Lialda User Reviews & Ratings (Page 3)

• Anonymous
• January 11, 2010

For Ulcerative Colitis, Active "I started taking Lialda 4 months ago for ulcerative colitis after having taken Asacol for a number of years. I have been in remission for a long time, doing reasonably well, but for some reason my doctor wanted me to try Lialda. It has been so nice to only take 2 a day as opposed to 6 of the Asacol a day, and I have had more normal body functions than I have ever had. The only problem, my prescription drug insurance, Medco Health, has removed Lialda from their formulary list. I am really upset about that. I don't know why unless it's because it's so expensive. I guess I'm going to be forced to go back on Asacol....."

• Anonymous
• June 13, 2010

For Ulcerative Colitis, Active "I was diagnosed with ulcerative colitis a year ago after suffering for months. Lialda worked to stop my diarrhea practically overnight. I have not had a flare or really any symptoms since starting this medication nearly a year ago. I highly recommend it. Much better than taking Asacol four times a day. Once a day, Lialda is much better."

• Anonymous
• November 3, 2009

For Ulcerative Colitis, Active "Lialda works great. No rectal bleeding. No side effects. I started taking it for 4 months and decided to quit taking it after 4 months to see what happens. Never had problems. Haven't gone back to the doctor since."

• bmr...
• October 10, 2011

For Ulcerative Colitis, Active "I've been on Lialda for about 3 weeks, and it's not working at all for me. I feel like I have the flu every day, and the severe headache is unreal. I am still bloated and still not going to the bathroom."

• txl...
• September 4, 2010

For Ulcerative Colitis, Active "I have very mild left-sided ulcerative colitis, diagnosed in 1998. I have been taking Lialda for a little over 2 years. I was really bad about taking my previous medicines due to the high number of pills and frequency that I had to take them. I've found that Lialda works TOO well for me. I cannot take the 2 pills 1x daily. With my doctor's blessing, I take 1 pill every 3 days, and my ulcerative colitis stays under control with no side effects that others have spoken of (and this is from a migraine and seasonal allergy patient). This medicine is the BEST."

• No...
• May 31, 2013

For Ulcerative Colitis "I have been on several ulcerative colitis medicines for the past 10 years. Lialda has been amazing - I feel like a normal person. Asacol worked for me, but I could never remember to take it 3 times a day. Lialda was 4 pills (a bit big) once in the morning. Lialda has been my life changer. I heard it is outrageously expensive, but with good insurance it is very manageable."

• Tom...
• February 23, 2014

For Ulcerative Colitis "This is the only mesalamine formulation that prevents my symptoms (with an anti-TNF medication), and since it's taken only in the morning, it's much easier to manage. Zero side effects. Very, very expensive. Sign up for the prescription copay card to make it as affordable as the generics. Note that while the active ingredient is available as generic, the delayed-release action of this brand makes all the difference in my experience."

• Anonymous
• July 6, 2011

For Ulcerative Colitis, Active "I have been diagnosed with ulcerative colitis for nearly 3 years. I take 3 pills a day. Initially, I was prescribed 4 pills, but did have an increase in headaches. But, just dropping to 3 pills alleviated the headaches, and my proctitis is well managed. I have needed to do bouts of prednisone 2 times, but overall, Lialda has worked for me."

• Mor...
• Taken for 10 years or more
• November 27, 2020

For Inflammatory Bowel Disease "Went through a few frightening episodes of what I thought was a lot of blood in urine. Had a ridiculously long and frightful work-up (cultures, cystoscopy with dye under general anesthesia) to rule out infection and cancer. Nothing was ever found. Happened again 2 years later. This time, my husband recommended that we search the medical literature before going down the rabbit hole again. There’s a single report of mesalamine (active ingredient of Lialda) reacting with bleach to form a reddish-brown dye. Upshot: a fresh toilet cleaning bleach tablet had been added to the water closet the day before."

