Lialda for Ulcerative Colitis, Active User Reviews (Page 2)

• Ilee
• Taken for less than 1 month
• March 31, 2018

"I have been on this drug for twenty days. I took myself off it because I've experienced severe joint and muscle pain. I also have rashes all over including my head. I have lost 11 pounds, which would be nice except it is not fat, it is muscle mass. This drug need more study! I sincerely hope no one else has to suffer as I have. I have been off it for 9 days now, and things have not improved. I hope this is not sometime I have to live with, but it appears it might be."

• Babs
• June 8, 2014

"I am on day 3 of Lialda. The first day I took all 4 pills with breakfast. Did the same on day 2. Day 2 I had severe diarrhea and chills and headache. I felt like I had the flu. That night I did the Canasa suppository. Woke up several times in the night but did not go to the bathroom. Day 3 woke up with severe headache and mild diarrhea. I decided that I would take 2 Lialda's with breakfast. I started feeling a little better. It is now night 3 and I just took 2 Lialda's with dinner. Headache is not as severe. I am hoping that by day 7 I feel normal again. I was diagnosed with Ulcerative Colitis in 2003. I have not had a flare since 2006 until recently."

• tpkea...
• June 9, 2015

"My GP had me on another drug for 4 years and was feeling great. An annual colonoscopy showed nothing so the "Great Gastro" took me off everything and about a month later everything blew up. Went back to a Nurse Practitioner who apologized and put me on Lialda and Canasa.1 week later, great again. Ins Co after 6 months decided not to pay for Lialda so I was put on another couple worked for a couple months then blow up again.NP called Ins Co and got them to approve Lialda, Canasa again and 2 months in all ok except after eating still bloating and gas. We explored my eating habits ans she (NP) took me off gluten and gas and bloating stopped.Joints stopped aching. Try it! Can even touch my toes!!! Best NP around at OSU Gasto Clinic in Co"

• Bloated
• Taken for 2 to 5 years
• June 25, 2015

"I loved this medication when I was first diagnosed because I was feeling better immediately and everything cleared up 2 weeks in. I have been on this medication for almost 2 years now and I have gained 30lbs and when I am on highest dose of medication I get painful acne! I never had acne as a teen. I also feel bloated all the time and think Lialda makes me retain water. I forgot to take my pills once and the UC flare came roaring back within a day or two. My hair is also thinner :/ Did not fall out just thinned. Dont enjoy the symptoms, but I do appreciate that it does work!"

• MS wo...
• Taken for 2 to 5 years
• March 9, 2013

"My daughter takes Lialda for sever Ulcerative Colitis, if the cost is a problem talk with your doctor for a discount card through the company when added to your insurance it only cost about $10 with my insurance only its $40 if no insurance I believe its about $40 a month not sure, doesn't hurt to check out. The card is good for a year and you have to call to renew it at no cost. She started taking 4 pills a day and last summer her doctor dropped her down to 1. Since then over a period of 5 months its back with a vengeance severe bleeding and pain."

• Anonymous
• November 30, 2008

"After one year of fairly significant ulcerative colitis symptoms, I began taking Lialda. It began working almost immediately. Within a week I started feeling like my old self again. The only changes I've noticed (unsure if they are side effects or new problems??) are tingling in my legs (like restless leg syndrome), sinus issues, sore throat and trouble falling asleep. "

• Packer...
• March 29, 2008

"I've taken Lialda for about a month for my UC using doctor samples. It has reduced my flare ups, although it does take a while and does not work over night, it seems to be working for me. I want to continue taking Lialda and have a perscription from my doctor but can't seem to find a pharmacy that carries it. My overall rating of Lialda is high because it was working, atleast for me. I would suggest finding out if you can get LIalda in your area before consideration."

• Oflair
• March 25, 2016

"I have been on lialda for almost a month and take 1200 mg twice a day. Has helped but my hair is falling out and I hope it stops soon. I also can't sleep. I am awake until 3AM and then will doze for about 45 minutes. I like the medication but not sleeping is a real pain."

• txladi
• September 4, 2010

"I have very mild left-sided ulcerative colitis, diagnosed in 1998. I have been taking Lialda for a little over 2 years. I was really bad about taking my previous medicines due to the high number of pills and frequency that I had to take them. I've found the Lialda works TOO well for me. I cannot take the 2 pills 1 x daily. With my doctor blessing, I take 1 pill ever 3 days, and my ulcerative colitis stays under control with no side effects that others have spoken of (and this is from a migraine and seasonal allergy patient.) This medicine is the BEST."

• Anonymous
• June 13, 2010

"I was diagnosed with ulcerative colitis a year ago after suffering for months. Lialda worked to stop my diarrhea practically overnight. I have not had a flair or really any symptoms since starting this medication nearly a year ago. I highly recommend it. Much better than taking Asacol four times a day. Once a day Lialda is much better."

• Anonymous
• January 11, 2010

"I started taking Lialda 4 months ago for ulcerative colitis after having taken Asacol for a number of years. I have been in remittance for a long time, doing reasonably well, but for some reason my doctor wanted me to try Lialda. It has been so nice to only take 2 a day as opposed to 6 of the Asacol a day and I have had more normal body functions than I have ever had. The only problem, my prescription drug insurance, Medco Health, has removed Lialda from their formulary list. I am really upset about that. I don't know why unless it's because it's so expensive. I guess I'm going to be forced to go back on Asacol....."

