Lialda for Inflammatory Bowel Disease User Reviews

• Mor...
• Taken for 10 years or more
• November 27, 2020

"Went through a few frightening episodes of what I thought was a lot of blood in urine. Had a ridiculously long and frightful work-up (cultures, cystoscopy with dye under general anesthesia) to rule out infection and cancer. Nothing was ever found. Happened again 2 years later. This time, my husband recommended that we search the medical literature before going down the rabbit hole again. There’s a single report of mesalamine (active ingredient of Lialda) reacting with bleach to form a reddish-brown dye. Upshot: a fresh toilet cleaning bleach tablet had been added to the water closet the day before."

• Fif...
• Taken for less than 1 month
• October 3, 2022

"Within 2 weeks, I started having chest pain that felt like terrible acid reflux. It was so painful and impossible to ignore, so I went to the ER at 4 a.m., where I was diagnosed with myocarditis… which apparently can happen on this drug. I was put on prednisone for a week, and all symptoms went away, but I was pulled off the medication. It clearly states myocarditis as a potential side effect, so I can’t be mad, but just know it can happen."