Lialda for Ulcerative Colitis, Maintenance User Reviews

• Mad...
• Taken for 1 to 6 months
• September 19, 2019

"I’ve tried taking Lialda 1.2g several times in a 3-month time frame. It really seems to help with my ulcerative colitis. It improved my diarrhea (7/10) and stomach pain (8/10). It pretty much does its job of keeping me in remission. But every time I take this, my mood changes, my jaws and cheek hurt, I can’t speak properly, I can’t focus, and I just don’t feel like doing anything. At first, I thought it was all in my head (pigeon superstition). And so I experimented with it about 6 times, and it happened every single time. Even as I’m writing this, my jaws hurt, I can’t focus, don’t want to talk, and I’m avoiding doing my homework, and I have a 3-hour class to go to! Maybe I’m an exception to the common side effects. I think it’s worth writing this review just in case someone else has similar side effects."

• Mam...
• December 29, 2011

"I was prescribed Asacol, Apriso, had 3 sessions of Remicade, all with disappointing results. I have been using Lialda for about 21 months. I was in total remission until about 2 weeks ago, so I did really good for nearly a year. Then one hugely stressful incident caused a flare-up. I am working with my doctor to get back on track."

• imf...
• December 3, 2014

"Have had colitis for 20 years and been on mesalamine for all of it. Asacol was inconvenient because 6 pills throughout the day were hard to do. Lialda is very expensive even with insurance and their card, but it works, and it's only two pills a day. The dietary changes and medication are worth it if I can eliminate surgery."

• UP2...
• Taken for 2 to 5 years
• August 14, 2014

"I have been diagnosed with Ulcerative Colitis (Proctitis) for the last 4 years. Lialda has worked best for me with no side effects. I am taking 2 tablets twice daily. For people with Ulcerative Colitis in the distal part of the colon, Lialda will work best. I tried to switch to Apriso 2 years ago only because of the cost of Lialda and had a worse flare-up, which took 6 months to get back to normal with oral steroids and steroid enemas. I am using the Lialda Pharmacy Savings card, which reduces my copay to $10/month."

• Llg...
• May 17, 2018

"I have been taking Lialda for years, and it works, but here’s the thing: I also get migraines to a ridiculous degree, so I was forced to cut back my dose. So for me, at least, the very high dose, or what they call a therapeutic level, is unnecessary. I’m in a maintenance space where I honestly only need it every other day. I usually get the beginnings of a migraine about an hour after I take it, but the migraine doesn’t become full-blown on the lesser dose, but the medicine does its job. Looks like my UC became Crohn’s over time because I also have irritation in my mouth and all sorts of skin spots (look like bug bites but aren’t), and interestingly, when I have a flare of any kind, if I take two single pills for two days in a row, it almost always goes away. Thought I’d say it because the higher doses are completely intolerable for me, but I don’t really need it like that. I use the co-pay assist card, which makes a big difference."

• CLa...
• Taken for less than 1 month
• May 22, 2018

"This caused pancreatitis and almost killed me."