User Reviews for Mesalamine to treat Ulcerative Colitis
Brand names: Lialda, Asacol, Pentasa, Apriso, Canasa, Delzicol, Asacol HD, Rowasa, Zaldyon Canasa Pac Rowasa Sulfite Free …show all brand names
Mesalamine has an average rating of 7.0 out of 10 from a total of 89 ratings for the treatment of Ulcerative Colitis. 58% of reviewers reported a positive experience, while 18% reported a negative experience.
Reviews for Mesalamine
Apriso (mesalamine) "I’ve had UC for 30 years now. Life was hell For the first 15 years and I tried everything that is out there including energy healing and experimental cel therapy in Mexico! I was ready to have my colon removed before I finally learned how to get in remission and stay in remission by watching what I eat. I have not been on any medication for 15 years now. I keep a variety of med handy just in case. Twice I had mild flair-ups and both times I took Apriso and within 5 days I went back to remission and I stopped taking the med again. I stay away from milk, spicy food, alcohol when stomach feels sensitive, certain fruits such as strawberry and cantaloupe and greasy food. Pay attention to what you eat and keep a chart. You’ll be able to pinpoint what irritates your body."
Pentasa (mesalamine) "I was diagnosed with UC in 2018 due to high levels of stress causing serious diarrhea, sharp stomach pain, bloating and bleeding. I got various tests until the doctors were able to diagnose me with UC. Starting off with steroids for a couple weeks, I then began taking 4 tablets daily and the improvements were amazing. I am able to eat any food without any complications. When I find myself stressed out, I do see little flare ups but they go away after a day or two max. I would 100% for anyone to try this medication if you have these symptoms due to stress."
Apriso (mesalamine) "I suffered for almost a year before I was diagnosed with Ulcerative colitis (UC). It got so severe all I did was work and come home and sleep on the bathroom floor. I would make 40-50 trips to the bathroom a day. I just wished I’d die some days. It was truly debilitating. I’m so thankful my employer was very understanding and supportive! I can not take steroids so my options were very limited. My doctor put me on this medication Apriso and it has been life changing for me. The medication is very expensive, but luckily my insurance covers it! When I initially called the pharmacy they told me my cost was over $800 for a 1 month supply, because my insurance denied it. I fixed that issue right away. Out of pocket from a pharmacy is about $30 for a 1 month supply. But I found a home delivery service that had a 3 month supply for only $24!!! Most insurance companies will only cover 1-2 months of this medication so ask. I highly recommend this medication if you have UC."
Pentasa (mesalamine) "Received diagnosed last year of ulcerative colitis when I stopped smoking, 2 months later all the symptoms hit: bloated, pains in the stomach, constipation and lots of blood! I went for a colonoscopy and was diagnosed with ulcerative colitis. At first I was given the rectal foam...I found the process awful, once inserted you couldn’t move otherwise it triggered a bowel movement, also caused awful cramps. I then tried the Pentasa tablets, taking 2 a day for 8 weeks now and what a difference. The bloating and pain in the stomach has gone down loads, bowel movements more regular and much less bleeding. I still get the odd niggly feelings and a small amount of blood so the doctor has recommend to up the does to 4 a day. So far though these tablets have massively improved my ulcerative colitis. I’m in the UK and fortunate enough to have the NHS so I pay £9 for three big boxes. It’s crazy to think people have to pay hundreds for no fault of their own!"
Lialda (mesalamine) "My husband died from taking Lialda. He had been taking it for 3 months and it totally depleted his white blood cells. When he was admitted to the hospital, he was taken to ICU ISOLATION on a Fri. and died Wed. Autopsy confirmed he died from the Lialda!"
Lialda (mesalamine) "I started taking Lialda in April 2015, 4 tablets a day for my ulcerative colitis. After being sick for many months and in and out of the emergency room I was ready for something that would help me get my life back. I was having diarrhea with blood multiple times a day along with abdominal pain and cramps and down to 106 pounds. Lialda started working almost instantly for me. Within a week I was no longer having any loose stools, blood, and my pain level was down 80%. I had some side effects such as headaches, chills, fatigue, and dizziness; a small price to pay for how much Lialda helped me and saved my life. I was able to slowly decrease my dose to 2 tablets a day, then 1, and now none. I gained weight and started to feel more like myself again. For me personally it was a great experience that was worth any side effects that eventually went away after my body was used to the medication. I would definitely recommend Lialda, maybe it can help you like it helped me."
Asacol (mesalamine) "I have had colitis for 20 years. I was prescribed steroids but did not want to take them. I had gas, bloating loose watery foul smelling bowel movements. Up to 20 a day. I started on Asacol 800mg. I took 6 tabs a day. Two in the morning, 2 mid day and 2 at bedtime. I saw no results and was even passing whole tablets...as I know it is common. I almost threw in the towel. At the 3 month mark I had formed stools, and minimal gas and bloating. You have to be patient. Our bowels did not get sick overnight...so you are not going to be cured overnight. 20 years of issues took about 3 months on Asacol. Now I am down to 2 x 800mg tabs maintenance dose. 1 tab in the morning and 1 tab at night. I still have the odd loose bowel movement if I eat greasy food or drink too much coffee. But all and all..well worth it."
