
• June 3, 2020

For Ulcerative Colitis "I’ve been taking Lialda for 6 years. I started on a very high dose but have reduced it over the years. I do believe it gives me gas, stomach aches, and I often have soft stools and mild cramping. I spoke to my doctor about it, and he agrees it is probably the Lialda, but I didn’t want to switch in fear a new drug would not be as effective. I can deal with the side effects I have, but I definitely don’t want another flare-up. With that said, it works for me, but with annoying side effects. Also, the price is ridiculous! For a while, I could use coupons, but they aren’t available since a generic was introduced. Thank goodness I have insurance, but it’s still high."

• UP2...
• Taken for 2 to 5 years
• August 14, 2014

For Ulcerative Colitis, Maintenance "I have been diagnosed with Ulcerative Colitis (Proctitis) for the last 4 years. Lialda has worked best for me with no side effects. I am taking 2 tablets twice daily. For people with Ulcerative Colitis in the distal part of the colon, Lialda will work best. I tried to switch to Apriso 2 years ago only because of the cost of Lialda and had a worse flare-up, which took 6 months to get back to normal with oral steroids and steroid enemas. I am using the Lialda Pharmacy Savings card, which reduces my copay to $10/month."

• Ano...
• April 7, 2017

For Ulcerative Colitis, Active "I was diagnosed with moderate to severe universal colitis on 3/27. I was prescribed Lialda and take 4 pills a day as well as 1 Uceris. I am not exaggerating when I say the relief was almost instant! Within 3 days, I went from urgently using the bathroom 5 - 6 times a day with unbearable abdominal cramps to using the bathroom once a day with no cramps! The only side effects I have noticed so far are slight headaches, occasional trouble sleeping, and more frequent urination, which I will take over my colitis symptoms any day :) Lialda seriously has changed my life in the short 2 weeks I've been taking it ——————————————————— 19 years old Moderate to severe universal colitis Flare started: May 2016 Diagnosed: March 2017 Remission: April 2017"

• Bab...
• June 8, 2014

For Ulcerative Colitis, Active "I am on day 3 of Lialda. The first day I took all 4 pills with breakfast. Did the same on day 2. Day 2 I had severe diarrhea, chills, and headache. I felt like I had the flu. That night I did the Canasa suppository. Woke up several times in the night, but did not go to the bathroom. Day 3, I woke up with a severe headache and mild diarrhea. I decided that I would take 2 Lialdas with breakfast. I started feeling a little better. It is now night 3, and I just took 2 Lialdas with dinner. Headache is not as severe. I am hoping that by day 7 I feel normal again. I was diagnosed with Ulcerative Colitis in 2003. I have not had a flare since 2006 until recently."

• Anonymous
• Taken for 1 to 6 months
• October 27, 2016

For Ulcerative Colitis, Active "This medicine has little to no effect on my ulcerative colitis. I was diagnosed with it in early August of this year, I was prescribed Lialda because my case wasn't 'too severe.' I have seen no improvement from this medicine, and I would say my symptoms/flare-ups have become worse and more frequent. Apparently, this medicine works for some people, not me. I haven't noticed any of the side effects from Lialda, but it definitely isn't doing what it is supposed to."

• tpk...
• June 9, 2015

For Ulcerative Colitis, Active "My GP had me on another drug for 4 years and was feeling great. An annual colonoscopy showed nothing, so the 'Great Gastro' took me off everything, and about a month later, everything blew up. Went back to a Nurse Practitioner who apologized and put me on Lialda and Canasa. 1 week later, great again. Ins Co, after 6 months, decided not to pay for Lialda, so I was put on another couple, worked for a couple months, then blew up again. NP called Ins Co and got them to approve Lialda, Canasa again, and 2 months in, all ok except after eating, still bloating and gas. We explored my eating habits, and she (NP) took me off gluten, and gas and bloating stopped. Joints stopped aching. Try it! Can even touch my toes!!! Best NP around at OSU Gastro Clinic in Co."

• Car...
• Taken for 6 months to 1 year
• August 3, 2018

For Ulcerative Colitis "It worked for me initially, but then stopped working. I didn't really notice any side effects. Have been on 4 pills daily, but will need to be switched to something else. I was getting my medication shipped free to my house through the manufacturer. If you qualify for their program, you get approved within 2 days."