• Fin...
• Taken for 6 months to 1 year
• August 14, 2013

For Ulcerative Proctitis "I am 26 years old and have been battling with bad stomach problems for most of my life. I was diagnosed with ulcerative proctitis about four years ago. My doctor put me on Lialda, but I didn't stick with it. This past December, I had my first flare-up... it was awful. I lost 10 lbs and just felt sick all the time. I went back on Lialda (3 pills a day) in January. At first, I didn't feel any different, but then it really started working. It has been eight months and I feel like a normal person now. I still have the occasional stomach ache, but nothing abnormal! I feel great!"

• cha...
• November 14, 2010

For Ulcerative Colitis, Active "I am a male, age 30, and I was diagnosed with pan colitis 3 years ago. Once I changed my diet (no lactose, less fast food, no sodas), it has seemed to be only confined to my left side. I have had a few flare-ups each year but have always used prednisone each time. This works great for my UC but makes me a grump, I gain weight, get acne, etc. Each time (3-4 times) I have tried Asacol or Lialda, it flushes out my colon with severe diarrhea to the point it is fluid only, and each time I have stopped taking it because of the adverse reactions. Currently, I am in a flare to the point of seeing blood, and I do not want to have to start on prednisone again. So now I am on day 5 of taking Lialda, and the diarrhea has been less each day. Hopefully, I will stop seeing blood soon."

• Anonymous
• December 17, 2010

For Ulcerative Colitis, Active "Only been on it for a week, but my fairly severe ulcerative colitis symptoms have fully subsided. I am taking 1.2g 2 x day. I also started 1200mg of slippery elm and turmeric 2 days after starting the Lialda."

• Anonymous
• December 13, 2010

For Ulcerative Colitis, Active "I was only able to take Lialda for one week and had severe headaches causing tenderness in the lower bottom of my head, blurred vision, and vomiting when the headache worsened. It worked, and I was feeling almost 90% back to normal, however, the headaches worsened, and I had to discontinue."

• Anonymous
• November 8, 2008

For Ulcerative Colitis, Active "Lialda has given me a decent quality of life again. I've suffered relentlessly for 20 years and finally found a great doctor who gave me this medication. It's not an overnight fix. I've been taking it for 3 months, and it has fixed what I thought was permanently my lot in life. What a fantastic medication!"

• Ver...
• Taken for 1 to 2 years
• January 19, 2016

For Ulcerative Colitis "After taking Lialda for 2 years, my hair is very thin. It has not controlled me from going to the bathroom a lot. I started noticing, besides my hair getting thin, having severe headaches. Had to have a blood transfusion, and my urine started getting darker and darker. The straw that broke the camel's back was my tongue and lips swelled, and I had hives all over. They were so severe that I didn't get any sleep, they caused me to have blisters. After 3 trips to the ER, they finally found something to help the hives. I haven't eaten a full meal in over a year due to the fact that my mouth and lips were so sore and painful to eat. When all the side effects started piling up, I just quit taking it and called my gastroenterologist and will see him in 2 weeks."

• Sch...
• January 11, 2013

For Ulcerative Colitis "I used Lialda for approx 1 month after a relapse of my Ulcerative Colitis. My doctor gave me samples of it. It worked very well. I had been on sulfasalazine for many years and was happy to find something else to take since I didn't have to take as many pills with Lialda. That said, after the samples ran out, I was given a prescription, and when I went to fill it at the pharmacy, I was shocked to see it was going to cost me over $300 for one month's supply, and that was AFTER my insurance paid more than half of it. I normally have a $5.00 copay, so needless to say, I am back on sulfasalazine and dealing with flare-ups again. (I got a discount card from Shire so the prescription would only cost me $120 a month, but that's still too much)."

• Anonymous
• October 20, 2011

For Ulcerative Colitis, Active "I was worried to be on a medication such as Lialda on its strongest dosage (4 pills a day). My doctor told me to have all 4 in the morning with food. The combination of the Lialda and Canasa suppository at night helped my symptoms within days. I was blood-free for two weeks but now notice some blood again. I'm really frustrated and hope this is just going to take more time and not mean that I have to try something stronger."