Apriso (mesalamine) "I'm a 63 yr. old male, had UC for over 5 years before my second colonoscopy showed the inflammation in my lower sigmoid colon. Diagnosed as mild. Although I had no pain, the symptoms were debilitating (fatigue, joint ache, loose bowel motions (bm) all morning, poor sleep, anxiety, depression, nausea, chills and sensitivity to cold with no fever, bleeding internal hemorroids during bm's, etc). My Dr. put me on Apriso, within 3 weeks my symptoms improved, no more fatigue, normal bm's. Been on it for 6 months and would say my quality of life has improved greatly. I have an occasional mild flare once in while but no where near as bad as without the meds. I find my body wakes me up at about 7 am to use the toilet but the bm's are 3-4 on the stool chart vs. 5-6. Remission is different for everyone. There is no set standard to quantify remission."
Salofalk (mesalamine) "Measalazine Foam enema. Available from NHS in UK so insurance not an issue I have only taken this for a week so it's early to say ... But so far I think it is working better than other formulations. I tried the same brand suppositories which were not effective, pentasa was better but this foam seems to be doing better again.. Probably as my inflammation extends to 20cm. After four days I started to feel better, I had more energy and more regular & solid stools. At first it was hard to keep the enema in, which is still true if I use a double dose as prescribed. It is uncomfortable to take and so far a double pump often leads to a bowel evacuation.. but I'm hoping this improves as the inflammation recedes as stated in the instructions."
Apriso (mesalamine) "I would probably rate Apriso higher if it were not for some side effects. The only medicine that has actually worked to keep the blood and unreal cramps at a distance. It works. only twice have I had symptoms since 11/01/2011, I hope it stays that way. Anyone with ulcerative colitis know's how important this is."
Lialda (mesalamine) "I have been taking Lialdia for 8 weeks. I fought getting started on a prescription as I prefer holistic approaches to healing, but there was way too much stress in my life to be able to focus on that. So I finally attempted a medication and am glad I did. It took about 4 weeks of using it daily. I take 4 tablets in am with food. After 3 to 4 weeks the bathroom frequency went from 6 to 8 visits per day to just in the morning. Since then I have gained 5 pounds so am thrilled about that as well. At first the only side effect was sinus related but that went away after a couple of weeks. The only thing I have since noticed is my hair more easily breaks when washing my hair but thinning hair for now sure beats 6 to 8 bathroom visits. It is still a journey to healing but trying to focus on reducing stress has helped a lot as well. I use a calm app and love it."
Lialda (mesalamine) "I’ve been taking Lialda for 6 years. I started on a very high dose but have reduced it over the years. I do believe it gives me gas, stomach aches, and I often have soft stools and mild cramping. I spoke to my doctor about it and he agrees it is probably the Lialda, but I didn’t want to switch in fear a new drug would not be as effective. I can deal with the side effects I have but I definitely don’t want another flare up. With that said, it works for me but with annoying side effects. Also, the price is ridiculous!!!! For a while I could use coupons but they aren’t available since a generic was introduced. Thank goodness I have insurance, but it’s still high."
Lialda (mesalamine) "Lialda put me in remission for over 12 years. I never experienced any side effects, until a few months ago when Lialda almost killed me. It gave me pancreatitis. My lipase was at 10,000, the normal is 0 to 90. I am extremely lucky."
Asacol (mesalamine) "Had severe bloody diarrhea for a couple months, went away for two years then came back worse. I was then diagnosed with ulcerative colitis. My Dr started me on 6 pills a day of Asacol. Within two weeks I was having completely normal bowel movements again with no pain. I then began decreasing my dosage (doctors orders) and now I am currently on 2 pills a day of 800g. My life is completely back to normal. The only side effect I have is slight dizziness during more stressful times. I have had a couple minor minor flares. I do miss my dosage once in a while but it never seems to affect me as long as I take my next dose. Would recommend Asacol in a heart beat!"
Pentasa (mesalamine) "I began taking Pentasa in 1986 when it was still an experimental drug. I have taken over 150,000 250mg capsules! My UC has been in remission for over 25 years now. I still take six 250 mg capsules daily. For me, Pentasa has been a miracle drug, as I wasn't too far from death in the early 1980's. I just wish it was available as a generic. I am now on Medicare, and the prescription part D plans don't pay well. It will cost me hundreds per month."