• Anonymous
• November 3, 2009

"Lialda works great. No rectal bleeding. NO side effects. I started taking it for 4 months and decided to quit taking it after 4 months to see what happens. Never had problems. Haven't gone back to the doctor since."

• Anonymous
• December 17, 2010

"Only been on it for a week but my fairly severe ulcerative colitis symptoms have fully subsided. I am taking 1.2g 2 x day. I also started 1200mg of slippery elm and Turmeric 2 days after starting the Lialda. "

• Anonymous
• July 6, 2011

"I have been diagnosed with ulcerative colitis for nearly 3 years. I take 3 pills a day. Initially, I was prescribed 4 pills, but did have an increase in headaches. But, just dropping to 3 pills alleviated the headaches and my proctitis is well managed. I have needed to do bouts of predisone 2 times, but overall, Lialda has worked for me."

• Anonymous
• October 20, 2011

"I was worried to be on a medication such as lialda on its strongest dosage (4 pills a day). My doctor told me to have all 4 in the morning with food. The combination of the Lialda and Canasa suppository at night helped my symptoms within days. I was blood free for two weeks but now notice some blood again. I'm really frustrated and hope this is just going to take more time and not mean that I have to try something stronger. "

• chadTX
• November 14, 2010

"I am a male age 30 and I was diagnosed with Pan Colitis 3 years ago. Once I changed my diet (no lactose, less fast food, no sodas) it has seemed to be only confined to my left side. I have had a few flare ups each year but have always used prednisone each time. This works great for my UC but makes me a grump, I gain weight, get acne, etc. Each time (3-4 times) I have tried Asacol or Lialda it flushes out my colon with severe diarrhea to the point it is fluid only and each time I have stopped taking it because of the adverse reactions. Currently I am in a flare to the point of seeing blood and I do not want to have to start on prednisone again. So now I am on day 5 of taking Lialda and the diarrhea has been less each day. Hopefully I will stop seeing blood soon."

• Anonymous
• December 13, 2010

"I was only able to take Lialda for one week and had severe headaches causing tenderness in the lower bottom of my head, blurred vision and vomiting when headache worsened. It worked and I was feeling almost 90% back to normal, however the headaches worsened and had to discontinue."

• Anonymous
• November 8, 2008

"Lialda has given me a decent quality of life again. I've suffered relentlessly for 20 years and finally found a great doctor, who gave me this medication. It's not an overnight fix. I've been taking it for 3 months and it has fixed what I thought was permanently my lot in life. What a fantastic medication !"

• Anonymous
• October 14, 2010

"I have microscopic colitis. Lialda works great but the only major drawback is the expense. $191 every two weeks. My insurance dropped me and that cost is with a local pharmacy prescription discount card. At this rate I will be unable to keep up with it."

• Anonymous
• February 27, 2009

"I have take Lialda for 3 weeks and not much improvement. My doctor increased my intake to 3 pills everyday and started me on prednisone. In my opinion prednisone will do most of the work. I do not plan on taking Lialda long term because of side effects of headache, cramping, bloating, etc. This pill does not work fast enough."

• AGinc...
• Taken for 5 to 10 years
• March 26, 2017

"I'very been on Lialda since diagnoses nearly 10 years ago. I started with 2xday and progressed to 4x day about 4 years ago. A month ago I had a bad flare and am not on 6x day for a couple days + casana (sp?) Which is essentially the same drug only in suppository. It's already working to clear up my flare, but I'm experiencing acne and jumbled thoughts. Can't wait to drop the suppository once this is under control, hopefully I'm 1-2 wks. I don't know how "Iowa" cured themselves with diet -- I tried that and Lialda seriously changed my life."

• 5jlw
• March 23, 2009

"I have been taking Lialda for over three months. I have lymphatic colitis. I was taking 3 pills once daily, now I am taking two. I had horrible side effects when I first started taking the medication - severe cluster headaches, nausea, and numbness in my face. The effects eventually wore off after a week. I still feel like I am not right though but my doctor has encouraged me to continue to take the drug for at least a year. I also have panic disorder which got worse than ever after I started taking Lialda. I finally got back on Effexor. I have lost weight. The colitis started getting better with the Effexor."

• Mike...
• January 2, 2018

"It has seemed to help me a lot, but it’s whopping expensive. I lucked out on samples and mfg coupons for half a year, then got ate up by expenses. I like this version much better than the asacol I had years ago, which caused discomfort, and terrible urinary stains from residue. So far with Lialda the drug seems more concentrated or timed release, with no residue in urine."

• Jake
• Taken for 1 to 6 months
• April 13, 2023

"First Diagnosed December 15, 2022 with pancolitis. Prescribed Lialda two pills two times a day and prednisone taper for a month. Within a week symptoms went away and I felt the best I had felt in years. After two months symptoms started coming back and I’ve currently been in a flareup for about six weeks with diarrhea and blood and just finished another month of prednisone with no good results. My G.I. doctor is talking about putting me on immune suppressors but I’m not so sure I’m ready to start that yet. I’m thinking about switching over to Sulfasalazine or some other type of medicine before I do immune suppressors. The only side effects side effects that I’ve experienced are mild headaches from time to time."

• Anonymous
• Taken for 2 to 5 years
• May 23, 2012

"Most of my symptoms disappeared! As long as I take as directed, I am pain free!! Still have tiredness and occasional low grade fever but no bleeding for three years now."