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User Reviews for Lialda to treat Ulcerative Colitis, Active

Lialda has an average rating of 6.9 out of 10 from a total of 54 ratings for the treatment of Ulcerative Colitis, Active. 63% of users who reviewed this medication reported a positive effect, while 24% reported a negative effect.

Lialda Rating Summary

6.9/10 average rating

54 ratings from 60 user reviews.

Compare all 36 medications used in the treatment of Ulcerative Colitis, Active.

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Reviews for Lialda

QuisUtDeus · Taken for 5 to 10 years November 4, 2017

“I was diagnosed with moderate to severe ulcerative colitis in 2008. I’ve been on all kinds of medication including asacol, 6mp, remicade, humira, prednisone, amitriptyline, Lialada and others. I also had surgery to remove my gallbladder due to stones - which I regret now since I don’t think made any difference with the BMs and bleeding. I finally had good results with Lialda. I used to take 4 pills a day but managed to ween down to 2. I also realized that part of the healing process came from Spiritual healing and mental attitude. The stress from a job played a major role in my flare ups. Prayer helped me spiritually which in turn helped me with my mind, which then helped with my gut alongside Lialda and a less stressful job.”

10 / 10
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Chad11990 September 9, 2014

“My doctor switched me from Acacol HD to Lialda after I lost my insurance and needed a less expensive substitute. I was worried because I had grown accustomed to Asacol and did very well on that medicine. After a few days of adjusting to Lialda, with no real problems or side effects (just a little gas during the first 48 hours), I feel fantastic on Lialda. I've been on Lialda for about 5 months now, and feel as good, if not better than I did on Asacol. I have fewer headaches that I did on Asacol and feel great less stomach cramps. Best of all, for me or anyone who is on the go during the day, I now take one Lialda tablet, twice daily (once in the morning, once at night). This is compared to two Asacol tablets THREE times daily.”

8 / 10
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mymyasky1 · Taken for 1 to 6 months September 12, 2014

“Starting taking Lialda about a month and a half ago and it took a couple of weeks to start working. As soon as it started working I felt great no more stomach pain, no more blood, no more diarrhea oh finally something that help take the pain away I was shocked at how good it worked. But then I should have known it was to good to be true about four weeks into it. My beautiful hair started falling out in clumps every time I washed it or even brushed it. I mean it was a lot every time I would cry. Also the muscle aches were the worst. I would sit for maybe 10 minutes and go to get up and almost fall over because my legs almost gave out. Other then that it works great for the pain but I can't take the side effects so I'm going to be switching medicines.”

7 / 10
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JenniferL444 · Taken for 1 to 6 months October 14, 2013

“I take two Lialda pills every morning..(1.2gm), Lialda helped my stomach pains and bleeding tremendously! I recommend to everyone! It took a good 2 months to really show a big difference but I am so happy I finally found something that helps. It has taken me years to finally find something. Also, Contact your doctor or Lialda because it%u2019s really expensive but you can get their coupon card and only pay $10 a month.”

10 / 10
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PC · Taken for less than 1 month January 16, 2020

“In 2009 I developed pneumonitis, pericarditis, pancreatitis, and ARDS after 3 weeks on Lialda. My GI doc told me and the other docs on my case that I probably had swine flu, and refused to consider Lialda as a possible culprit. The early-onset signs that you're reacting to this drug are that your colitis doesn't improve or gets worse. Having 0 experience (this was a first-line treatment upon my UC diagnosis), I trusted things would improve eventually, as the doctor told me to give it a month. But before that month was up, I was in ICU on full ventilation for 2 weeks & had a cup of bloody fluid drained off of my heart. A pulmonologist noted that my lungs looked like I’d "inhaled pure lye" (which I hadn't). Another doctor on my case eventually intervened and gave me a megadose of steroids, which was the only thing that reversed my condition and imminent death. It was a very long, physically painful, and emotionally devastating recovery, something I never should have had to experience.”

1 / 10
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hotboxdp · Taken for 1 to 6 months September 1, 2017

“Developed UC after I stopped smoking about 10 years ago. Have tried everything including Lialda and Canasa. The only thing that works for me is smoking cigarettes. I've also tried nicotine gum and patch and even E-cigs. Only real cigarettes work. I have to smoke about 5 per day. Symptoms go away after 1-2 weeks. Then I stop smoking. Sometimes the symptoms will come back after a month, sometimes 6. Hate smoking but what's the alternative?”

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KeenKitty · Taken for 1 to 6 months March 20, 2015

“I have fairly severe Ulcerative Colitis & after 4 months of feeling horrible, tired, bloody diarrhea with the constant urge to go & fear of eating & setting it off again I was finally diagnosed & put on Lialda - 4 pills once a day. At first it caused horrible gas & bloating & took about a week or so to help the symptoms at all but after a few weeks the symptoms were completely gone & the side effects went away as my body got used to the medication. Then about 1 month into taking it I developed horrible cystic acne all over my face, neck, chest, even in my nostrils & ears! My Dr cut the dose in half to 2 pills once a day & within a few days my skin started to clear & heal. I have been on the lower dose for about a month with NO PROBLEMS!!”