• Blo...
• Taken for 2 to 5 years
• June 25, 2015

For Ulcerative Colitis, Active "I loved this medication when I was first diagnosed because I was feeling better immediately, and everything cleared up 2 weeks in. I have been on this medication for almost 2 years now, and I have gained 30 lbs, and when I am on the highest dose of medication, I get painful acne! I never had acne as a teen. I also feel bloated all the time and think Lialda makes me retain water. I forgot to take my pills once, and the UC flare came roaring back within a day or two. My hair is also thinner. Did not fall out, just thinned. Don't enjoy the symptoms, but I do appreciate that it does work!"

• Ile...
• Taken for less than 1 month
• March 31, 2018

For Ulcerative Colitis, Active "I have been on this drug for twenty days. I took myself off it because I've experienced severe joint and muscle pain. I also have rashes all over, including my head. I have lost 11 pounds, which would be nice except it is not fat, it is muscle mass. This drug needs more study! I sincerely hope no one else has to suffer as I have. I have been off it for 9 days now, and things have not improved. I hope this is not something I have to live with, but it appears it might be."

• Anonymous
• November 30, 2008

For Ulcerative Colitis, Active "After one year of fairly significant ulcerative colitis symptoms, I began taking Lialda. It began working almost immediately. Within a week, I started feeling like my old self again. The only changes I've noticed (unsure if they are side effects or new problems) are tingling in my legs (like restless leg syndrome), sinus issues, sore throat, and trouble falling asleep."

• Lor...
• Taken for 6 months to 1 year
• January 6, 2017

For Ulcerative Colitis "After years of being told I had IBS-D and it was all in my head, I was finally diagnosed as having UC. I was so sick at that point I was considering going on disability. After two weeks of Lialda, I started to improve and soon could live somewhat of a normal life, although with a very restricted diet. A routine blood test 11 months later showed that my kidneys had been damaged by this anti-inflammatory. I got off Lialda immediately, but four months later my creatinine level is still too high. I never had any kidney trouble before taking Lialda."

• Ofl...
• March 25, 2016

For Ulcerative Colitis, Active "I have been on Lialda for almost a month and take 1200 mg twice a day. Has helped, but my hair is falling out, and I hope it stops soon. I also can't sleep. I am awake until 3 AM and then will doze for about 45 minutes. I like the medication, but not sleeping is a real pain."

• MS ...
• Taken for 2 to 5 years
• March 9, 2013

For Ulcerative Colitis, Active "My daughter takes Lialda for severe Ulcerative Colitis. If the cost is a problem, talk with your doctor for a discount card through the company. When added to your insurance, it only costs about $10, with my insurance, it's $40. If no insurance, I believe it's about $40 a month, not sure, doesn't hurt to check out. The card is good for a year, and you have to call to renew it at no cost. She started taking 4 pills a day, and last summer her doctor dropped her down to 1. Since then, over a period of 5 months, it's back with a vengeance: severe bleeding and pain."

• Anonymous
• Taken for 2 to 5 years
• November 27, 2012

For Ulcerative Proctitis "Before trying Lialda, I was taking Canasa, which was extremely helpful, however, it is a suppository. That was not pleasant, especially if I was going to have to continue taking that medication for the rest of my life! My doctor mentioned Lialda, so I started taking it. It has been just as effective as Canasa for me, and I have not had a flare-up in almost 3 years!"

• Urs...
• November 4, 2017

For Crohn's Disease "Diagnosed with Crohn’s after routine colonoscopy 5/2017 and was started on Lialda. No symptoms of Crohn’s other than the discovery of ulcers during colonoscopy. Now having hair loss at temples and fear it will continue and/or get worse. Plus it’s not covered by my insurance and costs over $230.00 a month. My GI says if I don’t take it, I risk getting colon cancer. I was basically told it’s better to be broke and bald than to have colon cancer. I think there has to be another answer?"

• Pac...
• March 29, 2008

For Ulcerative Colitis, Active "I've taken Lialda for about a month for my UC using doctor samples. It has reduced my flare-ups, although it does take a while and does not work overnight, it seems to be working for me. I want to continue taking Lialda and have a prescription from my doctor but can't seem to find a pharmacy that carries it. My overall rating of Lialda is high because it was working, at least for me. I would suggest finding out if you can get Lialda in your area before consideration."

• Anonymous
• July 16, 2015

For Crohn's Disease "Within the first 20 minutes of taking this medication, I started feeling dizzy, disoriented, my mouth had gotten numb. Within 45 minutes, I went into full anaphylactic shock and was taken to the ER. So, unfortunately, this isn't for me. I just had my 3rd colonoscopy and actually now have severe Crohn's. Getting ready to start Remicade. I'm nervous, but hopefully, this will rid the pain and suffering I've been going through."