• Anonymous
• October 14, 2010

For Ulcerative Colitis, Active "I have microscopic colitis. Lialda works great, but the only major drawback is the expense. $191 every two weeks. My insurance dropped me, and that cost is with a local pharmacy prescription discount card. At this rate, I will be unable to keep up with it."

• Llg...
• May 17, 2018

For Ulcerative Colitis, Maintenance "I have been taking Lialda for years, and it works, but here’s the thing: I also get migraines to a ridiculous degree, so I was forced to cut back my dose. So for me, at least, the very high dose, or what they call a therapeutic level, is unnecessary. I’m in a maintenance space where I honestly only need it every other day. I usually get the beginnings of a migraine about an hour after I take it, but the migraine doesn’t become full-blown on the lesser dose, but the medicine does its job. Looks like my UC became Crohn’s over time because I also have irritation in my mouth and all sorts of skin spots (look like bug bites but aren’t), and interestingly, when I have a flare of any kind, if I take two single pills for two days in a row, it almost always goes away. Thought I’d say it because the higher doses are completely intolerable for me, but I don’t really need it like that. I use the co-pay assist card, which makes a big difference."

• Bob...
• Taken for 1 to 6 months
• March 23, 2020

For Ulcerative Colitis "I have UC and have switched from Apriso to Lialda this year because of the price, been using it for 7 weeks now and have muscle fatigue and acne. It does seem to be starting to work, having fewer trips to the bathroom than when I switched. Every time I eat even a handful of chips, I have an urge to poop. Hope that goes away. Do plan on going back on Apriso next year after building up HSA funds back up."

• Anonymous
• February 27, 2009

For Ulcerative Colitis, Active "I have taken Lialda for 3 weeks and not much improvement. My doctor increased my intake to 3 pills every day and started me on prednisone. In my opinion, prednisone will do most of the work. I do not plan on taking Lialda long term because of side effects of headache, cramping, bloating, etc. This pill does not work fast enough."

• Anonymous
• Taken for 1 to 6 months
• April 19, 2013

For Ulcerative Colitis "After 8 weeks on Lialda, it did not clear up the blood, still had abdomen tenderness, and caused me to have diarrhea. I did get a discount card, which brought the cost down to $10. If you like this medicine, you should go to their website and see if you can get this card. I got it from my MD."

• Lov...
• April 16, 2015

For Ulcerative Colitis "****Helpful information**** Search the web for Lialda coupons to get Lialda for $10 a month! I am a 24-year-old who has been diagnosed with ulcerative colitis since age 11. I started on Colazal when I was first diagnosed; but it only continued to keep me in remission for a few years. I was prescribed many other medications that didn't seem to work for me either. Finally, once I was prescribed Lialda, my health and quality of life improved greatly! Lialda is such a lifesaver for me! (Although I still have occasional flare-ups, things calm down when suppositories are used in conjunction with Lialda.)"

• Cor...
• March 9, 2015

For Ulcerative Colitis "I was diagnosed with UC at 18 years old. After a week in the hospital, they came up with the final diagnosis, and after a few tried meds, they landed me on Lialda, and it worked great for me for 7-8 years, only experiencing flare-ups if I were to drink too much alcohol and lose sleep, which was rare, but in that case, I would need to use prednisone to get back into remission. Healthy diet, sleep, exercise, and Lialda kept me normal! I am 26 now, and I feel my body has built up a tolerance. For the past year, I have been on a low, going to the restroom more than five times a day. Up until now, Lialda was perfect. With the Shire card and health insurance, it was only $10 a month."

• vnd...
• September 1, 2016

For Ulcerative Colitis "Works fairly well on the ulcers, but the side effects are terrible. Two days in, my knee swelled to twice the normal size, and I can't stand on it. Fever and headache constant. Ache all over. Eyes hurt. Going back to Colazol."