Apriso (mesalamine) "I have ulcerative sigmoiditis & proctitis. I couldn't retain rowasa very long. The GE switched me to sulfasalazine, first 4/day which worked for a few months, then 8/day which worked for two-three years. I still had flare-ups a few times per year. Then he upped it to 16/day, but that only worked for about a year. I was having flare-ups all the time, I was tired of taking pills, so I asked my PCP to try me on another drug, Apriso. I was in the middle of a flare-up, so it took a few weeks to kick in. But that's the last flare up I've had. It's 4 capsules only, once per day, and I haven't had a flare-up since I started taking it about 5 years ago. I have not noticed any side effects."
Pentasa (mesalamine) "Age 37, diagnosed with bad UC at 12, recent years only flares up 2-3 times/year. Currently fighting first bout of the year with pentasa suppositories, taking 1-2/day. Has stopped the bleeding and going less frequently BUT awful headaches (as with Asacol/Salofalk foam enemas). Note to self/others who are sick of drugs: I have found (25 yrs in) that it IS possible to be symptom free if you properly and consistently take care of yourself. This means plenty of rest/sleep, camomile tea/water, gentle exercise, meditation (mindfulness is a cliché/buzzword but there's a lot to it), steamed veggies/rice, avoiding sugar/alcohol/dairy/caffeine (going gluten-free can help some people too) ... I intend to cure myself completely one of these days!!"
Lialda (mesalamine) "Initially when I started taking Lialda, it worked. However, I ignored the side effects because the medication was working well. I pushed aside all the warnings in my body until my symptoms became severe. I had loss of hair, muscle weakness, fatigue, anxiety, and the final straw was the rash that overcame my body. The doctor did not believe it was due to the Lialda, because I was on it for 4 years, however, I know my body better then the doctor and chose to stop taking it. After 2 weeks I felt like a new person. I am now on Balsalazide Disodium, and for now it seems to be working fine. Listen to your body despite what the doctor says. Ignoring the warnings signs my body was experiencing was ignorance on my part and will never happen again."
Lialda (mesalamine) "It worked for me initially but then stopped working. I didn't really notice any side effects. Have been on 4 pills daily but will need to be switch to something else. I was getting my medication shipped free to my house through the manufacturer. If you qualify for their program you get approved within 2 days."
Salofalk (mesalamine) "I got UC 3 years after quitting smoking at age 70. As I was always healthy before, I was rather dismayed to be told I have ulcerative colitis. I take the enema and find it difficult to use as well as a nuisance. I do not "go" as often and there is no more blood, but I am tired, have headaches, bloating, flatulence, and cramps---to the extent that I now get very little sleep. Before , my symptoms were in the morning. Now, I feel urgency to go all day---as well as most nights. Won't say I'm sorry I quit smoking. I'll just say I'm glad I smoked as long as I did. Hope others have better experiences with this drug."
Asacol (mesalamine) "I was diagnosed with ulcerative colitis in April of 2011. After numerous visits with my doctor and exploratoy scopes, my gastroenterologist prescribed Asacol last September(2012) and he gave me a discount card to use when I initially filled my prescription for Asacol, so the monthly precirptions have been FREE! Since taking Asacol on a regular basis, my last scope revealed that ALL of my ulcertations have healed! Thank you, Asacol! You've changed my life!"
Pentasa (mesalamine) "2yrs ago very bad colitis spent 7 days in hospital drugs xrays etc I responded well to drugs and I am now on 3 pentasa in the morning and 3 at night, with no side affects and I do eat any thing I want. At the time I went to hospital I was 74 years old and it came on over a period of 2 months in the end I lived on the toilet I did see a specialist and he send me straight to the hospital he said I was gravely ill .I am good now."
Apriso (mesalamine) "I am 24 years old and I have secrete ulcerative colitis. I recently tried apriso for the second time this year and had the same results as the first attempt. Horrible nausea, cramps and insanely urgent diarrhea. Up all night. Couldn’t go to work, couldn’t function. I had better control and management without the drug."
Apriso (mesalamine) "I’m so happy with the results of this drug. I don’t have too worry about sitting on the toilet all day. I was diagnosed with IBS (irritable bowel syndrome) for years until I finally got the right dr. Although I still have the symptoms from time to time, nothing like the years before. I recommend this drug to anyone who suffers from any type of inflammatory bowel disease."
Apriso (mesalamine) "I took Apriso for a year and it was successful in treating my ulcerative colitis. I was then switched to Asacol HD. My prescription plan eventually decided Asacol HD was too expensive and I was put back on Apriso. This second course on Apriso was not successful. It did nothing to alleviate my Ulcerative Colitis symptoms, and produced a number of unpleasant side affects - the worst of which was moderate-to-severe stomach cramps around the clock - even waking me from sound sleep. Coupled with an incredibly dry mouth that invited multiple canker sores to erupt in my mouth, these symptoms made eating anything very unpleasant; I lost 15 lbs in the three weeks I was on the Apriso. As soon as I stopped taking it, the cramping and canker sores disappeared."
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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