9 / 10
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kbbaby March 22, 2016

“This drug almost killed me. I started during a flare up in my 2nd trimester. My hair would fall out and kept reporting unexplained protein in my urine at every doc appointment...I lost 15 lbs during pregnancy and was determine high risk. 6 months post term, I started to get severe chills to fever, couldn't eat, had full colitis symptoms...was hospitalized with cardiac distress, severe anemia and dehydration and stage 4 kidney failure caused by Lialda...mayo clinic detected that the protein in my urine was in fact a side effect from the lialda. I was immediately taken off and my creatin and iron levels began to stabilize and my hair stopped falling out.”

1 / 10
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Natural_first · Taken for less than 1 month January 17, 2017

“I was prescribed this med for mild UC. I discussed concerns with my doctor on starting a medication while nursing and without trying natural approach to curing the symptoms first. He share some patience had success using turmeric supplement to address inflammation of the sigmoid colon (lower intestine and bowel). After 2 weeks on the Turmeric my symptoms of urgency, cramping and excessive frequency to 'go' subsided. After 3 weeks, I've been having normal bowel movements and no cramping. I am happy with the progress I've made on this natural remedy.”

1 / 10
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sick of ulcerative colitis · Taken for 1 to 2 years September 8, 2017

“I was on asacol for 10 years with no flare ups and leading a normal life. Then 2 years ago my insurance (BCBS) stopped covering it. My Doctor changed me to Lialda and I have had a nothing short of continuous colitis hell flare up for 2 years straight. 20 diarrheas a day. Stomach cramps, weight loss, explosive uncontrolled bm. My Doctor refused to write a letter of medical necessity to my insurance company so I could get back on asacol. So I was on continuous steroids which caused diabetes. Finally to the point of starting humira which caused e coli, c diff, nor ovirus. Recent hospitalization which I was able to get back on asacol while in the hospital. Now discharged and unable to get asacol approved for use outside of hospitalization. ”

1 / 10
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no more systoms in Iowa · Taken for 1 to 2 years November 19, 2015

“Glad to say , I am no longer taking this product that really never worked anyway. Have no symptoms for 5 years, everyone said I would be taking prescription medication for life. I just change my eating and drinking habits and you to can win the battle. Good Luck.”

1 / 10
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ddive February 6, 2011

“I had been in remission for 20 years and then had a flair up like never before. I refuse to take any steroid based medicines due to the side effects and advised my Doctor of that. He started me on 4 pills of Lialda a day and within 1 week all of my symptoms where gone. I am now taking 2 pills a day and remain symptom free with absolutely no side effects. ”

10 / 10
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In God We Trust July 12, 2013

“I have Ulcerative Colitis and have been on Lialda for a few years, 4 pills per day. I am in remission. My biggest problem is Urgency and if I can conquer this problem I would be so much better. I have no pain. I eat most foods but stay away from gassy foods such as beans. I found that when I eat popcorn, I have problems. ”

7 / 10
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Anonymous in PA June 25, 2015

“I was diagnosed with left-sided UC in May of 2015. My GI prescribed 4.8 grams (4 pills in the am) of Lialda, plus 1 Canasa suppository (1 gram) at night. The suppository was for 3 weeks only. Within 2 weeks, the bleeding stopped, and I no longer saw the remnants of the colon tissue erosions when I had a bowl movement. I stopped taking the Canasa after a week and a half, because I think it was leading me towards diarrhea, and I felt slight rectal pain. There was no noticeable negative effect to me stopping the Canasa dose at that point. I continued to take the regular dosage of Lialda. I had some dizziness the first week or two, but that had since abated. I also noticed acne that I haven't had in many years. No issues with hair thinning.”

8 / 10
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Anonymous September 17, 2011

“What a remarkable medicine. I had battled with ulcerative colitis for quite a few years before I decided to FINALLY go to a G.I doctor. I am so glad I did because after my diagnoses I began Lialda and it has been heaven sent. I can now live a normal life, not "fearful" of foods and how they may affect me later. I had quite a few other symptoms (cramping, moderate bleeding, etc) and sure enough they have all been relieved. I take 2 tablets twice a day and have had no side effects :) Or at least not any that I have noticed. I am relieved to know that my future looks brighter, because being in my younger 20's and dealing with this health issue wasn't exactly the most pleasant thing.”

10 / 10
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Jay1983 March 11, 2016

“I have been on this medication for the last three weeks and have not noticed any improvement. My symptoms the last 6 days have been at its worse (going to bathroom almost every 2) hours. My doctor told me to keep taking the medication and is putting me on UCERIS. Just took that pill yesterday. Hopefully that pill works cause this disease sucks right, I am so afraid to go out anywhere because I am waiting on when I will have to go to the Bathroom... I'll keep an update of UCERIS is effective”

2 / 10
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sir poops a lot October 18, 2011

“I've been using Lialda on and off for about 2 yrs now. Used it daily when 1st prescribed until all ulcerative colitis symptoms went away. I mainly use it during flare ups. My Colitis began severely flaring up this past week and since I started taking Lialda again, I notice reduction/elimination of blood in stool, less bowel movements and more solid movements. I believe Lialda is extremely helpful, especially if taken as maintenance medication to prevent flare ups...which is what I should start to do.”

8 / 10
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BostonBowelBoy · Taken for 6 months to 1 year August 9, 2015

“I take Lialda 3.6g each morning which cleared up my diarrhea and bloody stool but I have had neurological side effects of headaches, fatigue, and slow-thinking, and abdominal pain, gas, and bloating as well. I'm too scared to switch to other meds despite an asacol prescription given the risk of flare ups when meds change, but I don't want the mental haziness for the rest of my life.”

6 / 10
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Ilee · Taken for less than 1 month March 31, 2018

“I have been on this drug for twenty days. I took myself off it because I've experienced severe joint and muscle pain. I also have rashes all over including my head. I have lost 11 pounds, which would be nice except it is not fat, it is muscle mass. This drug need more study! I sincerely hope no one else has to suffer as I have. I have been off it for 9 days now, and things have not improved. I hope this is not sometime I have to live with, but it appears it might be.”

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Beaner64 April 24, 2014

“I was diagnosed with ulcerative colitis 8 years and due to financial situation stopped taking any meds for the past 5 years, but recently went back to my GI and after being reprimanded for my actions was put back on Lialda. It has been about 2 and half months and most of my symptoms have improved though still having soreness/dull ache in my abdomen and urgency for the bathroom more than my GI thinks I should. Colonscopy is scheduled in a few weeks to see what the condition of the colon is in and may have to add another medication. I would advise even if you are feeling fine do not stop taking your meds unless directed by your doctor. I have been told I will need to take meds for the rest of my life.”

9 / 10
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Tummyache416 · Taken for 1 to 6 months June 25, 2014

“I was told to switch to Lialda after being on Asacol HD for 3 years 2 pills 3x a day 800mg each, due to my insurance not covering it anymore. My doctor told me the only difference was the coating, so I felt confident making the switch. By the end of week one of Lialda 1200mg 2 pills 2x a day, I was starting to get pain and go more frequently until it turned into diarrhea. I had no flare ups for a year and had been feeling great on the Asacol, so I immediately switched back to it after a month on Lialda. It was too late the wheels had already started turning on the road to a flare up. I am now on day 8 of being back on Asacol, waiting for my prednisone to get me better. I am so disappointed this happened.”

1 / 10
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Anonymous · Taken for 1 to 6 months October 27, 2016

“This medicine has little to no effect on my Ulcerative Colitis. I was diagnosed with in in early Aug of this year, I was prescribed Lialda because my case wasn't "too severe." I have seen no improvement from this medicine, and I would say my symptoms/flare ups have become worse and more frequent. Apparently this medicine works for some people, not me. I haven't noticed any of the side effects from Lialda, but it definitely isn't doing what it is supposed to.”

1 / 10
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gtr October 27, 2011

“My doctor switched me from Asacol (which was working very well) to Lialda and the results were horrible. When I started having bad flare ups my gastroenterologist had no clue what do do. She put me on Remicade over 16 months with no results and I was miserable. When I suggested that perhaps it was the Lialda that was causing the problems she stated that that was "not likely". Well, after about two years of misery and being back on steroids, I switched doctors - a guy who came highly recommended. After a heart to heart consultation with him, he stated he had some patients who did not do well with Lialda and decided to take me off that medication immediately. Within three weeks I was off steroids, back to using Asacol and life is now okay.”

1 / 10
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Anonymous_9332 April 7, 2017

“I was diagnosed with moderate to severe universal colitis on 3/27. I was prescribed lialda and take 4 pills a day as well as 1 uceris. I am not exaggerating when I say the relief was almost instant! Within 3 days I went from urgently using the bathroom 5 - 6 times a day with unbearable abdominal cramps to using the bathroom once a day with no cramps! Only side effects I have noticed so far is slight headaches, occasional trouble sleeping and more frequent urination which I will take over my colitis symptoms any day :) Lialda seriously has changed my life in the short 2 weeks I've been taking it ——————————————————— 19 years old Moderate to severe universal colitis Flare started: May 2016 Diagnosed: March 2017 Remission: April 2017”

10 / 10
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Anonymous June 1, 2014

“Lialda is not for everyone. Talk to your doctor about other options because they're out there! I was prescribed to take Lialda 3xs daily. A couple hours after my third dose I developed the following reaction: fever, nausea, vomiting, chills, rash/hives on my throat and neck. My doctor wanted me to continue talking Lialda but lessen the dose. I did as told, and was bedridden from the side effects. I then found GI Dr and was prescribed Asacol and medicated enemas. No reactions yet! I wonder why Lialda made me sick but I am fine with Asacol?”

2 / 10
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This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.